Mwana wenyu akaita bundu risinganzwisisike here? Ngatikurukurei nezveRhabdomyosarcoma

Zvakajairika kuti unzwe kutya zvikuru paunoona chimwe chinhu chisingawanzoitiki, sebundu kana kuzvimba, pamuviri wako kana pamuviri wemwana wako. Panguva dzakadaro, tinofunga zvinhu zvakawanda. Nhasi tichataura nezverudzi rwekenza rungave rwakadaro, asi rusingawanzoitiki. Irworwo irhabdomyosarcoma. Kunyange zvazvo zita racho ringanzwika serakaoma kana ukarinzwa, ngatitaurei nezvazvo zviri nyore.

Chii chinonzi Rhabdomyosarcoma?

Zvichitaurwa zviri nyore, rhabdomyosarcoma rudzi rwegomarara rinokura munyama dzakapfava dzemuviri wedu. Rinonyanya kukanganisa tsandanyama dzakabatana nemapfupa edu (dzinonzi tsandanyama dzemapfupa). Rinonyanya kuitika kuvana nevechidiki , asi rinogonawo kubata vanhu vakuru. Zvinofungidzirwa kuti vanhu vari pakati pe400 ne500 muUnited States vanoonekwa vaine chirwere ichi gore rega rega. Izvi zvinoreva kuti igomarara risingawanzoitiki . Kune mhando dzakasiyana dzegomarara. Dzimwe mhando dzine hukasha, zvichireva kuti dzinopararira nekukurumidza uye dzinonetsa kurapa. Nekurapwa kwakanaka, dzimwe nguva chirwere chinogona kupera zvachose (chinonzi remission). Zvisinei, dzimwe nguva gomarara rinogona kudzoka (rinonzi cancer repeat).

Ndeapi marudzi makuru echirwere ichi?

Kune mhando dzakawanda dze rhabdomyosarcoma. Ngatitarisei kuti ndedzipi:

1. Embryonal Rhabdomyosarcoma `(Embryonal Rhabdomyosarcoma)`

Iyi ndiyo mhando inonyanya kuwanikwa . Inowanikwa kuvana kwete kuvanhu vakuru. Inowanzoonekwa munzvimbo dzakatenderedza musoro nemutsipa. Semuenzaniso, muma membrane anofukidza uropi neburi reziso (apo ziso rakanyura). Kunewo mhando dzakasiyana. Dzimwe dzinogona kukura munhengo dzisina chinhu dzakadai sedundira nemukadzi (dzinonzi ``Botryoid Rhabdomyosarcoma''). Imwe mhando inogona kukura yakatenderedza machende emwana (inonzi ``Spindle Cell Rhabdomyosarcoma'').

2. Alveolar Rhabdomyosarcoma `(Alveolar Rhabdomyosarcoma)`

Rudzi urwu rwechirwere runowanzoonekwa muvana vakuru nevechidiki, vane makore ari pakati pe20 ne35. Runowanzoonekwa pamaoko, makumbo, kana padumbu. Rudzi urwu rwe alveolar rwakanyanya uye runopararira nekukurumidza . Runotanga kupararira nekukurumidza mushure mekunge rwakura.

3. Pleomorphic Rhabdomyosarcoma `(Pleomorphic Rhabdomyosarcoma)`

Rudzi urwu runowanzoonekwa muvanhu vakuru vane makore anopfuura makumi mashanu. Kunyangwe ruchigona kukura chero kupi zvako pamuviri, runonyanya kuonekwa pamakumbo . Runogonawo kukura pamaoko, pachipfuva, mudumbu, uye mune dzimwe nzvimbo dzemusoro nemutsipa.

Ndezvipi zviratidzo zve rhabdomyosarcoma?

Zviratidzo zvechirwere ichi zvinosiyana zvichienderana nekuti kenza iri kupi . Semuenzaniso, kana mwana aine bundu rakadai munzeve dzake, anogona kuona zviratidzo zvakaita sekurwadziwa kwenzeve uye mvura ichibuda munzeve. Kana bundu rikabuda seri kweziso, ziso rinogona kuita serakazvimba uye rakazvimba. Heano mimwe mienzaniso:

• Kana tsandanyama dziri paruoko kana pagumbo: bundu kana kuzvimba kunoperekedzwa nekurwadziwa.
• Dumbu (`(Dumbu)`): kurwadziwa mudumbu , kuzvimba, kurutsa .
• Dundira nenhengo yeweti: Ropa muweti (`(Hematuria)`), kuoma kuita weti.
• Mhuno: Zviratidzo zvakafanana nekubuda ropa mumhino (`(Epistaxis)`), hutachiona hwesinus (`(Sinus Infection )`).
• Kuzvara kwemwana: Chinhu chakaita sebundu rinobuda muchibereko chemwana.
• Mapundu ematumbu : Bundu rinokura nekukurumidza rakatenderedza matumbu emwana.

Zvakakosha: Zviratidzo izvi dzimwe nguva zvinogona kukonzerwa nematambudziko asina kunyanya kuoma. Zvinhu zvakaita sekubuda ropa mumhino, kurutsa, uye mapundu mumuviri hazviwanzo kukonzerwa nerhabdomyosarcoma. Zvisinei, kana iwe kana mwana wako muine zviratidzo izvi, kana zvikaramba zviripo kana kuti zvichiwedzera kuipa, munofanira kuona chiremba .

Ndezvipi zvikonzero zvechirwere ichi?

Rhabdomyosarcoma inokonzerwa nekuchinja kwemajini mumasero edu emhasuru (masero emhasuru asati akura) ayo anoita kuti ave nekenza uye apatsanuke nekukurumidza, zvichiita kuti pave nemabundu. Mamwe majini anochinja, akadai sePAX/FOX01 fusion gene, anogona kukonzera mamwe marudzi erhabdomyosarcoma. Zvakare, vanhu vane mamwe mamiriro ekugara nhaka vari panjodzi huru yekubata chirwere ichi. Mamwe ematambudziko aya anosanganisira:

• Chirwere cheLi-Fraumeni
• chirwere cheBeckwith-Wiedemann
• Neurofibromatosis
• Costello syndrome
• Chirwere chemwoyo chinonzi `(Cardiofasciocutaneous syndrome)`

Rhabdomyosarcoma inoonekwa sei?

Kana iwe kana mwana wako mukaona chiremba, vanotanga nekubvunza nezvezviratidzo zvenyu. Vanobvunzawo kana paine munhu mumhuri yenyu ane chero chirwere chenhaka chataurwa pamusoro apa, sezvo izvi zvichigona kukupa pfungwa yengozi yako yekubata chirwere ichi. Vachazoongorora muviri kuti vaone kana paine zviratidzo zvechirwere ichi, zvakaita semapundu nekuzvimba. Pamusoro pezvo, vanogona kuita bvunzo dzinotevera kuti vabatsire kuona chirwere chacho:

• Kuongororwa kweCT `(Kuongororwa kweComputed Tomography (CT)` kana kuongororwa kweMRI `(Kuongororwa kweMagnetic Resonance Imaging (MRI)`
• Kuongororwa kwePET `(Positron Emission Tomography (PET) scan)`
• Kuongororwa kwemapfupa
• Kuboorwa kwemusana (kuyedzwa uko mvura shoma inotorwa kubva kumusana)
• Kuongororwa kweBone Morrow Biopsy
• Kuongororwa kweganda (kutora chidimbu chidiki chenyama kubva mubundu kuti chiongororwe)
• Kuongororwa kwenyama kwakakosha senge immunohistochemistry
• Miedzo yeCytology

Izvi zvinogona kuonekwa here nekuongororwa kweropa?

Kwete, hapana kuongororwa kweropa zvakananga kunogona kuona rhabdomyosarcoma. Zvisinei, chiremba wako wekenza anogona kuraira kuongororwa kweropa mushure mekuongororwa. Semuenzaniso, kuongororwa kweropa kwakazara (CBC) kunogona kuitwa kuti uone kana chirwere chacho chapararira kusvika mumongo wemapfupa. Kuongororwa kweropa kunoitwawo panguva yekurapwa kuti uone kuti muviri wako uri kupindura sei kurapwa.

Mapoka Engozi yeRhabdomyosarcoma

Kana vana vaita rhabdomyosarcoma, vanachiremba vekenza vanoisa chirwere ichi mumapoka ane njodzi. Kupatsanurwa uku kunobva pazvinhu zvitatu zvikuru: 1. Danho rebundu: Vanachiremba vanoshandisa sisitimu inonzi TNM Staging System kuti vaone izvi. T inoreva kukura nenzvimbo yebundu, N inoreva kana kenza yapararira kusvika kuma lymph nodes, uye M inoreva kana kenza yapararira kune dzimwe nhengo dzemuviri. 2. Boka rekiriniki: Izvi zvinoonekwa mushure me biopsy kana kuvhiyiwa. Semuenzaniso, kana bundu richigona kubviswa zvachose ne biopsy kana kuvhiyiwa, rinoiswa muboka reBoka I. Mapoka aya anotangira pa1 kusvika pa4. 3. Kuchinja kwemajini: Kana PAX/FOX01 fusion gene mutation iripo. Mapoka aya ane njodzi anonzi low risk, intermediate risk, uye high risk . Chikwata chevanachiremba vemwana wenyu chinoshandisa boka iri renjodzi kuronga kurapwa, kufungidzira mukana wekuti kenza ichadzoka mushure mekurapwa, uye kuona zvekutarisira mushure mekurapwa (prognosis).

Maitiro ekuona rudzi urwu rwenjodzi akaoma zvishoma. Ungasanzwisisa ruzivo rwese rwashandiswa ipapo ipapo. Saka, usazeza kubvunza timu yevanachiremba vemwana wako kuti vakutsanangurire . Vachafara kukutsanangurira zvese.

Ndeipi mishonga yekurapa rhabdomyosarcoma?

Nzira dzekurapa dzinosiyana zvichienderana nerudzi rwechirwere. Nekuti rhabdomyosarcoma chirwere chisingawanzoitiki, kana iwe kana mwana wako muine chirwere ichi,Bvunzai timu yenyu yezvekurapa kana muchikwanisa kutora chikamu mukuyedzwa kwekiriniki . Vanachiremba vekenza vanowanzo shandisa nzira idzi dzekurapa:

• Kuvhiya
• Kurapa Nemwaranzi
• Kurapa nemakemikari (chemotherapy)

Rhabdomyosarcoma inogona kurapwa zvachose here?

Dzimwe nguva, hongu, kurapwa kunogona kurapa rhabdomyosarcoma . Izvi zvinonzi "kurerutswa" kwechirwere. Izvi zvinoreva kuti zviratidzo zvinopera uye hapana masero ekenza anowanikwa pakuongororwa. Kazhinji, mushonga uyu unogara kwenguva refu, asi dzimwe nguva rhabdomyosarcoma inogona kudzoka. Kazhinji, vakuru havawanzo pora zvachose kubva kuchirwere ichi kupfuura vana .

Munhu ane rhabdomyosarcoma anotarisirwa kurarama kwenguva yakareba sei?

Hapana nhamba chaiyo yekuti munhu ane rhabdomyosarcoma achararama kwenguva yakareba sei. Zvisinei, vaongorori vanocherechedza huwandu hwevanhu vari kurarama makore mashanu mushure mekuonekwa vaine rhabdomyosarcoma. Huwandu hwekupona uku hunoenderana nezvinhu zvakawanda, kusanganisira rudzi rwechirwere, boka renjodzi, uye kana chirwere ichi chichidzoka mushure mekurapwa . Kazhinji, 70% yevana vane chirwere ichi vanorarama makore mashanu mushure mekuonekwa. Kune vakuru, huwandu hwekupona kwemakore mashanu hunenge 20%.

Pasinei nemamiriro ako ezvinhu, zvakakosha kuyeuka kuti huwandu uhwu hwekupona hunofungidzirwa zvichibva pane zvakaitika kune vamwe vakamborapwa rhabdomyosarcoma. Kana iwe kana mwana wako muine chirwere ichi, zvakajairika kuda kuziva kuti ramangwana rakamira sei. Kana zvakadaro, timu yako yezvekurapa ndiyo munhu akanakisa wekutaura naye nezvazvo .

Ndingazvitarisira sei ini nemwana wangu?

Gomarara rinogona kukanganisa zvikuru hupenyu hwako hwezuva nezuva. Rhabdomyosarcoma haisi imwe chete. Kana iwe kana mwana wako muine chirwere ichi, munogona kunzwa kushushikana zvakanyanya uye kuneta. Heano mamwe mazano anogona kubatsira panguva iyi:

• Funga nezveKurapwa Kwevanhu Vasina Kurwara: Zviratidzo zvegomarara uye marapirwo azvo zvinogona kuoma kutsungirira. Kurapwa kwevanhu vasina kurwara inzira inobatsira kuvandudza hupenyu, kubva pakuderedza zviratidzo kusvika pakupa rutsigiro rwepfungwa.
• Taura neNyanzvi yeHupenyu hweVana: Gomarara rinogona kushandura hupenyu hwemwana. Rinogona kumubvisa pashamwari nemabasa ezuva nezuva. Kurarama negomarara kunogona kuva kusurukirwa kumwana ari kusangana nechiitiko chisinganzwisiswe neshamwari dzake. Nyanzvi dzehupenyu hwevana vashandi vehutano vakadzidziswa zvakanyanya vanobatsira vana kubata nezviitiko zvehutano.
• Kumbozorora:Kurapwa kwegomarara - uye kutarisira mwana ane gomarara - kunogona kunetsa zvikuru. Kana uri kurapwa, edza kuzorora chero nguva yaunoda, kwete chete kana uine nguva. Kana uri kutarisira mwana ane rhabdomyosarcoma, bvunza chiremba wako nezvezvirongwa zvekuchengeta zororo.
• Funga nezveKupona kweKenza: Rhabdomyosarcoma inogona kudzoka mushure mekurapwa. Kana uchinetseka kuti kenza ichadzoka kwauri kana kumwana wako, bvunza chiremba wako nezverubatsiro rwevanhu vanopona kenza.

Ndirini pandinofanira kutaura nechiremba wangu wekenza?

Kana iwe kana mwana wako muri kurapwa, taura nachiremba wako kana migumisiro yekurapwa kwacho yakanyanya kuipa kupfuura zvaitarisirwa . Zvichienderana nemamiriro ako ezvinhu, chiremba wako angave akakupa mirairo chaiyo nezvezviratidzo zvinogona kuratidza kuti rhabdomyosarcoma yako iri kupararira kana kudzoka. Usazeza kutaura navo nezvechero zvinokunetsa.

Mibvunzo ipi yandinofanira kubvunza chiremba wangu?

Rhabdomyosarcoma chirwere chisingawanzoitiki. Ungasaziva zvakawanda nezvacho. Ungave uine chirwere ichi kana kuti mwana wako anacho, ungave nemibvunzo yakawanda pamusoro pezvaunotarisira mune ramangwana. Heano mimwe mibvunzo yekubvunza panguva dzakadaro:

• Rudzii rwechirwere che rhabdomyosarcoma chandinacho/mwana wangu?
• Chii chinonzi kupatsanurwa kwemapoka ane njodzi?
• Ndeapi marapirwo amunokurudzira?
• Ndezvipi migumisiro yekurapwa?
• Pane here miedzo yekiriniki yatinogona kutora chikamu mairi?
• Chii chinotarisirwa kuti mwana wangu awane chirwere ichi?
• Ndedzipi nzira dzekubatsira dzamuinadzo dzinogona kutibatsira?

Pakupedzisira, zvekurangarira

Rhabdomyosarcoma rudzi rwekenza rusingawanzoitiki . Nyanzvi hadzisati dzaziva kuti nei ichiitika. Kana iwe kana mwana wako aine rhabdomyosarcoma, unganetseka kuti hauzive kuti nei chakaitika. Chikwata chako chekurapa chinonzwisisa izvozvo. Kunyange hazvo vasingakwanise kutsanangura kuti sei iwe kana mwana wako aine rhabdomyosarcoma, vanogona kutsanangura zvinhu zvakaita sekuongororwa, kurapwa kunogona kuitika, uye kugona kutora chikamu mukuyedzwa kwekiriniki. Vanogonawo kukubatsira kuwana zviwanikwa zvakaita semapoka ekutsigira uye rubatsiro rwakakosha. Usanetseke, hausi wega. Rhabdomyosarcoma, kenza, kenza yevana, kenza yemapfupa akapfava, zviratidzo zvekenza, kurapwa kwekenza, zvirwere zvemajini