Vamwe vedu tingave tine mamwe matambudziko ehutano atinozvarwa nawo. Mamwe acho haawanzoitiki. Asi nekuda kwesainzi yekurapa yanhasi, takwanisa kudzora akawanda ematambudziko aya uye kurarama hupenyu hwakajairika. Carglumic Acid mushonga unokurudzirwa navanachiremba kune munhu ane chirwere chemajini chisingawanzoitiki, uko chinhu chine chepfu chinonzi ammonia muropa chinowedzera. Ngatitaurei nezvazvo nhasi.
Carglumic Acid mushonga werudzii?
Muchidimbu, mushonga uyu unonzi Carglumic Acid unoshandiswa kurapa zvirwere zvinonzi Urea Cycle Disorders (UCDs) .
Funga nezvemiviri yedu sefekitori hombe. Mushure mekunge muviri washandisa mapuroteni atinodya, imwe yetsvina inosara iammonia . Ammonia iyi ine chepfu zvikuru kumiviri yedu, kunyanya uropi. Mumunhu ane hutano, urea cycle inoshandura ammonia iyi ine chepfu kuita chinhu chisina njodzi chinonzi urea uye yobva yaiburitsa muweti.
Zvisinei, mumunhu ane chirwere cheurea cycle disorder (UCD), maitiro aya haaitike nemazvo. Nekuda kweizvozvo, ammonia ine chepfu inoungana muropa pachinzvimbo chekubviswa mumuviri. Izvi zvinonzi hyperammonemia . Ichi chinogona kuva chirwere chine njodzi zvikuru.
Ndipo panobva mushonga uyu unonzi Carglumic Acid wava kubatsira. Mushonga uyu unoshanda nekubatsira kutenderera kweurea kusiri kushanda zvakanaka uye kuderedza huwandu hweammonia muropa. Izvi zvinobatsira kuderedza matambudziko makuru ehutano (akadai sekukuvara kwehuropi) anogona kukonzerwa nehuwandu hwakawanda hweammonia.
Chinhu chinonyanya kukosha: Uyu hausi mushonga wechirwere. Zvisinei, mushonga unokosha zvikuru unogona kubatsira kudzora chirwere ichi nekuderedza njodzi dzinoenderana nacho.
Zvinhu zvekuudza chiremba wako usati watora mushonga
Chiremba asati akupe mushonga uyu, achakubvunza mibvunzo mishoma. Unofanirawo kujekesa zvinhu izvi.
- Kana uine allergy kuCarglumic Acid, chero mimwe mishonga, chikafu, dhayi dzechikafu, kana mishonga yekuchengetedza .
- Kana uine pamuviri kana kuti uri kuedza kubata pamuviri .
- Kana uri amai vari kuyamwisa mwana wako .
Zvakakosha zvikuru kuti muve vakachengeteka kupa ruzivo urwu kuna chiremba wenyu.
Ndingashandisa sei mushonga uyu chaizvo?
Ichi ndicho chikamu chakakosha chechinyorwa chino. Nzira yekushandisa mushonga uyu yakakosha zvikuru. Saka, yeuka matanho aya nokungwarira.
| Matanho | Zvekuita |
|---|---|
| 1. Kusarudza mvura | Mvura yakachena chete ndiyo inofanira kushandiswa kunyungudutsa piritsi. Zvinorambidzwa zvachose kushandisa chero chimwe chinwiwa (mukaka, chinwiwa chemichero) kana chikafu (mupunga, yogati) pachinangwa ichi. |
| 2. Kugadzirira chimedu | Usamedze, kutsenga, kana kupwanya mapiritsi aya ese . Inwa piritsi rimwe chete kana hafu sezvakarairwa nachiremba wako. |
| 3. Kunyunguduka | Nyungudutsa huwandu hwakatarwa hwemapiritsi (semuenzaniso piritsi rimwe chete kana hafu yepiritsi) mumvura inosvika 2.5 ml (inenge hafu yeteaspoon) . Inwai nekukurumidza mushure mekunyungudika. |
| 4. Kutora mushonga wose | Mapiritsi aya haanyungudike zvachose mumvura. Zvidimbu zvichena zvinosara. Saka, mushure mekunwa mushonga, wedzera imwe mvura mukapu imwe chete, usuke zvakanaka, uye unwe mvura iyoyo zvakare . Ndipo chete panobva papinda mushonga wese mumuviri. |
Kana ikapihwa vana
Mushonga uyu unogona kunyorerwa nachiremba mumamiriro ezvinhu akasiyana, kunyangwe kune vacheche nevana. Zvisinei, sezvo une matanho akakosha ekudzivirira, mirairo yekurapa inofanira kutevedzwa nemazvo.
Ko kana ndikarasikirwa nemushonga mumwe chete?
Kana ukarasikirwa nedosi, inwa nekukurumidza sezvaunoyeuka. Zvisinei, kana yava nguva yekutora dosi yako inotevera, svetuka dosi yawakarasikirwa nayo wotora dosi yako inotevera panguva yakatarwa. Usambofa watora dosi yakapetwa kaviri.
Ko kana mushonga wacho ukawedzera?
Kana uchifunga kuti watora mushonga wakawanda kupfuura wawakanyorerwa, enda kuchipatara chiri pedyo neEmergency Department (ETU) nekukasika. Kana, taura neNational Poisons Information Centre paColombo National Hospital.Fonera uwane mazano.
Ndezvipi zvingakonzera migumisiro yakaipa?
Kufanana nemishonga chero ipi zvayo, Carglumic Acid inogona kukonzera mamwe matambudziko. Zvakakosha kuziva izvi.
| Kupatsanura migumisiro yakaipa | |
|---|---|
| Migumisiro yakakomba inofanira kuziviswa kuna chiremba nekukasika | |
Kurwara Kwakanyanya: Izvi hazviwanzoitiki, asi zvine njodzi zvikuru.
| |
| Migumisiro isingawanzova nengozi, asi inofanira kutaurwa kuna chiremba kana ikaramba iripo | |
| Kurutsa | Marwadzo emudumbu |
| Manyoka | Musoro |
| Kuda kudya | |
Kana ukaona zvimwe zviratidzo zvisingawanzoitiki zvisiri pane urongwa uhwu, taura nachiremba wako nezvazvo zvakare.
Nzira yekuchengetedza mushonga zvakanaka sei?
Kushanda kwemushonga uyu kunoenderana nekuti unouchengeta sei, saka tevera mirairo iyi nemazvo.
- Usati wavhura: Kana bhodhoro remushonga risati ravhurwa, richengete mufiriji .
- Mushure mekuvhura: Mushure mekuvhura bhodhoro, chengetai patembiricha yemukamuri (pakati pe15 ne30 degrees Celsius) . Musazoisa mufiriji zvakare . Dzivirirai kubva kuunyoro. Chengetai chivharo chebhodhoro chakavharwa zvakasimba.
- Kuraswa: Mwedzi mumwe mushure mekuvhura bhodhoro, kanaKana zuva rekupera kwemushonga rapfuura, rasa mushonga wasara.
- Kuchengetedzeka: Gara uchichengeta mishonga kure nevana nezvipfuyo.
Mushonga uyu wakanyorerwa iwe chete. Muyero wemushonga wacho wakatarwa zvichienderana nemamiriro ako ehutano. Saka, usagovane mushonga uyu nemumwe munhu chero chikonzero chipi zvacho.
Mharidzo Yekuenda Nayo Kumba
- Carglumic Acid mushonga unopiwa vanhu vane urea cycle disorders (UCDs) kuderedza huwandu hwemuchetura weammonia unoungana muropa.
- Usambomedza piritsi iri rose. Gara uchinyungudutsa mumvura shoma wobva wanwa ipapo ipapo. Sukurudza kapu yawakanwa mushonga nemvura usati wanwa.
- Kana ukaona zviratidzo zvakakomba zvekurwara nepfungwa zvakaita sekuzvimba kwechiso, miromo, kana pahuro, enda kuchipatara kuEmergency Department (ETU) nekukasika.
- Chengeta bhodhoro remushonga mufiriji usati wavhura uye patembiricha yemukamuri mushure mekuvhura. Rasa mushonga wasara mukati memwedzi mumwe chete mushure mekuvhura.
- Usarega kutora mushonga, kushandura mwero wemushonga, kana kuupa mumwe munhu usina kurairwa nachiremba wako. Gara uchiona chiremba wako kuti akuongorore.
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