Fa no sɛ ɛyɛ den ma wo mpofirim sɛ wobɛsɔre afi akongua so, anaasɛ sɛ woma wo nsa so sɛ worebɔ wo ti nhwi a, ɛyɛ te sɛ nea wo nsa ayɛ mmerɛw. Bere koro no ara mu no, nsensanee nketenkete a ɛyɛ kɔkɔɔ pue wɔ w’ani, wo kɔn, ne wo moma so. So eyi ato wo? Ebia wubesusuw sɛ eyi yɛ ɔbrɛ a ɛfata ara kwa. Nanso ɛtɔ mmere bi a ebetumi ayɛ tebea bi a emu yɛ den kɛse a ɛntaa nsi a wɔfrɛ no Dermatomyositis . Mma ɛnhaw wo, yɛbɛka biribiara ho asɛm wɔ nsɛm a ɛnyɛ den mu.
Dɛn ne Dermatomyositis?
Sɛ yɛbɛka no tiawa a, Dermatomyositis yɛ tebea a ɛntaa nsi a ɛma ntini a ɛwɔ yɛn nipadua mu no yɛ mmerɛw na ɛma honam ani yɛ kurukuruwa. Ɛyɛ nyarewa kuw bi (myopathy) a ɛka ntini ahorow no mu biako. Ɛtɔ mmere bi a, saa yare yi tumi de tebea horow a emu yɛ den te sɛ ahome a ɛyɛ den ne nea ɔbɛmene aba.
Saa sɛnkyerɛnne ahorow yi betumi aba nkakrankakra wɔ asram pii mu ama nnipa binom. Nanso afoforo fam no, ebia wɔbɛba mpofirim. Enti sɛ wowɔ saa sɛnkyerɛnne yi bi a, ɛho hia sɛ wokɔ wo duruyɛfo nkyɛn ntɛm ara sɛnea wubetumi. Dodow a yefi ayaresa ase ntɛm no, dodow no ara na hokwan a ɛwɔ hɔ sɛ yɛbɛkwati nsɛnnennen a emu yɛ den no yɛ kɛse.
Ɛntaa mma koraa, titiriw wɔ afe a edi kan bere a yare no ho sɛnkyerɛnne afi ase akyi no, yare no betumi akum obi. Ɛma asiane a ɛwɔ hɔ sɛ obi benya kokoram ahorow bi nso yɛ kɛse.
Nsonsonoe bɛn na ɛda Dermatomyositis ne Lupus ntam?
Ebia woate yare bi a wɔfrɛ no lupus ho asɛm. Dermatomyositis te sɛ lupus ne nyarewa afoforo a nipadua no tumi ko tia nyarewa. Nanso, nsonsonoe ahorow bi a ɛda adi pefee wɔ abien no ntam. Esiane sɛ wonnya nhuu nea ɛde honam ani yare ba ankasa nti, wɔmfaa no sɛ yare a nipadua no tumi ko tia nyarewa.
Momma yɛnhwɛ saa pon yi na yɛama nsonsonoe no mu ada hɔ bio.
| Su a ɛwɔ hɔ | Lupus a ɛyɛ hu | Dermatomyositis a ɛwɔ nipadua no mu |
|---|---|---|
| Nsɛnkyerɛnne atitiriw | Nkwaa mu yaw, honam ani a ɛyɛ mmerɛw ne akisikuru, nkɛntɛnso a enya wɔ akwaa a ɛwɔ nipadua no mu (amemene, ahurututu, asaabo) so. Nsɛnkyerɛnne ahorow ba na ɛkɔ. | Ntini mu mmerɛwyɛ ne honam ani akisikuru pɔtee bi. Ntini a ɛsɛe. |
| Nhwehwɛmu a wɔyɛe | Egyina mogya mu nhwehwɛmu pɔtee ne sɛnkyerɛnne ahorow so. | Mogya mu nhwehwɛmu, honam ani ne ntini mu nhwehwɛmu, ne scan. |
Ɛho hia sɛ wohu tebea abien yi nyinaa na wɔsa ntɛm ara sɛnea wobetumi. Sɛ wunya sɛnkyerɛnne foforo biara a, kɔ oduruyɛfo nkyɛn ntɛm ara.
Hena na ɛda adi sɛ obenya saa yare yi?
Obiara betumi anya dermatomyositis, nanso akuw bi wɔ asiane kɛse mu.
- Wɔ mmofra a wɔadi fi mfe 5 kosi 15 fam.
- Wɔ mpanyimfo a wɔadi fi mfe 40 kosi 60 fam.
- Mmea taa hu saa yare yi sen mmarima.
Nanso kae sɛ eyi yɛ yare a ɛntaa nsi koraa . Sɛ wɔkyekyem pɛpɛɛpɛ a, nnipa mpem ɔha biara mu bɛyɛ biako pɛ na onya saa yare yi afe biara.
Ɔkwan bɛn so na saa yare yi ka nipadua no ne asiane a ɛwɔ hɔ sɛ obi benya kokoram no?
Dermatomyositis yɛ tebea a ebetumi aka wo wo nkwa nna nyinaa. Sɛ wo ntini a asɛe no mu yɛ den a, ebia worentumi mfa wo nipadua no fã bi nni dwuma yiye, na ɛno betumi ama woadi dɛm bi. Eyi taa ba mfe pii mu, nanso wɔ nnipa binom fam no, saa ntini mu mmerɛwyɛ yi ba ntɛmntɛm.
Nea ɛka ho no , asiane kɛse a ɛwɔ hɔ ne kokoram ho asiane.
Nhwehwɛmu kyerɛ sɛ nnipa a wɔwɔ dermatomyositis no mu bɛyɛ 15% wɔ asiane sɛ wobenya kokoram bi akyiri yi.
Kokoram ahorow a wɔtaa hu wɔ saa yare yi ho ne:
- Kokoram a ɛwɔ awotwaa mu
- Ahurututu mu kokoram
- Lymphoma a ɛma mogya tu
- Nufu mu kokoram
- Kokoram a ɛwɔ akyi berɛmo mu
Enti, sɛ wohu sɛ wowɔ saa yare yi a, ɛho hia yiye sɛ wo ne wo duruyɛfo kasa pefee fa wo kokoram ho asiane ne nhwehwɛmu a ɛsɛ sɛ wɔyɛ ma ho no ho.
Dɛn ne dermatomyositis ho sɛnkyerɛnne ahorow?
Yare yi ho sɛnkyerɛnne atitiriw abien ne ntini mu mmerɛwyɛ ne honam ani akisikuru.Wɔ nnipa binom fam no, sɛnkyerɛnne abien no nyinaa da adi bere koro mu. Wɔ afoforo fam no, sɛnkyerɛnne biako da adi wɔ adapɛn, asram, anaa mfe pii mpo akyi.
Momma yɛnhwɛ saa nneɛma yi mu nkɔ akyiri kakra.
| Su ahorow a ɛwɔ hɔ | Nkyerɛkyerɛmu ne nhwɛso ahorow |
|---|---|
| Ntini mu mmerɛwyɛ | Saa mmerɛwyɛ yi betumi ama ayɛ den sɛ wobɛyɛ da biara da nnwuma. Nhwɛsoɔ:
|
| Wora a ɛyɛ mmerɛw | Saa akuru yi pue titiriw wɔ mmeae a owia bɔ no. Wɔn kɔla yɛ kɔkɔɔ-pink na ebia ɛho ahonhon kakra. Mmeae a wɔtaa yɛ ne:
|
| Nneɛma afoforo a ɛwom |
|
Mmofra binom nya yare no na yare no ho sɛnkyerɛnne no yera koraa bere a wɔrenyin no. Nanso, wɔ ayarefo 80% mu no, ɛyɛ tebea a ɛkɔ so wɔ wɔn nkwa nna nyinaa mu (a enni sabea). Eyi kyerɛ sɛ yare no ho sɛnkyerɛnne san ba bere ne bere mu.
Dɛn na ɛde eyi ba?
Nokwarem no, abenfo da so ara nnim nea ɛde honam ani yare ba ankasa, nanso nneɛma pii wɔ hɔ a wosusuw sɛ ɛde ba.
- Awosu mu nneɛma: Nhwehwɛmu ahorow bi kyerɛ sɛ ebia eyi yɛ awosu mu tebea bi a efi awo ntoatoaso so kɔ awo ntoatoaso so.
- Nsɛm a ɛfa nipadua no mu tumi a ɛko tia nyarewa ho: Sɛnea yɛadi kan aka ho asɛm no, eyi te sɛ nyarewa a nipadua no tumi ko tia nyarewa. Eyi kyerɛ sɛ tumi a ɛko tia nyarewa a ɛbɔ yɛn nipadua ho ban no betumi adi mfomso atow ahyɛ yɛn ankasa ntini ne honam ani nkwammoaa a ɛte apɔw so.
- Mmoawa a wɔde nyarewa ba: Adanse bi kyerɛ sɛ, sɛ ɔyare mmoawa no sa a, ebetumi ama Dermatomyositis aba.
- Nneɛma a atwa yɛn ho ahyia: Nhwehwɛmu ahorow bi ada no adi sɛ sɛ obi te mmeae a mframa pa nyɛ papa a, ebetumi aboa ma yare yi anya nkɔso nso.
Ɔkwan bɛn so na wobetumi ahu yare no?
Sɛ wo duruyɛfo tie wo yare no ho sɛnkyerɛnne wie a, ɔbɛhyɛ sɛ wɔnyɛ nhwehwɛmu mpɛn pii na ama wɔahu sɛ wowɔ yare no.
| Ɔkwan a wɔfa so sɔ hwɛ | Dɛn na wuhu wɔ saa asɛm no mu? |
|---|---|
| Mogya mu nhwehwɛmu | Wɔhwehwɛ enzymes dodow a ɛkɔ soro a ɛboaboa ano wɔ mogya no mu bere a ntini ahorow asɛe no, ne autoantibodies a ɛkyerɛ sɛnea nipadua no mu tumi a ɛko tia nyarewa no yɛ adwuma nso. |
| Biopsy a wɔde hwehwɛ nipadua mu | Wogye ntini ketewaa bi fi honam ani akuru bi mu ne ntini bi mu na wɔde afiri a wɔde hwɛ nneɛma nketenkete hwehwɛ mu. Eyi betumi asi so dua sɛ ebia ɔfe bi wɔ ntini no mu anaa. |
| Mfoninitwa sɔhwɛ ahorow | Wobetumi ayɛ MRI (Magnetic Resonance Imaging) scan anaa koko mu X-ray de ahwɛ sɛnea ntini, ntini, ahurututu, ne akwaa afoforo te. |
| EMG sɔhwɛ | Electromyography (EMG) yɛ sɔhwɛ a wɔde susuw anyinam ahoɔden a ɛwɔ ntini ne ntini ahorow mu. Eyi betumi aboa ma wɔahu sɛ ebia yare no ankasa na ɛde ntini mu mmerɛwyɛ ba anaasɛ biribi foforo na ɛde ba. |
Dɛn ne ayaresa ahorow a wɔde sa dermatomyositis?
Ɛwom sɛ wontumi nsa dermatomyositis de, nanso ayaresa ahorow pii wɔ hɔ a etu mpɔn a ebetumi aboa ma woadi yare no ho sɛnkyerɛnne ahorow so, atew ntini a ɛsɛe so, na aboa wo ma woatra ase sɛnea ɛsɛ. Wo duruyɛfo no begyina sɛnea wo sɛnkyerɛnne ahorow no te ne sɛnea emu yɛ den so apaw ayaresa a ɛfata sen biara.
- Corticosteroids: Nnuru yi brɛ ɔfe a ɛwɔ ntini no mu ase.
- Apɔw-mu-teɛteɛ: Sɛ ntini no sɛe a, apɔw-mu-teɛteɛ ne nipadua mu ayaresa ho hia yiye na ama wɔahyɛ no den bio. Dodow a ntini no mu yɛ den no, dodow no ara na ɛko tia nneɛma a yare no sɛe no.
- Nnuru a ɛma nipadua no tumi ko tia nyarewa: Nnuru yi mma nipadua no mu tumi a ɛko tia nyarewa no ntumi ntow nhyɛ nkwammoaa a ɛwɔ apɔwmuden so.
- Intravenous immunoglobulin (IVIg): Eyi yɛ ayaresa a wɔde immunoglobulin a ɛyɛ yɛn ankasa mogya no fã bi ma nipadua no akyi te sɛ nkyene. Eyi boa ma wodi nipadua no mu tumi a ɛko tia nyarewa no a entumi nyɛ adwuma yiye no so.
- Ɔkasa mu ayaresa: Sɛ ntini a ɛwɔ menewam no yɛ mmerɛw na ɛma ɛyɛ den sɛ ɔbɛmene a, kasa mu ayaresa betumi aboa ma saa ntini ahorow no ayɛ den.
Ɔkwan bɛn so na wobedi yare no ho sɛnkyerɛnne ahorow ho dwuma?
Saa yare yi a wobɛtra ase no yɛ akwantu a ɛkyɛ, enti yare no ho sɛnkyerɛnne ahorow a wobedi ho dwuma ho hia yiye.
- Mma nnyae apɔw-mu-teɛteɛ: Yɛ apɔw-mu-teɛteɛ a wo duruyɛfo anaa apɔw-mu-teɛteɛ ho ɔbenfo de ma wo no sɛnea wɔka kyerɛ wo no pɛpɛɛpɛ. Eyi bɛboa ma wo ntini ahorow no ayɛ den.
- Fa nnuru di dwuma yiye: Fa nnuru a wo duruyɛfo akyerɛw ama wo no pɛpɛɛpɛ bere tenten a woakyerɛw ama wo no.
- Bɔ wo ho ban fi owia ho: Eyi ho hia paa. Ultraviolet (UV) mframa a ɛwɔ owia mu no betumi asɛe honam ani. Enti, to bere a wode bɛtra owia mu no ano hye. Sɛ wokɔ abɔnten a, .Fa aduru pa a ɛbɔ wo ho ban fi owia ho a anyɛ yiye koraa no SPF 50+ wom di dwuma. San fa gu so nnɔnhwerew abien biara.
- Hwɛ wo duruyɛfo daa: Ɛsɛ sɛ wokɔ wo duruyɛfo nkyɛn daa kɔhwɛ wo yare no ho sɛnkyerɛnne ahorow na hwɛ sɛ wo tebea no resakra anaa.
Nneɛma pii a ɛsɛ sɛ wuhu fa yare yi ho
Ɛyɛ ade a ɛfata sɛ wobɛte ehu nka bere a wɔahu sɛ wowɔ honam ani yare no. Ebetumi ayɛ ahodwiriw sɛ wubehu sɛ ɛyɛ yare a ɛba wo nkwa nna nyinaa mu, a ebetumi akum obi. Nanso kae sɛ, dodow a wohu yare no ntɛm na wufi ase sa yare no, dodow no ara na hokwan a wubenya sɛ wobɛtra ase yiye no yɛ kɛse.
Ɛwom sɛ wonni aduru biara a wɔde sa yare yi de, nanso nnipa 80% da so ara yare a enni sabea a ɛwɔ sɛnkyerɛnne ahorow. Nanso, sɛ wɔsa yareɛ a, nnipa bɛyɛ 20% tumi nya yareɛ no ho yareɛ a ɛkyɛ a wɔn yareɛ no ho sɛnkyerɛnne biara nni ho.
Asiane a ɛwɔ hɔ sɛ obi bewu no sua te sɛ 5%. Nanso, nneɛma bi betumi ama asiane yi ayɛ kɛse:
- Wɔkyɛ wɔ ayaresa a wobefi ase no mu bɛboro asram 6.
- Sɛ́ wadi boro mfe 60.
- Sɛ́ wubenya yare no ho sɛnkyerɛnne a emu yɛ den.
- Yare a ɛka menewa, ahurututu, anaa koma.
- Kokoram a wobenya anaasɛ foforo a wobenya.
Bere bɛn na ɛsɛ sɛ mekɔ oduruyɛfo nkyɛn?
Sɛ wunya ntini foforo a ɛyɛ mmerɛw, titiriw sɛ honam ani akisikuru ka ho a, kɔ wo duruyɛfo nkyɛn ntɛm. Sɛnea yɛadi kan aka no, dodow a wubetumi anya ayaresa ntɛm no, dodow no ara na wubetumi akwati nsɛnnennen a anibere wom ntɛm.
Mma wo werɛ mmfi sɛ wubebisa nsɛm yi bere a worekɔ wo duruyɛfo nkyɛn no:
- So mewɔ Dermatomyositis anaa yare foforo?
- Sɔhwɛ ahorow bɛn na ɛsɛ sɛ meyɛ?
- Ayaresa bɛn na mihia na bere tenten ahe na mehia?
- So ɛsɛ sɛ wɔyɛ me nhwehwɛmu sɛ ebia mewɔ kokoram anaa?
Wo ne wo duruyɛfo yɛ nhyehyɛe fa w’ayaresa akwantu no ho. Eyi bɛma woate nea wobɛhwɛ kwan akyi ne nea ɛsɛ sɛ woyɛ sɛ wo sɛnkyerɛnne no mu yɛ den no ase yiye.
Nkrasɛm a Wɔde Kɔ Fie
- Dermatomyositis yɛ tebea a ɛntaa nsi a ɛma ntini ahorow yɛ mmerɛw na ɛma honam ani akuru pɔtee bi ba.
- Ɛho hia paa sɛ wobɛkɔ oduruyɛfo nkyɛn ntɛm ara sɛ wuhu sɛnkyerɛnne ahorow a. Ayaresa a wɔyɛ no ntɛm betumi asiw nsɛnnennen a emu yɛ den ano.
- Esiane sɛ eyi taa yɛ nkwa nna nyinaa yare nti, ɛho hia sɛ wodi ho dwuma bere tenten.
- Ɛho hia sɛ wonom nnuru sɛnea wo duruyɛfo kyerɛ wo, yɛ apɔw-mu-teɛteɛ apɔw-mu-teɛteɛ, na titiriw no bɔ wo ho ban fi owia ho.
- Saa yare yi betumi ama asiane a ɛwɔ hɔ sɛ wubenya kokoram no ayɛ kɛse, enti wo ne wo duruyɛfo nka ho asɛm ne nhwehwɛmu biara a ɛho hia.
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