Uropi hwemwana wako husina nhengo here? Tingataura nezve hydranencephaly here?

Ehe, dzimwe nguva zvinorwadza kufunga nezvezvirwere zvinogona kutambura nevana vedu, handiti? Kunyanya, mamwe mamiriro ezvinhu atinodzidza nezvawo mwana achiri mudumbu akaoma kunzwisisa. Nhasi tichataura nezvechirwere chakakomba cheuropi chisingawanzoitiki, asi chakakosha kuziva nezvacho. Izvi zvinonzi hydranencephaly.

Chii chinonzi Hydranencephaly?

Zvichitaurwa zviri nyore, hydranencephaly chirwere chisingawanzoitiki chetsinga chinoitika pakuzvarwa. Mumamiriro ezvinhu aya, zvikamu zviviri zvakakosha zveuropi hwemwana, zvinonzi cerebral hemispheres , hazviumbwe. Funga nezvazvo, chikamu chikuru cheuropi hwedu icerebrum. Ndipo panowanikwa ma hemispheres maviri aya. Kufunga, kurangarira, uye kunzwa zvese zvinodzorwa ne ma hemispheres aya europi.

Saka, mumusoro memwana ane hydranencephaly, panofanira kunge paine cerebral hemispheres, mune masaga azere necerebrospinal fluid (CSF) . Iyi cerebrospinal fluid (CSF) ndiyo mvura inokomberedza nekudzivirira uropi hwedu nemusana. Asi muchiitiko ichi, chimwe chinhu chakasiyana chinoitika.

Nekufamba kwenguva, misoro yevana ava inotanga kukura. Uyewo, zvimwe zviratidzo zvakakomba zvinogona kuoneka. Zvinosuwisa kuti chirwere ichi chinowanzoita kuti mwana afe nguva pfupi mushure mekuzvarwa, kunyangwe asiri mudumbu raamai vake.

Chii chiri musiyano uripo pakati peHydranencephaly neHydrocephalus?

Ungave wakambonzwa nezvechirwere chinonzi hydrocephalus. Zvese izvi zvinosanganisira musoro wakakura uye kuunganidzwa kwe cerebrospinal fluid (CSF). Asi izvi zviviri zvakasiyana zvikuru.

Hydrocephalus chirwere apo mvura iri mukati meuropi, inonzi cerebrospinal fluid (CSF), inoungana, zvichikonzera kumanikidzwa kwakawanda mukati medehenya. Izvi zvinogona kukonzera kukuvara kweuropi. Inogona kuvapo pakuzvarwa, kana kuti inogona kuitika mushure metsaona kana kurwara. Dzimwe nguva, hydrocephalus inogonawo kuitika sechiratidzo chechirwere chinonzi hydranencephaly.

Asi mu hydranencephaly, uropi hahukure zvakanaka mwana achiri mudumbu. Izvi zvinoreva kuti zvikamu zvishoma zveuropi zvinokura.

Zvakakosha kusiyanisa zvirwere zviviri izvi, sezvo marapirwo azvo uye fungidziro yazvo zvakasiyana zvikuru. Vana vazhinji vane hydrocephalus vanogona kupora kana vakaongororwa zvakanaka uye vakarapwa. Zvisinei, vana vane hydranencephaly havawanzoiti izvozvo.

Saka musiyano uripi pakati peizvi neholoprosencephaly?

Ichi chimwe chinhu chisina kujairika chine chekuita nekukura kwehuropi.Muhosha yehoroprosencephaly, chikamu chepamberi cheuropi hwemwana (forebrain), uropi hwambotaurwa, hachipatsanurwi. Kureva kuti, panzvimbo pezvikamu zviviri, chinoramba chiri chimwe chete. Zvisinei, muhosha yehydranencephaly, uropi ihwohwo hahupo zvachose.

Zvichienderana nekuoma kwechirwere ichi, vamwe vacheche vane holoprosencephaly vanogona kurarama mushure mekuzvarwa.

Dambudziko iri rakajairika zvakadii, Hydranencephaly?

Ichi chirwere chisingawanzoitiki. Masayendisiti anofungidzira kuti chirwere ichi chinokanganisa munhu mumwe chete pavanhu 10,000 vane pamuviri, kana kuti munhu mumwe pavanhu 5,000 vane pamuviri. Izvozvo zvakaderera zvikuru.

Sei hydranencephaly ichiitika? Ndezvipi zvinokonzera?

Kutaura zvazviri, masayendisiti haasati aziva kuti chii chinokonzera hydranencephaly. Zvinogoneka kuti inyaya yekuzvarwa nayo, asi hapana kunzwisisa kwakajeka kwekuti inoitika sei.

Zvisinei, mune dzimwe nguva, chirwere ichi chakaonekwa kuti chine chekuita nekusangana kwechepfu naamai panguva yekuzvitakura . Saka, kungwarira kwakanyanya kunofanira kuitwa panguva yekuzvitakura.

Ndezvipi zviratidzo zvechirwere ichi?

Kana mwana ane hydranencephaly aberekwa, anogona kutaridzika semwana akajairwa kwemazuva mashoma ekutanga. Nokudaro, zvingave zvakaoma kumuziva nekukasika. Zviratidzo zvinotanga kuoneka mukati memavhiki mashoma ekutanga kana mwedzi yehupenyu. Heano mamwe ezviratidzo zvinogona kuoneka:

• Kukundikana kukura zvakanaka zvinoreva kuti mwana haasi kuwedzera uremu kana kukura zvakanaka .
• Kuomarara kwetsandanyama kunogona kuwedzera kana kuderera, pamwe nekugwinha kwetsandanyama .
• Musoro wacho wakakura kupfuura zvakajairika.
• Kuomerwa nekuona nekunzwa .
• Kuomarara mumakumbo.
• Kutadza kufema zvakanaka .

Kana uine chimwe chezviratidzo izvi kana kupfuura, zvakakosha kuti utsvage rubatsiro rwechiremba nekukasika.

Hydranencephaly inoonekwa sei?

Dambudziko iri dzimwe nguva rinogona kuonekwa mwana asati aberekwa, kureva kuti, panguva yekuongorora kwe ultrasound . Sezvamunoziva, kuongorora kwe ultrasound kunogadzira mufananidzo wemwana ari mudumbu raamai. Zvadaro, zvinogona kuonekwa kuti uropi hwemwana hahupo.

Kana ultrasound yemwana asati aberekwa ichiratidza kuti ane hydranencephaly, chiremba anogona kuraira kuti MRI ionekwe kuti mifananidzo yacho inyatsojeka.

Zvisinei, dzimwe nguva hazvionekwi panguva yekuzvitakura uye chirwere ichi chinogona kuramba chiripo mushure mekunge mwana aberekwa. Kana zvakadaro, zvinogona kutora mavhiki kana mwedzi kuti chirwere ichi chiongororwe. Nekuti, sezvambotaurwa, mwana anogona kutaridzika seakanaka pakutanga.

Chiremba anogona kusimbisa chirwere ichi zvichibva pazviratidzo zvemwana uye MRI yeuropi. MRI inogona kubatsira kusiyanisa hydranencephaly nezvimwe zvirwere, zvakaita sehydrocephalus neholoprosencephaly, izvo zvakambotaurwa nezvazvo.

Uye zvakare, mimwe miedzo inogona kuitwa, yakaita se:

• Angiography: Izvi zvinosanganisira kutora mifananidzo yeX-ray yetsinga dzeropa uchishandisa dhayi yakakosha.
• Kuongororwa kweCT: Iyi imwe nzira yekutora mifananidzo yehuropi.
• Hydranencephaly ultrasound: Kuongororwa kwe ultrasound kwakaitwa zvakananga kuti vaone kana chirwere ichi chiripo.
• Kupenya kwechiedza: Izvi zvinosanganisira kupenya chiedza kuburikidza netsinga dzeuropi kubva pasi pedehenya kuti uone kana paine zvisina kumira zvakanaka.
• Kuongororwa kwemajini: Ona kana zviri zvenhaka.

Ndezvipi zvirongwa zvekurapa vana vane hydranencephaly?

Iyi inyaya inonetsa zvikuru. Kana hydranencephaly ikasimbiswa panguva yekuongororwa kwemwana asati aberekwa, dzimwe mhuri dzinosarudza kubvisa pamuviri nenzira yekurapa , iyo iri yekugumisa pamuviri nekuda kwezvikonzero zvehutano. Ichi chisarudzo chakaoma zvikuru, asi vanachiremba nevapi vemazano vanopa rutsigiro rwakakodzera panguva dzakadaro.

Kana mwana akazvarwa aine hydranencephaly, hapana mushonga. Kurapa kwacho kunonyanya kuitirwa kuderedza zviratidzo uye kuita kuti mwana anzwe akasununguka sezvinobvira.

• Kuvhiyiwa kunoitwa kubvisa mvura yakawandisa muuropi uye kuisa shunt (chubhu diki) kuderedza kumanikidzwa muuropi. Kunyange zvazvo iyi iri nzira inoshanda yekurapa hydrocephalus, haishandiswi zvakanyanya pa hydranencephaly.
• Mushonga unonzi Endoscopic Choroid Plexus Coagulation (ECPC) dzimwe nguva unogona kushandiswa semushonga wekukura kwehuropi nekukurumidza.

Uyezve, chiremba anogonawo kukurudzira zvinhu zvakaita se:

• Mishonga yekudzivirira pfari .
• Rutsigiro rwezvekudya.
• Kurapa muviri kuderedza zviratidzo zvetsandanyama.
• Kana paine kutadza kufema zvakanaka, tracheostomy (kuvhiyiwa kudiki pahuro) kana kuti mechanical ventilation zvingadiwa.

Ko chirwere ichi che hydranencephaly chinogona kudzivirirwa here?

Masayendisiti haasati anyatsonzwisisa kuti sei izvi zvichiitika, saka havakwanise kutaura chokwadi kuti vangazvidzivirira sei. Zvisinei, sezvambotaurwa, dzimwe nyaya dzakabatana nekusangana nehupfu panguva yekuzvitakura. Semuenzaniso, zvinodhaka zvakaita secocaine, kusvuta, uye mimwe mishonga yepfari yakaita sesodium valproate.

Saka, zvakakosha zvikuru kuti vanaamai vane pamuviri vasapinzwe muchetura. Zvakakoshawo kutaura nachiremba wavo nezvemishonga yavari kutora.

Mwana ane hydranencephaly anotarisirwa kurarama kwenguva yakareba sei?

Izvi zvinosuwisa kunzwa. Maonero evana vane hydranencephaly haana kunaka. Vana vazhinji vanofa vasati vaberekwa kana vasati vasvitsa gore rimwe chete. Kashoma, kana mwana ane hydranencephaly achitarisirwa zvakanyanya, anogona kurarama kwemakore akati wandei.

Unoita sei nemamiriro ezvinhu akadai?

Kuziva kuti mwana wako ane chirwere chakadai se hydranencephaly chinhu chakaoma zvikuru kubata nacho. Izvozvo zvinonzwisisika.

• Zvakakosha zvikuru kupa mhuri dzidzo inodiwa kuti dzinzwisise kuipa kwechirwere ichi.
• Uyewo, kutsvaga mazano uye kujoina mapoka ekutsigirana kwaunogona kubatana nedzimwe mhuri dziri kusangana nemamiriro ezvinhu akafanana kunogona kuva sosi huru yesimba.

Hydranencephaly chirwere chisingawanzoitiki chinokanganisa kukura kwehuropi. Chinowanzoonekwa mwana asati aberekwa kana kuti nguva pfupi mushure mekuzvarwa. Kana mwana wako aine chirwere ichi, timu yako yezvekurapa ichakupa iwe nemhuri yako rutsigiro rwese, dzidzo, uye mazano aunoda. Yeuka, hausi wega.

Mharidzo Yekupedzisira Yekuenda Kumba

Amai naBaba, Hydranencephaly chirwere chinoshungurudza zvikuru uye chinonetsa. Zvisinei, zvakakosha kuziva nezvazvo.

• Ichi chirwere chisingawanzoitiki chinoitika kana zvikamu zveuropi zvikasakura zvakanaka.
• Izvi zvinowanzoonekwa kuburikidza ne prenatal scans .
• Kunyange hazvo pasina mushonga weizvi, kune mishonga yekudzora zviratidzo uye kuita kuti mwana anzwe akasununguka .
• Nekuti chikonzero chaicho hachizivikanwe, zvakakosha kutora matanho ekudzivirira, akadai sekudzivirira chepfu panguva yekuzvitakura.
• Mhuri dziri kutarisana nemamiriro ezvinhu aya dzinogona kuwana simba guru kubva kuna vanachiremba, vapi vemazano, uye mapoka ekutsigira .

Kana muine mimwe mibvunzo nezvenyaya iyi, ndapota taurai nachiremba wenyu. Vachakupai ruzivo rwese nenhungamiro yamunoda.

` Hydranencephaly, zvikanganiso zveuropi, zvirema zvekuzvarwa, hutano hwevacheche, cerebrospinal fluid, hydrocephalus, kuongororwa kwemwana asati aberekwa