So wowɔ hATTR (awosu mu transthyretin-mediated amyloidosis), awosu mu tebea a ɛntaa nsi? So ɛyaw, akisikuru, anaa nkate a ɛyera wɔ wo nsa ne wo nan mu bere nyinaa no abrɛ? Sɛ saa a, ebia wo duruyɛfo no aka aduru bi a wɔfrɛ no Inotersen ho asɛm akyerɛ wo. Ɛnnɛ, momma yɛnka nea aduru yi yɛ, nea ɛyɛ, ne nea ɛsɛ sɛ wohwɛ yiye wɔ ho bere a wode redi dwuma no ho asɛm tiawa.
Aduru bɛn na Inotersen yɛ?
Sɛ yɛbɛka no tiawa a, Inotersen yɛ aduru a wɔde sa ntini mu haw ahorow a ɛwɔ nnipa a wɔwɔ tebea bi a wɔfrɛ no hATTR mu . Wɔ hATTR yare yi mu no, protein bi a wɔyɛ wɔ yɛn nipadua mu no boaboa ano sen sɛnea ɛho hia na ɛsɛe ntini ahorow no. Saa aduru yi yɛ adwuma denam saa protein no a ɛboaboa ano wɔ nipadua no mu a ɛtew so . Afei sɛnkyerɛnne ahorow a wote te sɛ ɛyaw, akisikuru, ne nkate a ɛyera wɔ wo akwaa mu no fi ase brɛ ase nkakrankakra. Wobetumi ahunu saa aduru yi wɔ gua so wɔ din `(Tegsedi)` ase.
Nneɛma a ɛsɛ sɛ woka kyerɛ wo duruyɛfo ansa na woanom saa aduru yi
Ansa na wubefi ase anom aduru yi no, nneɛma bi wɔ hɔ a ɛsɛ sɛ wo ne wo duruyɛfo susuw ho ampa. Saa nsɛm yi ho hia paa ma w’ahobammɔ.
- Sɛ wowɔ asaabo mu yare a: Ka asaabo mu haw biara ho asɛm kyerɛ yɛn.
- Sɛ wo mogya mu nkwammoaa dodow sua a: Sɛ nhwɛso no, sɛ wɔadi kan ahu sɛ wo mogya mu nkwammoaa fitaa, mogya mu nkwammoaa kɔkɔɔ, anaa mogya mu nkwammoaa a ɛba fam a, ma wo duruyɛfo nhu.
- Sɛ wowɔ aduru biara a ɛma wo ho yɛ wo hyew a: Ka kyerɛ yɛn sɛ wo ho yɛ wo hyew wɔ aduru foforo biara, aduan, anaa ade a wɔde yɛ ade ho, ɛnyɛ Inotersen nkutoo ho.
- Sɛ woanyinsɛn anaa woreyɛ nhyehyɛe sɛ wubenyinsɛn a: Ɛho hia sɛ woka eyi ho asɛm kyerɛ wo duruyɛfo, efisɛ ɛsɛ sɛ wohwɛ yiye titiriw wɔ nnuru ho wɔ saa bere yi mu.
- Sɛ woyɛ ɛna a ɔma nufu a: Ɛho hia sɛ wuhu eyi bere a worema nufu mpo.
Ɔkwan bɛn so na wɔde vaccine no bedi dwuma?
Eyi yɛ aduru a wɔde twitwiw nipadua no ase . Mma ɛnhaw wo, wo duruyɛfo anaa ɔyarehwɛfo bɛkyerɛ wo ɔkwan pɔtee a wobɛfa so de wo ho ahyɛ wo ho. Ɛho hia yiye sɛ wobɛnom aduru no sɛnea wo duruyɛfo ka kyerɛ wo no pɛpɛɛpɛ, da a ɛfata, ne dodow a ɛfata. Kɔ so de di dwuma kosi sɛ ɔbɛka akyerɛ wo sɛ gyae.
Nea ɛho hia yiye: Mfa nnade ne syringe a wɔde adi dwuma ngu nwura mu da. Ɛsɛ sɛ wɔde gu ade titiriw bi a wɔde nnam ayɛ mu. Sɛ wunni bi a, bisa wo duruyɛfo sɛnea wubenya bi.
Wo nsa bɛka akwankyerɛ krataa titiriw bi ``(MedGuide)`` a saa aduru yi ka ho. Kae sɛ wobɛkenkan no yiye bere biara.
Sɛ wonom nnuru pii a, dɛn na ɛsɛ sɛ woyɛ?
Sɛ wususuw sɛ woanom nnuru pii a, kɔ ayaresabea Emergency Department (ETU) a ɛbɛn wo ntɛm ara . Anaasɛ frɛ Ɔman Awuduru Ho Amanneɛbɔbea a ɛwɔ Colombo Ɔman Ayaresabea no .
Na sɛ mepa nnuru dodow bi nso ɛ?
Fa dodow a woayera no bere a woakae ara pɛ. Nanso, sɛ wo dodow a edi hɔ a wobɛma no nnu nna abien a, twa dodow a woayera no so na fa wo dodow a edi hɔ no wɔ bere a woahyɛ da ayɛ no mu. Mfa nnuru abien prɛko pɛ da, kyerɛ sɛ, mmɔho abien.
Nneɛma afoforo a ebia ɛne aduru yi bedi nkitaho
Ɛsɛ sɛ wohwɛ yiye paa sɛ worenom nnuru afoforo bere a worenom saa aduru yi a, efisɛ ebetumi adi nkitaho. Ka nnuru, vitamin, ne nhabannuru a wonom nyinaa ho asɛm kyerɛ wo duruyɛfo.
Nnuru bi a ebetumi ne saa aduru yi adi nkitaho wɔ ase ha.
| Nnuru a wɔde di dwuma no fã | Nhwɛso ahorow |
|---|---|
| Nnuru a ɛma mogya yɛ mmerɛw | Warfarin, Enoxaparin, Aspirin, Clopidogrel, Apixaban, Rivaroxaban, ne aduruyɛ a ɛma obi nya ahoɔden |
| Nnuru a wɔde kum ɛyaw (NSAID) . | Nnuru te sɛ Ibuprofen ne Naproxen |
| Nnuru a ekum ɔyare mmoawa ne nnuru afoforo a wɔde sa nyarewa bi | Acyclovir, Gentamicin, Vancomycin, Amphotericin B. Nnipa a wɔte ase wɔ aduruyɛ mu |
| Nnuru a ɛma nsu fi nipadua mu | Nnuru te sɛ Furosemide |
| Nnuru afoforo | Cisplatin, Cyclosporine, Zoledronic acid, Pamidronate a wɔde yɛ aduru a ɛma obi nya aduru |
Saa nsɛm a wɔahyehyɛ yi nyɛ nea edi mũ, enti ɛbɛyɛ papa sɛ wobɛka biribiara a wobɛnom ho asɛm akyerɛ wo duruyɛfo.
Nneɛma a ɛsɛ sɛ wohwɛ yiye wɔ ho bere a worenom nnuru no
- Hwɛ wo duruyɛfo daa: Kɔ wo duruyɛfo nkyɛn daa na hwɛ sɛnea wo ho te ne sɛ ebia aduru no reyɛ adwuma anaa. Ka kyerɛ wɔn sɛ wo yare no ho sɛnkyerɛnne no reyɛ kɛse anaasɛ ɛnte saa.
- Hwɛ yiye wɔ vitamin A ho: Ebia wo duruyɛfo bɛka akyerɛ wo sɛ fa vitamin A a wɔde ma bere a worenom aduru yi no. Nea enti a ɛte saa ne sɛ saa aduru yi tumi tew vitamin A dodow a ɛwɔ nipadua no mu no so. Fa vitamin A a wɔde ma sɛnea wo duruyɛfo ka kyerɛ wo no. Afei nso, wo ne no nka w’aduan ho asɛm.
Dɛn ne nsunsuanso bɔne a ebetumi afi mu aba?
Te sɛ aduru biara no, eyi betumi de ɔhaw ahorow aba nnipa binom so. Ebi yɛ aniberesɛm, ebi nso abu so. Ɛho hia sɛ wohu eyinom.
| Nsunsuanso bɔne | Nkyerɛmu |
|---|---|
| Nneɛma a ɛsɛ sɛ woka kyerɛ wo duruyɛfo ntɛm ara | |
| Nneɛma a ɛma obi ho yɛ no hyew | Honam ani akisikuru, ɛyaw, anim, anofafa, tɛkrɛma anaa menewa a ɛho ahonhon. |
| Asaabo mu opira | Nsu a ɛba no so tew, nansoaa, nsa, anaa anan a ɛho ahonhon. |
| Mmɛn a wɔapirapira | Ɛyaw a ɛba yafunu no nifa so, aduan ho akɔnnɔ a ɛyera, akisikuru, honam ani anaa aniwa a ɛyɛ kɔkɔɔ, nsu a ɛyɛ kɔkɔɔ/biribiri tuntum. |
| Mogya a ɛtɔ anaasɛ akuru a ɛyɛ soronko | Sɛ wote nka sɛ wo honam ani apira ntɛmntɛm, mogya tu fi wo hwene anaa wo hwene mu. |
| Nnwodwoɔ | Anim, nsa, anaa nan no fã biako a ɛyɛ mmerɛw/ɛyɛ mmerɛw mpofirim, ɛyɛ den sɛ wobɛkasa, ɛyɛ den sɛ wobɛnantew, tiyɛ a emu yɛ den. |
| Sɛ ɛkɔ so anaasɛ ɛhaw adwene a, ka kyerɛ wo duruyɛfo. | |
| Ɛyaw ne kɔkɔɔ a ɛyɛ kɔkɔɔ wɔ baabi a wɔde aduru no guu no | Injection beae a wɔyɛ wɔn ade |
| Tipaeɛ | |
| Abofono | |
| Huraeɛ | |
| Ɔbrɛ | |
Ɔkwan bɛn so na wode aduru no sie?
Ɛho hia paa sɛ wode saa aduru yi sie yiye.
- Ɔkwan a eye sen biara: Fa gu frigye mu. Nanso mma ɛnnyɛ nwini da. Fa sie nea wɔde ahyɛ mu mfiase no mu kosi sɛ ɛbɛyɛ krado sɛ wode bedi dwuma.
- Ɔkwan foforo: Wubetumi de saa aduru yi asie wɔ dan mu hyew (a ɛwɔ Celsius 20-25 ntam) mu akosi adapɛn 6. Nanso, sɛ woyɛ saa a, ɛsɛ sɛ wobɔ ho ban fi hann ne ɔhyew ho. Tow nea aka biara gu wɔ adapɛn 6 akyi.
- Hwɛ hu sɛ wode bɛhyɛ baabi a mmofra ne afieboa ntumi nkɔ hɔ.
Mfa nnuru a ne bere atwam anaa nea wɔmfa nni dwuma ngu nwura mu anaa tiafi mu da. Bisa wo duruyɛfo sɛnea wobɛtow agu dwoodwoo.Ɔbɛkyerɛ wo ɔkwan a eye sen biara a wobɛfa so ayɛ saa.
Nkrasɛm a Wɔde Kɔ Fie
- Inotersen yɛ aduru a wɔde sa ntini mu yare a tebea bi a wɔfrɛ no hATTR de ba.
- Ansa na wubefi ase anom aduru no, ka nyarewa foforo biara a wowɔ ne nnuru a wonom nyinaa ho asɛm kyerɛ wo duruyɛfo.
- Sua sɛnea wɔde vaccine no bɛhyɛ wo mu yiye. Tow nnade a wode adi dwuma no gu dwoodwoo.
- Sɛ wunya ɔhaw biara a emu yɛ den, te sɛ akisikuru, asaabo anaa mmerɛbo mu haw, anaasɛ obubuafo a, ka kyerɛ wo duruyɛfo ntɛm ara.
- Fa aduru no sie frigye mu anaa sɛnea wo duruyɛfo kyerɛ no.
- Sɛ wowɔ nsɛmmisa bi fa aduru yi ho a, nsuro da sɛ wubebisa wo duruyɛfo.
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