Momma yensua Mitapivat (PYRUKYND) tablets ho ade wɔ nsɛm a ɛnyɛ den mu (Mitapivat Tablets) .

So wo anaa obi a wunim no wɔ mogya a ɛtɔ kɔ mogya mu a enzyme bi a enni nipadua mu a wɔfrɛ no pyruvate kinase a enni nipadua mu na ɛde ba? Eyi yɛ tebea a ɛntaa nsi. Wɔ tebea horow a ɛtete saa mu no, ebia wo duruyɛfo akyerɛw wo aduru bi a wɔfrɛ no Mitapivat. Ebia wobɛte nka sɛ w’adwene atu afra kakra bere a wote saa din yi. Enti, ɛnnɛ yɛbɛka aduru yi a wɔfrɛ no Mitapivat (brand name PYRUKYND) ho asɛm tiawa na yɛayɛ no ayamye mu.

Sɛ yɛbɛka no tiawa a, dɛn ne Mitapivat yi?

Mitapivat yɛ aduru titiriw bi a wɔde sa mogya a ɛtɔ mogya a ɛma mogya tu a tebea bi a wɔfrɛ no pyruvate kinase a enni hɔ de ba no. Afei ebia woresusuw ho sɛ, "Dɛn ne mogya a ɛtɔ kɔ mogya mu?"

Ɛyɛ mmerɛw yiye. Yɛwɔ mogya mu nkwammoaa bi a wɔfrɛ no mogya mu nkwammoaa kɔkɔɔ wɔ yɛn nipadua mu. Saa nkwammoaa yi de mframa pa kɔ yɛn nipadua nyinaa mu. Mpɛn pii no, mogya mu nkwammoaa kɔkɔɔ yi tra ase bɛyɛ nnafua 120. Nanso, wɔ obi a pyruvate kinase nnim nipadua mu no, mogya mu nkwammoaa kɔkɔɔ yi sɛe na ɛsɛe ntɛm kakra, ntɛmntɛm. Ɛno ne nea wɔfrɛ no hemolytic anemia.

Enti, nea Mitapivat yɛ ne sɛ obegyae mogya mu nkwammoaa kɔkɔɔ a ɛpaapae ntɛmntɛm no. Sɛ yɛbɛka no pɛpɛɛpɛ a, ɛma saa nkwammoaa no nya ahoɔden na ɛma wɔn nkwa nna yɛ kɛse . Dɛn na eyi yɛ?

• Mogya mu nkwammoaa kɔkɔɔ dodow a ɛwɔ nipadua no mu no kɔ soro.
• mogya a ɛtɔ kɔ nipadua mu ho sɛnkyerɛnne te sɛ ɔbrɛ, ɔbrɛ a ɛtaa ba , ne ahome a ɛyɛ tiaa no so tew.
• Ɛho hia sɛ wɔtaa de mogya ma no nso so tew.

Ɛno kyerɛ sɛ saa aduru yi bɛboa ma w'asetra atu mpɔn .

Nneɛma a ɛsɛ sɛ woka kyerɛ wo duruyɛfo ansa na woanom saa aduru yi

Ansa na wode aduru biara bedi dwuma no, ɛho hia yiye sɛ wode w’akwahosan ho nkyerɛkyerɛmu a edi mũ ma wo duruyɛfo. Ansa na wubefi ase anom Mitapivat no, hwɛ hu sɛ wobɛka akyerɛ wo duruyɛfo sɛ wowɔ tebea horow a edidi so yi mu biara a:

• Berɛbo mu yare: Sɛ wowɔ mmerɛbo mu yare bi a woadi kan anya a, yɛsrɛ sɛ ka ho asɛm kyerɛ yɛn.
• Nneɛma a ɛma obi ho yɛ no hyew : .Sɛ wo ho yɛ wo hyew wɔ Mitapivat, aduru foforo biara, aduan, nnuru a wɔde yɛ nneɛma, anaa nneɛma a wɔde siesie nneɛma ho a, hwɛ hu sɛ wobɛma yɛahu.
• Nyinsɛn : Sɛ woanyinsɛn anaasɛ worebɔ mmɔden sɛ wubenyinsɛn ntɛm a, wo ne wo duruyɛfo nka ho asɛm.
• Sɛ woyɛ ɛna a ɔma nufu a: Sɛ woyɛ ɛna a ɔma nufu a, ɛsɛ sɛ woka kyerɛ oduruyɛfo no nso.

Wo duruyɛfo no begyina saa nsɛm yi so asi gyinae sɛ ebia aduru yi fata wo anaasɛ ɛsɛ sɛ wɔsesa dodow a wɔde ma no.

Ɔkwan bɛn so na wɔde aduru no bedi dwuma yiye?

Sɛnea ɛbɛyɛ na woanya aduru bi so mfaso kɛse no, ɛho hia paa sɛ wode di dwuma yiye.

• Saa aduru yi yɛ aduru a wode fa w’ano nom. Bɔ mmɔden sɛ wobɛnom bere koro mu da biara , sɛnea wo duruyɛfo akyerɛ wo no pɛpɛɛpɛ.
• Fa nsu mene tablet no nyinaa. Mmubu, nbubu, anaa nwe tablet no da.
• Kɔ so nom saa aduru yi kosi sɛ wo duruyɛfo bɛka akyerɛ wo sɛ gyae. Nnyae mpofirim, sɛ wo ho tɔ wo mpo a.
• Ebia ɛho behia sɛ wɔhwɛ yiye titiriw sɛ wɔde aduru yi ma mmofra a. Enti, di oduruyɛfo no akwankyerɛ akyi sɛnea ɛfata.

Sɛ wonom nnuru pii a, dɛn na ɛsɛ sɛ woyɛ? (Nneɛma a wɔde ma boro so) .

Fa no sɛ woanom aduru yi pii wɔ akwanhyia mu asen dodow a wɔakyerɛw ama wo no. Sɛ ɛba saa a, ntwentwɛn wo nan ase. Kɔ ayaresabea Emergency Treatment Unit (ETU) a ɛbɛn wo ntɛm ara. Sɛnea ɛbɛyɛ a, frɛ Ɔman Awuduru Ho Amanneɛbɔbea a ɛwɔ Colombo Ɔman Ayaresabea hɔ no na woanya afotu.

Na sɛ mepa nnuru dodow bi nso ɛ?

Esiane sɛ asetra mu adagyew nni hɔ nti, ɛtɔ mmere bi a ebia wobɛpa nnuru dodow bi. Sɛ ɛba saa a, nea ɛsɛ sɛ woyɛ ni:

• Fa w’aduru no bere a woakae ara pɛ.
• Nanso, sɛ wopa dodow bi bɛboro nnɔnhwerew 4 a, twa saa dodow no so koraa. Fa wo dodow a edi hɔ no wɔ bere a wɔahyɛ da ayɛ no mu.
• Mfa nnuru mmɔho abien mfa nsiesie dodow a woahwere no esiane biribiara nti.

Nnuru afoforo a ebia ɛne aduru yi bedi nkitaho

Nnuru bi a wonom betumi ne Mitapivat adi nkitaho. Eyi betumi asakra sɛnea Mitapivat yɛ adwuma anaasɛ ɛbɛma nsunsuanso bɔne no akɔ soro. Enti, hwɛ hu sɛ wobɛka nnuru a wonom nyinaa (a vitamin, nhabannuru, ne nnuru a nnuruyɛfo afoforo akyerɛw ama wo ka ho) akyerɛ wo duruyɛfo.Ka kyerɛ wo duruyɛfo.

Nnuru bi a ebetumi ne Mitapivat adi nkitaho wɔ ase ha.

Nea ɛho hia: Saa nsɛm a wɔahyehyɛ yi nyɛ nea edi mũ. Sɛ wonom sigaret, wonom nsa, anaa wode nnubɔne foforo di dwuma a, ka kyerɛ wo duruyɛfo.

Nneɛma a ɛsɛ sɛ wohwɛ yiye wɔ ho bere a worenom nnuru no

Bere a worenom saa aduru yi no, wo duruyɛfo bɛhwɛ w’akwahosan daa.

• Kɔ ayaresabea nhyehyɛe a wɔayɛ ho nhyehyɛe. Eyi ho hia yiye na woahu sɛnea wo ho te ne sɛ ebia aduru no reyɛ adwuma anaa.
• Sɛ wo yare no ho sɛnkyerɛnne no ankɔ yiye, anaasɛ sɛ ɛyɛ kɛse a, ka kyerɛ wo duruyɛfo.
• Ebia wɔbɛka akyerɛ wo sɛ ma wɔnyɛ mogya adwuma bere a worenom aduru yi. Mma ntwa sɔhwɛ ahorow yi so na mma wɔnyɛ no daa.

Dɛn ne nsunsuanso bɔne a ebetumi afi mu aba?

Te sɛ nnuru nyinaa no, Mitapivat betumi de ɔhaw ahorow aba, ɛwom sɛ ɛnyɛ obiara na onya bi de. Nsunsuanso bɔne bi betumi ayɛ aniberesɛm, enti ɛho hia sɛ wohwɛ so yiye.

Saa nsɛm a wɔahyehyɛ yi nka nsunsuanso bɔne a ebetumi aba nyinaa ho. Sɛ wuhu sɛnkyerɛnne foforo biara a ɛyɛ soronko a, wo ne wo duruyɛfo nka ho asɛm.

Ɔkwan bɛn so na wɔkora nnuru so dwoodwoo?

• Fa sie baabi a mmofra ne afieboa ntumi nkɔ hɔ .
• Fa sie wɔ dan mu hyew (a ɛwɔ digrii Celsius 20 kosi 25 ntam).
• Fa aduru no sie mfitiase ade a wogyee no mu.
• Mfa nnuru a ne bere atwam nni dwuma da . Tow gu dwoodwoo.

Sɛ woreyi nnuru a ne bere atwam anaasɛ wompɛ afi hɔ a, ɛbɛyɛ papa sɛ wobɛkɔ wo duruyɛfo nkyɛn. Ebia ɛbɛyɛ papa sɛ wobɛtow agu nwura mu. Sɛ saa a, yi nnuru no fi toa no mu, fra biribi te sɛ kɔfe a wɔayam, dɔte, anaa mpataa nwura a wɔde adi dwuma, na fa gu kotoku a wɔatoto mu denneennen mu na tow gu nwura mu.