Mwana wenyu anowanzo nyunyuta kuti gumbo rake kana ruoko rwake rwunorwadza here? Pamwe kukuvara kwekudonha achitamba hakuperi kunyangwe mushure memwedzi yakati wandei? Tinowanzo funga nezveizvi sekukuvara kudiki kana mitsetse inokonzerwa nekusagadzikana kwevana. Asi dzimwe nguva, chiratidzo chinotanga chiri nyore seizvi chinogona kuva chiratidzo chechimwe chinhu chakakomba. Nhasi tichataura nezvegomarara risingawanzoitiki, asi rinokosha ratinofanira kuziva tese. Ndiyo Ewing Sarcoma.
Zvichitaurwa zviri nyore, chii chinonzi Ewing Sarcoma?
Ewing sarcoma rudzi rwegomarara rusingawanzoitiki runokura mumapfupa kana munyama dzakapfava dzakaapoteredza . Nyama dzakapfava dzinosanganisira tsandanyama dzedu, tsinga, uye ligaments. Mabundu aya anowanzo itika munzvimbo dzakadai sehudyu, mbabvu, fudzi, chidya, kana collarbone.
Dambudziko iri rinonyanya kuitika kuvana panguva yekuyaruka, apo mapfupa avo ari kukura nekukurumidza. Zvikuru sei, rinokanganisa avo vari pakati pemakore gumi nemakumi maviri. Zvisinei, rinogonawo kubata vana vadiki nevechidiki vari mumakore avo ekuma20 nekutanga kwemakore ekuma30.
Kune mhando huru dzeEwing sarcoma here?
Ehe, vanachiremba vakaona mhando nhatu huru dzechirwere ichi. Ngationei kuti ndedzipi.
| Rudzi rwegomarara | Tsananguro iri nyore |
|---|---|
| Kusveta sarcoma yemapfupa | Rudzi urwu ndirwo rwakajairika. Sezvinoreva zita racho, kenza iyi inomuka zvakananga mumapfupa. |
| Bundu reExtraosseous Ewing (EOE) | Pano, kenza inokura munyama dzakapfava dzakatenderedza mapfupa, dzakadai semhasuru nenyama ine mafuta. |
| Bundu remudumbu remudumbu (PPNET) | Rudzi urwu rwakasiyana zvishoma. Runogona kutanga mupfupa kana munyama yakapfava. Runotanga mutsinga. |
Ndezvipi zviratidzo zvechirwere ichi? Zvinhu zvandinofanira kuziva semubereki
Zviratidzo zvechirwere ichi dzimwe nguva zvinogona kuvhiringidzwa zviri nyore nezvimwe zvirwere zvakajairika, saka zvakakosha kuziva izvi.
Fungidzira mwana wako ari kutamba cricket uye anoramba achiti pfudzi rake rinorwadza. Unofunga kuti kurwadziwa kunongoitika kana uchikanda bhora. Asi kana kurwadziwa kwacho kwave kuripo kwemwedzi yakawanda, kunyanya husiku, uye paine kuzvimba kudiki ipapo, hazvina kunaka kungozvifuratira.
Chinhu chakakosha ndechekuti kana mwana akaramba achinyunyuta nezvekurwadziwa, usazviregeredza. Zvakanaka kuona chiremba, kunyanya kana pasina chikonzero chakajeka chekurwadziwa.
Zviratidzo zvikuru zvinoonekwa muEwing sarcoma zviri pazasi apa.
| Chiratidzo | Mamwe mashoko |
|---|---|
| Kurwadziwa mumapfupa | Ichi ndicho chiratidzo chinowanzoitika. Marwadzo anogona kuuya oenda. Marwadzo anogona kuwedzera husiku, kunyanya kana akanyanya zvekuti mwana anogona kumutswa kubva muhope. |
| Bundu kana kuzvimba | Gomarara rinogona kuoneka sebundu kana kuzvimba. Rinogona kunzwa richidziya kana rikabatwa uye rinogona kurwadza. Izvi zvinogona kuonekwa pamaoko, makumbo, kana pachipfuva. |
| Fivha isina chikonzero | Panogona kunge paine fivha isingaperi pasina chimwe chikonzero (senge mhino inoyerera, kukosora, kana dzihwa). |
| Kutyora mapfupa pasina chikonzero | Gomarara rinogona kushayisa simba mapfupa, uye kunyangwe isiri tsaona huru (sekumuka pamubhedha), rinogona kutyoka. Vanachiremba vanoti izvi 'kutyoka kwemapfupa kunokonzerwa nechirwere.' |
| Zvimwe zvinhu | Zvinhu zvakaita sekurasikirwa nehuremu kamwe kamwe uye kunzwa kuneta nguva dzese zvinogona kuitika, asi izvi zvinowanzoonekwa chete kana kenza yapararira kune dzimwe nhengo dzemuviri. |
Sei chirwere chakadai chichiitika?
Mubvunzo uyu unouya kuvabereki vazhinji. Ungafunga kuti, "Pane chatakaita chisina kunaka here?" Asi ichocho hachisi chokwadi.
Kusvuura kwemasero kunokonzerwa nekuchinja kwemajini kunoitika mushure mekuzvarwa kwemwana . Zvichitaurwa zviri nyore, majini maviri ari mumasero edu (EWSR1 neFLI1) anobatana kuti agadzire jini idzva rine dambudziko. Jini idzva iri rinoita kuti masero apatsanuke zvisingadzoreki uye agadzire bundu rekenza.
Chinhu chakakosha ndechekuti chirwere ichi hachisi chirwere chinogara nhaka. Zvakare, vaongorori havana kuona kuti chinokonzerwa nezvinhu zvekunze, zvakaita sekusvuta kana kusangana nemakemikari, semamwe marudzi ekenza. Izvi zvinodaro nekuti chinowanzo itika kuvana vadiki nevakuru vechidiki vasina mukana wekusangana nezvinhu zvakadaro kwenguva yakareba. Saka, ichi hachisi chinhu chinokonzerwa nemhosva yemunhu wese.
Pane zvinhu zvine njodzi here?
Kunyange hazvo munhu wese achigona kuwana chirwere ichi, mamwe mapoka akaonekwa kuti ari panjodzi yakakura zvishoma.
- Zera: Avo vari pakati pemakore gumi nemakumi maviri ndivo vari panjodzi huru.
- Murume kana Mukadzi: Varume vane mukana wakakura wekuva nayo kupfuura vakadzi.
- Rudzi: Chirwere ichi chinowanikwa zvakanyanya muvanhu vachena kupfuura muvanhu vekuAsia kana vatema.
Vanachiremba vanoongorora sei chirwere ichi nemazvo?
Kana ukaenda kunoona chiremba nekuti unenge uchifungira zviratidzo zvemwana wako, chinhu chekutanga chaanoita kuongorora mwana wako nokungwarira. Achanzwa kurwadziwa kana kuzvimba, obvunza iwe nemwana wako nezvezviratidzo, uye obva araira kuti muedze bvunzo dzakawanda kuti asimbise chirwere chacho.
1. Kuongororwa kwemifananidzo: Izvi zvinotora mifananidzo yemapfupa nenyama dzakapfava dziri mumuviri.
- Kuongorora X-ray
- Kuongororwa kweCT
- Kuongororwa kweMRI
- Kuskena kwePET
- Kuongororwa kwemapfupa
2. Biopsy: Iyi ndiyo bvunzo inosimbisa chirwere ichi zvizere . Pano, kanyama kadiki kanotorwa kubva mubundu roongororwa nemaikorosikopu. Izvi ndizvo zvinokuudza chaizvo kana iri kenza kana kuti Ewing's sarcoma.
3.Kuongororwa kweropa: Kuongororwa kweropa rose (CBC) nemamwe mazinga eenzyme (akadai seLDH) kunogona kupa pfungwa yerudzi rwegomarara uye kana rakapararira.
Ndezvipi zvinorapwa izvi?
Kurapwa kweEwing sarcoma kunorapwa nechikwata chevanachiremba vekenza. Hurongwa hwekurapa hunogona kusiyana kubva kumurwere mumwe kuenda kune mumwe. Zvinoenderana nehukuru hwebundu, nzvimbo yaro, uye kana rakapararira kune dzimwe nzvimbo.
Nzira huru dzekurapa ndeidzi:
- Kurapa nemakemikari: Izvi zvinosanganisira kupa muviri mishonga inouraya masero ekenza. Kurapa nemakemikari kunowanzoitwa kutanga kuderedza bundu. Kurapa nemakemikari kunozoitwazve mushure mekuvhiyiwa kuti kuuraye masero ekenza asara.
- Kuvhiyiwa: Kana bundu radzikira ne chemotherapy, rinobviswa zvachose kuburikidza nekuvhiyiwa.
- Kurapa Nemwaranzi: Mune zvimwe zviitiko, mwaranzi ine simba guru inoshandiswa kuparadza masero anoramba aripo mushure mekuvhiyiwa kana kana kuvhiyiwa kusingakwanise kubvisa bundu zvachose.
Mune dzimwe nyika dzakabudirira, mishonga yakaita se autologous stem cell transplant inoshandiswawo kana kenza isati yapararira kumapfupa. Unogona zvakare kutora chikamu mukuyedzwa kwekiriniki kuri kutsvaga mishonga mitsva. Unogona kutaura nachiremba wako nezveizvi kuti uwane rumwe ruzivo.
Migumisiro yakaipa uye migumisiro yenguva refu yekurapwa
Kurapa kenza hakusi nyore. Kurapa nekurapa nemwaranzi kunogona kukonzera migumisiro yenguva pfupi yakadai sekudonha kwebvudzi, kurutsa, uye kuneta. Panogonawo kuva nemigumisiro yenguva refu (migumisiro yekunonoka) inogona kuonekwa mwedzi kana makore mushure mekunge kurapwa kwapera.
- Mhedzisiro panhengo dzemukati (mwoyo, itsvo)
- Mhedzisiro pakukura kwemwana
- Matambudziko ehutano hwepfungwa (kushushikana, kuora mwoyo)
- Mhedzisiro pakudzidza uye kugona kurangarira
- Mhedzisiro pakubereka kwemangwana
Saka, zvakakosha kuti urambe uchitarisirwa nachiremba, panguva yekurapwa uye mushure mekurapwa.
Ndingabatsira sei mwana wangu, semubereki?
Kana mwana akaonekwa aine kenza, mhuri yese inoparara. Izvozvo zvakajairika. Asi munguva ino yakaoma, mwana wako anokuda kupfuura kare.
Funga nezvazvo, kuyaruka inguva iyo manzwiro evana anogara akakwirira uye akaderera, uye vanofunga zvakanyanya nezvechitarisiko chavo neshamwari dzavo. Kurwa nekenza panguva yakadaro kunogona kuva mutoro wavasingakwanise kutakura.
- Teerera nemwoyo murefu:Vabvumire kutaura zvavanotya, hasha, uye kusuruvara kwavo. Zviri nani kuteerera zvavanotaura pane kutaura kuti, "Usafunge nezvazvo."
- Hupenyu hwezuva nezuva: Vanogona kunge vachishungurudzika zvikuru kuti havazokwanisi kuenda kuchikoro kana kutamba neshamwari nekuda kwekurapwa. Vakurudzire kuti varambe vachibatana neshamwari zvakanyanya sezvinobvira (sekufona pavhidhiyo) uye kuita zvinhu zvavanoda kuita kumba.
- Fungawo nezvako: Kuti utarisire mwana wako, unofanira kutanga wasimba. Kana zvichikuomerawo kurarama neizvi, taura nemumwe munhu waunovimba naye. Kana zvichidikanwa, tsvaga mazano epfungwa.
- Shandai pamwe chete nechikwata chevanachiremba: Zivai zvakanaka nezvemamiriro emwana wenyu, kurapwa kwake, uye migumisiro yake. Musatya kubvunza mibvunzo.
Rwendo urwu rwatinosangana narwo pamwe chete semhuri. Tinogona kukunda dambudziko iri nekutsigirana nerudo.
Mharidzo Yekuenda Nayo Kumba
- Ewing Sarcoma rudzi rwegomarara rusingawanzoitiki runonyanya kukanganisa mapfupa nenyama dzakapfava dzevana nevechidiki.
- Kana uine kurwadziwa kwemapfupa kusingatsananguriki uye kunoramba kuripo (kunyanya husiku), kuzvimba, kana bundu, usazviregeredza wobva waona chiremba nekukasika.
- Chirwere ichi chinokonzerwa nekuchinja kwemajini kunoitika pasina kurongeka, kwete nemhosva yevabereki kana mwana.
- Kunyange zvazvo nzira dzekurapa (chemotherapy, oparesheni, radiation) dzakaoma, dzinopa mhedzisiro inobudirira zvikuru.
- Munguva iyi yakaoma, mwana anoda kurapwa, pamwe nerudo, kutarisirwa, uye rutsigiro rwepfungwa kubva kunhengo dzemhuri.
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