Ngaba wena okanye umntu omaziyo unikwe iyeza elibizwa ngokuba yiVoxelotor (ekwaziwa ngokuba yiOxbryta) ngugqirha wakho kuba wena okanye umntu omaziyo enesifo se-sickle cell? Ukuba kunjalo, eli nqaku liza kuba libaluleke kakhulu kuwe. Namhlanje, siza kuthetha nje ngolwazi lwamva nje malunga nale yeza, kunye nezinto ekufuneka uziqaphele xa ulisebenzisa. Cinga ngalo njengencoko onayo nomhlobo.
Kalula nje, yintoni iVoxeletor?
I-Voxeletor liyeza elinikwa abantu abanesifo se-sickle cell. Esi sifo sibangela ukuba iiseli ezibomvu zegazi egazini lethu zitshintshe imilo yazo zibe yimilo efana neyesickle. Emva koko iiseli ziyanamathelana kwaye zinokuvala imithambo yegazi. Eli yeza limisa imilo efana neyesickle kwaye linceda iiseli ezibomvu zegazi ukuba zigcine imilo yazo eguquguqukayo nengqukuva. Likwanciphisa izinga apho iiseli ezibomvu zegazi ziqhekeka khona.
Nangona kunjalo, kukho into ekhethekileyo nebaluleke kakhulu ekufuneka uyazi apha.
Izifundo zakutshanje ezenziwe yi-U.S. Food and Drug Administration (FDA) zifumanise ukuba iingozi zokusebenzisa i-Voxeletor zinokuba ngaphezulu kweenzuzo. Ngenxa yoko, abasavumi ukuba eli yeza lisetyenziswe njengonyango lwesifo se-sickle cell.
Ngoko ke, ukuba sele usela la mayeza, ungoyiki . Eyona nto ingcono onokuyenza kukubona ugqirha wakho ngoko nangoko uze uthethe ngawo . Angakunceda ufumane ezinye iindlela zonyango ezifanelekileyo kuwe aze akuncede utshintshele kuzo.
Izinto ekufuneka uzixelele ugqirha wakho ngaphambi kokuba usebenzise eli yeza
Kubaluleke kakhulu ukuba ugqirha wakho ayazi imbali yakho epheleleyo yempilo ngaphambi kokuba akunike eli yeza. Ngoko ke qiniseka ukuba uyamxelela ukuba unayo nayiphi na kwezi meko zilandelayo:
- Ukuba unesifo sesibindi.
- Ukuba ukhe waba ne-allergy kwiVoxeletor okanye naliphi na elinye iyeza, ukutya, okanye idayi ngaphambili.
- Ukuba ukhulelwe okanye unethemba lokukhulelwa.
- Ukuba ungumama oncancisayo.
Ngokusekelwe kolu lwazi, ugqirha uya kugqiba unyango olufanelekileyo kuwe.
Ndingayisebenzisa njani le mithi?
Ukwazi indlela yokusebenzisa iyeza ngokuchanekileyo kunempembelelo enkulu kwiziphumo.
- Ufanele usele le pilisi ngamanzi.
- Zama ukuyithatha ngexesha elifanayo yonke imihla, kanye njengoko ugqirha wakho ekuyalele.
- Musa ukuphula, ukutyumza, okanye ukuhlafuna ipilisi. Yiginye yonke.
- Ungayithatha ngaphambi okanye emva kokutya, kodwa ukuba uziva isisu sibuhlungu, kungcono ukuyithatha kunye nokutya.
- Qhubeka usebenzisa eli yeza de ugqirha wakho akuxelele ukuba uyeke. (Kodwa ngenxa yesigqibo se-FDA esisikhankanyileyo ngaphambili, thetha nogqirha wakho ngale nto ngokukhawuleza.)
Ukuba unika abantwana abancinci eli yeza...
Eli yeza linokunikwa abantwana abaneminyaka engaphezulu kwemi-4 ubudala kwezinye iimeko. Nangona kunjalo, oku kufanele kugqitywe ngugqirha wabantwana. Ke ngoko, ukuba eli yeza linikwe umntwana, imiyalelo kagqirha kufuneka ilandelwe ngqongqo kakhulu.
Ungenza ntoni ukuba uthatha amayeza amaninzi kakhulu?
Khawucinge ukuba ngempazamo usele iipilisi ezininzi kakhulu. Ukuba oko kuyenzeka , ungalibazisi.
Fowunela iZiko loLwazi lweTyhefu leSizwe kwiSibhedlele sikaZwelonke saseColombo ngoko nangoko. Okanye uye kwiYunithi yoNyango oluNgxamisekileyo (ETU) yesibhedlele esikufutshane.
Kwakhona, khumbula, eli yeza limiselwe wena wedwa. Ungaze unike omnye umntu iyeza lakho.
Yintoni omawuyenze ukuba uphoswe yidosi yeyeza?
Ngamanye amaxesha siyalibala ukusela amayeza ethu. Ukuba uphoswe yidosi, ungakhathazeki ngayo. Yitsibe nje uze uthathe idosi yakho elandelayo ngexesha elicwangcisiweyo. Musa ukuthatha iidosi ezimbini ngaxeshanye ukuze ubuyisele idosi ephoswe yidosi.
Amanye amayeza anokusebenzisana nalo mayeza (Ukusebenzisana kwamayeza)
Amanye amayeza anokunxibelelana xa esetyenziswa kunye. La mayeza alandelayo akufuneki asetyenziswe ngeVoxeletor.
- I-Flibanserin
- I-Lomitapide
- I-Lonafarnib
Kusenokuba kukho nezinye iziyobisi, ngoko ke nika ugqirha wakho uluhlu olupheleleyo lwazo zonke iziyobisi ozisebenzisayo (kuquka iivithamini, amayeza esintu, kunye nezongezo) . Emva koko unokugqiba ukuba ufuna ukwenza naluphi na utshintsho kwisicwangciso sakho sonyango ukuze unciphise naziphi na iziphumo ezingafunekiyo.
Iziphumo ebezingalindelekanga ezinokubakho ngenxa yamayeza
Njengakweminye imithi, kukho amathuba okuba nemiphumo emibi. Masibone ngokucacileyo ukuba yintoni na.
| Uhlu lweziphumo ebezingalindelekanga | |
|---|---|
| Iziphumo ebezingalindelekanga ekufuneka zixelwe kugqirha ngoko nangoko | |
| Iimpendulo ze-allergy | Ukurhawuzelela kwesikhumba, ukurhawuzelela, ukudumba kobuso, imilebe, ulwimi okanye umqala. |
| Ezinye iimpawu ezinzulu | Ukuqhambuka kwesikhumba okubangelwa ngumkhuhlane kunye nokudumba kwee-lymph nodes. |
| Ukuba iyaqhubeka okanye iyakhathaza, xelela ugqirha wakho. | |
| Iziphumo ebezingalindelekanga eziqhelekileyo |
|
Ukuba ufumana naziphi na ezinye iimpawu ezingaqhelekanga ezingakhankanywanga kolu luhlu, thetha nogqirha wakho ngazo.
Ugcina njani amayeza akho ekhuselekile?
Ukuze kugcinwe umgangatho wamayeza, kufuneka agcinwe kakuhle.
- Gcina kude nabantwana kunye nezilwanyana zasekhaya .
- Kungcono ukuyigcina kubushushu obuphakathi kwama-20 ukuya kuma-30 degrees Celsius (20-30°C). Oko kukuthi, ubushushu obuqhelekileyo begumbi.
- Ungaze usebenzise amayeza aphelelwe lixesha.
Ungayisusa njani imithi engasetyenziswanga?
Akuyongcinga ilungileyo ukulahla amayeza aphelelwe lixesha okanye angafunekiyo enkunkuma. Eyona nto ingcono onokuyenza kukubuza ugqirha wakho ngayo. Ngamanye amaxesha bacebisa ukuxuba iipilisi nento efana nekofu egayiweyo okanye umhlaba, uzifake kwibhegi evalekayo, uze uzilahle enkunkuma. Kodwa ngaphambi kokuba wenze nantoni na, kungcono ukufumana ingcebiso kagqirha.
Umyalezo Wokuya Ekhaya
- I-Voxeletor liyeza lesifo se-sickle cell.
- Okubaluleke kakhulu: Izifundo zakutshanje zibonise ukuba iingozi zale chiza zinokuba ngaphezulu kweenzuzo zalo, yiyo loo nto i-FDA ingasavumi.
- Ukuba usebenzisa eli yeza, ungoyiki kwaye udibane nogqirha wakho ngoko nangoko ukuze nixoxe ngezinye iindlela zonyango.
- Ngaphambi kokuba usebenzise eli yeza, xelela ugqirha wakho ngazo zonke iimeko zakho zempilo kunye nazo zonke ezinye iziyobisi ozisebenzisayo.
- Ukuba uphoswe yidosi, thatha idosi elandelayo ngexesha elicwangcisiweyo. Ungaze uthathe iidosi ezimbini ngexesha elinye.
- Ungaze wabelane ngamayeza owanikwe ngugqirha nabanye abantu.
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