So wo koma nso rehu amane wɔ ɔhaw yi ho? Momma yensua Giant Cell Myocarditis ho ade!

So ɛtɔ da bi a wote nka sɛ wo koma rebɔ, ɛrebɔ, anaa biribi a ɛyɛ nwonwa wɔ wo moma so? Eyinom yɛ nneɛma a ɛtɔ mmere bi a yɛmfa yɛn adwene nsi so kɛse, nanso ebetumi ayɛ komayare ahorow bi a wɔntaa nhu ho sɛnkyerɛnne. Ɛnnɛ yɛbɛka komayare biako a ɛntaa nsi, nanso ebetumi ayɛ aniberesɛm ho asɛm. Ne din de Giant Cell Myocarditis, anaa wɔ Borɔfo kasa mu no `(Giant Cell Myocarditis)`.

Dɛn ne Giant Cell Myocarditis? Momma yɛnte ase tiawa.

Sɛ yɛbɛka no tiawa a, Giant Cell Myocarditis yɛ koma ntini mu ɔfe a ɛntaa nsi koraa . Ɔfe yɛ ɔfe bi. Nea ɛkɔ so wɔ saa yare yi mu ne sɛ yɛn nipadua mu ‘nkwaboaa a ɛma ɔyare mmoawa’ no bi bom yɛ nkwammoaa kɛse bi a wɔfrɛ no ‘Nkwammoaa akɛse’. Saa nkwammoaa akɛse yi te sɛ atamfo tow hyɛ wo koma ntini so na ɛma akuru ba.

Susuw ho hwɛ, yɛn koma te sɛ nsu pɔmpɛ. Ɛyɛ nea ɛma mogya fa nipadua no nyinaa mu. Enti, sɛ saa nkwammoaa akɛse yi sɛe koma ntini no a, koma no ntumi nyɛ adwuma yiye. Ɛno kyerɛ sɛ:

• Ɛreyɛ den sɛ wɔbɛbɔ mogya .
• Sɛ koma no bɔ a, ɛnyɛ n’afã horow nyinaa na ɛtwetwe bere koro mu .
• Ɛmma anyinam ahoɔden nsɛnkyerɛnne a ɛhwɛ koma no bɔ so no sɛe , na saa nsɛnkyerɛnne no mfa koma no mu yiye.

Esiane sɛ tebea yi betumi mu ayɛ den ntɛmntɛm nti, mpɛn pii no ɛsɛ sɛ wɔde koma foforo ma nnipa a wɔwɔ saa yare yi .

Nsonsonoe bɛn na ɛda Myocarditis ne Giant Cell Myocarditis ntam?

Myocarditis nso yɛ koma ntini a ɛyɛ hyew. Nanso, giant cell myocarditis yɛ koma mu yare a ɛntaa nsi koraa na ɛyɛ pɔtee . Te sɛ myocarditis ahorow afoforo no, ebetumi nso ama koma no ayɛ basaa, anaasɛ ɛbɛma koma no ayɛ basaa.

Mpɛn pii no, ɔyare mmoawa a wɔde nyarewa ba ne ade titiriw a ɛde koma mu yare ba. Nanso, nhwehwɛmufo da so ara rebɔ mmɔden sɛ wobehu nea enti a nkwammoaa kɛse a ɛma koma mu ntini mu yare (GCM) yi ba.

Henanom na tebea yi ka no kɛse? Ɛtaa ba dɛn?

Giant cell myocarditis (GCM) taa ba mmerante ne mmabaa a wɔwɔ apɔwmuden ne wɔn a wɔadi mfe mfinimfini mu . Nanso, ebetumi aba nnipa a wɔadi mfe biara mu, ɛmfa ho sɛ wɔyɛ ɔbarima anaa ɔbea.

Sɛnea eyi abu so no, ɛho yɛ na yiye, yiye. Nnuruyɛfo hu yare yi wɔ nnipa a ennu 100,000 biara mu biako mu afe biara. Ɛno kyerɛ sɛ wɔbɔ amanneɛ wɔ nnipa 100,000 biara mu bɛyɛ 0.13 mu .

Dɛn ne sɛnkyerɛnne ahorow no? Yɛyɛ dɛn hu wɔn?

Ebia giant cell myocarditis (GCM) ho sɛnkyerɛnne ahorow a edi kan no bi ne:

• Koma a ɛbɔ (sɛ wote nka sɛ wo koma rebɔ ntɛmntɛm anaasɛ wo moma so rebɔ) .
• Koko mu yaw
• Ɔhome a ɛyɛ denanaasɛ Ɔhome a ɛyɛ tiaa
• Ankhwam a ɛho ahonhon
• Ɔbrɛ a ɛtra so

Mpɛn pii no saa sɛnkyerɛnne ahorow yi fi ase ntɛmntɛm paa . Akyiri yi, koma no mu nnyigyei a ɛnteɛ betumi aba. Nnipa a wɔwɔ saa yare yi mu bɛboro fã nya koma no nnyigyei a ɛnyɛ pɛpɛɛpɛ (`Ventricular arrhythmias`), a efi ase wɔ koma no adan mu . Eyinom betumi ama koma no agyae mpofirim.

Afei nso, koma no bɔ ntɛmntɛm paa anaasɛ ɛyɛ brɛoo paa. Ebia wobɛte nka sɛ wo ho ayɛ wo hyew anaasɛ wobɛtotɔ piti . Nnipa binom mpo betumi anya tebea a emu yɛ den a wɔfrɛ no ``cardiogenic shock,'' a koma no ntumi mfa mogya nkɔ yiye.

Dɛn nti na eyi ba? Dɛn ne nea enti a ɛte saa?

Nhwehwɛmufo da so ara nnim nea ɛde giant cell myocarditis (GCM) ba ankasa . Wɔrehwɛ nneɛma ahorow mu. Sɛ nhwɛso no, wɔrehwɛ sɛ ebia ɔyare mmoawa bi, wo nipadua mu tumi a ɛko tia nyarewa no mu nneɛma bi a ɛnteɛ, anaa biribi a ɛwɔ w’awosu mu no betumi ama woanya yare no kɛse anaa.

Ade foforo ne sɛ wɔahu sɛ nnipa a wonya saa yare yi mu bɛyɛ 20% wɔ autoimmune disorders . Nyarewa a nipadua no tumi ko tia nyarewa ne bere a yɛn nipadua no ahobammɔ nhyehyɛe, kyerɛ sɛ, nipadua no mu tumi a ɛko tia nyarewa no tow hyɛ yɛn ankasa nipadua mu nkwammoaa so. Enti, saa nyarewa ahorow yi nso betumi ayɛ ade a ɛde ba anaa asiane a ɛma obi nya GCM.

Wobɛyɛ dɛn ahu yare yi pɛpɛɛpɛ?

Sɛnea ɛbɛyɛ na woahu sɛ wowɔ giant cell myocarditis (GCM) no, ɛho behia sɛ wo duruyɛfo no fa wo koma ntini ketewaa bi . Wɔfrɛ eyi sɛ koma mu nhwehwɛmu. Wɔde nhwɛsode no kɔ aduruyɛdan mu na komayare ho ɔbenfo bi hwehwɛ mu.

Ɛho hia sɛ wɔma oduruyɛfo titiriw bi a ɔte sɛ eyi hwehwɛ nhwɛsode no mu efisɛ nea efi nkwammoaa akɛse a ɛma koma mu ntini mu yare no mu nhwehwɛmu mu ba no betumi ayɛ te sɛ nyarewa afoforo a ɛma koma ntini no ho hyehye te sɛ koma mu sarcoidosis no. Therefore, an accurate diagnosis is essential for a treatment plan.

Saa `(Biopsy)` sɔhwɛ yi yɛ nea asiane wom, nanso ɛno nkutoo ne ɔkwan a wobɛfa so ahu no yiye sɛ wowɔ saa yare yi anaa. Nsɛnnennen a ebetumi aba wɔ koma ntini `(Biopsy)` ho no bi ne:

• Pericardial effusion (nsu a ɛboaboa ano wɔ ntini a atwa koma no ho ahyia no mu) .
• Koma mu aduru a wɔde hyɛ nipadua mu
• Koma dan bi fasu a wɔatoto mu (ventricular wall) .

Sɛ oduruyɛfo no refa saa nhwɛsode yi a, ɔde afiri a ɛyɛ tratraa paa, a wɔfrɛ no catheter, fa mogya ntini kɛse bi a ɛwɔ wo kɔn anaa wo srɛ mu mu hyɛ wo koma mu. Wɔde afiri soronko bi (`Imaging`) kyerɛ saa catheter yi kwan kɔ koma no mu. Afei, adwinnade titiriw bi a ɛwɔ catheter no mu gye koma ntini ketewaa bi.

Ɛtɔ da bi a, ebia ɛho behia sɛ wɔyɛ `(Biopsy)` bɛboro biako. Eyi te saa efisɛ ebia `(GCM)` renka koma no afã horow nyinaa wɔ ɔkwan koro so. Sɛ woyɛ biribi te sɛ `(MRI)` scan a ɛfa koma no ho a, ɛbɛboa oduruyɛfo no ma wasi baabi pɔtee a ɔde `(Biopsy)` no bɛkɔ.

Sɔhwɛ afoforo bɛn na woyɛ?

Nea ɛbɛyɛ na woahwɛ ahu sɛ wunni komayare foforo no, wo duruyɛfo betumi ahyɛ sɛ wɔnyɛ nhwehwɛmu afoforo. Eyinom bi ne:

• Electrocardiogram (EKG) a wɔde kyerɛw koma no .
• Echocardiogram a wɔde kyerɛw nsɛm
• Koma mu catheter a wɔde hyɛ nipadua no mu

Dɛn ne ayaresa ahorow no?

Ebia wo duruyɛfo bɛkyerɛw nnuru ahorow ama wo de asa saa tebea yi. Nnuru yi bi ne:

• Ebetumi atew ɔfe so .
• Ɛboa ma koma no mu nnyigyei a ɛnyɛ ne kwan so anaasɛ koma a entumi nyɛ adwuma yiye no nsiw ano.
• Ebia wɔbɛma wo bere pii akosi sɛ wubehia sɛ wɔde koma foforo ma.
• Ɛboa ma nkwa nna trɛw .

Ayaresa afoforo a wɔde sa giant cell myocarditis (GCM) boa ma wodi koma a entumi nyɛ adwuma yiye ne koma a ɛnyɛ ne kwan so no so. Ebia ayaresa ahorow yi bi ne:

• Nnuru a wɔde yɛ nnuru
• Catheter a wɔde yi nipadua no mu
• Afiri a ɛma obi koma bɔ kɛse
• Implantable cardioverter defibrillator (ICD) yɛ afiri a wɔde hyɛ nipadua no mu de hwɛ sɛnea koma no bɔ no so na ɛma ɛyɛ nwonwa.
• Koma a wɔde si ananmu

Bere a woretwɛn sɛ wɔde koma foforo bɛma wo no, ebia wubehia afiri a ɛboa benkum ventricular assist device (LVAD). Sɛ wuhia koma foforo a, ebehia sɛ woyɛ nhwehwɛmu ne ayaresa no wɔ ayaresabea a ɛwɔ nneɛma a wɔde bɛyɛ saa.

Nnuru bɛn na wɔde di dwuma?

Nea ɛka giant cell myocarditis (GCM) ayaresa ho ne nnuru a ɛhwɛ wo nipadua no mu tumi a ɛko tia nyarewa so (immunosuppressants). Ɛne sɛ, nnuru a ɛtew nipadua no mu tumi a ɛko tia nyarewa so. Eyinom bi ne:

• Cyclosporine (sɛ nhwɛso no, Gengraf®, Neoral®) .
• Corticosteroids te sɛ prednisone (sɛ nhwɛso no, Sterapred®, Rayos®) .
• Azathioprine (sɛ nhwɛso no, Imuran®, Azasan®) .

Ɛho hia yiye sɛ wufi ase de nnuru yi di dwuma ntɛm ara sɛnea wubetumi. Sɛ wɔannya nnuru yi a, ebetumi ahia sɛ wɔma obi koma foforo wɔ asram abiɛsa akyi bere a yare no ho sɛnkyerɛnne no afi ase, anaasɛ tebea no betumi akum obi. Nanso, nnipa a wɔnom nnuru a ɛhwɛ nipadua no mu tumi a ɛko tia nyarewa so no taa tra ase bɛyɛ asram 12.

So ayaresa no mu nsunsuanso bɔne bi wɔ hɔ?

Nneɛma bɔne a efi mu ba no betumi ayɛ soronko a egyina nnuru ko a wonom so. Nneɛma bɔne a ɛtaa ba no bi ne:

• Ntini mu yaw anaa mmerɛwyɛ
• Tipaeɛ
• Asikre a ɛwɔ mogya mu a ɛkɔ soro
• Ayamtuo
• Asoroben

Sɛ wote nka sɛ biribi te sɛ eyi a, mma wo werɛ mmfi sɛ wobɛka akyerɛ wo duruyɛfo.

Asetra bɛyɛ dɛn wɔ yare yi ho?

Sɛ wowɔ giant cell myocarditis (GCM) a, ebetumi ama wo koma ayɛ adwuma yiye anaasɛ wo koma asiw . Sɛ tebea horow yi mu yɛ den (mpɛn pii no wɔ bɛyɛ asram anum ntam) a, ebia ebehia sɛ wɔde koma foforo ma, sɛ wofata a. Nnipa pii bɛyɛ nea wonni sɛnkyerɛnne biara bere a wɔanya koma foforo akyi, nanso ebehia sɛ wɔnom nnuru foforo pii de boa koma foforo no.

So wobetumi asiw nkwammoaa akɛse a ɛma koma mu ntini mu yare ano?

Ɛwom sɛ nnipa tumi tra ase kyɛ wɔ giant cell myocarditis (GCM) mu sen kan no de, nanso ɛda so ara yɛ yare a edi awu a wɔmfa koma nsi ananmu . Wɔ 1900 mfe no fã kɛse no ara mu no, nnipa a wɔwɔ GCM no traa ase nnu asram abiɛsa. Nanso ɛnnɛ, sɛ wohu yare no ntɛm na wɔde nnuru a ɛhwɛ nipadua no mu tumi a ɛko tia nyarewa so sa a, anyɛ yiye koraa no, nnipa a wɔwɔ GCM no mu 90% tra ase afe biako. Saa nnuru yi betumi atɔ wo asram anaa mfe pii kosi sɛ wubehia koma foforo.

Dɛn ne yare no ho nkɔmhyɛ?

Sɛ wɔde koma foforo ma akyi a, nnipa a wɔwɔ giant cell myocarditis (GCM) no mu bɛyɛ 71% tra ase mfe anum (82% wɔ nhwehwɛmu foforo mu) . Mfe du wɔ koma a wɔde ma akyi no, nkwa a wonya no bɛyɛ 68%.

Nanso, nkwammoaa akɛse tumi san ba wɔ nnipa a wonya koma foforo no mu 10% kosi 50% mu . Eyi betumi asi wɔ baabiara fi adapɛn kakraa bi kosi mfe akron wɔ nipadua foforo a wɔde ma no akyi. Sɛ eyi ba a, ebehia sɛ wonom steroid asram pii.

Mɛyɛ dɛn ahwɛ me ho?

Sɛ wowɔ giant cell myocarditis (GCM) a, ɛsɛ sɛ wokwati akansi agumadi anyɛ yiye koraa no asram abiɛsa kosi asia . Sɛ wo GCM no yɛ den wie a, bisa wo duruyɛfo sɛ ɛyɛ nea asiane biara nni ho sɛ wobɛsan de nkakrankakra akɔ apɔw-mu-teɛteɛ mu anaa.

Bere bɛn na ɛsɛ sɛ wokɔ oduruyɛfo nkyɛn?

Sɛ wunya nsunsuanso bɔne a emu yɛ den fi w’aduru no mu, anaasɛ ɛte sɛ nea wo sɛnkyerɛnne no reyɛ kɛse a, kɔ wo duruyɛfo nkyɛn ntɛm ara . Ɛho hia nso sɛ wobɛkɔ wo duruyɛfo nkyɛn daa de ahwɛ wo tebea no so.

Bere bɛn na ɛsɛ sɛ wokɔ Emergency Treatment Unit (ETU) ?

Sɛ wo koko yɛ wo yaw kɛse anaasɛ ɛyɛ den sɛ wobɛhome a, frɛ 911 anaa kɔ baabi a wɔhwɛ wɔn a wɔwɔ yare a egye ntɛmpɛ ntɛm ara. Eyi ho hia yiye, efisɛ eyinom betumi ayɛ tebea bi a emu yɛ den ho sɛnkyerɛnne.

Nsɛm bɛn na ɛsɛ sɛ mibisa oduruyɛfo no?

Mma wo werɛ mmfi sɛ wubebisa nsɛm yi bere a worekɔ wo duruyɛfo nkyɛn no:

• Mpɛn ahe na ɛsɛ sɛ meba bɛyɛ nhyehyɛe a ɛbɛma wɔadi akyi?
• So mmoa kuw bi wɔ hɔ a nnipa a wɔwɔ yare yi betumi akɔ mu?
• Wususuw sɛ ebehia sɛ wɔma me koma foforo?

Nea etwa to no, ade a ɛho hia sen biara a ɛsɛ sɛ yɛkae

Enti, afei ebia woate ase sɛ Giant Cell Myocarditis yɛ komayare a ɛntaa nsi koraa, nanso emu yɛ den yiye. Nea ɛho hia sen biara ne sɛ wubehu sɛnkyerɛnne ahorow no ntɛm, ahwehwɛ aduruyɛ mu afotu, na woafi ayaresa a ɛfata ase. Mma ɛnhaw wo, efisɛ yare yi ayaresa wɔ hɔ mprempren, na wobetumi atrɛw nkwa nna mu. Enti, sɛ wote nka sɛ biribi yɛ soronko wɔ wo koma ho a, mmu w’ani ngu so na kɔ oduruyɛfo nkyɛn. Hwɛ wo koma so yiye!

` Nkwammoaa akɛseɛ Myocarditis, Giant Cell Myocarditis, Koma Yareɛ, Koma a Wɔde Ma, Nkwammoaa akɛseɛ, Koma mu Nneyɛeɛ, Nkwammoaa a ɛko tia nyarewa, Koma Yareɛ, Koma Yareɛ