Yɛn mma no bi, ne mpanyimfo nso, ɛsɛ sɛ wɔma wɔn mogya daa esiane nyarewa te sɛ Thalassemia nti. Sɛ yɛkɔ so ma mogya wɔ saa kwan yi so a, yɛn nipadua no tumi boaboa dade dodow bi ano a entumi nni ho dwuma. Yɛfrɛ eyi sɛ ‘Iron Overload’. Enti, aduru titiriw bi a nnuruyɛfo kyerɛw ma de yi dade a ɛboro so a ɛboaboa ano saa kwan yi so fi nipadua no mu no, wɔfrɛ no Deferasirox. Ebia wunim saa aduru yi din a wɔde frɛ no Jadenu. Enti, momma yɛnka saa aduru yi ho asɛm nnɛ.
Dɛn ne Deferasirox?
Sɛ yɛbɛka no tiawa a, Deferasirox yɛ aduru bi a ‘iron chelator’. Eyi kyerɛ sɛ saa aduru yi yɛ adwuma denam dade nketenkete a ɛboro so a ɛkyere wɔ wo mogya mu, kyekyere ho, na eyi fi wo nipadua mu wɔ wo nsu mu no so. Fa no sɛ magnet, na ɛretwe dade a wɔmpɛ no afi hɔ. Dade a ɛboro so a wobeyi afi hɔ wɔ saa kwan yi so no ho hia yiye. Efisɛ sɛ dade pii boaboa ano wɔ nipadua no mu a, ebetumi asɛe akwaa a ɛho hia te sɛ mmerɛbo ne koma.
Nneɛma a ɛsɛ sɛ woka kyerɛ wo duruyɛfo ansa na woanom nnuru
Ansa na wubefi ase anom saa aduru yi no, ɛho hia yiye sɛ wobɛma wo duruyɛfo no w’akwahosan tebea ho nkyerɛkyerɛmu a edi mũ. Esiane sɛ ɛsɛ sɛ wɔde saa aduru yi ma nnipa a wɔwɔ ayaresa tebea horow bi nti, ɛho hia titiriw sɛ woka kyerɛ wɔn sɛ wowɔ tebea horow a edidi so yi mu biara a:
- Sɛ wowɔ kokoram anaasɛ woreyɛ kokoram ayaresa a.
- Sɛ wowɔ mmerɛbo anaa asaabo mu yare biara a.
- Sɛ w’ani nhu ade yiye anaasɛ w’ani yare (e.g. cataracts).
- Sɛ wowɔ aso a ɛyɛ den biara a .
- Sɛ wowɔ mogya mu nyarewa ho abakɔsɛm a . Sɛ nhwɛso no, tebea bi a mogya mu nkwammoaa fitaa, mogya mu nkwammoaa kɔkɔɔ, anaa mogya mu nkwammoaa a ɛwɔ mogya mu no sua.
- Sɛ wowɔ allergy wɔ Deferasirox aduru yi anaa aduru foforo biara, aduan, anaa aduru a wɔde yɛ ade ho a.
- Sɛ woanyinsɛn, worebɔ mmɔden sɛ wubenyinsɛn, anaasɛ worema nufu a .
Saa nneɛma yi a wobɛka akyerɛ wo duruyɛfo a womfa nsie no ho hia yiye ma w’ahobammɔ.
Ɔkwan bɛn so na ɛsɛ sɛ mede aduru no di dwuma?
Wo duruyɛfo bɛkyerɛkyerɛ sɛnea wode aduru yi bedi dwuma mu pefee. Ɛho hia sɛ wudi saa akwankyerɛ ahorow no akyi pɛpɛɛpɛ.
- Bere: Ɛsɛ sɛ wɔnom saa aduru yi bere nyinaa a yafunu da mpan . Ɛno kyerɛ sɛ anyɛ yiye koraa no simma 30 ansa na wɔadidi anaasɛ nnɔnhwerew 2 wɔ adidi akyi . Sɛ wode ka aduan ho a, ebetumi atew aduru no a etu mpɔn no so. Ɛyɛ papa sɛ wode bɛyɛ wo su sɛ wobɛnom bere koro mu da biara.
- Ɔkwan a wɔfa so fa:Eyi yɛ aduru a ɛba wɔ granule kwan so. Wɔtaa de ma denam biribi te sɛ nsu, apɔw-mu-teɛteɛ, anaa akutu nsu a wɔde gu mu na wɔnom so. Yɛ no sɛnea wo duruyɛfo ka kyerɛ wo no.
- Gyinae: Nnyae saa aduru yi nom mpofirim da a wo duruyɛfo mfa afotu mma. Saa a wobɛyɛ no betumi ama wo dade dodow akɔ soro bio ntɛmntɛm.
- Sɛ wɔde ma mmofra a: Nsɛm bi wɔ hɔ a wobetumi de saa aduru yi ama mmofra a wɔadi boro mfe 2. Nanso ɛsɛ sɛ wɔyɛ no wɔ oduruyɛfo hwɛ titiriw ase. Hwɛ hu sɛ wubehu dodow ne ɔkwan a wɔfa so de ma abofra no.
- Sɛ wopa dose bi a: Sɛ wo werɛ fi sɛ wobɛnom dose bi a, fa no bere a wokae ara pɛ. Nanso, sɛ ɛkame ayɛ sɛ bere aso sɛ wobɛma wo dodow a edi hɔ no a, twa dodow a woayera no so na fa wo dodow a edi hɔ no wɔ bere a woahyɛ da ayɛ no mu. Mfa nnuru mmɔho abien da.
Nea ɛho hia: Sɛ wonom nnuru pii wɔ akwanhyia mu a, mmu w’ani ngu so. Frɛ Ɔman Awuduru Ho Amanneɛbɔbea a ɛwɔ Colombo Ɔman Ayaresabea hɔ ntɛm ara . Anaasɛ kɔ ayaresabea a ɛbɛn wo no Emergency Treatment Unit (ETU) .
Nneɛma a ɛsɛ sɛ wohwɛ yiye wɔ ho bere a worenom nnuru no
Bere a worenom saa aduru yi no, wo duruyɛfo bɛhwɛ wo mogya mu nhwehwɛmu, w’aniwa, ne w’aso daa. Mma nntwa sɔhwɛ ahorow yi so. Nea ɛka ho no, hwɛ saa sɛnkyerɛnne ahorow yi yiye.
- Honam ani yare a emu yɛ den: Nnipa binom betumi anya honam ani yare a emu yɛ den wɔ adapɛn pii akyi bere a wɔafi aduru yi ase no. Sɛ wowɔ atiridiinini, wo nipadua mu yaw, ne nsensanee kɔkɔɔ anaa kɔkɔɔ wɔ wo honam ani a akyiri yi ɛyɛ akisikuru na ɛho tew a, ɛsɛ sɛ woka kyerɛ wo duruyɛfo ntɛm ara. Afei nso, sɛ wowɔ akisikuru kɔkɔɔ wɔ wo honam ani na ntini a ɛho ahonhon wɔ w’anim, w’anofafa, anaa wo kɔn/abasa mu a, ɛno nso yɛ sɛnkyerɛnne a anibere wom.
- Mogya a ɛretu wo yafunu mu: Sɛ wo nsu mu yɛ tuntum a ɛyɛ tarry anaasɛ wofe biribi a ɛte sɛ kɔfe a wɔayam , ebetumi ayɛ mogya a ɛretu esiane akuru bi a ɛwɔ wo yafunu anaa wo dwensɔtwaa mu nti. Eyi yɛ tebea a egye ntɛmpɛ, enti kɔ oduruyɛfo nkyɛn ntɛm ara.
- Adwene a ɛyɛ basaa: Saa aduru yi betumi ama nnipa binom adwenem ayɛ wɔn naa. Enti, kwati nneɛma a asiane wom te sɛ karka anaa mfiri a wode bedi dwuma kosi sɛ wubehu sɛnea aduru no ka wo. Ne titiriw no, sɛ woabɔ akwakoraa a, nsɔre mpofirim mfi baabi a wote.
- Nsu a ɛho ntew wɔ mmofra mu: Sɛ wo ba no ho retɔ no denneennen, ɔfe, anaa ne ho fifiri pii a, ebia nsu pii rehwere ne nipadua mu. Eyi betumi ayɛ asiane bere a worenom aduru yi. Enti ka ho asɛm kyerɛ wo duruyɛfo wɔ tebea a ɛte saa mu.
Dɛn ne nneɛma bɔne a efi mu ba?
Te sɛ aduru biara no, Deferasirox betumi de ɔhaw ahorow aba. Ɛnyɛ obiara na onya bi, nanso ɛho hia sɛ wohu wɔn.
| Nsunsuanso bɔne | Nkyerɛmu |
|---|---|
| Nsunsuanso bɔne a ɛsɛ sɛ wobɔ wo duruyɛfo amanneɛ ntɛm ara | |
| Nneɛma a Ɛyɛ Den a Ɛma Nnipa Ho Yɛ Den | Wora mu akisikuru, ɛyaw, anim/anofafa/tɛkrɛma a ɛho ahonhon, ɛyɛ den sɛ wobɛhome. |
| Nsakrae a ɛba wɔ anisoadehu anaa aso mu | Aniwa a ɛyɛ kusuu, kɔla a ɛsakra, ne aso a ɛso tew. |
| Nsɛnkyerɛnne a ɛkyerɛ sɛ mmerɛbo asɛe | Nsu a ɛyɛ kɔkɔɔ/biribiri tuntum, aniwa anaa honam ani yɛ kɔkɔɔ, ɛyaw wɔ yafunu no atifi nifa so, akisikuru, ɔbrɛ a ɛboro so. |
| Nkɛntɛnso a enya wɔ asaabo so | Nsu a ɛba no so tew anaasɛ ɛyɛ den sɛ wobɛtow. |
| Mogya a ɛretu | Nsu a ɛyɛ tuntum a ɛyɛ tarry, ɔfe a ɛte sɛ kɔfe a wɔayam, ne akuru a ɛba nipadua no nyinaa so kwa. |
| Sɛ ɛkɔ so anaasɛ ɛhaw wo a, ka kyerɛ wo duruyɛfo. | |
| Nnuan a wɔyam no mu haw ahorow | Yafunu mu yaw, akisikuru, ɔfe, akisikuru. |
| Dae ho haw ahorow | Dae a wontumi nna anaasɛ nna a ɛyɛ basaa. |
So eyi ne nnuru afoforo betumi adi nkitaho?
Yiw, eyi ho hia paa. Deferasirox betumi de ɔhaw ahorow aba bere a wɔde ka nnuru afoforo bi ho no. Enti ka nnuru, vitamin, nhabannuru, anaa aduannuru biara a wonom ho asɛm kyerɛ wo duruyɛfo.
Ɛsɛ sɛ wohwɛ yiye titiriw bere a worenom Deferasirox ne nnuru yi:
- Nnuru afoforo a dade wom anaa nnuru a wɔde ka ho: Wɔnom saa aduru yi de yi dade a ɛboro so no fi hɔ, enti sɛ wɔnom nnuru a dade wom a, ɛremmoa.
- Nnuru a ɛko tia asikre: Nnuru a ɛko tia asikre a aluminium wom a wɔde yɛ mframa ne komayare no betumi atew Deferasirox a wɔtwe no so.
- Nnuru a ɛma mogya mu srade bi: Nnuru te sɛ Cholestyramine ne Colestipol.
- Nnuru bi a wɔde kum ɛyaw: Nnuru a wɔde kum ɛyaw a ɛte sɛ NSAID (e.g. Ibuprofen, Naproxen).
- Nnuru a wɔde siw awo ano.
- Nnuru a ɛmma mogya ntumi nkɔ, te sɛ Warfarin .
- Steroid nnuru te sɛ Prednisone .
Saa nsɛm a wɔahyehyɛ yi nwiei, enti ɛyɛ nea asiane biara nni ho sɛ wobɛka nnuru a wonom nyinaa ho asɛm akyerɛ wo duruyɛfo .
Nkrasɛm a Wɔde Kɔ Fie
- Deferasirox yɛ aduru a ɛho hia yiye a wɔde ma de yi dade a ɛboro so fi nipadua no mu esiane nyarewa te sɛ thalassemia nti.
- Fa saa aduru yi bere nyinaa bere a wo yafunu da mpan, wɔ bere no ne dodow a wo duruyɛfo akyerɛ wo no mu.
- Ɛho hia sɛ wobɔ wo duruyɛfo amanneɛ wɔ nnuru afoforo, vitamin, ne nnuru a wɔde ka wo ho a worenom nyinaa ho asɛm.
- Sɛ wuhu sɛnkyerɛnne biara a anibere wom te sɛ honam ani akisikuru a emu yɛ den, ɔfe a ɛte sɛ kɔfe a wɔayam, nsu a wɔde tarry ayɛ, anaasɛ w’ani a ɛsakra a, mmu w’ani ngu so na hwehwɛ aduruyɛfo afotu ntɛm ara.
- Nnyae nnuru nom anaasɛ ɛnsesa dodow a wode ma no da a wunnya wo duruyɛfo afotu.
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