Nna bi wɔ hɔ a, ɛmfa ho sɛnea yɛda, ɛmfa ho sɛnea yɛbɛgye yɛn ahome no, yɛte nka sɛ yenni ahoɔden biara nka yɛn mu. Ɛte sɛ nea obi anom ahoɔden nyinaa afi yɛn mu. Sɛ tebea yi ayɛ w’asetra fã asram pii a, mmu no sɛ ɔbrɛ a ɛfata ara kwa. Ɛnnɛ, yɛbɛka ɔbrɛ a ɛtra hɔ kyɛ a ɛte saa a sɛ obi gye n’ahome no nkɔ. Wɔ nnuruyɛ mu no, yɛfrɛ eyi Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, anaasɛ (ME/CFS) tiawa.
Dɛn nti na ɛyɛ den sɛ wobehu yare yi?
Nsɛnnennen akɛse a ɛwɔ tebea yi mu biako ne sɛ mogya mu nhwehwɛmu pɔtee biara nni hɔ, X-ray, anaa scan biara nni hɔ a wɔde besi so dua sɛ ɛyɛ eyi. Afei nso, tebea yi ho sɛnkyerɛnne atitiriw, te sɛ ɔbrɛ a ɛtra so, ɛyɛ den sɛ ɔbɛyɛ nneɛma nketenkete mpo, ne ɔhaw a ɛwɔ nkae ne adwene a wɔde si biribi so no nso yɛ nyarewa afoforo pii ho sɛnkyerɛnne. Enti, ɛyɛ den sɛ oduruyɛfo mpo bɛka ntɛm ara sɛ eyi yɛ ME/CFS. Egye bere kakra, efisɛ ɛsɛ sɛ wudi kan hwɛ hu sɛ nyarewa foforo biara nni hɔ.
Sɛ yɛbɛka no tiawa a, ME/CFS yɛ yare a wɔahu a ɛkɔ so tra hɔ bere a wɔapow biribiara a aka akyi no. Enti saa akwantu yi hwehwɛ sɛ wonya boasetɔ kakra.
Ade a edi kan a ɛsɛ sɛ woyɛ: kɔ oduruyɛfo nkyɛn
Sɛ wowɔ adwenem naayɛ bi sɛ ebia wowɔ saa sɛnkyerɛnne ahorow yi a, ade a eye sen biara a ɛsɛ sɛ woyɛ ne sɛ wobɛkɔ w’abusua oduruyɛfo (GP) nkyɛn ntɛm ara . Nhwehwɛmu ada no adi sɛ dodow a wohu tebea yi ntɛm na wɔsa no, dodow no ara na nea efi mu ba no ye.
Oduruyɛfo no bebisa wo w’akwahosan tebea ho nsɛm pii.
- Bere bɛn na wufii ase tee ɔbrɛ yi nka?
- Bere bɛn na ɛkɔ soro?
- Nnuru ahorow bɛn na wonom? (Ɛsɛ sɛ woka nnuru a wotɔ fi nnurutɔnbea hɔ daa no nso ho asɛm.)
- So vitamin anaa nhabannuru foforo bi wɔ hɔ a wonom?
Eyi nyinaa ho hia. Efisɛ ɛtɔ mmere bi a ɔbrɛ betumi ayɛ nnuru afoforo a worenom no nkɛntɛnso bɔne. Afei nso, nhabannuru bi a wususuw sɛ ɛyɛ "abɔde mu" betumi aka wo nipadua. Ɛda adi sɛ wo duruyɛfo bɛhwɛ wo yiye na sɛ ɛho hia a, wayɛ mogya, nsu, ne nhwehwɛmu afoforo. Wɔyɛ eyinom nyinaa de di kan hu sɛ ebia wowɔ tebea foforo a wubetumi asa anaa.
Nyarewa afoforo bɛn na ɛwɔ sɛnkyerɛnne a ɛte saa ara?
Tebea afoforo dodow bi wɔ hɔ a ebetumi anya sɛnkyerɛnne a ɛte sɛ ME/CFS. Oduruyɛfo bi bedi kan abɔ mmɔden sɛ obeyi tebea horow yi afi hɔ.
- "Mono" (Mononucleosis): Eyi nso yɛ ɔyare mmoawa a ɛma obi brɛ kɛse.
- Lyme yare: .Yare a ntontom de ba a ɛma nkwaa yɛ yaw na ɔbrɛ.
- Lupus: Ɔyare bi a ɔhaw bi a ɛba nipadua no mu tumi a ɛko tia nyarewa no mu na ɛde ba.
- Multiple Sclerosis: Yare a ɛka ntini a ɛma nipadua no yɛ adwuma.
- Fibromyalgia: Tebea a ɛma nipadua no nyinaa te ɛyaw na ɔbrɛ.
- Dae mu haw: Tebea horow a ɛma obi ntumi nna.
- Adwenemhaw: Adwenemhaw nso betumi ama nipadua mu ɔbrɛ a emu yɛ den aba.
Fa no sɛ, sɛ wowɔ yare bi a wobetumi asa wɔ saa din yi mu a, wobetumi de aduru a ɛfata asa wo brɛ no koraa. Ɛno nti na nyarewa afoforo a ɛte sɛɛ a wɔbɛpow no ho hia kɛse no.
Ɔkwan bɛn so na wohu ME/CFS?
Bere a wo duruyɛfo apow tebea afoforo nyinaa akyi no, ɔbɛhwɛ wo sɛnkyerɛnne ahorow no yiye. Sɛ wobehu sɛ wowɔ ME/CFS a, ɛsɛ sɛ wudi sɛnkyerɛnne pɔtee bi ho dwuma. Nea ɛbɛboa wo ma woate eyinom ase yiye no, hwɛ nhyehyɛe a ɛwɔ ase hɔ no.
| Nsɛnkyerɛnne no fã | Nkyerɛmu |
|---|---|
| Ahwehwɛde titiriw no | Having severe fatigue that lasts for more than 6 months , ɛnnya nkɔso bere a wode wo ho to mpa so, na ɛtew wo da biara da dwumadi ahorow so kɛse (adwuma, nhomasua, asetra mu dwumadi ahorow). |
| Nea ɛka ho no, ɛsɛ sɛ su atitiriw abiɛsa a edidi so yi wɔ hɔ: | |
| 1. Apɔw-mu-teɛteɛ akyi a ɛyɛ mmerɛw | Nsɛnkyerɛnne no mu yɛ den wɔ nipadua anaa adwene mu mmɔdenbɔ nketenkete akyi (e.g., sotɔɔ mu kɔ, nhoma akenkan). Saa tebea yi betumi atra hɔ nnɔnhwerew anaa nna pii. |
| 2. Dae a Ɛmma Ahomegye | Ɛmfa ho bere tenten a wobɛda no, wosɔre anɔpa a wote nka sɛ woagye w’ahome na woanya ahoɔden. Ɛte sɛ nea woada anadwo mũ no nyinaa. |
| 3. Tumi a obi tumi yɛ da biara da nnwuma a ɛso tew | Da biara da dwumadi ahorow a ɛfata (adwuma a wɔkɔ, ofie nnwuma a wɔyɛ, adesua) a wontumi nyɛ bɛboro asram 6 esiane ɔbrɛ nti. |
| Wɔ nea yɛaka ho asɛm wɔ atifi hɔ no nyinaa akyi no, anyɛ yiye koraa no, ɛsɛ sɛ su abien yi mu biako wɔ hɔ: | |
| 1. Adwene ne nkae ho haw (Adwene mu Nsɛnnennen) . | Ɛyɛ den sɛ wode w'adwene besi biribi so, ɛyɛ den sɛ wobɛkae nneɛma, ne "nsuo" a wobɛte nka wɔ w'adwene mu (Brain Fog). |
| 2. Orthostatic Intolerance a ɛnyɛ nea ɛfata | Dizziness , adwenemhaw, ne mmerɛwyɛ betumi aba bere a wosɔre fi baabi a wote anaa woda hɔ mpofirim no. Anisoadehu a ɛyɛ kusuu anaasɛ nsensanee nso betumi aba. |
Ebetumi agye bere kakra ansa na wɔahu yare no. Saa bere no, bisa wo duruyɛfo sɛnea wobɛhwɛ wo sɛnkyerɛnne ahorow no so. Ɔbɛhyɛ wo ase wɔ ayaresa ahorow mu na wakɔ so ahwɛ wo so ahwɛ sɛ ɛreyɛ adwuma anaa.
Nkrasɛm a Wɔde Kɔ Fie
- Ɛnyɛ ɔbrɛ a ɛfata: Sɛ wowɔ ɔbrɛ a emu yɛ den a ɛtra hɔ bɛboro asram 6 na ahomegye ntumi nnyae a, mmu w’ani ngu so.
- Kɔ oduruyɛfo nkyɛn ntɛm ara: Ɛho hia sɛ wohwehwɛ aduruyɛ mu afotu na ama woahu yare no pɛpɛɛpɛ na woahwɛ ahu sɛ aduruyɛ mu tebea foforo biara nni hɔ a asiane wom.
- Sɔhwɛ pɔtee biara nni hɔ: Sɔhwɛ pɔtee biara nni hɔ a wɔde hu ME/CFS, na ɛyɛ nhwehwɛmu a wɔyɛ bere a wɔapow nyarewa afoforo akyi.
- Nya abotare: Ɔkwan a wɔfa so hu yare no betumi agye bere. Wo ne wo duruyɛfo nyɛ adwuma yiye na di wo sɛnkyerɛnne ahorow ho dwuma wɔ saa bere yi mu.
- Ɛnyɛ wo nko ara: Eyi yɛ tebea a nnipa pii hyia wɔ wiase nyinaa. Sɛ wɔhwɛ so yiye na wɔboa wɔn a, asetra betumi ayɛ papa.
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