So wo anaa obi a ɔwɔ w’abusua mu wɔ yare bi a wɔfrɛ no Phenylketonuria? Sɛ saa a, ebia wo duruyɛfo no akyerɛw wo aduru bi a wɔfrɛ no Pegvaliase. Esiane sɛ eyi yɛ aduru soronko bi nti, ɛyɛ ade a ɛfata sɛ wubenya nsɛmmisa ne nneɛma bi a ɛhaw wo wɔ ho. Enti ɛnnɛ, momma yɛnka saa aduru yi ne nneɛma a ɛsɛ sɛ wohwɛ yiye bere a wode redi dwuma no ho asɛm.
Dɛn ne Pegvaliase aduru yi?
Sɛ yɛbɛka no tiawa a, Phenylketonuria (PKU) yɛ tebea a yɛn nipadua ntumi nwe amino acid bi a wɔfrɛ no phenylalanine yiye. Eyi yɛ biribi a mpɛn pii no yehu wɔ nnuan a protein pii wom a yedi no mu. Sɛ saa phenylalanine yi boaboa ano wɔ obi a ɔwɔ PKU nipadua mu a, ɛboaboa ano wɔ mogya no mu na ebetumi asɛe amemene no, titiriw amemene no, bere a bere kɔ so no.
Enti, nea Pegvaliase a wɔde twitwiw nipadua no mu yi yɛ ne sɛ ɛtew saa phenylalanine a wɔmpɛ, a ɛboro so a ɛwɔ mogya no mu no dodow so. Mpɛn pii no, ɛba wɔ edin a wɔde frɛ no Palynziq ase.
Nanso ɛho hia sɛ wokae eyi: Eyi nyɛ aduru a wɔde sa ne nyinaa. Nanso, ebetumi aboa ma wɔadi dodow a epira wɔ mogya no mu so na ama ɔhaw a yare no de aba no so atew.
Nneɛma a ɛsɛ sɛ woka kyerɛ wo duruyɛfo ansa na woanom nnuru
Ansa na wubefi saa aduru yi ase no, ɛho hia yiye sɛ wo ne wo duruyɛfo kasa fa saa nneɛma yi ho pefee na wodi nokware. Mfa biribiara nsie.
- Sɛ wowɔ Pegvaliase anaa aduru foforo biara, aduan, anaa aduru a wɔde yɛ ade ho akisikuru biara a, ka kyerɛ yɛn.
- Sɛ woanyinsɛn anaa wowɔ anidaso sɛ wubenyinsɛn a, hwɛ hu sɛ wobɛka saa.
- Sɛ woyɛ ɛna a ɔma nufu a, ka ɛno nso ho asɛm kyerɛ wo duruyɛfo.
Wogyina saa nsɛm yi so bɛyɛ mmerɛw ama oduruyɛfo no sɛ obesi gyinae sɛ ebia aduru yi fata wo anaasɛ ɛnsɛ.
Ɔkwan bɛn so na wɔde vaccine no bedi dwuma yiye?
Eyi yɛ aduru a wɔde twitwiw nipadua no ase. Mpɛn pii no, wo duruyɛfo anaa ɔyarehwɛfo bɛma wo akwankyerɛ a emu da hɔ wɔ sɛnea wode bɛma wo ho wɔ fie no ho. Ɛho hia paa sɛ wudi akwankyerɛ ahorow yi akyi pɛpɛɛpɛ.
- Fa aduru no dodow a ɛfata, wɔ bere a ɛfata mu: Fa aduru no bere ne dodow a ɛfata sɛnea wo duruyɛfo akyerɛ wo no nkutoo. Mfa dodow a wɔakyerɛw ato hɔ no nnnom da.
- Tow nnade ne syringe gu yiye: Mfa nnade ne syringe a wɔde adi dwuma ngu nwura mu da . Mmom no, fa gu ade titiriw bi a wɔde nnam yɛ mu. Sɛ wunni bi a, bisa wo duruyɛfo ma ɔmma wo bi.
- Nsɛm titiriw kratasin (MedGuide):Ansa na wɔbɛyɛ ayaresa biara no, wɔbɛma wo ‘MedGuide’ soronko bi, kratawa a ɛwɔ aduru no ho nsɛm a ɛkɔ akyiri. Kenkan no yiye bere nyinaa.
Na sɛ mepa nnuru dodow bi nso ɛ?
Sɛ wopa dose bi mpofirim a, mma ɛnhaw wo. Mfa dodow a woayera no. Fa dodow a edi hɔ no wɔ wo bere a wotaa yɛ no mu. Mfa nnuru mmɔho abien da.
Na sɛ menom boro so nso ɛ?
Sɛ wususuw sɛ woanom nnuru pii a, frɛ National Poisons Information Center a ɛwɔ Colombo National Hospital no ntɛm ara, anaa kɔ Emergency Treatment Unit (ETU) a ɛwɔ ayaresabea a ɛbɛn wo no. Eyi yɛ ntɛmpɛ, nntwentwɛn wo nan ase.
Nneɛma a ɛsɛ sɛ wohwɛ yiye wɔ ho titiriw bere a wode aduru yi redi dwuma no:
Saa ɔfã yi ho hia paa. Ɛsɛ sɛ wohwɛ yiye wɔ saa nneɛma yi ho wɔ bere a wode aduru yi redi dwuma no nyinaa mu.
Allergic Reaction a Ɛyɛ Den
Asiane titiriw ne nea emu yɛ den sen biara a ɛwɔ aduru yi mu ne sɛ ebetumi aba sɛ obi anya akisikuru a emu yɛ den, anaasɛ wɔ aduruyɛ mu no, anaphylaxis. Eyi yɛ tebea a egye ntɛmpɛ a ɛde nkwa to asiane mu.
Esiane eyi nti, mpɛn pii no, wo duruyɛfo bɛkyerɛw epinephrine auto-injector, aduru titiriw bi a wobetumi de adi dwuma wɔ tebea a egye ntɛmpɛ mu. Ɛsɛ sɛ wode sie wo nkyɛn bere nyinaa.
Fa no sɛ wɔtow tuo na wɔ bere tiaa bi mu no, ɛyɛ den ma wo sɛ wobɛhome, w’anim ne w’ano hohoro, na w’adwene tu fra. Ɛno betumi akyerɛ sɛ wowɔ akisikuru a emu yɛ den. Sɛ ɛba saa a, ɛsɛ sɛ wofa saa epinephrine tuo no ntɛm ara na wokɔ ayaresabea dan a wɔhwɛ wɔn a wɔwɔ ayaresa a egye ntɛmpɛ mu (ETU) ntɛm ara sɛnea wubetumi.
Esiane asiane yi nti, wo duruyɛfo no bɛtaa aka akyerɛ wo sɛ fa obi ka wo ho bere a worebɔ wo aduru no ne dɔnhwerew biako wɔ wo akyi. Eyi te saa sɛnea ɛbɛyɛ a sɛ wo ho yɛ wo hyew denneennen a, saa onipa no betumi aboa wo na ɔde wo akɔ ayaresabea ntɛm.
Aduruyɛ mu nhwehwɛmu a wɔyɛ no daa ne aduan a wodi so
- Aduruyɛ mu nhwehwɛmu: Wo duruyɛfo bɛhwɛ wo daa bere a worenom aduru yi no. Ɔbɛhyɛ nso sɛ wɔnyɛ mogya mu nhwehwɛmu daa (mogya mu adwuma) de hwɛ phenylalanine dodow a ɛwɔ wo mogya mu. Mma nntwa eyinom so.
- Adidi: Wokae bere a yɛkaa aduan titiriw a ɛsɛ sɛ wudi akyi ma PKU ho asɛm no? Bere a worenom saa aduru yi no, ɛsɛ sɛ wudi aduan titiriw a wɔakyerɛw ama wo no nso akyi. Mma nnyɛ nsakrae biara wɔ w’aduan mu a wonkɔ wo duruyɛfo nkyɛn.
Nsunsuanso bɔne a aduru no de ba
Te sɛ aduru biara no, eyi betumi anya nkɛntɛnso bɔne bi. Mma ɛnhaw wo, nanso ɛho hia sɛ wuhu eyinom.
| Nsunsuanso bɔne/sɛnkyerɛnne | Nkyerɛmu |
|---|---|
| Sɛ wuhu saa sɛnkyerɛnne ahorow yi a, ka kyerɛ wo duruyɛfo ntɛm ara. | |
| Nneɛma a ɛma obi ho yɛ no hyew a emu yɛ den | Wora mu akisikuru, ɛyaw a emu yɛ den, anofafa, tɛkrɛma, anim, ɛyɛ den sɛ wobɛhome. |
| Koko mu yaw anaasɛ ɛyɛ den | Sɛ wote nka sɛ wo moma so reyɛ ayɛ wo yaw bere a worehome no. |
| Koma a ɛbɔ denneennen | Sɛ wote nka sɛ wo koma rebɔ ntɛmntɛm anaasɛ wo koma bɔ resakra. |
| Mogya mmoroso a ɛba fam ho sɛnkyerɛnne | Sɛ wote nka sɛ ne ti ayɛ wo yaw, ne ti yɛ hare, wo totɔ piti, ɔbrɛ a ɛyɛ soronko. |
| Nsɛnkyerɛnne afoforo a anibere wom | Ɔfe, nkwaa mu yaw, honam ani akisikuru anaasɛ ɛho ayɛ kurukuruwa, ne adwene a ɛyɛ basaa. |
| Sɛ saa sɛnkyerɛnne ahorow yi kɔ so anaasɛ ɛhaw adwene a, ka kyerɛ wo duruyɛfo. | |
| Nneɛma a wɔyɛ wɔ baabi a wɔde injection gu no | Kɔkɔɔ, ɛyaw, ɛyaw, anaa ɔfe wɔ baabi a wɔde aduru no guu no. |
| Nneɛma bɔne a ɛtaa ba | Tiyɛ, akisikuru, yafunu a ɛyɛ yaw, akisikuru, ɔfe, menewa a ɛyɛ yaw, ti nhwi a ɛtɔ, ɔbrɛ. |
So ɔhaw ahorow betumi aba wɔ nnuru afoforo ho?
Yiw, nnuru bi betumi ne saa vaccine yi adi nkitaho. Sɛ nhwɛso no, nneɛma te sɛ medroxyprogesterone acetate vaccine a wɔde siw awo ano anaa hormone ayaresa.
Eyi nyɛ nsɛm a wɔahyehyɛ a edi mũ. Enti, ka nnuru a worenom nyinaa (a vitamin, nhabannuru, ne nnuru a wɔde ka ho) ho asɛm kyerɛ wo duruyɛfo. Afei nso, sɛ wonom sigaret anaa wonom nsa a, ka kyerɛ wo duruyɛfo.
Ɔkwan bɛn so na wɔkora nnuru so yiye?
Eyi nso ho hia paa. Sɛ aduru no bɛkɔ so ayɛ papa a, ɛsɛ sɛ wɔkora so yiye.
- Fa gu frigye mu: Fa aduru no sie frigye mu wɔ ɔhyew a ɛwɔ digrii Celsius 2 kosi 8 mu. Mfa nsie frigye mu da.
- Pia mu hyew: Sɛ ɛho hia a, wubetumi de saa aduru yi ahyɛ dan mu hyew mu (20-25 degrees Celsius) akosi nnafua 30.
- Nea ɛho hia sen biara: Ɛho hia yiye sɛ worensan mfa nnuru nhyɛ frigye mu bere a wɔayi afi frigye mu awie no. Sɛ wogyaw no wɔ dan mu hyew mu a, ɛsɛ sɛ wɔde di dwuma wɔ nnafua 30 ntam. Nnafua 30 akyi no, tow nnuru biara a aka no gu dwoodwoo.
- Mfa nnuru a ne bere atwam nni dwuma.
Nkrasɛm a Wɔde Kɔ Fie
- Pegvaliase vaccine no yɛ adwuma denam phenylalanine dodow a ɛtew nnipa a wɔwɔ PKU mogya mu no so. Ɛnsa yare no koraa.
- Asiane titiriw a ɛwɔ aduru yi mu ne akisikuru a emu yɛ den (anaphylaxis). Fa epinephrine a wɔakyerɛw ama wo no to wo nsam bere nyinaa.
- Di aduan titiriw a wo duruyɛfo akyerɛ wo no akyi bere a worenom aduru yi.
- Ka nnuru afoforo, vitamin, ne nnuru a wɔde di dwuma wɔ amanne kwan so a wonom nyinaa ho asɛm kyerɛ wo duruyɛfo.
- Fa aduru no sie frigye mu yiye. Mfa aduru no nsan nkɔ frigye mu bere a wɔayi afi mu no.
- Sɛ wowɔ nsɛmmisa anaa nsɛm bi a ɛhaw wo a, mma wo ho nnpopo na wo ne wo duruyɛfo nkasa bere nyinaa.
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