Une zviratidzo izvi here? Ngatitaurei nezve Multiple Sclerosis (MS)!

Dzimwe nguva unonzwa sekunge uri kurasikirwa nechiyero chako here kana kuti kuona kwako kwava kusinganyatsooneki? Kana kuti unonzwa sekunge uri kurasikirwa nechiyero chako paunofamba? Pane dzimwe nguva paunoshamisika kana zvinhu izvi zviri kungopfuura, kana kuti zviri kutanga kwechimwe chinhu chikuru? Nhasi tichataura nezvechirwere chakaoma zvishoma, asi chakakosha kuziva. Icho chinonzi Multiple Sclerosis , kana kuti MS muchidimbu.

Chii chinonzi Multiple Sclerosis?

Zvichitaurwa zviri nyore, multiple sclerosis (MS) chirwere apo masoja emuviri wako anorwisa uropi hwako nemusana , inova sisitimu yako yetsinga . Izvi zvinonzi chirwere che autoimmune .

Funga nezvetsinga dziri mumuviri wako sewaya dzemagetsi. Waya idzi dzine sheath yekudzivirira yakakomberedza, handiti? Saizvozvowo, masero edu etsinga ane sheath yekudzivirira inonzi myelin . Aya myelin sheaths anobatsira zviratidzo kufamba netsinga nekukurumidza uye nemazvo. Kutaurirana uku kwakakosha pane zvese zvatinoona, kunzwa, uye kufambisa miviri yedu.

Zvino, zvinoitika kumunhu ane MS ndezvekuti masoja avo ekudzivirira muviri anorwisa masero aya e myelin zvisizvo. Zvakafanana neuto redu richirwisa nyika yedu. Izvi zvinokuvadza sheaths dze myelin. Ipapo mameseji etsinga iwayo haafambi zvakanaka, anonamira pakati, kana kuenda nenzira isiriyo. Kukuvara uku kunogona kuitika muuropi, musana, uye dzimwe nguva kunyange mutsinga dzinobatana nemaziso.

Parizvino hapana mushonga weMS. Zvisinei, kune nzira dzakawanda dzinoshanda dzekuderedza kukuvara uye kudzora zviratidzo. Saka musazvidya mwoyo.

Ndeapi marudzi makuru eMS?

MS inobata munhu wese zvakasiyana, saka vanachiremba vanoipatsanura kuita mhando dzakasiyana zvichienderana nezviratidzo zvako. Izvi hazvisi zvirwere zvakasiyana, asi nzira iyo chirwere chinozviratidza nayo.

Kune mhando huru ina:

1. Clinically Isolated Syndrome (CIS): Apa ndipo pekutanga zviratidzo zveMS zvichionekwa. Asi hapana humbowo hwakakwana hwekusimbisa kuti iMS. Zviratidzo izvi zvinokonzerwa nekukuvara kwemyelin. Havasi vese vane CIS vachawana MS, asi vamwe vanogona kuwana MS mune ramangwana.

2. Kudzokorora-Kudzokorora Multiple Sclerosis (RRMS): Iyi ndiyo mhando yeMS yakajairika . Vanhu vanosvika 85% vane MS vanowira muchikamu ichi. Chinoitika ndechekuti zviratidzo zvitsva zvinongoerekana zvaonekwa, kana kuti zviratidzo zvekare zvinotowedzera kuipa. Tinozviti "kudzoka" kana kuti "kurwisa ." Zvadaro, nekufamba kwenguva, zviratidzo izvi zvinoderera kana kunyangarika zvachose. Izvi zvinonzi "kuregerera."Yasvika nguva.

3. Secondary Progressive Multiple Sclerosis (SPMS): Vanhu vazhinji vane RRMS vanozopedzisira vava neSPMS. Padanho iri, kukuvara kwetsinga kunoungana zvishoma nezvishoma uye zviratidzo zvinoramba zvichiwedzera. Kudzokera shure kunogona kuitika, asi nguva dzekurerukirwa, kana kuti nguva dzekurerukirwa kwezviratidzo, dzinopfupika.

4. Primary Progressive Multiple Sclerosis (PPMS): Murudzi urwu, zviratidzo zvinotanga kuipa zvishoma nezvishoma kubva pakutanga. Hapana zviratidzo zvakajeka zvekudzokera shure uye kudzoka kwechirwere sezvakaita RRMS.

Kuwedzera kune aya marudzi mana makuru, kune mamwe marudzi akasiyana-siyana eMS asingawanzoitiki :

• Tumefactive Multiple Sclerosis: Iyi imhando ye multiple sclerosis inokonzera kubviswa kwemasero muuropi munzvimbo dzakakura. Izvi zvinogona kutaridzika semamota. Kuongororwa kweropa kunogona kudiwa kuti kuonekwe kana iri bundu reuropi.
• Balo's Concentric Sclerosis: Mumamiriro ezvinhu aya, kukuvara kwe myelin kunoonekwa semhete dzakatetepa paMRI scan, ndosaka zita racho richinzi.
• Marburg Variant Multiple Sclerosis: Iyi imhando isingawanzoitiki uye yakanyanya kuipa yeMS. Zviratidzo zvinokurumidza kukura uye zvinogona kuuraya kana zvikasarapwa.

MS yakajairika zvakadii?

Ongororo dzakaitwa munyika dzakadai seUnited States dzinoratidza kuti vanhu vakuru vanosvika miriyoni imwe chete vari kurarama neMS. Kune vanhu vane chirwere ichi muSri Lanka zvakare.

Ndezvipi zviratidzo zvekutanga zveMS?

Zviratidzo zvekutanga zveMS zvinogona kusanganisira:

• Kuchinja kwekuona: Kuona kusina kujeka muziso rimwe chete, kurwadziwa (izvi zvinonzi optic neuritis ), kuona kaviri, uye pamwe kurasikirwa nekuona.
• Kushaya simba kwetsandanyama: Kazhinji kune rumwe rutivi rwechiso kana muviri, kana pasi pechiuno.
• Kunzwa kusina kujairika kana kunzwa kusinganzwisisike: Izvi zvinogonawo kuitika kune rumwe rutivi rwechiso kana muviri, kana pasi pechiuno. Zvinogona kunzwa sekunge kunetsa, kana kuti zvinogona kunzwa sekunge hapana kana chinhu zvachose.

Ndezvipi zvimwe zviratidzo zveMS?

Heano mamwe emamwe zviratidzo zvinowanzoonekwa zveMS:

• Kuneta: Kwete kuneta chete, asi kuneta kusingatsungiririki, kunorema.
• Kusagadzikana
• Dzungu
• Kuoma kudzora mashandiro edundira: kuita weti kakawanda, kutadza kudzora weti.
• Kurasikirwa nekuenzana uye kubatana
• Matambudziko ekushanda kwepfungwa:Izvi zvinoreva kudzikira kwekufunga, kurangarira, kutarisisa, kudzidza, uye kusarudza.
• Kuchinja kwemanzwiro: kushatirwa, kuora mwoyo, kuzvidya mwoyo.
• Kuomarara kwetsandanyama uye kugwinha kwetsandanyama/kudedera

Chinhu chakakosha ndechekuti zviratidzo izvi zvinosiyana kubva pamunhu nemunhu. Zvaunowana rimwe zuva zvinogona kusiyana nezvaunowana rinotevera. Ungave uine zvimwe zvezviratidzo izvi, asi kwete zvese panguva imwe chete.

Zvinokwanisika here kurarama neMS zvakajairika?

Izvi zvakaoma kutaura, nekuti "zvakajairika" zvinosiyana kubva pamunhu nemunhu. NeMS, unogona kuva nenguva dzekurerukirwa . Izvi zvinoreva nguva apo zviratidzo zvako zvinopera uye unogona kunge wakafanana nezvawaiva. Ungatokanganwa kuti une MS, kusvika zviratidzo zvako zvadzoka. Kuti "zvakajairika" izvi zvinonzwa sei, uye kuti zvinonzwa sei, zvinogona kusiyana zvichienderana nerudzi rweMS uye danho rechirwere.

Chii chinokonzera MS?

Chikonzero chikuru cheMS kuparadzwa kwe myelin (demyelination) . Sezvatakambokurukura, myelin inodzivirira masero etsinga (neurons) muuropi hwako nemusana. Ndiyo inotumira mameseji pakati peuropi hwako nemuviri wako wese, ichidzora zvinhu zvakaita sekuona, kunzwa, uye kufamba.

Basa remasoja emuviri wako nderekudzivirira kubva kuzvinhu zvinokuvadza muviri wako, zvakaita semabhakitiriya nemavhairasi. Asi muMS, masoja emuviri wako anotanga kushanda zvakanyanya uye anofunga zvisirizvo kuti myelin ine hutano (uye dzimwe nguva masero etsinga ari pasi payo) injodzi. Masoja emuviri paanorwisa myelin iyi ine hutano, anoikuvadza. Izvi zvinonzi demyelination .

Chiremba anogona kushandisa bvunzo yemifananidzo, yakaita seMRI, kuti awane humbowo hwekukuvara kwe myelin uku. Vanogona kuti vanga, ronda, kana kuti plaque . Kana myelin yakuvara, mameseji ari pakati pemasero etsinga haafambe zvakanaka. Ndizvo zvinokonzera zviratidzo zveMS.

Nyanzvi hadzisati dzaziva kuti nei vamwe vanhu vachirwara neMS, asi tsvakiridzo inoratidza kuti zvinhu izvi zvinogona kuwedzera njodzi yekubatwa neMS:

• Kusvuta
• Kusangana nechepfu: Semuenzaniso, kusangana neutsi hwemunhu anoshandiswa nevamwe, mishonga yezvipembenene.
• Mazinga akaderera evhitamini D
• Kusangana nehutachiona: Semuenzaniso, Epstein-Barr virus kana mononucleosis .
• Kufuta panguva yehudiki
• Kufarirwa kwemajini:Izvi zvinoreva kuti kana mumwe munhu mumhuri mako aine chirwere ichi, kana kuti uine majini anokukonzera kuti uve nechirwere ichi, une mukana mukuru wekuti chiitike.

Ndiani ari panjodzi huru yekubatwa neMS?

Unogona kunge uri panjodzi huru yekubatwa neMS kana:

• Kana uri pakati pemakore makumi maviri nemakumi mana .
• Kana une madzitateguru ekuNorthern Europe .
• Kana uri mukadzi (vakadzi vane mukana mukuru wekuva neMS).

Asi yeukai kuti MS inogona kukanganisa chero ani zvake. Muzviitiko zvisingawanzoitiki, inogonawo kukanganisa vana .

Ndezvipi zvinetso zvinogona kuitika nekuda kweMS?

Kana zviratidzo zveMS zvikawedzera kana kuti zvikaramba zvichiwedzera kuipa, matambudziko akadai se:

• Kuomerwa nekufamba pasina rubatsiro.
• Kurasikirwa nekudzora ura kana dundira .
• Kurasikirwa nendangariro .
• Kusashanda zvakanaka pabonde .
• Kuora mwoyo nekuzvidya mwoyo .

MS inoonekwa sei?

Hapana bvunzo imwe chete inogona kunyatsoongorora MS. Pane kudaro, chiremba achagumisa kuti une MS mushure mekukuitira bvunzo yemuviri, bvunzo yetsinga, uye mimwe miedzo yakati wandei .

Panguva yekuongororwa, chiremba wako achadzidza zvakawanda nezvezviratidzo zvako uye nhoroondo yezvekurapa. Kuongororwa kunogona kusanganisira kuongororwa kweropa, MRI (Magnetic Resonance Imaging) scans yeuropi hwako nemusana, uye kuongororwa kwemvura yemusana wako.

Zvinogona kutora nguva kuti unyatsoona MS. Ungangoda kuona chiremba wako kakawanda usati waziva chokwadi. Izvi zvinodaro nekuti zviratidzo zveMS zvinogona kufanana nezvezvimwe zvirwere zvakajairika. Kunyange zvazvo kunonoka kuongororwa kunogona kunetsa, kuwana chirwere chakarurama kunogona kubatsira chiremba wako kurapa zviratidzo zvako nemazvo.

Ndezvipi zvidzidzo zvinoshandiswa kuongorora MS?

Kuongororwa kwechirwere kunobatsira chiremba wako kubvisa zvimwe zvirwere zvine zviratidzo zvakafanana neMS. Kuongororwa kunogona kusanganisira:

• Kuongororwa kweropa uye bvunzo dzeweti
• Bvunzo reMagnetic Resonance Imaging (MRI)
• Optical Coherence Tomography (OCT) test: Izvi zvinoongorora kukuvara kwetsinga dzemaziso.
• Kuboorwa Kwemusana: Muizvi, mvura yemusana inotorwa kubva kumusana yoongororwa.
• Bvunzo reEvoked Potential (EP): Izvi zvinoyera kuti tsinga dzinokurumidza kufamba sei.

Ndiani anoongorora MS?

Kana chiremba wako mukuru achifungidzira kuti ungave uine MS, achakutumira kuna chiremba wetsinga . Chiremba wetsinga chiremba ane hunyanzvi mukurapa zvirwere zvetsinga, zvinosanganisira uropi nemusana.

Ko MS inogona kurapwa zvizere here?

Zvinosuwisa kuti parizvino hapana nzira yekurapa MS zvachose .

Ndezvipi zvirongwa zvekurapa MS?

Zvinangwa zvikuru zvekurapa multiple sclerosis ndekuderedza kukuvara kwakawanda, kudzora zviratidzo, uye kudzivirira matambudziko . Chirongwa chako chekurapa chingasanganisira:

• Mishonga
• Kurapa muviri, kurapwa nebasa, kana kurapwa nekutaura
• Mazano ehutano hwepfungwa

Dzimwe nzira dzekugadzirisa zviratidzo dzinosiyana zvichienderana nekuti chirwere ichi chinokubata sei. Dzinogona kusanganisira:

• Kupfeka magirazi kana kutora mishonga yezvinetso zvekuona.
• Kukurudzira Uropi Zvakadzika Kwekubvunda Kwetsandanyama.
• Kushandisa zvinhu zvinobatsira zvakaita setsvimbo, chinofamba-famba, kana wiricheya kana paine matambudziko ekufamba.
• Mishonga yekuderedza pfari kana mishonga yekuderedza kugwinha kwemuviri (semuenzaniso , gabapentin kana nortriptyline ).
• Mishonga yakaita sedonepezil yezviratidzo zvepfungwa.
• Dzimwe nzira dzekurapa dzakadai se acupuncture ne yoga .

Kana muviri wako usingapindure zvakanaka kune mimwe mishonga panguva yekurwiswa kweMS, chiremba wako anogona kukurudzira kuchinjana kweplasma (plasmapheresis) . Izvi zvinoshanda zvakanyanya mukuderedza kukuvara kunokonzerwa nekurwiswa kuripo pane kudzivirira kurwiswa kwakawanda kwenguva refu.

Unogona zvakare kutaura nachiremba wako nezvekuti pane here miedzo yekiriniki yaunogona kutora chikamu mairi. Miedzo yekiriniki miedzo yevanhu kuti vawane mishonga mitsva yeMS nezvimwe zvirwere, ingave mishonga mitsva kana nzira itsva dzekushandisa mishonga iripo.

Mishonga ye multiple sclerosis

Mishonga yekurapa multiple sclerosis inogona kuderedza kuwanda kwekudzoka kwechirwere, kuderedza kukura kwemaronda matsva/mavanga muuropi nemumusana, uye kuderedza kufambira mberi kwechirwere. Mhando dzemishonga dzinonyanya kuzivikanwa dzeMS ndedzinotevera:

1. Mishonga Inochinja Zvirwere (DMTs):Mishonga yeDMT inoderedza huwandu hwekudzokera shure kwaunoita, inononotsa kufambira mberi kweMS, uye inodzivirira maronda matsva kuti asaumbe muuropi hwako nemumusana. Kune mishonga yakati wandei yakatenderwa neU.S. Food and Drug Administration (FDA) yekurapa MS kwenguva refu.

2. Mishonga yekurapa kudzokororwa kweropa: Pakurwisa kwakanyanya, mishonga yakaita se corticosteroids (yakadai se methylprednisolone ) inodzvinyirira masoja emuviri wako uye inoderedza kuzvimba nekukurumidza. Mishonga iyi inogona kukurumidzisa nguva yako yekupora mushure mekurwara. Inoderedzawo kukuvara kwe myelin sheath yakakomberedza masero ako etsinga. Chiremba wako anogona kukupa mishonga iyi kuburikidza ne IV (intravenously) . Mimwe mishonga yenguva pfupi yekurwisa kwakanyanya inosanganisira IV immunoglobulin therapy kana plasma exchange .

DMTs dzeMS

Heano maDMT anoshandiswa zvakanyanya pakurapa MS uye nzira dzawo dzekuashandisa:

• Majekiseni muganda rako: Beta interferon, glatiramer acetate, kana ofatumumab.
• Kuiswa mutsinga (IV): Alemtuzumab, natalizumab, rituximab, ocrelizumab, kana ublituximab.
• Mishonga inonwiwa: Cladribine, dimethyl fumarate, diroximel fumarate, monomethyl fumarate, fingolimod, siponimod, ponesimod, ozanimod, kana teriflunomide.
• Kuisirwa kwemasero emudzi

Kuongororwa kwemultiple sclerosis kunogona kudzivirirwa here?

Parizvino hapana nzira inozivikanwa yekudzivirira MS.

Nzira yekuderedza zviratidzo zveMS zvakanyanya sei?

Nzira inonyanya kushanda yekuderedza huwandu hwekurwara, kudzoka kwechirwere, uye kurwiswa kwauinako ndeyekutora mishonga inochinja chirwere (DMTs) .

Zvakakoshawo kurarama hupenyu hune hutano . Sarudzo dzaunoita dzinogona kubatsira kuderedza kufambira mberi kwechirwere. Kuti urambe uine hutano hwakanaka, chiremba wako anogona kukurudzira zvinotevera:

• Kudya chikafu chinovaka muviri.
• Kurara zvakakwana.
• Kuita maekisesaizi emuviri nguva dzose.
• Kusashandisa zvigadzirwa zvefodya.

Kurarama nechirwere chisingaperi kunogona kunetsa pfungwa. MS dzimwe nguva inogona kukanganisa mafungiro ako nendangariro. Nyanzvi yezvepfungwa kana chipangamazano wehutano hwepfungwaKushanda pamwe chete chikamu chakakosha chekurapa chirwere ichi kwenguva refu.

Ndeipi tarisiro yeMS?

Multiple sclerosis chirwere chinogara kwenguva refu chisina mushonga . Zvisinei, nzira dziripo dzekurapa dzinoshanda zvikuru mukugadzirisa zviratidzo uye kuderedza kuwanda kwekuputika kwechirwere. Kana uchirapwa kana usina kurapwa, MS inogona kuremadza nekufamba kwenguva, zvichiita kuti zviomere kuita mabasa ezuva nezuva pasina rubatsiro. Chikwata chako chekuchengeta chiripo kuti chikutsigire murwendo rwako rwese rweMS, kutora matanho ekudzivirira matambudziko uye kuvandudza hupenyu hwako.

Kurwara nemultiple sclerosis kunokanganisa hupenyu hwako here?

Unogona kutarisira kurarama hupenyu hwakajairika neMS. Kunyange zvazvo zvidzidzo zvekare zvakaratidza kuti MS inogona kupfupisa makore ekurarama kwako nemakore angangoita gumi, izvi zvakavandudzika zvikuru nekufambira mberi kwekurapwa. Muzviitiko zvisingawanzoitiki chete MS ndiyo inouraya.

Munhu ane MS anogona kurarama hupenyu hwakajairika here?

Ehe. MS inogona kuva dambudziko rakaoma kuongorora uye kugadzirisa, asi timu yako yekutarisira ichakubatsira nhanho dzese dzenzira. Kunyangwe pasina mushonga, unogona kurarama hupenyu hunogutsa uye hunoshanda neMS. Kubva pamishonga kusvika pakurapa, kune nzira dzekukubatsira kuti unyatso shanda zvakanaka mumuviri wako nepfungwa. Kune kunyange mapoka ekutsigira anogona kukubatsira kubatana nevamwe vakambosangana nedambudziko rakafanana.

Unofanira kuona chiremba rini?

Unofanira kuona chiremba kana ukaona zviratidzo zvakaita seizvi:

• Kunzwa kupisa zvakanyanya.
• Kana uchinzwa kusagadzikana kana kuti usina kugadzikana.
• Kuomerwa nekurangarira zvinhu.
• Kunyanya kana uine chiveve kana kuti kukwenya mumaoko ako kana tsoka.
• Kuchinja kwekuona kamwe kamwe.
• Kana uchinzwa kushaya simba mumaoko ako kana makumbo.

Kana uine MS uye ukatanga zviratidzo zvitsva, kana kuti kana zviratidzo zviripo zvikawedzera, udza chiremba wako.

Mibvunzo ipi yaunofanira kubvunza chiremba wako?

Ungada kubvunza chiremba wako mibvunzo iyi:

• Munokurudzira rudzii rwekurapwa?
• Ndinofanira kuenda ku physiotherapy kangani?
• Pane mimwe migumisiro yakaipa pamishonga yawakanyorera here?
• Ndinofanira kutora mushonga uyu rini uye kangani?
• Ndezvipi zviratidzo zvandinofanira kutarisa?
• Mungandipa mazano ekuchengetedza hutano hwakanaka here?
• Pane mapoka ekutsigirana aunogona kukurudzira here?

Mharidzo Yekuenda Nayo Kumba

Multiple sclerosis (MS) chirwere chinoshungurudza uye chinoisa upenyu panjodzi. Zviratidzo zvinogona kungoerekana zvaonekwa uye zvikawedzera kuipa. MS inogonawo kuita kuti uve netsaona kana ukarasikirwa nepfungwa dzako.

Asi, hausi wega. Chiremba anogona kukubatsira kugadzirisa dambudziko iri uye kuramba uchiita mabasa ako ezuva nezuva zvakachengeteka. Sezvo chirwere ichi chichienderera mberi, ungangoda kuchinja mararamiro ako, zvakaita sekushandisa chinobatsira kufamba kana kupfeka magirazi. Asi vanhu vazhinji vane MS vanorarama hupenyu hwakazara uye hune simba vachibatsirwa nechikwata chavo chekutarisira. Kana uine mibvunzo nezvesarudzo dzako dzekurapa, zviratidzo kana matambudziko ekutarisira, usazeza kubvunza vanachiremba vako. Kuziviswa uye kuwana rutsigiro rwakakodzera ndiyo nzira yakanakisisa yekurarama zvinobudirira neMS.

` Multiple Sclerosis, MS, Chirwere chetsinga, Myelin, Uropi, Muzongoza, Zviratidzo, Kurapa, Chirwere cheAutoimmune, Multiple Sclerosis