Matombo eitsvo chinhu chinotityisa zvishoma, handiti? Pamwe wakanzwa nezvekurwadziwa ikoko. Asi waiziva here kuti kune marudzi akasiyana ematombo eitsvo? Nhasi tichataura nezverudzi rwematombo rusingawanzoonekwi asi rwakakosha zvikuru. Ndiwo matombo ecystine. Ngationei kuti nei achiumbwa, zviratidzo zvacho ndezvipi, uye chii chingaitwe nezvazvo.
Zvichitaurwa zviri nyore, chii chinonzi cystine matombo?
Matombo eCystine imhando yematombo eitsvo zvakare. Matombo eitsvo imhando dzakaoma, dzakaita sematombo dzinoumbwa nekuunganidzwa kwemakemikari akasiyana-siyana muweti yedu. Matombo eCystine anoumbwa nekemikari inonzi cystine . Cystine iamino acid inokosha mumuviri wedu. Kutaura chokwadi, chikamu chidiki chemapuroteni anobatsira kuvaka tsandanyama nekugadzirisa tishu mumuviri wedu.
Kazhinji, itsvo dzedu dzinodzosa cystine iyi mumuviri. Asi mune vamwe vanhu, maitiro aya haashande nemazvo. Zvadaro, cystine isingakwanise kunyudzwa inoungana muweti uye, nekufamba kwenguva, inoumba matombo. Matombo aya ecystine anogona kukura zvishoma kupfuura mamwe matombo eitsvo. Saka dzimwe nguva anofanira kubviswa kuburikidza nekuvhiyiwa kuti amise kukuvara kweitsvo kana nzira yeweti.
Saka chii chinonzi Cystinuria?
Chinonyanya kukonzera matombo aya e cystine chirwere chemajini chinonzi cystinuria . Ichi chirwere chisingawanzoitiki, chinogara nhaka. Zvichitaurwa zviri nyore, kana uine chirwere ichi, muviri wako haugone kunyungudutsa kemikari inonzi cystine zvakanaka. Saka inoungana muweti yako yoita matombo.
Chinhu chakakosha ndechekuti cystinuria chirwere chinogara kwenguva refu. Hapana mushonga wechirwere ichi. Asi nekurapwa kwakakodzera, unogona kurarama zvakanaka uye kurarama hupenyu hwakajairika .
Nekuti ichi chirwere chemajini, mwana anofanira kugara nhaka jini iri kubva kuna amai nababa vake kuti rikure . Munhu ane chirwere ichi anogona kunge aine matombo e cystine kakawanda muhupenyu hwake hwese.
Chirwere ichi chakajairika zvakadii? Zviratidzo zvacho ndezvipi?
Izvi hazviitiki kune wese munhu, hazviwanzoitiki. Kazhinji, kana ukatora munhu mumwe chete kana vaviri pavanhu 100 vanowana matombo eitsvo, mumwe chete kana vaviri vavo ndivo vane matombo ecystine. Asi zvinoshamisa kuti chirwere ichi chinowanzoonekwa muvana nevechidiki . Vanhu vanosvika 80% vanowana matombo ecystine vanowana dombo ravo rekutanga vasati vasvitsa makore makumi maviri. Zvisinei, matombo aya anogona kuumbwa chero pazera ripi zvaro.
Kana zviri zviratidzo, zvakafanana zvikuru nezviratidzo zvemamwe matombo eitsvo. Zviratidzo hazviwanzonzwiki kusvika pave nedombo.
| Chiratidzo | Tsananguro |
|---|---|
| Kurwadziwa kwakanyanya kumusana kana muchiuno | Zvinogona kunzwa sekurwadziwa kwakapinza. Izvi zvinowanzonzwika kune rumwe rutivi. |
| Kurwadziwa mudumbu repazasi kana muhudyu | Dombo parinofamba richidzika munzira yeweti, kurwadziwa kunogona kunzwika mudumbu rezasi. |
| Ropa muweti | Weti inogona kuita seyakatsvukuruka, yakatsvuka, kana kuti yakatsvukuruka. |
| Kurutsa uye kuda kurutsa | Kusvotwa nekurutsa zvinogona kuitika pamwe chete nekurwadziwa kwakanyanya. |
| Kurwadziwa pakuita weti | Kana dombo riri pedyo nedundira, unogona kunzwa kupisa kana kurwadziwa paunenge uchiita weti. |
Dzimwe nguva, matombo aya ecystine anogona kukura zvakakwana kuti avhare nzira yeweti uye akonzere chirwere cheweti (UTI) .
Ndezvipi zvinetso zvinogona kuitika?
Cystinuria chirwere chinogara kwenguva refu, uye kana chikasatarisirwa zvakanaka, chinogona kukonzera matambudziko. Zvakakosha kushanda nachiremba wako kuti ugadzirise dambudziko iri.
Matambudziko angangoitika anosanganisira:
- Utachiona hweitsvo: Matombo anogona kuvharira kuyerera kweweti uye kubvumira utachiona kupinda muitsvo.
- Kuvharika kweweti: Chubhu inotakura weti kubva kuitsvo kuenda kudundira (ureter) inogona kuvharika nedombo.
- Utachiona hwemunzira weti hunowanzoitika (UTIs).
- Kukuvara kweitsvo zvachose:Kana ikasarapwa kwenguva yakareba, kushanda kweitsvo kunogona kudzikira.
Chiremba anoongorora sei chirwere ichi? Ndezvipi zvinorapwa?
Kana uine zviratidzo zvakafanana nematombo eitsvo, chiremba wako achaita bvunzo dzinoverengeka kuti aone kana aya ari matombo ecystine.
Nzira dzekuongorora chirwere
- Kukubvunzai nezveruzivo: Chiremba achakubvunzai nezvezviratidzo zvenyu uye kana paine mumwe munhu mumhuri menyu akambosangana nematambudziko akafanana.
- Miedzo: Kuongororwa kweweti uye bvunzo dzekufungidzira dzakadai se ultrasound scan kana CT scan zvinogona kurairwa.
- Kuyedzwa kwedombo: Kana uine dombo rakabuda muweti yako, rinogona kutumirwa kurabhoritari kuti riongororwe kuti rionekwe kuti rudzii rwedombo racho. Iyi ndiyo nzira chete yekusimbisa zvizere kuti idombo recystine.
Nzira dzekurapa
Chinangwa chikuru chekurapa matombo e cystine ndechekudzivirira matombo matsva kuti asaumbwe uye kubvisa matombo aripo. Chiremba wako achagadzira hurongwa hwekurapa hwakakunakira.
- Kuchinja kwemararamiro uye kudya
- Inwa mvura yakawanda: Ichi ndicho chinhu chakakosha. Chiremba wako anogona kukuudza kuti unwe marita matatu kusvika mana emvura pazuva. Izvi zvinoreva kuti unofanira kugara uchinwa girazi remvura awa imwe neimwe. Usashamisika kana ukamuka husiku kuti unwe mvura. Mvura inonyungudutsa weti yako uye inoderedza kuungana kwe cystine.
- Kudzora munyu (sodium): Deredza huwandu hwemunyu waunowedzera muchikafu chako. Dzivisa chikafu chakadai sechikafu chemumagaba nechikafu chakaomeswa nechando kana kuti chakafukidzwa, chine munyu wakawanda.
- Kuderedza mapuroteni emhuka: Unogona kuderedza kudya mapuroteni emhuka akadai senyama, hove, nemazai wobva wanyanya kushandisa mapuroteni anobva mumiti.
- Mishonga
Kana uri kurwadziwa nekuda kwedombo, chiremba wako achakupa mishonga inoderedza marwadzo. Pamusoro pezvo, kune mishonga yakakosha inogona kubatsira kudzivirira kuumbwa kwematombo matsva ecystine. Tiopronin ned -penicillamine mishonga yakadaro. Iyi inobatsira kunyungudutsa cystine. Mishonga iyi inofanira kungotorwa chete pasi pekutarisirwa nachiremba .
- Kuvhiya
Kana matombo acho akakura zvikuru, achivhara nzira yeweti, kana kuti achikonzera kurwadziwa kwakanyanya, angangoda kubviswa nekuvhiyiwa.
- Ureteroscopy: Kamera diki, inochinjika inopfuudzwa muurethra kuti ione dombo racho uye inogona kuripwanya kuita zvidimbu kana kuribvisa zvachose.
- Percutaneous Nephrolithotomy: Kuvhiyiwa kwemuviri neganda:Maitiro ekuchekwa ganda remusana diki uye pombi inopfuudzwa nepakati paro ichipinda muitsvo kuti dombo ribviswe. Izvi zvinowanzoitirwa matombo makuru kwazvo.
Unogara sei nemamiriro ezvinhu aya? Chinhu chekutya here?
Cystinuria chirwere chinogara kwenguva refu. Asi kana chikarapwa nemazvo, hapana chekunetseka nacho. Chirwere ichi hachiwanzo konzera njodzi kuhupenyu. Kana chikarapwa nemazvo, hachiwanzo konzera matambudziko akakomba akadai sekutadza kushanda kweitsvo.
Chinhu chinonyanya kukosha ndechekuchengetedza hukama hwakanaka pakati pako nachiremba wako. Nekutevera mirairo nemazvo uye kuenda kumakiriniki nenguva, unogona kudzora dambudziko iri zviri nani.
Kuti vatarise kubudirira kwekurapwa, chiremba achaita bvunzo dzeweti nguva nenguva kuti aone huwandu hwe cystine muweti. Kana zvichidikanwa, hurongwa hwekurapa huchagadziriswa zvinoenderana. Sezvo ichi chiri chirwere chemajini, zvingave zvakanakawo kutsvaga mazano ezvemajini kana uchironga kutanga mhuri.
Mharidzo Yekuenda Nayo Kumba
- Matombo eCystine rudzi rwematombo eitsvo anokonzerwa nechirwere chisingawanzoitiki chinonzi cystinuria.
- Kunyangwe chirwere ichi chichitora hupenyu hwese, chinogona kurapwa zvakanaka nekurapwa kwakakodzera uye kuchinja mararamiro.
- Kunwa mvura yakawanda zuva rose ndiyo nzira inonyanya kukosha uye iri nyore yekudzivirira kuumbwa kwematombo.
- Zvakakosha zvikuru kutevedzera kudya kushoma munyu uye mapuroteni emhuka.
- Kana ukaona zviratidzo zvakaita sekurwadziwa kwakanyanya kumusana, muchiuno, kana pasi pedumbu, kana ropa muweti yako, usapedza nguva wobva waona chiremba nekukasika .
- Tevedzera mirairo yachiremba wako uye mishonga yako nemazvo. Usazvidya moyo, unogona kurarama hupenyu hwakanaka uine chirwere ichi.
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