Nkyerɛkyerɛmu a ɛyɛ mmerɛw a ɛfa akuru a ɛyɛ nwonwa a ɛwɔ nan ne abasa so ho: Momma yensua Clear Cell Sarcoma ho ade.

So woanya akisikuru anaa nyin a ɛyɛ soronko wɔ wo nan anaa wo nsa ho were ase a ɛrenkɔ kɛkɛ pɛn? Ebia sɛ womia so a, ɛrenyɛ yaw mpo. Nanso sɛ ɛte sɛ nea ɛreyɛ kɛse a, ebia ɛbɛyɛ biribi a ɛsɛ sɛ ɛhaw adwene. Ɛnnɛ yɛbɛka kokoram bi a ɛntaa nsi a ebetumi de sɛnkyerɛnne a ɛte saa ara aba ho asɛm, nanso ɛfata sɛ yɛma yɛn ani da hɔ. Wɔfrɛ no Clear Cell Sarcoma .

Dɛn ne Clear Cell Sarcoma?

Sɛ yɛbɛka no tiawa a, clear cell sarcoma yɛ kokoram a ɛntaa nsi koraa, a ɛba ntini a ɛyɛ mmerɛw mu . Ɛhyɛ kuw bi a wɔfrɛ no sarcoma mu . Mpɛn pii no, saa kokoram ahorow yi fi ase wɔ ntini , ntini a ɛka ntini ne nnompe bom, ne ntini a ɛyɛ mmerɛw a atwa ntini ahorow ho ahyia, wɔ wo nan mu, titiriw wo nan mu.

Te sɛ kokoram ahorow afoforo no, sɛ wohu nkwammoaa a emu da hɔ sarcoma ansa na atrɛw akɔ nipadua no afã afoforo a, ɛnyɛ den koraa sɛ wɔbɛsa. Nnuruyɛfo de oprehyɛn titiriw na ɛsa tebea yi , na sɛ ɛho hia a , wɔde mframa a wɔde sa yare ne ɛtɔ mmere bi a wɔde nnuru sa yare . Nea ɛyɛ awerɛhow no, wɔ ayaresa akyi mpo no, yare no wɔ hokwan kɛse sɛ ɛbɛsan aba bio. Ɛno nti na nnuruyɛ mu nhwehwɛmufo hwehwɛ akwan foforo a wɔbɛfa so asa nkwammoaa a emu da hɔ sarcoma bere nyinaa no.

Ɔkwan bɛn so na clear cell sarcoma ka me nipadua?

Nkwammoaa mu sarcoma a emu da hɔ taa fi ase wɔ ntini a emu dɔ a ɛyɛ mmerɛw a atwa wo ntini ne wo ntini ho ahyia no mu, anaasɛ ntini bi a wɔfrɛ no fascia . Fascia te sɛ nnwontofo kuw bi a ɛbɔ yɛn nipadua mu nhyehyɛe biara ho hyia.

Mfiase no, ebia worenhu biribiara. Nanso wubehu bere a kokoram no nyin na ɛbɛyɛ akuru a wubetumi ate nka wɔ wo nan anaa wo nan were ase no. Ebia saa akuru yi bɛyɛ te sɛ akuru a ɛba bere a wobɔ wo nan anaa wo nan denneennen no, nanso nsonsonoe a ɛho hia ne sɛ bere kɔ so no, saa akuru yi ntew . Clear cell sarcoma nyin brɛoo paa. Nanso, ebedu bere a atrɛw afi wo ntini a ɛyɛ mmerɛw a emu dɔ a ɛwɔ honam ani no ase no, ebia na afi ase retrɛw akɔ wo nipadua no afã afoforo dedaw.

Fa no sɛ, wunya akisikuru ketewaa bi wɔ wo nan so na wubu w'ani gu so, na wususuw sɛ, "Oh, ɛbɛyɛ sɛ eyi sii nkyɛe." Adapɛn anaa asram bi akyi no, ɛda so ara wɔ hɔ, ebia ɛsõ kakra mpo. Sɛ ɛba saa a, akyinnye biara nni ho sɛ eye sɛ wobɛhwehwɛ aduruyɛ mu afotu.

Ɛhe na nkwammoaa a emu da hɔ sarcoma trɛw?

Clear cell sarcoma betumi atrɛw akɔ nipadua no afã afoforo, titiriw:

• Wo aduan mu nneɛma (yafunu mu ntini) .
• Wo deɛƐde kɔ ahurututu mu
• Wo lymphatic system , a ɛyɛ ntini a ɛma mogya tu ne ntini a ɛwɔ wo nipadua mu no.

So eyi yɛ tebea a abu so?

Dabi, ɛnte saa koraa. Eyi yɛ kokoram ketewaa bi a ɛntaa nsi koraa. Nokwarem no, sarcoma nso yɛ kokoram bi a wɔntaa nhu. Sɛ nhwɛso no, wɔ United States no, afe biara wohu sɛ nnipa bɛyɛ 1,600 na wɔwɔ sarcoma. Ɛno yɛ dodow ketewaa bi, bɛyɛ kokoram a ɛwɔ mpanyimfo mu nyinaa mu 1%. Clear cell sarcoma, ɛno yɛ sarcoma nyinaa mu 1% pɛ. Enti wubetumi asusuw sɛnea eyi ho yɛ na no ho.

Hena na ɛda adi kɛse sɛ obenya nkwammoaa mu sarcoma a emu da hɔ?

Ɛwom sɛ nkwammoaa mu sarcoma a emu da hɔ betumi aba wɔ mfe biara mu de, nanso wɔtaa hu no wɔ mmerante ne mmabaa a wɔadi fi mfe 15 kosi 40 mu , titiriw wɔn a wɔadi mfe 20 kosi 30.

Dɛn ne nkwammoaa a emu da hɔ sarcoma ho sɛnkyerɛnne?

Sɛnea yɛadi kan aka ho asɛm no, sɛnkyerɛnne a ɛtaa ba ne akisikuru a ɛnkɔ wo nan anaa wo nan ho were ase . Ebia saa akuru yi bɛyɛ yaw anaasɛ ɛrenyɛ yaw. Nanso sɛ ɛwɔ hɔ na ɛte sɛ nea ɛreyɛ kɛse a, ɛno yɛ sɛnkyerɛnne titiriw.

Nea ɛka ho no, sɛnkyerɛnne ahorow a edidi so yi betumi ada adi akyiri yi:

• Ɔbrɛ a ɛboro so a ntease biara nnim
• Mu duru a ɛso tew a wontumi nkyerɛkyerɛ mu
• Anadwo fifiri a ɛba

Dɛn na ɛde nkwammoaa mu sarcoma a emu da hɔ ba?

Eyi yɛ nea ɛyɛ den kakra. Aduruyɛ mu nhwehwɛmufo ahu sɛ nkwammoaa mu sarcoma a emu da hɔ no fi nkwaboaa abien a ɛwɔ yɛn nipadua mu nkwammoaa mu no afã horow a ɛsesa mmeae, na ɛma wonya awosu mu abɔde foforo a wɔaka abom .

Sɛ yɛbɛka no tiawa a, eyi ne nea ɛba:

Sɛ yɛn nipadua mu nkwammoaa mu paapae a, ɛtɔ mmere bi a chromosome abien bubu na asinasin a abubu no sesa wɔn ho wɔn ho. Wɔ eyi mu no, awosu mu nkwaadɔm a wɔfrɛ no EWSR1 ne ATF1 wɔ chromosome afã horow a wɔsesa no mu. Ɛte sɛ nea protein a EWSR1 awosu mu abɔde no yɛ no ho hia ma nkwammoaa no dwumadi. ATF1 awosu mu abɔde no boa ma wɔhwɛ nkwammoaa nyin so. Sɛ saa chromosomes yi san ba a, awosu mu nkwaadɔm afã horow a wɔasesa no kowie mmeae a ɛnteɛ. Nnuruyɛfo frɛ eyi sɛ reciprocal translocation . Wɔda so ara nnim nea enti a eyi ba ankasa.

Sɛ wɔde kɔ chromosome foforo mu wie a, awosu mu nkwaadɔm a wɔasesa no bom yɛ awosu mu abɔde a wɔaka abom a wɔfrɛ no EWSR1/ATF1 . Nhwehwɛmufo gye di sɛ saa awosu mu abɔde a wɔaka abom yi ne ade titiriw a ɛde nkwammoaa a emu da hɔ sarcoma ba.

Ɔkwan bɛn so na nnuruyɛfo hu nkwammoaa a emu da hɔ sarcoma?

Sɛ wokɔ oduruyɛfo a akisikuru a ɛte saa nkyɛn kɔ a, obedi kan ahwɛ wo na wahwɛ baabi a akisikuru no wɔ, ne kɛse, ne nneɛma afoforo. Afei ebia wubehia MRI scan (Magnetic Resonance Imaging - MRI).Ebetumi aba.

Nanso, wɔde nipadua mu nhwehwɛmu a wɔyɛ, a nea ɛka ho ne sɛ wogye ntini ketewaa bi fi akuru no mu si so dua sɛ obi anya nkwammoaa a emu da hɔ sarcoma . Sɛ wɔde afiri a wɔde hwɛ nneɛma nketenkete hwehwɛ saa ntini nhwɛsode yi mu a, ɔyare ho animdefo, animdefo a wɔhwehwɛ ntini mu wɔ aduruyɛdan mu no hwehwɛ sɛ EWSR1/ATF1 fused gene a yɛadi kan aka ho asɛm no wɔ hɔ anaa.

Ɔkwan bɛn so na wɔsa nkwammoaa a emu da hɔ sarcoma?

Nnuruyɛfo botae titiriw ne sɛ wobesiw nkwammoaa a emu da hɔ sarcoma a ɛbɛtrɛw akɔ nipadua no afã afoforo no ano. Mpɛn pii no, ade a edi kan ne sɛ wɔbɛyɛ oprehyɛn de ayi akisikuru no afi hɔ koraa . Sɛ kokoram no atrɛw akɔ ntini a ɛma mogya tu no mu a, woyi saa ntini no nso fi hɔ. Eyi akyi no, wɔde ayaresa a ɛboa di dwuma . Mpɛn pii no, eyi hwehwɛ sɛ wɔde mframa a wɔde sa yare de kum kokoram nkwammoaa biara a aka.

Mprempren aduruyɛ mu nhwehwɛmufo reyɛ ayaresa afoforo ho nhwehwɛmu. Sɛ nhwɛso no, wɔrehwɛ sɛnea nipadua no mu tumi a ɛko tia nyarewa no tu mpɔn wɔ nkwammoaa a emu da hɔ sarcoma a wodi so no mu. Wɔresɔ ahwɛ nso sɛ ebia nnuru a wɔde sa kokoram ahorow afoforo mprempren no betumi aboa ma wɔagyae nkwammoaa a emu da hɔ sarcoma a ɛtrɛw anaa.

Nea ɛho hia ne sɛ clear cell sarcoma yɛ tebea a ɛtaa tumi san ba bio. Sɛ ɛba saa a, ebia ebehia sɛ wɔyɛ wo oprehyɛn pii na wɔyɛ mframa a wɔde sa yare pii. Na esiane sɛ ebetumi atrɛw ntɛmntɛm nti, nnuruyɛfo bɛhwɛ wo daa ahwɛ sɛ akisikuru foforo aba anaa.

So metumi atew asiane a ɛwɔ hɔ sɛ menya nkwammoaa a emu da hɔ sarcoma no so?

Nea ɛyɛ awerɛhow no, biribiara nni hɔ a wubetumi ayɛ de atew asiane a ɛwɔ hɔ sɛ wubenya saa tebea yi so. Efisɛ nnuruyɛ mu nhwehwɛmufo nnya nhuu asiane pɔtee biara a ebetumi ama wanya nkwammoaa a emu da hɔ sarcoma. Asiane a ɛde ba ne dwumadi anaa tebea bi a ɛma hokwan a ɛwɔ hɔ sɛ obi benya yare no yɛ kɛse.

So wobetumi asa nkwammoaa a emu da hɔ sarcoma koraa?

Nnuruyɛfo betumi asa clear cell sarcoma, a ɛkyerɛ sɛ wobetumi ayi akisikuru no na wɔabɔ mmɔden sɛ wobedi ne trɛw so. Nanso, ɛnyɛ tebea a wotumi sa koraa . Mpɛn pii no, nkwammoaa a emu da hɔ sarcoma betumi atrɛw akɔ nipadua no afã afoforo bere a wɔahu sɛ ɛwɔ hɔ no. Eyi ma ɛyɛ den kɛse sɛ wɔbɛsa. Ɛda adi kɛse nso sɛ ɛbɛsan aba bere a wɔasa no yare awie no.

Dɛn ne obi a ɔwɔ nkwammoaa a emu da hɔ sarcoma nkwa nna?

Nkwa nna yɛ bere tenten a wobɛtra ase ho akontaabu a ɛyɛ mmerɛw, a egyina w’akwahosan nyinaa ne w’ankasa nneɛma so. Nhwehwɛmu bi a wɔyɛe wɔ U.S. National Cancer Database mu wɔ afe 2018 mu kyerɛe sɛ wɔ nnipa a wɔwɔ nkwammoaa a emu da hɔ sarcoma mu no, .Ɛsan kae sɛ 50% da so te ase mfe anum wɔ bere a wohuu yare no akyi, na 38% da so te ase mfe du wɔ bere a wohuu yare no akyi .

Sɛ́ ebia yɛka nkwa nna anaa nkwa dodow ho asɛm no, ɛho hia sɛ yɛkae sɛ eyinom yɛ akontaabu ara kwa, na ɛnyɛ nkɔmhyɛ. Nkwa nna yɛ akontaabu a egyina nnipa dodow no nyinaa so. Wɔyɛ akontaabu a egyina bere tenten a nnipa tra ase bere a wɔanya kokoram pɔtee bi ayaresa akyi no so. Nneɛma pii wɔ hɔ a ebetumi aka obi nkwa nna anaa hokwan a ɔwɔ sɛ obenya kokoram no. Sɛ wowɔ cell sarcoma a emu da hɔ a, wo duruyɛfo betumi ama wo nea wobɛhwɛ kwan ho nsɛm a eye sen biara.

So nkwammoaa a emu da hɔ sarcoma betumi akum obi?

Yiw, ebetumi akum nnipa. Mpɛn pii no, nnipa a wɔn nkwammoaa a emu da hɔ sarcoma atrɛw akɔ nipadua no afã afoforo no taa wuwu ntɛm sen wɔn a wonya ayaresa ansa na kokoram no atrɛw no.

Bere bɛn na ɛsɛ sɛ mekɔ me duruyɛfo nkyɛn?

Esiane sɛ clear cell sarcoma betumi asan aba bio wɔ ayaresa akyi nti, ebia wo duruyɛfo bɛpɛ sɛ ohu wo asram abiɛsa biara wɔ mfe abien a edi kan bere a wawie ayaresa no akyi, a egyina wo tebea no so. Ɛho hia sɛ wɔkɔhwɛ wɔn daa wɔ bere ne bere mu wɔ ɛno akyi.

Nsɛm bɛn na ɛsɛ sɛ mibisa me duruyɛfo?

Clear cell sarcoma yɛ yare a ɛntaa nsi koraa. Ebetumi de nkwa ato asiane mu. Sɛ wohu sɛ wowɔ saa yare yi a, ebia wobɛpɛ sɛ wubisa wo duruyɛfo nsɛm yi:

• Ɛhe na akisikuru no wɔ? Ɛsõ dɛn?
• So akisikuru no atrɛw wɔ me nipadua mu baabi foforo?
• Ayaresa ahorow bɛn na wokamfo kyerɛ?
• Dɛn ne ayaresa no mu nsunsuanso bɔne?
• Sɛ wɔyɛ me oprehyɛn a, hokwan bɛn na ɛwɔ hɔ sɛ akisikuru no bɛsan aba?
• So nnuruyɛ mu sɔhwɛ ahorow bi wɔ hɔ a metumi asusuw ho?

Nsɛm a Wɔaboaboa Ano ne Nkrasɛm a Wɔde Kɔ Fie

Clear Cell Sarcoma yɛ yare a emu yɛ den ankasa. Ɛho yɛ na koraa. Ɛka nnipa kakraa bi pɛ afe biara. Na enyin nkakrankakra paa. Sarcoma no betumi atrɛw na akum obi bere a nnipa dodow no ara behu nsakrae wɔ wɔn nipadua mu no.

Nanso kae sɛ nnuruyɛfo betumi asa nkwammoaa a emu da hɔ sarcoma. Wobetumi de oprehyɛn ayi akisikuru no afi hɔ, na wobetumi nso ama wo ayaresa de akum kokoram nkwammoaa biara a aka. Nea ɛyɛ awerɛhow no, nkwammoaa a emu da hɔ sarcoma taa tumi san ba. Enti ɛho hia sɛ wokɔ wo nipadua mu nhwehwɛmu daa na wuhu nsakrae biara a ɛbɛba wo nipadua mu.

Aduruyɛ mu nhwehwɛmufo rehwehwɛ akwan foforo a wɔbɛfa so asa nkwammoaa a emu da hɔ sarcoma. Sɛ wowɔ nkwammoaa mu sarcoma a emu da hɔ a, wobetumi ayɛ nnuruyɛ mu sɔhwɛ foforo.Sɛ w’ani gye ho sɛ wubesua ho nsɛm pii a, bisa wo duruyɛfo no ho asɛm na nya afotu. Mma anidasoɔ nnyae da. Sɛ wonya aduruyɛ mu afotu ne mmoa a ɛfata a, wubetumi ahyia saa asɛnnennen yi.

` clear cell sarcoma, soft tissue kokoram, nan mu akisikuru, nan mu akisikuru, sarcoma, kokoram ho sɛnkyerɛnne, kokoram ayaresa