Ungalilahli Ithemba: Izindaba Zangempela Zokuphila Nomdlavuza Wobuchopho

Ngisho nalapho sizwa igama elithi "umdlavuza," abaningi bethu bayesaba. Futhi uma sizwa igama elithi "umdlavuza wobuchopho," lokho kwesaba kuyanda nakakhulu. Kodwa uke wezwa ngabantu abadlula izibalo nolwazi lwezokwelapha ngalesi sifo futhi babhekane naso ngesibindi nethemba elingaguquki, futhi baphile naso? Lesi sihloko simayelana nezindaba zabantu bangempela abanqoba izimpilo ezinjalo. Lezi zindaba zisifundisa okuningi ngokuphila nethemba.

Uphila ngale kwezibalo: Ake sizwe lezi zindaba

Uma sizwa ngomdlavuza wobuchopho, ikakhulukazi izinhlobo ezingathi sína njenge-"Malignant Glioma," sivame ukuzwa izindaba ezingezinhle kangako. Kodwa laba bantu esizokhuluma nabo manje yibo abaye bafakazela ukuthi zonke lezo zindaba ezingezinhle ziyiphutha. Abanye bebelokhu belwa nalesi sifo iminyaka engaphezu kweyishumi, bephila impilo egcwele.

Indaba kaJim: "Umdlavuza awukwazi ukulawula impilo yami"

Cabanga nje, uJim ungumthandi wezemidlalo futhi uvame ukuzivocavoca. Waze waqeqesha ngisho nokuya kuma-marathon. Ngolunye usuku ngo-1998, ngesikhathi eziqeqesha, wavele waba nesifo sokuwa , isimo esifana nokuqina komzimba. Olunye uhlangothi lomzimba wakhe lwaba ndikindiki ngokuphelele. "Ngangingazi ukuthi kwenzekani ngaleso sikhathi," kusho uJim.

Ngisho nalapho abangani bakhe bethi, "Cha, cha, akulutho," bamthatha bamyisa esibhedlela ngenkani. Ngemva kokuhlolwa okuningi, ngosuku olulandelayo odokotela bamnika izindaba ezimbi. "Isimo sibi kakhulu. Unesimila sobuchopho."

Ekuqaleni kwatholakala ukuthi `(Oligodendroglioma)`, kamuva kwaqinisekiswa ukuthi uhlobo lomdlavuza olubi kakhulu olubizwa ngokuthi `(Malignant Glioma).` Lesi simila asikwazanga ukususwa ngokuphelele ngokuhlinzwa ngoba sasizungezwe `(i-motor strip)`, ingxenye ebalulekile yobuchopho elawula ukunyakaza.

Kodwa uJim akazange ayeke. Waqala ukwelashwa ngemisebe kanye ne-chemotherapy . Phakathi naleso sikhathi, washada futhi waba nendodana. Waqhubeka nokudlala imidlalo ngenkathi elwa nomdlavuza. "Njalo lapho umdlavuza ubuya, kwangithatha izinsuku ezimbili noma ezintathu ukuthi ngiphinde ngime. Kodwa nganquma ukuthi, ngeke ngivumele lo mdlavuza ulawule impilo yami. Ngizothatha impilo yami futhi. "

UJim usaphila nanamuhla, ulwa nomdlavuza futhi usiza abanye. Ujabule kakhulu ngemuva kombiko wakhe wakamuva we-MRI. Ngoba isimila sesiqalile ukuncipha futhi. UJim utshela wonke umuntu, "Hlala unethemba. Uzobona izibalo eziningi. Ungaceli okubi kakhulu. Bheka zonke izinketho. Into enkulu ukugcina ithemba ngempela. "

Indaba kaMaria: "Ngangazi ukuthi ngeke ngife"

UMaria naye watholakala enalesi sifo ngemuva kokushaywa yi-"Seizure" ngokuzumayo. Odokotela bathi wayenohlobo lomdlavuza olubi olubizwa ngokuthi "i-Glioblastoma". Ngemva kokuhlinzwa, wanikezwa ne-radiation kanye ne-chemotherapy.

"Ngazitshela ukuthi, noma ngiyaphila noma ngiyafa. Kodwa ngangazi ukuthi ngeke ngife. Nganginokuzethemba okukhulu. Nganginamandla kakhulu. Ngathi, 'Ngeke ngikuvumele lokhu kunginqobe.'"

Ukholelwa ukuthi wathola la mandla kubazali bakhe. Bafika eMelika njengababaleki bezombusazwe bevela eCuba, beshiya konke futhi beza ngesibindi esikhulu. "Leso kwakuyisifundo sokuqala esasifunda ngesibindi," kusho uMaria.

Imibiko yakhe ye-MRI ayikhombisanga shintsho iminyaka engaphezu kwemihlanu. Lokho kusho ukuthi umdlavuza uyalawuleka. Umyalezo kaMaria ucacile. "Ungayeki. Ungalaleli izibalo. Ngoba izinto eziningi zingenzeka. Ngikholwa ukuthi ukululama kwami ​​​​kuyisimangaliso."

Indaba kaSarah: "Ngizizwa nginokuthula okukhulu ngaphakathi"

USarah wayesebenza esitolo semishini yasehhovisi. Umsebenzi wakhe kwakuwukufundisa amakhasimende indlela yokusebenzisa imishini. Ngokungazelelwe, waqala ukubona umehluko. "Lapho ngichazela ikhasimende ngephrinta, ngilahlekelwa umkhondo wokuthi kwenzekani ekhanda lami phakathi nengxoxo. Angikwazi ukuyiqeda."

Ngesikhathi esifanayo, waqala ukuba nekhanda nsuku zonke, okuyinto eyayingavamile kuye. Wathatha ikhefu lesonto lonke futhi wahlolwa ngokuphelele. "I-CT scan", "I-MRI", futhi ngemva kwakho konke lokhu, wathola izindaba ezimbi. Wayenesimila sobuchopho esibizwa ngokuthi "I-Glioblastoma".

Ngemva kokuhlinzwa, naye waba nesifo sokuwa. Yilapho-ke aqaphela khona ukuthi wayeke waba nesifo sokuwa okuncane kanje ngaphambili, ngisho nalapho esebenza kukhompyutha.

USarah ungumfelokazi futhi unezingane eziyisishiyagalombili. Kodwa usesimweni esihle kakhulu. "Angiwi. Angizivumeli ukuba ngiwe. Ngizizwa nginokuthula okukhulu ngaphakathi. Ukholo lwami lwenkolo lungisiza ukuba ngihlale ngizolile."

Yini esingayifunda kulezi zindaba?

Singaqokomisa izingqikithi eziningana ezifanayo kulezi zindaba ezintathu.

1. Ungazinaki izimpawu ezingavamile: Uma unezimpawu ezintsha, ezingavamile, njengokuquleka okungazelelwe, ikhanda elibuhlungu elivame ukuba nzima, noma ukukhohlwa okungazelelwe, ungazichithi njengezivamile. Bona udokotela wakho ngokushesha ukuze uthole iseluleko. Ukuxilongwa kusenesikhathi kubalulekile ekwelashweni.

2. Ithemba kanye nokuhle: Isihloko esiyinhloko kuzo zonke izindaba ezintathu ithemba. Zisibonisa ukuthi kubaluleke kangakanani ukucabanga ngendlela enhle ngokuphila futhi ungayeki ukulwa, ngisho noma isifo sibi kakhulu.

3. Uhlelo oluqinile lokusekela: Umndeni, abangani, nezinkolelo zenkolo ziwumthombo omkhulu wamandla ngezikhathi ezinzima njengalezi. Umuzwa wokuthi awuwedwa ungaletha induduzo enkulu yengqondo.

Umdlavuza wobuchopho uyinselele. Kuyiqiniso lokho. Kodwa akusona ukuphela kokuphila. Ngokunakekelwa kwezokwelapha okufanele, ingqondo eqinile, kanye nokusekelwa kwabathandekayo, le nselele inganqotshwa. UJim, uMaria, noSarah bayizibonelo ezinhle zalokho.