Wakamboona mumwe munhu mumhuri mako kana mumwe munhu waunoziva achingoerekana adonha achirovedza muviri kana kuti achitya zvikuru? Dzimwe nguva, kuseri kwezvinhu zvakadaro kune chirwere chemwoyo chatisati tanzwa zvakawanda nezvacho, asi chinogona kuva chakakomba zvikuru. Chimwe chezvirwere zvakadaro iLong QT Syndrome (LQTS). Kunyangwe zita racho ringanzwika serakaoma zvishoma, ngatirinzwisisei zviri nyore.
Chii chinonzi Long QT Syndrome (LQTS)?
Zvichitaurwa zviri nyore, Long QT Syndrome (LQTS) idambudziko rine chekuita nemagetsi emoyo wako.
Funga nezvemoyo wako seflashi iri pakamera. Kana wangorova kamwe chete, unoda kuchajwa zvishoma usati warova zvakare. Ndizvo zvinoita kuti magetsi emoyo atange kuchajwa pakati pekurova. Nguva yatinotora kuti izvi zviitike ndiyo yatinoyera paECG (Electrocardiogram) sechikamu cheQT .
Nguva yekuchaja iyi yakareba kune munhu ane LQTS pane kune munhu ane hutano hwakanaka. Izvi zvinoreva kuti magetsi emoyo anotora nguva yakareba kugadzirira kurova kunotevera.
Izvi zvinoitika sei?
Kushanda kwemagetsi kwemwoyo yedu kunodzorwa nezvidimbu zvidiki zvemagetsi zvinonzi maion (semuenzaniso, sodium, potassium, calcium). Maion aya anopinda nekubuda mumasero emhasuru dzemwoyo kuburikidza nemagedhi madiki anonzi maion channels .
MuLong QT Syndrome, nzira idzi dze ion hadzishande zvakanaka kana kuti hadzina kukwana. Izvi zvinoita kuti moyo utange kushanda nesimba kunonoka.
Kana nguva yeQT ikawedzerwa nenzira iyi, kurova kwemoyo kunotyisa, kunouraya, nekukurumidza, uye kusina kurongeka (arrhythmia) kunogona kuitika. Mukurapa, tinodana izvi kuti Torsades de Pointes . Ichi chimiro chechirwere chine njodzi chinonzi Ventricular Tachycardia .
Ndedzipi mhando huru dzeLQTS?
LQTS inogona kukamurwa kuita mhando mbiri huru: nhaka neyakawanikwa.
1. LQTS dzekuzvarwa nadzo/dzakazvarwa nadzo
Izvi zvinokonzerwa nekusakwana kwemajini. Izvi zvinoreva kuti zvinotorwa kubva kuvabereki kuenda kuvana. Pano zvakare, kune mhando dzakawanda huru.
| Rudzi rwekuzvarwa narwo rweLQTS | Tsananguro iri nyore |
|---|---|
| Chirwere cheRomano-Ward | Iyi ndiyo mhando inonyanya kuwanikwa. Muchiitiko ichi, mumwe wevabereki anogona kunge aine LQTS. Pane mukana we50% wekuti mwana agare nhaka chirwere ichi. Kunzwa (kunzwa) muvanhu ava kwakajairika. |
| Jervell uye Lange-Nielsen Syndrome | Izvi hazviwanzoitiki. Panyaya iyi, vabereki vese ndivo vanotakura jini reLQTS (vangasava nezviratidzo). Pane mukana we25% wekuti mwana agare nhaka chirwere ichi. Vana vane chirwere ichi vanowanzozvarwa vari matsi. |
| Chirwere chaTimoti | Rudzi urwu runowanzoonekwawo zvisingawanzoitiki. Runogona kukanganisa kwete mwoyo chete, asiwo dzimwe nhengo dzemuviri. |
2. LQTS yakawanikwa
Izvi hazvikonzerwi nezvinhu zvemajini. Vamwe vanhu vanogona kuzvarwa vaine kusasimba mumigero yavo yeion. Asi izvozvo hazvisi dambudziko. Zvisinei, chirwere ichi chinogona kukonzerwa nechimwe chinhu chekunze.
Zvikonzero zvikuru ndeizvi:
- Mimwe mishonga: Mimwe mishonga inorwisa mabhakitiriya, mishonga inorwisa kuora mwoyo, mishonga inoderedza kusagadzikana kwepfungwa, uye mishonga inobvisa mvura mumuviri.
- Kudzikira kwemunyu mumuviri: Kudzikira kwehuwandu hwepotassium, magnesium, kana calcium muropa.
- Zvimwe zvinokonzera: Matambudziko ekudya akadai seanorexia nervosa, kukuvara kwetsinga, uye zvimwe zvinhu zvine chepfu.
Zviratidzo izvi zvingava zvipi?
Chinhu chine njodzi huru pamusoro peLQTS ndechekuti vanhu vanosvika 50% havaratidzi zviratidzo . Zvisinei, kana zviratidzo zvikaitika, zvinowanzova zvakakomba. Zviratidzo izvi zvinoitika kana patani yemoyo ine njodzi inonzi Torsades de Pointes yamboitika.
| Chiratidzo chikuru | Chii chinoitika kwairi? |
|---|---|
| Kusawirirana | Nekuda kwekurova kwemoyo kusina kurongeka, uropi hahuwani ropa rakakwana. Izvi zvinogona kukonzera kurasikirwa nepfungwa nekukasika uye kudonha. |
| Kubatwa nepfari | Dambudziko rinonzi chikosoro rinogona dzimwe nguva kuitika nekuda kwekudzikira kweropa rinoenda kuuropi. |
| Kusungwa Kwemwoyo | Kana kurova kwemoyo ikoko kune njodzi kukaramba kuripo, mwoyo unogona kumira kurova zvachose. |
| Rufu Rusingatarisirwi | Kumira kwemwoyo kunogona kuuraya kana kukasarapwa nekukasika. Dzimwe nguva, ichi ndicho chiratidzo chekutanga chemunhu ane LQTS. |
Mamiriro ezvinhu apo zviratidzo zvinowanzoonekwa:
- Paunenge uchirovedza muviri kana kuti wapedza.
- Munguva yekukurumidzirwa kwepfungwa kwakamwe kamwe, kwakanyanya (semuenzaniso, kana uchitya zvikuru, kana kuvhunduka).
- Panguva yekurara kana pakumuka kamwe kamwe kubva muhope.
Ndiani ari panjodzi huru yekuva nechirwere ichi?
Vanhu vanotevera vari panjodzi huru yekubatwa neLQTS:
- Hama dzepedyo dzeropa (vabereki, vanun'una, vana) dzemunhu ane LQTS.
- Vanhu vane nhoroondo yemhuri yekurasikirwa nendangariro, pfari, kana kufa kamwe kamwe vachiri vadiki.
- Vana vanozvarwa vari matsi (nekuda kwenjodzi yekubatwa neJervell neLange-Nielsen Syndrome).
- Vanhu vane zvimwe zvirwere zvemwoyo zvakaita secardiomyopathy.
- Vanhu vanoshandisa mishonga inowedzera nguva yeQT.
Kana mumwe munhu mumhuri mako akaonekwa aine chirwere cheLQTS, zvakanaka kuti uongororwe chirwere ichi. Kutanga, taurira chiremba wako nezvazvo. Achakutumira kuti unoongororwa ECG.
Unoziva sei kana uine LQTS?
Nzira huru yekuziva izvi ndeyekushandisa ECG (Electrocardiogram).Bvunzo. Chiremba anoyera nguva yeQT paECG. Kazhinji, kana nguva iyi ichipfuura 450 milliseconds, LQTS inogona kufungidzirwa.
Uye zvakare, chiremba anogona kukurudzira mimwe miedzo yakati wandei:
- Kuongororwa kweropa: Tarisa huwandu hwemunyu mumuviri, hwakadai sepotassium nemagnesium.
- Kuedza Kushushikana Kwemuviri: Ona kuti mashandiro emoyo wako anochinja sei panguva yekurovedza muviri.
- Chinoongorora Mafambiro Emoyo (Holter Monitor): Chishandiso chidiki chinoiswa pachipfuva chako kuti chigare chichinyora kurova kwemoyo wako kwemaawa makumi maviri nemana kana kupfuura.
- Kuongororwa kwemajini: Tarisa kana paine shanduko dzemajini dzine chekuita neLQTS.
Ndezvipi zvinorapwa izvi?
Kunyange hazvo LQTS isingarapike zvachose, kune mishonga inogona kubatsira kudzora zviratidzo, kudzivirira njodzi yekufa kamwe kamwe, uye kurarama hupenyu hwakajairika.
| Nzira yekurapa | Tsananguro |
|---|---|
| Mishonga | Vanhu vazhinji (kunyangwe vasina zviratidzo) vanopiwa mishonga ye beta-blocker . Iyi mishonga inobatsira kudzora kurova kwemoyo zvishoma uye kuderedza kupindura kwemoyo kune zvinokunetsa kamwe kamwe. |
| Zvishandiso |
|
| Kuvhiya | Kuruboshwe kwemwoyo kunokonzera tsitsi (LCSD) kune varwere vane njodzi huru vanoomerwa nekudzora nemishonga nemidziyoKuvhiyiwa uku kunosanganisira kubvisa dzimwe tsinga dzinoenda kumoyo, zvichideredza kupindura kwemoyo kune zvinokunetsa kamwe kamwe. |
Zvinhu zvekufunga nezvazvo kana uchigara neLQTS
Zvinokwanisika kurarama hupenyu hwakajairika uye hwakazara neLQTS. Zvisinei, pane zvinhu zvishoma zvaunofanira kuziva muhupenyu hwako hwezuva nezuva.
1. Ruzha rwekamwe kamwe uye kushushikana
Kune vanhu vane mamwe marudzi eLQTS, ruzha rukuru (semuenzaniso, alarm, kurira kwefoni) kana kuvhunduka kamwe kamwe kana kutya zvinogona kuva nengozi.
- Udza mhuri neshamwari kuti hazvina kunaka kukuseka.
- Panzvimbo pemaawa ekunyevera ane ruzha, shandisai anoridza mimhanzi yakapfava.
2. Kurovedza muviri nemitambo
Kune vanhu vane mamwe marudzi eLQTS, mitambo yemakwikwi uye kurovedza muviri kunorema zvinogona kuva nengozi zvikuru.
- Iva nechokwadi chekubvunza chiremba wako kuti ndeapi maekisesaizi akakodzera uye asina kukodzera iwe.
- Kushambira kune njodzi huru kune vamwe vanhu. Pane njodzi yekunyura kana ukarasikirwa nepfungwa mumvura. Usashambire uri wega.
3. Chenjerera zvakanyanya nemishonga!
Ichi ndicho chinhu chakakosha. Kunyangwe mishonga yakawanda inowanzo shandiswa inogona kuita kuti LQTS iwedzere kuipa.
- Udza chiremba wese anokurapa kuti une LQTS.
- Usati wanyora mushonga wechimwe chirwere, taura nachiremba wemwoyo wako.
- Usatenge mushonga unotengwa nevatengi kubva ku pharmacy kana chero kupi zvako usina kubvunza chiremba (kunze kwezvinhu zvakaita se paracetamol ne aspirin).
Ndinofanira kuona chiremba rini?
Kana wangoonekwa uine LQTS, unofanira kuona chiremba wako kanenge kamwe chete pagore kuti aongororwe. Zviri nani kuona nyanzvi ye electrophysiologist, chiremba ane ruzivo nezvezvirwere zvemoyo.
Kana mwana wako aine chirwere ichi, unofanira kuona chiremba kakawanda sezvo mushonga wemushonga wacho uchifanirwa kugadziriswa zvichienderana nehuremu hwake.
Ndinofanira kuenda kuETU (Emergency Treatment Unit) riini?
Kana munhu afa asina chaanoziva obva adonha, fonera amburenzi nekukasika. Panguva ino, kana paine munhu akadzidziswa kuita CPR (cardiopulmonary resuscitation), ipe. Mumamiriro ezvinhu akadai, sekondi yega yega inokosha.
Mharidzo Yekuenda Nayo Kumba
- Long QT Syndrome (LQTS) chirwere chinotapukira mumajini kana kuti chinotorwa nemoyo umo magetsi emoyo anotora nguva yakareba kuti atange kushanda.
- Kurasikirwa nepfungwa kamwe kamwe, pfari, uye kutadza kushanda kwemoyo kusingatsananguriki ndizvo zviratidzo zvikuru. Zvisinei, vanhu vazhinji vanogona kusaona zviratidzo zvachose.
- Kana paine munhu mumhuri yako ane chirwere ichi kana kuti akambofa kamwe kamwe achiri mudiki, zvakakosha kuti uongororwe ECG.
- Usati watora chero mushonga (kunyangwe kune zvimwe zvirwere), taura nachiremba wako kuti uve nechokwadi chekuti hauna njodzi kwauri.
- Kana munhu ane chirwere cheLQTS akarapwa zvakanaka (mushonga, mudziyo weICD) uye akachinja mararamiro ake, anogona kurarama hupenyu hwakanaka uye hwakazara. Hapana chikonzero chekutya, asi zvakakosha kuti uchenjerere.
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