So wobrɛ bere nyinaa? Ebia ɛnyɛ ɔbrɛ ara kwa (Chronic Fatigue Syndrome) .

So wote nka sɛ woabrɛ ma ɛyɛ nwonwa da mũ nyinaa? Wosɔre a wote nka sɛ woabrɛ, na ɛmfa ho sɛnea wobɛda anadwo no, saa ɔbrɛ no nnyae? Ɛtɔ mmere bi a, ebia wubesusuw sɛ eyi yɛ ɔbrɛ a efi adwuma boro so mu ara kwa. Nanso ɛyɛ den sen saa, na ebetumi ayɛ akwahosan tebea a akyinnye biara nni ho sɛ ɛsɛ sɛ yɛhwɛ so. Ɛnnɛ yɛbɛka saa ɔbrɛ a ɛkɔ so daa yi ho asɛm, a wɔfrɛ no aduruyɛ mu sɛ `Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Ɛtɔ da bi a wɔfrɛ no `Systemic Exertion Intolerance Disease (SEID)`.

Sɛ yɛbɛka no tiawa a, eyi yɛ tebea a wo nipadua no batere ntumi nnye ahoɔden yiye. Eyi ma wobrɛ dodo sɛ wobɛyɛ wo da biara da dwumadi ahorow. Ɛtɔ da bi mpo a, biribi a ɛyɛ mmerɛw te sɛ sotɔɔ a wobɛkɔ, ofie nnwuma kakra a wobɛyɛ, anaa krataa a wobɛkyerɛw mpo betumi ama wo yare no ho sɛnkyerɛnne no asɛe kɛse. Saa tebea yi betumi atra hɔ asram 6, anaa mfe mpo. Nea ɛho hia sen biara ne sɛ saa ɔbrɛ yi ano brɛ ase, ɛmfa ho sɛnea wubegye w’ahome na woada yiye no.

Dɛn ne tebea yi ho sɛnkyerɛnne atitiriw?

Sɛ wowɔ ME/CFS a, akyinnye biara nni ho sɛ wowɔ saa "core" sɛnkyerɛnne abiɛsa yi. Momma yɛnhwɛ nea wɔyɛ.

Dɛn ne Apɔw-mu-teɛteɛ Akyi (PEM)?

Ɛho hia sɛ yɛkyerɛkyerɛ eyi mu kakra. Fa no sɛ woreyɛ adwuma ketewaa bi a wotaa yɛ, te sɛ fie a wobɛsiesie. Ebia obi a ɔwɔ apɔwmuden bɛte nka sɛ wabrɛ kakra, nanso ebefi hɔ bere tiaa bi akyi. Nanso, obi a ɔwɔ ME/CFS, bere a wayɛ saa adwuma a ɛnyɛ den no awie no, ebia nnɔnhwerew 12-48 akyi no, obetumi anya sɛnkyerɛnne ahorow te sɛ nipadua mu yaw kɛse, tiyɛ, ɛyɛ den sɛ ɔde n’adwene besi biribi so, ne menewa mu yaw, ne ɔbrɛ kɛse mpofirim . Saa tebea yi betumi atra hɔ nna pii, adapɛn pii mpo.

Nneɛma afoforo a ɛho hia na ama wɔahu yare no

Wɔ sɛnkyerɛnne atitiriw abiɛsa a yɛaka ho asɛm wɔ atifi hɔ no akyi no, sɛ oduruyɛfo betumi ahu ME/CFS no pɛpɛɛpɛ a, anyɛ yiye koraa no, ɛsɛ sɛ wunya sɛnkyerɛnne abien a ɛwɔ ase ha no mu biako .

• Nkate mu Ɔhaw ahorow:

Nnipa pii frɛ eyi "amemene mu sum." Ɛkyerɛ sɛ ɛyɛ den ma wo sɛ wode w’adwene besi biribi so, wuntumi mfa w’adwene nsi biribi so, wowɔ ɔhaw wɔ nsɛm a wobɛhwehwɛ mu, wuntumi nkae nneɛma foforo, na ahoɔhare a wode susuw nneɛma ho no brɛ ase. Ɛte sɛ nea sum akata wo ti so.

• Nsɛnkyerɛnne no mu yɛ den bere a wogyina hɔ anaa ɔte hɔ (Orthostatic Intolerance):

Nea ɛba wɔ asɛm yi mu ne sɛ yare no ho sɛnkyerɛnne no mu yɛ den bere a wugyina hɔ anaa wotra ase tẽẽ kakra no. Wote nka sɛ wo ho yɛ wo yaw, w’aniwa yɛ tuntum, wote nka sɛ woayɛ mmerɛw, w’aniwa yɛ kusuu, na ebia wobɛte nka mpo sɛ wowɔ nneɛma a ɛsensɛn w’ani anim. Eyi nti na wotaa te nka sɛ wobɛtotɔ piti no.

Bere bɛn na ɛsɛ sɛ yɛkɔ oduruyɛfo nkyɛn?

Sɛ wowɔ sɛnkyerɛnne ahorow a wɔaka ho asɛm wɔ asɛm yi mu no biako anaa nea ɛboro saa, titiriw sɛ ɔbrɛ no akɔ so asram pii a, yɛsrɛ sɛ nsusuw sɛ ɛyɛ ɔbrɛ ara kwa. Akyinnye biara nni ho sɛ eyi yɛ biribi a ɛsɛ sɛ wo ne wo duruyɛfo ka ho asɛm.

Sɛ wokɔ wo duruyɛfo nkyɛn a, hwɛ hu sɛ wobɛkyerɛkyerɛ wo sɛnkyerɛnne ahorow no ho biribiara mu, a da a efii ase, bere a emu yɛɛ den (PEM), ne sɛnea woda ka ho. Sɛ ɛho hia a, kyerɛw eyinom gu nhoma a wɔde kyerɛw nsɛm mu. Eyi bɛboa oduruyɛfo no ma wate wo tebea no ase.

Wubetumi abisa wo duruyɛfo no ne suahu a ɔwɔ wɔ ME/CFS ayaresa mu. Esiane sɛ eyi yɛ tebea a emu yɛ den nti, ebia wobɛpɛ sɛ wosrɛ sɛ wɔmfa wo nkɔ oduruyɛfo foforo a ne ho akokwaw wɔ saa beae yi nkyɛn. Nsuro sɛ wobɛka ho asɛm.