So wo ba honam ani reyɛ den na ayɛ den? Momma yɛnka Juvenile Systemic Scleroderma ho asɛm!

So woahyɛ no nsow sɛ wo ba ketewa no honam ani asesa kakra mpofirim? Ebia honam ani ayɛ mmerɛw kakra, ayɛ den, na sɛ woka a, ɛyɛ soronko? Sɛ wuhu biribi a ɛte saa a, ɛsɛ sɛ wohaw wo ho kakra. Efisɛ, ɛtɔ mmere bi a eyi betumi ayɛ tebea bi a wɔfrɛ no Juvenile Systemic Scleroderma , a yɛreka ho asɛm nnɛ no ho sɛnkyerɛnne. Mma ɛnhaw wo, yɛbɛka eyi ho asɛm akɔ akyiri.

Dɛn ne Mmofra Systemic Scleroderma?

Sɛ yɛbɛka no tiawa a, Juvenile Systemic Scleroderma (a wɔsan frɛ no Systemic Sclerosis ) yɛ tebea a ɛma wo ba no honam ani yɛ den na ɛyɛ den sen sɛnea ɛte daa. Fa no sɛ rɔba a ɛyɛ den nkakrankakra na ɛbɛyɛ te sɛ plastic a ɛyɛ den. Ɛnyɛ honam ani hwɛbea nkutoo na ɛwɔ hɔ. Ɛtɔ da bi a, ebetumi aka akwaa afoforo a ɛwɔ abofra no nipadua mu nso. Asɛmfua ‘nhyehyɛe’ kyerɛ sɛ ebetumi aka abofra no nipadua nyinaa.

Eyi yɛ yare a nipadua no tumi ko tia nyarewa ankasa . Ɛne sɛ, yɛn nipadua no ahobammɔ nhyehyɛe, nipadua no mu tumi a ɛko tia nyarewa no, di mfomso fi ase tow hyɛ n’ankasa nkwammoaa a ɛte apɔw so. Wɔ Scleroderma yi mu no, sɛ nipadua no mu tumi a ɛko tia nyarewa no tow hyɛ honam ani nkwammoaa so wɔ saa kwan yi so a, honam ani ɔfe anaasɛ ɛho ahonhon. Esiane saa ɔfe yi nti, protein a wɔfrɛ no collagen a ɛma yɛn honam ani yɛ den na ɛyɛ den no fi ase yɛ boro so. Sɛnea akuru ba bere a obi apira no, saa ara na saa collagen a ɛboro so yi ma honam ani fibrosis anaasɛ ɛyɛ den te sɛ akuru.

So Systemic Scleroderma ahorow atitiriw bi wɔ hɔ?

Yiw, ahorow atitiriw abiɛsa na ɛwɔ hɔ. Ma yɛnhwɛ nea wɔyɛ.

1. Diffuse cutaneous systemic sclerosis: Wɔ saa su yi mu no, wotumi hu abofra no honam ani a ɛyɛ den wɔ nipadua no nyinaa mu. Afei nso, ɔhaw ahorow betumi aba sɛnea nipadua no mu akwaa ahorow no yɛ adwuma no mu. Wo de susuw ho hwɛ, ɛnyɛ nsa, nan, ne anim nko, na mmom mmeae te sɛ koko ne yafunu nso fi ase yɛ den.

2. Limited cutaneous systemic sclerosis (CREST syndrome): Eyi yɛ soronko kakra. Wɔsan frɛ no CREST syndrome . CREST yɛ asɛmfua a wɔatwa no tiaa a wɔde nkyerɛwde a edi kan a ɛwɔ tebea yi mu nneɛma atitiriw anum no bom na ɛyɛ.

• C - Calcinosis: Wei kyere se calcium si honam ani na eye nsensanee nketenkete.
• R - Raynaud adeyɛ: Eyi ne bere a nsateaa ano (nsa ne nan) dan fitaa, bruu, na afei ɛyɛ kɔkɔɔ bere a awɔw ahyɛ mu anaasɛ bere a ɛwɔ nhyɛso ase. Ɛbɛyɛ den sɛ wobɛhwɛ nipadua mu hyew so.
• E - Esophageal motility dysfunction: Wei kyerε sε, tube a εde aduane firi menewa mu kɔ yafunu mu (esophagus) no ntumi nyɛ adwuma yie bere a yɛmene no. Eyi betumi ama obi anya komayare.Nneɛma a ɛte saa betumi asi.
• S - Sclerodactyly: Wora a ewo nsateaa no so no ye den na eye den. Nsateaa no betumi ahuru na ayɛ den, te sɛ soseji.
• T - Telangiectasia: Mogya ntini nketenkete a ɛwɔ honam ani no yɛ kɛse, na ɛda adi te sɛ akɔre ntaban anaa nsensanee kɔkɔɔ.

3. Systemic sclerosis sine scleroderma: Eyi ne bere a nipadua no mu akwaa ahorow no nya a honam ani hwɛbea no nyɛ den anaasɛ ɛnyɛ den. ‘Sine scleroderma’ kyerɛ sɛ ‘enni scleroderma (honam ani a ɛyɛ den)’. Eyi kyerɛ sɛ ɛwom sɛ ebia nsakrae titiriw biara remma honam ani de, nanso ebia akwaa a ɛwɔ nipadua no mu no bɛka.

Hena na ɛda adi kɛse sɛ obenya Juvenile Systemic Scleroderma? Ɛtaa ba dɛn?

Saa tebea a wɔfrɛ no Juvenile Systemic Scleroderma yi betumi aka obiara a wadi mfe biara ankasa, ɛmfa ho sɛ ɔyɛ ɔbarima anaa ɔbea. Nanso, ɛntaa mma koraa sɛ mmofra nkumaa, kyerɛ sɛ, mmofra a wonnii mfe 10, benya bi. Asɛmfua ‘mmofra’ ankasa kyerɛ sɛ eyi yɛ tebea a ɛka mmofra. Sɛ wohwɛ akontaabu a ɛwɔ ɔman te sɛ United States mu a, wɔka sɛ mmofra a wɔwɔ Scleroderma no bɛyɛ 5,000 kosi 7,000. Nnipa a wɔwɔ Scleroderma nyinaa mu bɛyɛ 2% na yare yi ka wɔn ansa na wɔadi mfe 10. 7% foforo hyia saa tebea yi wɔ mfe 10 kosi 19. Enti, wobu eyi sɛ yare a ɛntaa nsi koraa .

Dɛn ne Juvenile Systemic Scleroderma ho sɛnkyerɛnne ahorow?

Wɔ saa tebea yi mu no, sɛnkyerɛnne ahorow betumi aka abofra no honam ani ne ne mu akwaa ahorow. Nea ɛka ho no, mmofra pii a wɔwɔ Systemic Scleroderma nso nya tebea bi a wɔfrɛ no Raynaud adeyɛ .

Nsɛnkyerɛnne a ɛka honam ani ne ntini ahorow

Nea edi kan no, ma yɛnhwɛ sɛnea eyi ka honam ani ne ntini a ɛfa ho no:

• Wora no hwere sɛnea ɛyɛ den no. Ɛbɛyɛ den, ɛyɛ den, na ɛnyɛ fɛ.
• Nsa no dwumadi so tew. Wora no mu yɛ den, titiriw wɔ nsateaa ne nsateaa mu, na ɛma ɛyɛ den sɛ wobɛkotow nsa na wakyere nneɛma.
• Mogya ntini kɔkɔɔ pue wɔ honam ani, titiriw wɔ nsa, anim, ne nnadewa no ho (telangiectasias). Eyinom betumi ayɛ te sɛ akɔre nketewa.
• Calcinosis yɛ calcium nketenkete a ɛba honam ani anaa baabi foforo. Ɛtɔ mmere bi a eyinom tumi te nka sɛ ɛyɛ den.

Mfiase no, nsa ne anan ho were betumi ayɛ te sɛ nea ahonhon na ayɛ kɛse. Bere kɔ so no, abofra no honam ani betumi ayɛ den, ayɛ den, na ebetumi ayɛ nwi, mmeae a akɔ fam, anaa amena nketewa. Sɛ nhwɛso no, mmofra binom nsateaa ano betumi ahuru te sɛ soseji, afei ayɛ den na ɛhyerɛn.

Nsɛnkyerɛnne a ɛka akwaa a ɛwɔ nipadua no mu

Systemic Scleroderma nso betumi aka abofra mu akwaa ahorow. Ebia sɛnkyerɛnne ahorow no bi ne:

• Nkwaa a ɛho ahonhon, ɛyɛ den, ne ɛyaw. Te sɛ ntini mu yare.
• Akuru a ɛwɔ nsateaa ano. Saa akuru yi gye bere tenten ansa na asa.
• Nnuan a wɔyam no mu haw ahorow. Sɛ nhwɛso no, komayare, ɛyɛ den sɛ ɔbɛmene, nsu a ɛho ayɛ hare (akisikuru), ne yafunu mu akisikuru.
• Ɔhome mu haw ahorow. Ebia wobɛte ɔfe a ɛkɔ so daa anaasɛ ɛbɛyɛ den sɛ wobɛhome.
• Asaabo mu haw ahorow. Eyi nso betumi ama mogya mmoroso (hypertension) aba .
• Ɔbrɛ a wɔte nka bere nyinaa. Ɔbrɛ a wobɛbrɛ ntɛmntɛm bere a woayɛ biribi ketewaa bi mpo akyi.
• Ntini mu mmerɛwyɛ.

Mpɛn pii no, saa tebea yi nyɛ yaw. Enti, ebia mmofra binom mpo renhu sɛ wɔwɔ Scleroderma. Ɛno nti na ɛsɛ sɛ abofra a wɔahu sɛ ɔwɔ Systemic Sclerosis kɔ oduruyɛfo nkyɛn daa kɔhwɛ sɛ mogya mmoroso, ahurututu, asaabo, yafunu mu, ne koma mu haw ahorow wɔ no.

Raynaud adeyɛ a ɛyɛ nwonwa no

Eyi yɛ sɛnkyerɛnne soronko mmom. Raynaud adeyɛ ne bere a abofra nsateaa ano ne ne nansoaa sesa kɔla bere a awɔw ahyɛ ne mu anaasɛ wayɛ basaa no. Nea edi kan no wɔdan fitaa , afei wɔyɛ bruu , na awiei koraa no wɔyɛ kɔkɔɔ . Eyi yɛ sɛnkyerɛnne a wotumi hu wɔ yare no mfiase. Ɛtɔ mmere bi a eyi betumi ayɛ ade a edi kan a ɛkyerɛ sɛ Systemic Sclerosis wɔ hɔ.

Nsɛnkyerɛnne afoforo a ebetumi aba wɔ Raynaud adeyɛ no ho ne:

• Ɔbrɛ a wɔte nka bere nyinaa
• Nkwaa mu yaw
• Ɛyɛ den sɛ wobɛmene aduan
• Yafunu mu yaw
• Koko mu ɔfe
• Ayamtuo
• Ɔhome a ɛyɛ den

Dɛn nti na Juvenile Systemic Scleroderma ba?

Nokwarem no, wɔda so ara nnim nea ɛde Juvenile Systemic Scleroderma ba ankasa . Nanso, nhwehwɛmu ada no adi sɛ sɛe nkwammoaa a ɛwɔ yɛn mogya ntini mu no ma ntini a ɛka bom wɔ honam ani a wɔfrɛ no fibroblasts no yɛ adwuma boro so. Saa fibroblasts yi ne nkwammoaa a ɛma protein te sɛ collagen. Enti, Systemic Scleroderma ho sɛnkyerɛnne no fi saa collagen a wɔyɛ boro so yi.

Dɛn nti na akokoaa honam ani yɛ den saa?

Wɔ Systemic Scleroderma mu no, honam ani yɛ den esiane protein bi a wɔfrɛ no collagen a ɛboro so wɔ abofra no ntini mu nti. Sɛnea yɛadi kan aka ho asɛm no, nipadua no mu tumi a ɛko tia nyarewa no adwuma ne sɛ ɛbɛbɔ nipadua no ho ban afi ɔyare mmoawa ne nyarewa ho. Nanso, wɔ abofra a ɔwɔ Scleroderma mu no, nipadua no mu tumi a ɛko tia nyarewa no yɛ n’ade boro so na ɛbɔ mmɔden sɛ ɛde n’ankasa nkwammoaa a ɛte apɔw bɛbɔ nipadua no ho ban – kyerɛ sɛ, ɛtow hyɛ n’ankasa nkwammoaa so . Ne saa nti, abofra no nkwammoaa fi ase yɛ collagen pii. Saa collagen a ɛboro so yi kɔhyɛ abofra no honam ani ne ne mu akwaa ahorow mu, na ɛma ɛyɛ te sɛ nea ɛyɛ den na ɛyɛ den, te sɛ akuru.

Ɔkwan bɛn so na wohu sɛ obi anya Systemic Scleroderma?

Wo ba no duruyɛfo behu Systemic Scleroderma denam nneɛma pii a obesusuw ho so.

• Nsɛnkyerɛnne ne nipadua mu nsɛnkyerɛnne, te sɛ honam ani a ɛyɛ den ne nsakrae a ɛba nsateaa mu.
• Nsakrae pɔtee a ɛba honam ani, te sɛ mmeae a ɛyɛ den, ne kɛse, ne nsusuwii, ne ne kɔla.
• Aduruyɛ ho abakɔsɛm a edi mũ ne nipadua mu nhwehwɛmu bɛma woanya nsɛm a ɛfa abofra no nyarewa a atwam ne sɛ ebia abusua no mu obi anya tebea a ɛte saa ara anaa.

Nhwehwɛmu bɛn na wɔde hu Systemic Scleroderma?

Wɔyɛ nhwehwɛmu ahorow de yi tebea afoforo a ɛte sɛ scleroderma fi hɔ, de hu sɛnea scleroderma no yɛ adwuma, na wɔde hu sɛ ebia akwaa afoforo a ɛka honam ani no aka no anaa. Nhwehwɛmu a wɔyɛ de hwehwɛ protein ahorow a nipadua no tumi ko tia nyarewa no betumi ama wɔanya sɛnea yare no kɔ so ho adwene bi. Ɛntaa mma koraa sɛ nnuruyɛfo yɛ honam ani nipadua mu nhwehwɛmu .

Nhwehwɛmu afoforo bi a wɔyɛ wɔ Systemic Scleroderma ho ni:

• Mogya mu nhwehwɛmu: Hwɛ protein dodow a nipadua no tumi ko tia nyarewa ne asaabo dwumadi.
• X-ray nhwehwɛmu: Hwehwɛ nsakrae a aba abofra no honam ani, ne nnompe, ne ne mu akwaa (te sɛ ahurututu ne ne dwensɔtwaa) mu.
• Sɔhwɛ ahorow a wɔyɛ de hwɛ sɛnea ɔmene ade wɔ aduan mu: Eyi kyerɛ sɛ wɔbɛhwɛ sɛnea afiri a ɛde aduan fi ano kɔ yafunu mu no yɛ adwuma.
• Pulmonary function test: Ɔhome ho sɔhwɛ a wɔde hwɛ sɛ abofra no ahurututu reyɛ adwuma yiye anaa.
• Heart ultrasound (Echocardiography): Hwɛ sɛnea wo ba no koma reyɛ adwuma.

Hena na ohu Juvenile Systemic Scleroderma?

Systemic Scleroderma yɛ nea wo ba no oduruyɛfo a ɔhwɛ no nyinaa, ntini mu yare ho oduruyɛfo a ne ho akokwaw wɔ tebea horow yi mu, honam ani yare ho ɔbenfo , anaa nnuruyɛfo kuw bi a wɔn ho akokwaw wɔ nipadua no afã horow pɔtee bi (digestive system, koma, ahurututu, asaabo) na wɔsa.

Ɔkwan bɛn so na wɔsa Juvenile Systemic Scleroderma?

Botae atitiriw a ɛwɔ nhyehyɛe mu scleroderma ayaresa mu ne sɛ wobegyae ɔfe, asiw tebea no ano sɛ ɛnsɛe, na wɔasiw akwaa a ɛwɔ nipadua no mu a ɛsɛe no ano.

Wora a wɔbɔ ho ban

Wo honam ani ho ban a wobɛbɔ no boa ma mogya kɔ wo honam ani ne wo akwaa mu kɛse. Eyi ho hia titiriw ma mmofra a wɔwɔ Raynaud adeyɛ no . Nneɛma bi a wubetumi ayɛ de abɔ wo ba honam ani hwɛbea ho ban ni:

• Kwati sɛ wubepira mmeae a ɛho ayɛ den no, titiriw nsateaa ano ne nansoaa.Nusu ketewaa bi mpo betumi abɛyɛ ɔhaw kɛse.
• Bɔ wo ba nsa ne ne nan ho ban fi awɔw ho. Ma dan no mu nyɛ hyew. Wɔ awɔw bere mu (wɔ mmeae a awɔw wom te sɛ yɛn man no mmepɔw so) no, hyɛ wo ba no ntade foforo te sɛ kyɛw a wɔde aso akata so, abɔso, ne sɔks a ɛyɛ hyew. Nwoma yɛ hyew sen kotoku anaa ntama a wɔde ayɛ nneɛma. Afei nso, eye sɛ wobɛhyɛ ntade a ɛyɛ tratraa pii sen sɛ wobɛhyɛ ntade a ɛyɛ tratraa biako.
• Kwati sigaretnom anaa wo ba no a wode bɛnom sigaret.
• Kwati sɛ wode nnuru a ɛma atiridiinini a ade a wɔfrɛ no pseudoephedrine wom bɛma wo ba.
• Bɔ wo ba ho ban mfi owia hann a ɛboro so ho. Fa nnuru a ɛbɔ wo ho ban fi owia ho di dwuma sɛnea wo duruyɛfo kamfo kyerɛ no.
• Mfa samina a ano yɛ den, aduru a wɔde hohoro nneɛma ho (aduru a wɔde hohoro nipadua anaa anim, nnuru a wɔde hohoro ho a ano yɛ den) nni dwuma wɔ wo ba no honam ani.
• Fa nnuru a wɔde sare wo ba no honam ani yɛ mmerɛw sɛnea oduruyɛfo no kyerɛ no.

Nipadua mu ayaresa

Mfitiaseɛ apɔw-mu-teɛteɛ ne apɔw-mu-teɛteɛ nhyehyɛe ahorow a wɔkyerɛ kwan, a apɔw-mu-teɛteɛ ho animdefo ne adwuma mu ayaresa ho animdefo yɛ no betumi aboa ma abofra no atumi ayɛ nsakrae, baabi a obetumi keka ne ho wɔ nkwaa no mu, ntini ahoɔden, ne mogya a ɛkɔ mmeae a ɔyare no ayɛ no. Saa ayaresa ahorow yi nso betumi aboa ma wɔasiw nkwaa a ɛtwetwe, a ɛyɛ nkwaa no a ɛyɛ den no ano. Sɛ ɛho hia a, oduruyɛfo no betumi akamfo akyerɛ sɛ wɔmfa nhama anaa nhama a wɔde hyɛ nipadua no mu.

Sɛɛgyiri

Ɛntaa mma koraa sɛ ebia ɛho behia sɛ wɔyɛ nsa oprehyɛn a wɔde nnompe yɛ anaasɛ wɔyɛ no fɛfɛɛfɛ de siesie nkwaa anaa honam ani dɛmdi anaa akuru a emu yɛ den. Nanso, ansa na wɔbɛyɛ oprehyɛn no, ɛsɛ sɛ tebea no kɔ so fi hɔ , a ɛkyerɛ sɛ ɛnyɛ adwuma mfe pii ni.

Ebia wo ba no duruyɛfo bebu nnompe mu ntini a wɔde ma obi ankasa sɛ ayaresa. Mprempren wɔreyɛ ayaresa afoforo ho nhwehwɛmu.

Nnuru bɛn na wɔde ma Systemic Scleroderma?

Ebia wo duruyɛfo bɛkyerɛw nnuru ahorow a wɔde bɛsa wo ba no yare no. Nhwɛsoɔ:

• Corticosteroids: Ɛtew ɔfe a ɛwɔ ntini, nkwaa, ne honam ani. Steroid nso betumi aboa ma wɔasa ɔfe a edi kan wɔ akwaa a ɛwɔ nipadua no mu no. Nanso, mpɛn pii no, steroid ntumi nyɛ adwuma yiye wɔ fibrotic fã ahorow a edi akyiri a ɛba wɔ systemic sclerosis mu no mu.
• Nnuru a ɛnyɛ steroid a ɛko tia ɔyare mmoawa (NSAID): Sɛ nhwɛso no , ibuprofen ne naproxenƐtɔ mmere bi a wɔde nnuru te sɛ NSAID di dwuma de tew nkwaa a ɛyɛ hyew so wɔ mmofra a wɔwɔ ntini mu yare mu. Nanso, ɛsɛ sɛ wɔhwɛ yiye na wɔamfa NSAID nni dwuma mmoroso bere a asaabo dwumadi asɛe no.
• Nnuru afoforo a ɛma nipadua no tumi ko tia nyarewa: Wɔde eyinom ma na ama nipadua no tumi a ɛko tia nyarewa no ayɛ adwuma na asiw ɔfe ne akuru a edi hɔ no ano.
• Nnuru a ɛma mogya ntini trɛw na ɛma mogya kɔ yiye: Wɔde eyinom sa Raynaud adeyɛ no .

Sɛ me ba wɔ Systemic Scleroderma a, dɛn na ɛsɛ sɛ mehwɛ kwan?

Aduru pɔtee biara nni hɔ a wɔde sa scleroderma. Nanso, wubetumi aboa wo ba no ma wadi tebea no ho dwuma na ɔne no atra ase.

Systemic Scleroderma yɛ yare a enni sabea , ɛtra hɔ kyɛ, na ɛkɔ so nkakrankakra. Ebetumi atra hɔ asram anaa mfe pii. Wo ba no adwene gyina sɛnea sɛnkyerɛnne ahorow no atrɛw ne nipadua no fã kɛse (titiriw honam ani akwaa ne emu akwaa ahorow) a ɛka no so.

Mmofra a wɔwɔ ahurututu, koma, anaa asaabo mu haw no wɔ asiane kɛse mu sɛ wobenya ɔhaw ahorow, te sɛ nkwaa a ɛtwetwe ne nsakrae a ɛba wɔ nnuru a wɔde yɛ ahosiesie mu. Saa tebea yi nso betumi aka abofra no nnompe nyin.

Mpɛn pii no, Systemic Scleroderma nkɔ koraa, nanso ebetumi akɔ so ayɛ nea ɛte saa ara mfe pii a ɛrenyɛ kɛse.

Bere tenten ahe na wubetumi de Juvenile Systemic Scleroderma atra ase?

Abofra a wɔahu sɛ ɔwɔ Systemic Scleroderma nkwa nna gu ahorow gyina sɛnea tebea no mu yɛ den so, titiriw sɛ ebia aka wɔn mu akwaa ahorow anaa. Ɛho hia sɛ wo ne wo duruyɛfo kasa fa eyi ho na ama woanya ntease a emu da hɔ.

So wobetumi asiw Juvenile Systemic Scleroderma ano?

Esiane sɛ wonnim nea ɛde ba ankasa nti, ɔkwan pɔtee biara nni hɔ a wɔbɛfa so asiw Systemic Scleroderma ano.

Ɔkwan bɛn so na mehwɛ me ba a wɔahu sɛ ɔwɔ Systemic Scleroderma no?

Ɛsɛ sɛ mmofra a wɔwɔ Systemic Scleroderma tra ase sɛnea ɛbɛyɛ yiye biara. Ɛsɛ sɛ wɔkɔ sukuu, di agoru, na wɔde wɔn ho hyɛ dwumadi ahorow mu. Mpɛn pii no, anohyeto biara nni apɔw-mu-teɛteɛ dodow a mmofra betumi ayɛ ho (bere tenten a asiane biara nni ho). Apɔw-mu-teɛteɛ boa ma wosiw mmerɛwyɛ ano na ɛma ntini ahoɔden, ɛyɛ mmerɛw, ne boasetɔ yɛ kɛse.

Bere bɛn na ɛsɛ sɛ mede me ba no kɔ oduruyɛfo nkyɛn?

Ɛsɛ sɛ wɔde wo ba kɔhwɛ no daa. Titiriw no hwɛ sɛnkyerɛnne ahorow a ɛka nipadua no mu akwaa ahorow. Sɛ wo ba no te ɛyaw kɛse , ɛyɛ den ma no sɛ obetu ne nipadua no afã horow, anaasɛ ɔwɔ sɛnkyerɛnne ahorow a ɛreka ne da biara da asetra a, .Kɔ oduruyɛfo nkyɛn ntɛm ara.

Nsɛm bɛn na ɛsɛ sɛ mibisa me duruyɛfo?

Sɛ wubisa nsɛm te sɛ eyinom a, ɛbɛboa wo:

• Me ba no tebea no mu yɛ den dɛn?
• Mɛyɛ dɛn aboa ma wɔabɔ me ba were ho ban wɔ fie?
• Mpɛn ahe na ɛsɛ sɛ me ba kɔ apɔw-mu-teɛteɛ?
• Sɛ yare no mu yɛ den a, sɛnkyerɛnne bɛn na ɛsɛ sɛ mehwɛ yiye?
• So ɛsɛ sɛ wɔyɛ me ba oprehyɛn?

So scleroderma ahorow afoforo wɔ hɔ?

Wɔ Systemic Scleroderma ahorow no akyi no, Scleroderma ahorow atitiriw abien na ɛwɔ hɔ. Wɔne:

• Localized scleroderma: Saa ɔkwan yi ka honam ani wɔ nipadua no mmeae bi nkutoo. Ebetumi atrɛw akɔ ntini anaa nnompe a ɛwɔ ase no nso mu, anaasɛ enni hɔ. Ɛntaa nnya akwaa a ɛwɔ nipadua no mu no.
• Systemic scleroderma (a wɔsan frɛ no systemic sclerosis): Eyi ne nea yɛaka ho asɛm wɔ asɛm yi nyinaa mu. Wɔ tebea yi mu no, honam ani betumi ayɛ den wɔ nipadua no baabiara. Wɔ honam ani nsakrae akyi no, akuru ntini betumi ayɛ kɛse wɔ nipadua no mu akwaa te sɛ asaabo, koma, ahurututu, ne yafunu mu nhyehyɛe mu. Ebia mmofra a wɔwɔ systemic sclerosis no nkwaa ntumi nkɔ baabiara esiane honam ani nsakrae a ɛtrɛw nti.

Nneɛma a ɛho hia paa a ɛsɛ sɛ wokae wɔ asɛm yi mu

Juvenile Systemic Scleroderma yɛ tebea a ɛntaa nsi wɔ mmofra mu a ɛma honam ani yɛ den na ɛyɛ den, na ɛtɔ mmere bi a ɛka nipadua no mu akwaa ahorow. Ɛyɛ yare a nipadua no tumi ko tia nyarewa.

• Nsɛnkyerɛnne: Wora a ɛyɛ den, nsateaa a ɛho ahonhon, Raynaud adeyɛ (nsateaa kɔla sesa wɔ awɔw bere mu), nkwaa mu yaw, aduan mu haw ahorow, ne ahome a ɛyɛ den betumi aba.
• Nea ɛde ba: Ɛwom sɛ wonnim ankasa de, nanso wosusuw sɛ nipadua no mu tumi a ɛko tia nyarewa a entumi nyɛ adwuma yiye ne collagen a ɛdɔɔso dodo na ɛde ba.
• Ayaresa: Di yare no so, bɔ honam ani ho ban, fa nipadua mu ayaresa ne sɛ ɛho hia a, fa nnuru di dwuma. Ɛwom sɛ wonni aduru a edi mũ de, nanso wobetumi adi yare no ho sɛnkyerɛnne ahorow ho dwuma.
• Nea ɛho hia sen biara: Sɛ wo ba no wɔ sɛnkyerɛnne ahorow a, hwehwɛ aduruyɛfo afotu ntɛm ara. Ɛho hia yiye sɛ wode wo ba bɛkɔ akɔhwɛ no daa na woaboa no ma watra ase sɛnea ɛsɛ. Mma ɛnhaw wo, wubetumi agyina saa tebea yi ano denam nnuruyɛfo mmoa so.

` Scleroderma, mmofra honam ani nyarewa, honam ani a ɛyɛ den, collagen, nyarewa a nipadua no tumi ko tia nyarewa, Raynaud adeyɛ, CREST syndrome