Ese umwana wawe afite ikibazo mu bwonko? Reka twige kuri Schizencephaly!

Ese ufite ubwoba cyangwa gushidikanya ku mikurire y'umwana wawe? Hari igihe turushaho guhangayika iyo twumvise amazina mashya aturutse ku baganga, si byo se? Uyu munsi tugiye kuvuga ku ndwara idakunze kugaragara mu bwonko ushobora kuba utari warigeze wumva, ariko ikaba ari ngombwa kuyimenya. Iyi yitwa Schizencephaly.

Schizencephaly ni iki?

Mu magambo make, schizencephaly ni ikibazo cy’ubwonko kigaragara igihe umwana avuka, ni ukuvuga iyo umwana aje muri iyi si. Ubwonko bwacu bufite ibice bibiri byitwa hemispheres zo mu bwonko , mu buryo busobanutse neza, uruhande rw'iburyo n'uruhande rw'ibumoso. Ibi ni ibice bigenzura ubuhanga bwacu bwo gukora imitsi nko kuvuga no kugenda, uburyo dutekereza, ni ukuvuga imikorere y'ubwenge , amarangamutima yacu, kumva , no kubona , n'ibindi bintu byinshi by'ingenzi. Muri schizencephaly, ikirenge cyangwa umwobo (umuyoboro) biba muri ibi bice by'ubwonko, ni ukuvuga muri ibi bice by'ubwonko. Iki gice gishobora kuba ku ruhande rumwe rw'ubwonko (`uruhande rumwe`), cyangwa gishobora kuba ku mpande zombi (`uruhande rumwe`).

Tekereza, hari amazi yitwa cerebrospinal fluid irinda kandi igatunga ubwonko bwacu. Nanone, hari ubwoko bw'ingingo yitwa grey matter . Ibi bifasha kugenzura ingendo zacu, kwibuka, n'amarangamutima. Noneho, muri icyo cyuho, aya mazi yo mu bwonko n'ay'imvi byuzuye. Ariko, iyo ibi byirundanyije cyane, ibibazo biravuka, ni ukuvuga ibimenyetso bitangira kugaragara. Urugero, gukura k'umwana bishobora gutinda , ubumuga bushobora kubaho, cyangwa ingano y'umutwe ikaba nto .

Ni ubuhe bwoko bw'ingenzi bwa schizencephaly?

Hari ubwoko bubiri bw'ingenzi bw'iyi ndwara, Schizencephaly.

• Kurekura iminwa: Muri iki gihe, ikirenge gitangira kuva inyuma y'ubwonko kikagera mu miyoboro y'amaraso , mu byumba biri mu bwonko byuzuyemo amazi yo mu bwonko. Ibi bivuze ko ikirenge kiba kinini kandi cyimbitse.
• Kurwara iminwa ifunze: Muri ubu bwoko, ikirenge kiba kigufi gato. Ntikigera no mu miyoboro y'amaraso. Hari igihe ubu bwoko bushobora kuba budafite ibimenyetso.

Iyi ndwara ikunze kugaragara gute?

Schizencephaly mu by'ukuri ni indwara idakunze kubaho cyane . Si ikintu kibaho ku bantu benshi. Imibare igaragaza ko yibasira abana bagera kuri 1.5 mu bana 100.000 bavuka muri Leta Zunze Ubumwe za Amerika. Mu Bwongereza, yibasira abana bagera kuri 1.48 mu bana 100.000. Bityo rero urabona ukuntu ibi ari ibintu bidakunze kubaho.

Ni ibihe bimenyetso bya Schizencephaly?

Ibimenyetso by'iyi ndwara bishobora gutandukana bitewe n'ingano n'aho igisebe cy'ubwonko giherereye. Dore bimwe mu bimenyetso bikunze kugaragara:

• Ingano y'umutwe ni ntoya ugereranije n'ibisanzwe.
• Intege nke z'imitsi cyangwa kubura imbaraga (hemiparesis). Bisa nkaho urwego rw'umubiri rwacitse intege.
• Gukomera cyangwa gukomera kw'imitsi (`(spasticity)`).
• Kurema : Ibi bivuze ko igice cyangwa umubiri wose byamugaye.
• Indwara z'igicuri , ni ukuvuga ibicurane .
• Ubwinshi bw'amazi yo mu bwonko (CSF) mu bwonko bwitwa hydrocephalus .
• Impinduka mu mwanya w'amaso , urugero nka strabismus .

Byongeye kandi, schizencephaly ishobora gutera abana gutinda mu mikurire yabo . Ibi bivuze ko aba bana bafata igihe gito kugira ngo bige kandi bakore ibintu umwana asanzwe atangira gukora ku myaka runaka.

• Igendere wenyine, ukore ku bintu (ubuhanga buhanitse kandi bwiza bwo gukoresha imiyoboro y'umubiri).
• Vuga kandi uganire n'abandi (kuvuga no kuvuga).
• Menya kandi wibuke ibintu bishya (ubuhanga bwo gutekereza).
• Kina kandi ubeho neza n'abandi (ubuhanga mu mibanire n'abandi no mu byiyumvo).

Ariko ibuka ko bamwe mu bana bafite schizencephaly yavuzwe haruguru bashobora kutagaragaza ibimenyetso .

Ni izihe mpamvu zitera indwara ya Schizencephaly?

Mu by'ukuri, impamvu nyayo ya Schizencephaly ntabwo izwi . Nyamara ubushakashatsi bwerekana ko ishobora guterwa no guhura n'ibintu bimwe na bimwe mu gihe umwana akura .

• Imiti imwe n'imwe , urugero, imiti igabanya amaraso nka Warfarin.
• Ibiyobyabwenge bimwe na bimwe , urugero `(Cocaine)`.
• Hari ubwandu bwa virusi , urugero nka `(virusi ya Zika)` cyangwa `(virusi ya Cytomegalo)`.
• Bishobora kandi guterwa n'ingorane zimwe na zimwe zibaho mu gihe cyo gupimwa cyitwa "Amniocentesis" mu gihe cyo gutwita.

Byongeye kandi, impinduka mu miterere y'uturemangingo (mutations) zishobora no kugira ingaruka ku buryo ubwonko bw'umwana uri mu nda bukura. Impinduka mu miterere y'uturemangingo ni impinduka muri ADN yacu. Izi mpinduka zishobora kubaho ku buryo butunguranye, bivuze ko nta muntu n'umwe mu muryango wigeze agira iyi ndwara mbere, ariko ishobora kubaho mu buryo butunguranye. Ni gake cyane, iyo ndwara ishobora guhererekanywa kuva ku gisekuru kugeza ku kindi.

Ni nde uri mu kaga gakomeye ko kugira iyi ndwara?

Iyo hari ibintu bimwe na bimwe bibaye mu gihe cyo gutwita, ibyago byo kubyara umwana ufite schizencephaly bishobora kwiyongera gato.

• Indwara yo gukoresha ibiyobyabwenge.
• Gundura virusi (urugero: virusi ya Cytomegalovirus cyangwa virusi ya Zika).
• Ogisijeni nke mu maraso (hypoxia).
• Ikizamini cya amniocentesis .
• Guhura n'ihungabana cyangwa gukomereka (Ihungabana) .
• Gukoresha umuti "(Warfarin)" watanzwe na muganga.

Bivugwa kandi ko imyaka y'umubyeyi, iyo ari munsi y'imyaka 25 , yongera ibyago kuri iyi ndwara.

Ese hari izindi ndwara zishobora kubaho kuri schizencephaly?

Yego, rimwe na rimwe iyo abaganga basuzumye indwara ya schizencephaly, bashakisha n'izindi ndwara. Dore ingero nke:

• Indwara yo mu bwonko (`(Indwara yo mu bwonko)`)
• Inkomoko ya corpus callosum ( igice cy'ubwonko gisa n'ikiraro gihuza ibice bibiri by'ubwonko)
• Septo-optic dysplasia ( indwara itera ibibazo byo kutabona no kugira ibibazo by'imisemburo)
• Ibisebe by'ibishishwa bya Arachnoid ( ibishishwa byuzuye amazi hagati y'uturemangingo dutwikiriye ubwonko)

Ni gute wasuzuma iyi ndwara?

Akenshi, abaganga bashobora kubona ibimenyetso bya schizencephaly mu gihe cyo gupima umwana nyuma y'ibyumweru 20 atwite. Ariko, gusuzuma neza umwana bigaragazwa nyuma yo kuvuka . Ibi bikorwa hakoreshejwe MRI (Magnetic Resonance Imaging) cyangwa CT (Computed Tomography) . Ibi bipimo bishobora kwerekana neza ingano y'ubwonko n'ubwoko bwabwo.

Byongeye kandi, muganga w'umwana wawe ashobora no gutegeka ko hakorwa ikizamini cy'uturemangingo . Ibi bizareba impinduka zose muri ADN zishobora kuba zitera iyo ndwara.

Ni ubuhe buryo bwo kuvura indwara ya Schizencephaly?

Intego nyamukuru yo kuvura schizencephaly ni ukugenzura no kugabanya ibimenyetso , kuko atari indwara ishobora gukira burundu. Uburyo bwo kuvura burimo:

• Gutanga imiti yo kwirinda indwara y'igicuri .
• Indwara yitwa hydrocephalus , iyo amazi yirundanyije mu bwonko, isaba kubagwa kugira ngo umuntu ashyiremo shunt cyangwa umuyoboro . Ibi biyobya amazi arenze urugero.
• Hari igihe kubagwa bikorwa kugira ngo bigabanye umuvuduko uterwa n'amazi menshi mu bwonko.
• Uburyo bwo kuvura nko kuvura umubiri , kuvura indwara z'akazi, cyangwa kuvura indwara zo mu mutwe bishobora gufasha cyane mu kunoza ubushobozi bw'umwana.
• Bitabira gahunda z'uburezi ziterwa inkunga n'ishuri.

Ese hari ingaruka mbi zikomoka ku buvuzi?

Ni byiza kuganira na muganga wawe ku ngaruka mbi zo kuvurwa na schizencephaly. Hari ingaruka mbi zitandukanye zishobora kubaho haba mu kubagwa no mu miti. Izi ngaruka zizatandukana bitewe n'ubwoko bw'ubuvuzi wowe cyangwa umwana wawe muhabwa.

Ni iki kizere cy’umuntu urwaye schizencephaly?

Uko umuntu urwaye schizencephaly ahagaze biratandukanye cyane bitewe n'ingano n'aho ibisebe byo mu bwonko biherereye . Hari abantu bashobora kugira ibisebe bike gusa, bishobora kutagira ibimenyetso kandi bikabaho mu buzima busanzwe. Ariko, abandi bashobora kugira ibisebe binini, bishobora gutera ibimenyetso byinshi kandi bigasaba ubufasha bw'ubuzima bwabo bwose .

Bite se ku gihe umuntu amara?

Schizencephaly ntabwo igira ingaruka ku buzima bwawe . Ni ukuvuga ko idakugabanya igihe cyo kubaho. Ariko, zimwe mu ngorane ziterwa n'iyi ndwara, nko gupfukama mu buryo butagira ingaruka cyangwa hydrocephalus, zishobora gushyira ubuzima mu kaga .

Ese iki kibazo gishobora kwirindwa?

Mu by’ukuri, nta buryo bwo kwirinda indwara ya schizencephaly buri gihe. Kubera ko hari impamvu zimwe na zimwe zidashobora kugerwaho. Ariko, wiyitaho neza mu gihe utwite , ushobora kugabanya ibyago byo kugira iyi ndwara ku rugero runaka.

• Jya kwa muganga buri gihe kandi wisuzumwe.
• Fata ingamba zikenewe kugira ngo wirinde kwandura indwara .
• Vugana na muganga wawe ku miti urimo gufata ubu. Hari imiti idakwiye mu gihe utwite.
• Irinde burundu ibintu byangiza umwana uri mu nda, nk'ibiyobyabwenge.
• Byaba byiza kandi uhuye n'umujyanama mu by'imiterere y'umubiri kugira ngo umenye ibyago byo kurwara indwara y'umubiri.

Ni ryari ukwiye kujya kwa muganga?

Niba wowe cyangwa umwana wawe mufite kimwe muri ibi bimenyetso, hita ubonana na muganga:

• Impinduka mu mitsi (gufungana cyangwa intege nke).
• Niba udashobora kwimura igice cy'umubiri wawe (nk'ubumuga).
• Iyo umwana atinze kugera ku ntego z'iterambere zijyanye n'imyaka ye.

Icy'ingenzi kurushaho: Niba wowe cyangwa umwana wawe mufite igicuri, hamagara Ishami ry'Imyuga rya Suwaseriya ryo mu 1990 cyangwa ujye ku bitaro biri hafi yawe.

Ni ibihe bibazo ngomba kubaza muganga wanjye?

Iyo umenye ko umwana wawe afite indwara ya Schizencephaly, ushobora kuba ufite ibibazo byinshi. Ni byiza kubaza muganga wawe ibintu nk'ibi:

• Ni ubuhe bwoko bwa schizencephaly umwana wanjye afite?
• Nkwiye gute gushyigikira umwana wanjye?
• Ni izihe ngorane twagombye kumenya cyane cyane?
• Ese umwana wanjye akeneye kubagwa?
• Ni ubuhe buryo bwo kuvura usaba?
• Ese hari ingaruka mbi zikomoka ku buvuzi?
• Ese hari amatsinda yo gufasha ababyeyi bita ku bana nk'aba?

Ibintu byo kwibuka muri make

Ni ibisanzwe kumva uremerewe iyo umenye iby'iyi ndwara idasanzwe yo mu bwonko, schizencephaly, ndetse niba wowe, umwana wawe, cyangwa undi muntu ukunda ayirwaye. Schizencephaly n'uko ikugiraho ingaruka biratandukanye bitewe n'ingano y'ubwonko bw'ubwonko. Ushobora kuba nta bimenyetso na gato ufite, cyangwa ushobora gukenera ubufasha mu buzima bwawe bwose. Iyi ndwara ntabwo igira ingaruka ku buzima bwawe, kandi ntabwo ibangamira ubushobozi bwawe bwo kugera ku ntego zawe za buri munsi. Ariko, hari ibintu bimwe na bimwe bishobora kugorana kurusha ibindi. Itsinda ry'abaganga rishobora kugufasha kumenya byinshi kuri iyi ndwara no kuganira ku buryo bwo kuvura bushobora kugufasha kumva umeze neza. Ntukiyumve uri wenyine, kandi ubone ubufasha ukeneye.

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` Schizencephaly, gucika k'ubwonko, indwara z'ubwonko, indwara z'imyororokere, indwara z'abana, gutinda mu mikurire, igicuri, hydrocephalus, indwara z'uturemangingo