Wakamboudza mwana wako nezveGlioma yepamusoro here? Ngatitaure nezvazvo.

Zvakaoma kutaura kuti zvinonzwa sei semubereki kunzwa kuti mwana wako ane kenza yeuropi. Pane mibvunzo yakawanda inouya mupfungwa panguva yakaita seiyi. Saka, nhasi tichataura nezveHigh-Grade Glioma, rudzi rwegomarara reuropi rakakomba uye rinopararira nekukurumidza. Tinovimba ruzivo urwu ruchakupa kunzwisisa nesimba mukati merwendo urwu rwakaoma.

Chii chinonzi High-Grade Glioma? Ngatizvinzwisise zviri nyore.

Zvichitaurwa zviri nyore, glioma yepamusoro rudzi rwegomarara rinokura nekukurumidza muuropi hwemwana wako kana musana. "Glioma" zvinoreva bundu. Mabundu aya anoumbwa kana rudzi rwesero rinonzi "glial cells" rukatanga kupatsanuka nekukura nekukurumidza pasina kudzora. Aya masero eglial rudzi rwesero rinotsigira nekupa hutano maneuron, kana tsinga, muhurongwa hwedu hwepakati hwetsinga.

"High-grade" zvinoreva kuti rudzi urwu rweglioma runokura nekukurumidza uye rune hasha . Kutaura zvazviri, maglioma epamusoro-soro angasagara achirapika zvachose. Izvi zvinodaro nekuti anonetsa kurapa. Izvi zvinodaro nekuti masero egomarara aya anopararira nekukurumidza muuropi kana musana. Anokurawo nekupinda nekusangana nemasero ane hutano. Fungidzira kuti zvakaoma sei kubvisa kenza chete pasina kukuvadza nyama ine hutano kana masero ane hutano nemasero egomarara zvakabatana. Ndosaka dzimwe nguva zvichinetsa kuabvisa zvachose nekuvhiyiwa.

Chii chinonzi "giredhi" remaglioma epamusoro-soro?

Sangano reWorld Health Organization (WHO) rinoisa maglioma mumapoka zvichienderana nekukura kwawo uye kuoma kwawo. Saka, kune mhando mbiri: "dzisina kunyanya kuoma" (dzisina kunyanya kuoma, giredhi 1 ne2) uye "dzine kunyanya kuoma" (dzine kunyanya kuoma, giredhi 3 ne4). Maglioma epamusoro mabundu anokura nekukurumidza ari giredhi 3 kana 4.

Mamwe magliomas muvanhu vakuru anogona kutanga ari egiredhi repasi uye gare gare ozova egiredhi repamusoro. Zvisinei, zvinoshamisa kuti magliomas epamusoro muvana anowanzotanga ari egiredhi repamusoro. Zvisinei, magliomas epasi muvana anowanzo rapa uye haawanzova epamusoro.

Ndekupi muuropi uko maglioma epamusoro anowanzo itika?

Maglioma epamusoro-soro anowanzoonekwa mu "supratentorial compartment" yeuropi, kana kuti brainstem.

• Chikamu chepamusoro peuropi: Iyi inzvimbo yeuropi ine cerebrum, thalamus, uye hypothalamus. Mabundu aya anogona kukura kubva mumasero eglial ari pano.
• Pfungwa:Maglioma aya epamusoro-soro anogonawo kukura muchikamu cheuropi chinonzi ``pons``. Izvi zvinonzi rudzi rwakakosha rwe``Diffuse Intrinsic Pontine Gliomas'' (DIPG). Rudzi urwu rweDIPG rune hukasha uye rwakaoma kurapa.

Nzvimbo yebundu iri yakakosha zvikuru, sezvo ichasarudza nzira dzekurapa dziripo kumwana wako. Semuenzaniso, bundu riri muuropi hariwanzobviswi zvakanaka nekuvhiyiwa.

Ndiani anonyanya kukanganiswa nemamiriro ezvinhu aya?

Glioma yepamusoro-soro inogona kuitika muvacheche, vana vakuru, vechidiki, uye kunyange vakuru. Zvisinei, glioma yepamusoro-soro muvacheche nevana vadiki yakasiyana neglioma yepamusoro-soro muvechidiki nevakuru. Nekuda kwekusiyana uku, kurapwa kwevacheche nevana vadiki kunogona kusiyana.

Glioma yepamusoro-soro yakajairika zvakadii?

Maglioma emhando yepamusoro ndiwo rudzi rwechipiri rwakajairika rwegomarara reuropi muvana. Anosanganisira pakati pe10% ne20% yemagomarara ese anokanganisa sisitimu yetsinga muvana.

Ndezvipi zviratidzo zve glioma yepamusoro-soro?

Zviratidzo zvinogona kusiyana kubva pamwana kuenda kumwana. Zvinoenderana nekuti bundu iri rakanganiswa nechikamu chipi cheuropi (kana kuti musana), zera remwana, uye kuti bundu iri riri kukura nekukurumidza zvakadii. Zviratidzo izvi zvinonyanya kukonzerwa nebundu iri riri kumanikidza uropi uye richikonzera kuzvimba.

Chiratidzo chinowanzoonekwa musoro. Izvi zvinonyanya kuitika kana musoro uchiperekedzwa nekurutsa kana kurutsa. Musoro uyu unonyanya kuoma mangwanani. Dzimwe nguva, unogona kunge wakanyanya zvekuti unomuka husiku. Fungidzira mwana mudiki achinetseka kudaro.

Zvimwe zviratidzo zvinogona kuonekwa zvinosanganisira:

• Kuomerwa nekuona, kunzwa, kana kutaura (kuona zvisina kujeka, kunzwa kusina kunyatsojeka, kutaura kusina kunyatsojeka).
• Kushaya simba kana kushaya simba kwetsandanyama (ataxia), zvakaita sekutadza kufamba kana kubata zvinhu.
• Kuvhiringidzika kana kurasikirwa nendangariro.
• Kugara uchirara, kunzwa usimbe.
• Kubatwa nepfari (sekunge munhu abatwa nechirwere chepfungwa) .

Vacheche vadiki (vacheche) vanogona kuona kuchema kusingawanzoitiki, kushatirwa, kuchinja kwemaitiro ekudyisa (sekusanwa mukaka). Dzimwe nguva vanogonawo kuona misoro yavo ichikura zvishoma, uye nzvimbo dzakapfava (fontanelles) kana "madhamu" pamusoro pemisoro yavo anogona kuoneka zvakanyanya.

Sei maglioma aya epamusoro-soro achikura? Ndezvipi zvinokonzera?

Kutaura chokwadi, vaongorori havasati vaziva chikonzero chaicho cheizvi.Muvanhu vakuru, kurapwa nemwaranzi kwakamboonekwa sekwakakosha pakukura kwegomarara iri. Zvinogoneka kuti vana vanogonawo kukanganiswa nezvinhu zvakafanana zvekunze kana zvakatipoteredza, asi tsvakiridzo yakawanda inodiwa.

Zvisinei, mamwe magene syndromes asingawanzo kuwanikwa kubva muropa anogona kuwedzera njodzi yekuva neglioma yepamusoro muvana. Chirwere chemagene chinokanganisa kana kusarongeka kwemajini, ayo ari "kodhi" inotaurira masero mashandiro awo .

Heano mamwe mamiriro ezvinhu akadaro:

• Neurofibromatosis rudzi-1 (`Neurofibromatosis rudzi-1 - NF1`)
• Turcot syndrome
• Chirwere cheLi-Fraumeni

Zvisinei, zvakakosha kuyeuka kuti vana vazhinji vane glioma yepamusoro-soro havana nhoroondo yemhuri yechirwere ichi.

Glioma yepamusoro-soro inoonekwa sei?

Chiremba wemwana wenyu achatanga anyatsoongorora zviratidzo zvemwana wenyu uye nhoroondo yezvekurapa kwake. Zvadaro, kuongororwa kweuropi, kana kuti `imaging`, kunogona kuitwa kuti paonekwe kana bundu riripo uye kana riri kukonzera zviratidzo. Kana bundu riripo, `biopsy` ichaitwa kuti pave nechokwadi chekuti kenza (yakaipa) kana kuti isina kuipa (isina kuipa).

• Kufungidzira: Kuongororwa kweMRI (Magnetic Resonance Imaging) uye CT scan (Computed Tomography scan) zvinogona kubatsira vanachiremba kuona bundu muuropi hwemwana wako kana musana. MRI, kunyanya MRI inovandudzwa necontrast, inogona kuburitsa mifananidzo yakajeka uye ine ruzivo rwakadzama kupfuura CT scan. MRI inoshandisa magineti nemafungu eredhiyo kugadzira mifananidzo yezvinhu zviri mukati memuviri pachikirini chekombuta. Mukuenzanisa neMRI, dhayi isina njodzi inopinzwa muruoko rwemwana wako. Izvi zvinoita kuti nzvimbo dzine bundu dzionekwe zviri nyore pachikirini.

• Kuongororwa kwemasero: Nzira yakakosha inonzi "stereotactic biopsy" inogona kuona nzvimbo chaiyo yebundu uye kutora chidimbu chidiki chenyama kubva ipapo yochitumira kurabhoritari. Zvadaro, nyanzvi inonzi "pathologist" inoongorora masero kuti ione kana ari masero eglioma epamusoro-soro. Miedzo iyi inogonawo kuona humwe hunhu hwemasero ekenza. Hunhu uhwu dzimwe nguva hunoshandiswa kuona kurapwa. Semuenzaniso, mimwe mishonga mitsva yekenza yakagadzirirwa kushanda chete pamhando dzakasiyana dzemasero ekenza. Saka, miedzo iyi inogonawo kubatsira kuona kana mwana wako ari munhu akakodzera kurapwa ikoko.

Dzimwe nguva, kana zvichibvira, vanachiremba vanobvisa bundu rese pane kungotora chidimbu chidiki kuti vaongororwe.Zvadaro, pamwe chete nekuongororwa, kurapwa (kuvhiyiwa) kunoitikawo.

Zvisinei, kuongororwa kweropa (biopsy) kungasagoneke nguva dzose mumaglioma epamusoro. Zvichienderana nekuti bundu riri kupi (semuenzaniso, muuropi), kutora chidimbu chenyama kunogona kukuvadza zvikamu zvinokosha zveuropi. Muzviitiko zvakadaro, vanachiremba vanovimba nemiedzo yekufungidzira kuti vaone kana chirwere chacho chabuda.

Ko glioma yepamusoro-soro inogona kurapwa zvachose here?

Uyu ndiwo mubvunzo mukuru uri mupfungwa dzemunhu wese. Zvakaoma kupa mhinduro yakatwasuka. Pane zvinhu zvakawanda zvinokanganisa izvi, zvakaita sezera remwana, shanduko dzemajini dziripo mumasero ekenza, uye kuti bundu rakawanda sei rakabviswa panguva yekuvhiyiwa.

Ndezvipi zvinorapwa zve glioma yepamusoro-soro?

Chinangwa chikuru chekurapa kubvisa bundu, kumisa kana kudzora kukura kwebundu, uye kupa zororo kumwana nekuderedza zviratidzo.

Zvichienderana nerudzi rwebundu, kwarinobva, nezvimwe zvinhu, nyanzvi dzakasiyana siyana dzinogona kunge dzichibatsira pakuchengetwa kwemwana wako. Chikwata ichi chinogona kusanganisira chiremba wepfungwa, chiremba wezvirwere zvepfungwa, chiremba wezvirwere zvemaziso, chiremba wezvirwere zvemagetsi, mukoti, uye mushandi wezvemagariro evanhu.

Chimwe kana zvimwe zvezvinotevera zvinogona kushandiswa sekurapa:

• Kuvhiya: Kuvhiya ndiyo nzira huru yekurapa maglioma emhando yepamusoro anogona kubviswa zvakachengeteka. Pano, chiremba anoedza kubvisa bundu rakawanda sezvinobvira pasina kukuvadza nyama yakakomberedza ine hutano.
• Kurapa nemwaranzi: Kurapa nemwaranzi yefocal inzira yakajairika yekurapa vana vane makore anopfuura matatu. Vana vadiki havawanzopihwa kurapwa nemwaranzi nekuti zvinogona kukanganisa kukura kwehuropi hwavo. Kurapa uku kunosanganisira muchina unoshandisa X-rays yakawanda kunanga bundu, uchingwarira kuti usakuvadze nyama yakakomberedza ine hutano. Kurapa nemwaranzi kunoderedza bundu, kunouraya masero ekenza, uye kunoderedza zviratidzo.
• Kurapa nemakemikari: Nekuti vana vadiki havagone kurapwa nemwaranzi, chemotherapy inoshandiswa kudzora kukura kwebundu. Kurapa nemakemikari kunoshandisa mishonga kuuraya masero ekenza. Zvisinei, kuchine gakava pamusoro pekuti chemotherapy inoshanda sei kune maglioma epamusoro. Kunyange zvazvo mimwe mishonga yechemotherapy, yakadai se temozolomide, inoshanda zvakanaka kune mamwe marudzi egliomas muvanhu vakuru, mishonga imwecheteyo haishande zvakanyanya kuvana.
• Kutarisirwa kwevarwere vane marwadzo emusana:Nyanzvi dzekuchengetedza varwere vane chirwere chekurwadziwa kwepfungwa (palliative care) dzinogona kukubatsira kuita sarudzo dzichabatsira kuchengetedza hupenyu hwemwana wako panguva yekurapwa. Vanogonawo kukupa mazano ekubatsira mwana wako kuti akwanise kurarama nechirwere ichi uye kuti awane zororo kubva kuzviratidzo.

Glioma yepamusoro-soro inogona kudzoka mushure mekurapwa. Kana izvi zvikaitika, chiremba wako anogona kukupa zano rekuti "mishonga yakanangana." Iyi mishonga inongonanga chete mamorekuru asina kujairika (anokonzerwa nekuchinja kwemajini) mubundu remwana wako. Iyi "mishonga yakanangana nemamorekuru" inogona kuwanikwa kuburikidza ne "miedzo yekiriniki." Miedzo yekiriniki izvidzidzo zvinoedza kuchengetedzeka uye kushanda kwemishonga mitsva.

Dzimwe nguva, kana mishonga iyi yekurapa yakanangana neizvi iri kutengeswa, kana kuti kana zvidzidzo zvekare zvakaratidza kuti inoshanda parudzi rweglioma yemwana wako, chiremba wako anogona kukupa kunze kwekuyedzwa kwekiriniki.

Ndezvipi migumisiro yekurapa uku?

Taura nachiremba wako nezvemigumisiro inogona kuitika kana ukatora mishonga yakasiyana-siyana. Kunyange hazvo vanachiremba vachiedza nepavanogona napo kudzivirira kukuvadza nyama ine hutano panguva yekurapwa nemwaranzi, dzimwe nyama dzine hutano dzinogona kukanganiswa. Zvichienderana nekuti ndeapi mativi europi anokanganiswa, kurapwa nemwaranzi kunogona kukanganisa mashandiro europi, kukura kwemwana, uye kukanganisa kugadzirwa kwemahormone.

Zvakakosha zvikuru kukurukura nokungwarira uye kuongorora mabhenefiti nenjodzi dzinogona kuitika pakurapwa nechikwata chevanachiremba chiri kurapa mwana.

Chii chandinofanira kutarisira kana mwana wangu aine glioma yepamusoro?

Kufanotaura kwemwana wako nezvechirwere ichi kunoenderana nezvinhu zvakawanda, izvo chiremba wako anogona kukurukura newe. Rudzi rwemasero akakanganiswa, hunhu hwemasero acho, uye kuti bundu rakabviswa zvakadini panguva yekuvhiyiwa zvese zvinosarudza mhedzisiro.

Bvunza chiremba wako zvaunotarisira zvichienderana nemamiriro ezvinhu chaiwo emwana wako.

Chii chinoratidza kuti munhu ane glioma yepamusoro-soro anokwanisa kurarama nechirwere ichi?

Rudzi urwu rwegomarara runogona kudzoka mushure mekurapwa. Mwero wekurarama kwemakore mashanu ezvirwere zvegliomas zvepamusoro muvana uri pasi pe20%. Zvisinei, zvakakosha kuziva kuti magomarara aya akasiyana zvikuru. Anokura munzvimbo dzakasiyana, uye hunhu hwemasero ari maari hwakasiyana. Kusiyana uku kunogona kukanganisa ramangwana remwana wako.

Mibvunzo ipi yandinofanira kubvunza chiremba?

Pane mibvunzo yakawanda inouya mupfungwa panguva yakaita seiyi. Asi usakanganwa kubvunza chiremba wako mibvunzo iyi:

• Ndezvipi zvirongwa zvekurapa zviripo kumwana wangu?
• Nzvimbo yebundu iri inokanganisa sei nzira dzekurapa?
• Ndezvipi njodzi dzine chekuita nekurapwa?
• Ndezvipi zvatinofanira kutarisira kubva mukurapwa?
• Ndinofanira kutarisira sei mwana wangu panguva yekurapwa?
• Mwana wangu anofanira kuuya kuzorapwa nekuzotevera kangani?

Pakupedzisira, zvinhu zvekurangarira

Kuongororwa kuti une glioma yepamusoro kunogona kuva chinhu chakaoma zvikuru. Gomarara iri rinopararira nekukurumidza, uye bundu rinogona kudzoka kunyangwe mushure mekurapwa. Kazhinji uchafanirwa kuyera mabhenefiti ekurapwa uchienzanisa nemigumisiro yausingade kuti mwana wako awane.

Shandisa zvese zviripo kuti zvikubatsire iwe, mwana wako, nemhuri yako yese panguva iyi. Taura nachiremba wako nezvesarudzo dzekurapa uye miedzo yekiriniki. Kana paine masevhisi ekurapa anowanikwa, taura naye. Vimbisa mwana wako kuti ucharamba uchimutsigira sezvaunosangana nechirwere ichi pamwe chete. Izvi zvichava simba guru kwavari.

Glioma , Kenza yeUropi, Kenza yeVana, Glioma yeGiredhi Repamusoro, Kuvhiyiwa kweNeurosurgery, Kurapa neRadiation, Kurapa neChemotherapy