Ese umwana wawe ntagorwa no guhagarika kuva amaraso? Reka tuvuge kuri hemophilia!

Nk'umubyeyi cyangwa se, nubwo umwana wawe yakomereka gato cyangwa akava amaraso, wumva ufite ubwoba bwinshi n'impungenge, sibyo? Ni ibisanzwe cyane. Ariko ku bana bamwe, ndetse no ku gikomere gito, kuva amaraso bishobora kudahagarara vuba nk'uko bisanzwe. Hari igihe bashobora kuva amaraso nta mpamvu na mba. Impamvu nyamukuru ibi bishobora kuba indwara yitwa hemophilia. Kumva iri zina bishobora guhita bigutera ubwoba, ariko ntugahangayike. Reka tuvuge kuri byose mu buryo bworoshye kandi busobanutse uyu munsi. Nzasobanura ibi bintu mu buryo ushobora gusobanukirwa.

Hemophilia ni iki?

Mu magambo make, hemophilia ni indwara idakunze kugaragara, ivukanwa ituma amaraso yacu yibumba nabi. Urabizi, iyo tugize imvune nto, nk'aho twakomeretse icyuma, amwe mu maraso arahagarara kuko poroteyine zimwe na zimwe mu maraso yacu (zitwa ibintu bituma amaraso yibumba ) zihurira hamwe zigafata igisebe, bigatuma amaraso ahagarara. Ni nk'agakingirizo gato "gafunga" igisebe.

Rero, abana bafite hemophilia bafite urugero ruto rw'ibi bintu bituma amaraso adakora neza, cyangwa ntibikore neza. Niyo mpamvu bifata igihe kirekire kuruta ibisanzwe kugira ngo bahagarike kuva amaraso nubwo byaba ari imvune nto, cyangwa rimwe na rimwe batangira kuva amaraso byoroshye. Kubwibyo, nk'umubyeyi w'umwana ufite hemophilia, ni ngombwa cyane kumenya uburyo bwo gucunga neza kuva amaraso iyo bibaye .

Ibi bishobora kugutera impungenge cyane. Ushobora kuba urimo kwibaza uti "Mwana wanjye, ibi bizambaho?" Ariko ibuka ko, hamwe n'ubuvuzi bugezweho muri iki gihe, ndetse n'umwana urwaye hemophilia ashobora kubaho ubuzima busanzwe kandi buzira umuze uko bishoboka kose. Ikintu cy'ingenzi ni uko wowe n'umuryango wawe musobanukiwe neza iyi ndwara n'uburyo bwo kuyirwanya.

Ni gute wavura kuva amaraso?

Iyo umwana ufite hemophilia ava amaraso, ubuvuzi buterwa n'imiterere y'amaraso ava, ubukana bw'imvune, n'aho ava amaraso aturuka. Akenshi, kuva amaraso guto biturutse ku bikomere bito bishobora gukemurwa mu rugo. Ariko, imvune zikomeye zisaba kujya kwa muganga, ikigo gishinzwe kuvura hemophilia, cyangwa icyumba cy'ubutabazi bw'ibanze mu bitaro.

Noneho reka turebe icyo twakora mu bwoko butandukanye bwo kuva amaraso. Muganga wawe azagusobanurira ibi byose mu buryo burambuye. Ariko ni ingenzi cyane kumenya ibi bintu by'ibanze.

Ni iki wakora ku bikomere?

Ni ibisanzwe kugira udusebe duto mu gihe ukina, wiruka cyangwa usimbuka. Ku mwana urwaye hemophilia, utu dusebe dushobora kuba twinshi kandi twijimye.

• Tekereza umwana wawe yaguye ku ntebe ubwo yakinaga agakomereka ukuguru. Niba ibyo bibaye, shyira agapaki k'urubura gapfunyitse mu gitambaro ku gikomere mu gihe cy'iminota 10. Bikore buri masaha abiri. Ntuzigere ushyira urubura ku ruhu, sibyo? Bishobora kwangiza uruhu.
• Ariko, vugana n'itsinda ryita ku barwayi muri ibi bihe:
• Niba igikomere kibabaza cyane.
• Niba igikomere gisa n'aho kirimo kwiyongera.
• Niba igikomere kigorana kwimura urugingo, cyangwa niba gitera ububabare.

Bite ho niba ibikomere byo mu kanwa biva amaraso? (Urumva amaraso mu kanwa)

Abana bagira impungenge gato iyo bafite igikomere gito mu kanwa, urugero, gukomereka ku ishinya mu gihe boza amenyo, cyangwa gukomereka ku rurimi mu gihe barya, maze amaraso akava. Dore icyo wakora muri icyo gihe:

• Shyira igitutu ku gace kava amaraso. Ibi bivuze kugipfukamisha ukoresheje agatambaro gasukuye cyangwa igitambaro mu gihe gito.
• Ushobora kandi gushyiramo agace k'urubura cyangwa agace k'urubura aho hantu. Ubukonje buzagabanya imiyoboro y'amaraso kandi bugabanye kuva amaraso.
• Iyo amaraso amaze guhagarara, irinde guha umwana wawe ibiryo bikomeye kandi bikarishye (urugero: biscuits, chips) n'ibiryo bishyushye n'ibinyobwa, kuko bishobora kongera kuva amaraso.
• Niba kuva amaraso bidahagaze nyuma y'iminota 20, hamagara itsinda ry'abaganga.

Ku bikomere bito n'ibikomere

Akenshi dushobora kwita ku mvune nto nk'izi mu rugo, ariko ibi bintu bigomba gukorwa neza.

• Ubwa mbere, oza neza ahantu haciwe cyangwa hakosowe n'amazi.
• Hanyuma, shyira igitutu ku gikomere ukoresheje agace k'agatambaro kanduye, igitambaro gisukuye, cyangwa plaster.
• Niba kuva amaraso bidahagaze nyuma y'iminota 20, hamagara muganga wawe ako kanya. Azakubwira icyo wakora. Ushobora gukenera:
• Uburyo bwo gusimbuza ibintu butangwa mu rugo. Ibi bikubiyemo guha umwana umuti ugabanya amaraso udafite akamaro mu mubiri we nk'urushinge. Muganga n'umuforomo bazakwigisha uburyo bwo kuwutanga.
• Bitabaye ibyo, muganga azakubwira ko umujyana mu kigo cyita ku ndwara ya hemophilia cyangwa mu cyumba cy’ubutabazi bw’ibanze cy’ibitaro.

Bite ho niba habayeho gukomereka gukomeye kandi kuva amaraso menshi?

Iki ni ikibazo gikomeye. Ntugatinye, ariko kurikiza izi ntambwe vuba cyane.

1. Ubwa mbere, genzura kuva amaraso vuba bishoboka:

• Agace k'agatambaro gasukuye, igitambaro gisukuye, cyangwa igitambaroShyira igitutu cyiza ku gikomere.
• Niba agatambaro cyangwa igitambaro byashyizwe ku gikomere bitose amaraso, ntukabikureho, ahubwo shyira ikindi hejuru hanyuma ukomeze gushyiramo igitutu.
• Niba bishoboka, shyira ukuboko cyangwa ukuguru kwakomeretse hejuru y'uburebure bw'umutima. Ibi bishobora kugabanya kuva amaraso gato.

2. Hanyuma, hamagara muganga wawe vuba kandi ukurikize amabwiriza ye:

• Birashoboka cyane ko bazagusaba uburyo bwo gusimbuza factor vuba bishoboka .
• Bamubwira kumujyana kwa muganga vuba, ku kigo cyita ku ndwara ya hemophilia, cyangwa mu cyumba cy’ubutabazi bw’ibanze cy’ibitaro.

Muri iki gihe, ni byiza kudapfusha ubusa isegonda na rimwe. Hamagara muganga ako kanya kandi ukore ibyo akubwira.

Bite ho niba hari ukekwaho kuva amaraso mu ngingo cyangwa mu mitsi? (Bishoboka ko kuva amaraso mu ngingo cyangwa mu mitsi)

Ibi nabyo ni ingenzi cyane. Hari igihe, nubwo nta gikomere kigaragara abana bafite hemophilia bashobora kuva amaraso mu ngingo zabo (urugero: mu mavi, mu nkokora, mu tuguru) cyangwa mu mitsi minini (urugero: mu matako, mu maboko). Ibi bishobora kubabaza cyane kandi bigatera kwangirika kw'ingingo igihe kirekire.

• Niba umwana wawe adashaka kwimura ingingo, niba hari kubyimba, gutukura, cyangwa ubushyuhe muri ako gace, cyangwa niba umwana wawe yinubira ububabare muri ako gace, hamagara muganga wawe vuba.
• Kurikiza amabwiriza ya muganga neza. Akenshi azakubwira gukora ibi bikurikira:
• Tanga uburyo bwo gusimbuza ibintu vuba bishoboka.
• Shyira urubura (upfunyitse mu gitambaro) ahantu hari ububabare.
• Tanga umuti ugabanya ububabare neza . Urugero, ushobora gutanga acetaminophen (urugero: Tylenol).

Icy'ingenzi cyane: Ntugatange imiti igabanya ububabare nka Aspirine , Ibuprofen (urugero: Advil, Motrin), na Naproxen Sodium (urugero: Aleve) . Iyi miti ishobora gutuma amaraso arushaho kwiyongera!

• Zingira witonze ingingo ukoresheje bande cyangwa ACE wrap kugira ngo uyishyigikire.
• Hita ujyana uwo muntu kwa muganga, ikigo cyita ku ndwara ya hemophilia, cyangwa mu cyumba cy’ubutabazi bw’ibanze cy’ibitaro.

Bite ho niba hari igikomere ku mutwe, mu gituza, mu ijosi, cyangwa mu nda? (Igikomere ku mutwe, mu gituza, mu ijosi, cyangwa mu nda)

Ubwo bwoko bw'imvune ntibugomba gufatwa nk'ikintu cyoroshye. Ni akaga cyane kuko bushobora gutera kuva amaraso imbere mu mubiri. Iyo umwana aguye, agakubita ikintu, cyangwa agakubita umutwe, igituza, ijosi, cyangwa inda cyane,Nubwo nta gikomere gikomeye kigaragara, hamagara muganga ako kanya.

• Kurikiza amabwiriza ya muganga neza. Wenda:
• Batanga inama yo kuvurwa byihuse mu rugo .
• Bazakubwira ko umujyana mu cyumba cy’ubutabazi bw’ibanze ku bitaro ako kanya, cyangwa ugahamagara imbangukiragutabara .

Mu bihe nk'ibi, gufata ingamba zihuse bishobora kurokora ubuzima bw'umwana.

Ni ryari ngomba kujyana umwana wanjye mu cyumba cy’ubutabazi bw’ibanze?

Hari igihe bidakwiye kuvura umwana mu rugo cyangwa gutegereza guhamagara muganga. Muri ibyo bihe , umwana agomba guhita ajyanwa mu cyumba cy’indembe cy’ibitaro biri hafi ye, nta gutinda.

Dore zimwe muri izo manza:

• Iyo ubifashe nk'uko muganga yabivuze, ariko amaraso ntakomeze kuva.
• Iyo umwana ababara cyane mu gifu .
• Iyo inkari z'umwana zihindutse umutuku cyangwa zikagira ibara nk'iry'icyayi (ibi bishobora kuba ikimenyetso cyo kuva amaraso imbere mu mubiri).
• Niba umwana wawe afite amaraso mu mwenda we, cyangwa niba umwijima we ari umukara wijimye (nk'ikaburimbo).
• Niba umwana afite umutwe ukomeye, kuruka, isereri, cyangwa urujijo (ibi bishobora kuba ikimenyetso cy'amaraso ava mu bwonko).
• Iyo umwana agize impanuka ikomeye (urugero: kugwa uvuye hejuru, impanuka y'imodoka).

Niba umwana wawe afite kimwe muri ibi bimenyetso, mujyane mu cyumba cy’indembe cy’ibitaro biri hafi yawe vuba vuba, bidatinze. Gufata ingamba vuba muri ibyo bihe ni ingenzi cyane ku buzima bw’umwana.

Ubutumwa bwo kujyana mu rugo

Sawa, reka noneho twibutse bimwe mu bintu twaganiriyeho tubona ko bizaba ingenzi kuri wowe.

• Hemophilia ni indwara aho amaraso y'umwana adafata neza. Ariko, ibi bishobora kugenzurwa iyo habayeho imicungire myiza.
• Ni ingenzi cyane kumenya icyo wakora mu gihe ugize ikibazo cyo kuva amaraso. Nanone, menya neza ko abandi bagize umuryango wawe (uwo mwashakanye, abana bakuru, ba nyogokuru na ba nyirakuru) babizi.
• Komeza kugirana umubano mwiza n'umuganga uvura umwana wawe. Ntutinye kubaza ikibazo cyangwa impungenge ufite. Korana na muganga kugira ngo utegure gahunda yo kuvura umwana wawe.
• Buri gihe shyira ibikoresho bikenewe mu rugo, nk'ibice bigabanya ubushyuhe, ifu idafite ubushyuhe, n'ibipfuko.
• Ntugatinye guhamagara muganga cyangwa kujya kwa muganga, cyane cyane niba ufite gushidikanya cyangwa ubwoba ku kintu runaka.
• Amaherezo, ntabwo uri wenyine.Itsinda ry’abaganga, barimo abaganga, abaforomo, n’inzobere mu bigo bivura hemophilia, bahora biteguye kugufasha no kuyobora wowe n’umwana wawe.

Kubana n'indwara ya hemophilia bishobora kugorana, ariko izere ko umwana wawe aramutse amenye neza, amwitaho kandi agahabwa ubufasha ku gihe, ashobora kubaho ubuzima bwiza, burangwa n'ibyishimo, kandi bushimishije nk'abandi bana bose.

Hemophilia , kuva amaraso, ubuzima bw'abana, ubutabazi bw'ibanze, kuvura amaraso mu buryo bwihutirwa