Yala gɛlɛyaw bɛ i la yɔrɔnin kelen i kunkolo ni i kɔkolo la wa? An ka kunnafoni sɔrɔ ADEM (Encéphalomyelite acute disseminée) kan!

Yala aw delila ka `ADEM` (Encephalomyelitis acute disseminée) daɲɛ mɛn wa? O bɛ se ka kɛ ko kura ye i bolo. O ye bana ye min man teli ka sɔrɔ, o kɔrɔ ye ko a bɛ mɔgɔ damadɔw de minɛ, nka a bɛ se ka na barika la ka nɔ bila an farikolo la. Aw kana aw hakili ɲagami, an bɛna kuma o kan cogo nɔgɔman na, cogo la min bɛ se ka faamuya.

ADEM ye mun ye? An k’a faamu cogo nɔgɔman na.

N’an y’a fɔ cogo nɔgɔman na, ADEM ye an ka Cɛmancɛ-nɛrɛmuguma (Central Nervous System) funu walima funu barikama ye – o kɔrɔ ye ko kunsɛmɛ ni kɔkolo. Aw ye miiri a la nin cogo la, i n’a fɔ ni an ye joginda sɔrɔ cogo min na , an farikolo bɛ funu ka taa a fɛ, o bɛ funu bila kunsɛmɛ ni kɔkolo yɔrɔ dɔw la.

o funu bɛ se ka an ka farikolo tangalan tiɲɛ min bɛ an ka nɛrɛmuguma lamini . o bɔrɔ in bɛ wele ko miyɛlini bɔgɔdaga . A bɛ i n’a fɔ plastiki min bɛ kuran nɛgɛ lamini. A bɛ cikanw dɛmɛ ka taa teliya la nɛrɛmuguma fɛ. O la, ni nin miyɛlini bɔgɔdaga in tiɲɛna, farikolojidɛsɛ cikanw tɛ taa ka ɲɛ. O waati de la taamasiɲɛ suguya caman bɛ bɔ kɛnɛ kan. Dɔgɔtɔrɔ dɔw fana bɛ nin bana in wele ko "demyelinating" bana.

Daɲɛ "acute" min bɛ ADEM kɔnɔ, o kɔrɔ ye ko a bɛ kɛ yɔrɔnin kelen, yɔrɔnin kelen . A ka c’a la, a bɛ kɛ siɲɛ kelen dɔrɔn ɲɛnamaya kɔnɔ. Nka, a bɛ se ka kɛ a ka teli ka segin a kan kosɛbɛ.

O ka teli ka kɛ cogo di?

tiɲɛ na , ADEM ye bana ye min man ca kosɛbɛ . Sɛgɛsɛgɛliw y’a jira ko jamana dɔ la i n’a fɔ Ameriki, a bɛ sɔrɔ mɔgɔ miliyɔn fila ni tila o miliyɔn kelen ɲɔgɔn na. O la, nin tɛ bana ye min bɛ bɛɛ minɛ.

Nin bana in taamasiɲɛw ye jumɛnw ye?

a ka ca a la , ADEM taamasiɲɛw bɛ bɔ tile damadɔ banakisɛ walima banakisɛfagalanw tali kɔfɛ . Nin taamasiɲɛ ninnu bɛ se ka ɲɔgɔn ta mɔgɔ ni mɔgɔ cɛ, wa a bɛ bɔ fana kunsɛmɛ walima kɔkolo funu bɛ yɔrɔ min na.

A taamasiɲɛ minnu ka teli ka ye, olu dɔw ye:

• Farigan
• Kunkolodimi.
• Dusukunnata walima fɔɔnɔ
• Ɲaamili
• Sɛgɛn

Ka fara o kan, taamasiɲɛ minnu bɛ tali kɛ farikolojidɛsɛ la, olu bɛ se ka kɛ:

• Farikolo yɔrɔw bɛ sɔgɔsɔgɔ walima ka kirin
• Gɛlɛya bɛ a da munumunu kan
• Yeli bɔnɛni walima a fiyɛli (optique neurite) .
• Farikolo fanga dɔgɔyali
• Taama gɛlɛya
• Kɔnɔboli

I n’a fɔ aw ɲɛ b’a la cogo min na, o taamasiɲɛw ni u juguya bɛ se ka ɲɔgɔn ta kosɛbɛ mɔgɔ ni mɔgɔ cɛ . Mɔgɔ dɔw bɛ se ka taamasiɲɛ nɔgɔmanw sɔrɔ, ka sɔrɔ a bɛ se ka kɛ dɔw la ka juguya.

Mun na o bɛ kɛ? ADEM sababu ye mun ye?

ADEM sababu tigitigi ma dɔn fɔlɔ . Nka, ɲininiw y’a jira ko ni banakisɛ walima banakisɛ dɔ donna an fari la, an farikolo tangalanw bɛ o kɛlɛ. Nka, ADEM bɛ mɔgɔ min na, farikolo tangalanw bɛ fili ka bin a yɛrɛ ka farikolo cɛmancɛ yɔrɔ dɔw kan . A bɛ iko i bɛ bin a yɛrɛ ka tɔnden dɔ kan, k’a miiri ko a ye jugu ye. Nin binkanni fililen in bɛ kɛ sababu ye ka funu (funu) min kofɔ ka tɛmɛ, o bɛ sɔrɔ ka bana taamasiɲɛw bila mɔgɔ la.

A jirala ko ADEM bɛ mɔgɔ minnu na, olu 70% ni 80% cɛ, banakisɛ walima bana bɛ u la sani ADEM taamasiɲɛw ka bɔ kɛnɛ kan. A ka ca a la ADEM taamasiɲɛw bɛ daminɛ tile 7 fo tile 14 banakisɛ sɔrɔlen kɔfɛ. Banakisɛ minnu ka teli ka sɔrɔ ADEM fɛ, olu dɔw ye:

• Grippe walima Mura
• Sumayabana
• Mumps (banakisɛfagalanw).
• Rubella ye
• Kɔnɔboli
• Epstein Barr banakisɛ
• Sitomegalovirusi (cytomegalovirus) banakisɛ
• Ɲɛgɛnɛsiraw banakisɛ (`Herpes simplex banakisɛ`) .

Hali ni banakisɛ suguya caman, banakisɛw ani banakisɛ wɛrɛw bɛ tali kɛ ADEM la, a bɛ i n’a fɔ a tɛ sɔrɔ banakisɛ kelen fɛ.

Kɔsa in na, ADEM sababu wɛrɛ sɔrɔla, kɛrɛnkɛrɛnnenya la denmisɛnw na, o ye Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease (MOGAD) ye. O fana bɛ jate farikolo tangacogo ye. O kɔrɔ ye ko farikolo yɛrɛ ka farikolo tangalanw bɛ bin a yɛrɛ ka farikolo-ɲɛnajɛ-yɔrɔw kan. Nin MOGAD in fana bɛ se ka ADEM bila mɔgɔ la tuma dɔw la.

Jɔn de farati ka bon ka ADEM sɔrɔ?

Mɔgɔ o mɔgɔ bɛ se ka ADEM sɔrɔ. Nka, a ka ca dɔɔni denmisɛnw na ka tɛmɛ balikuw kan . Ani fana, ni aw ye bana dɔ sɔrɔ kɔsa in na, aw ka ADEM sɔrɔli farati bɛ se ka bonya dɔɔni.

ADEM ka gɛlɛya jumɛnw bɛ se ka sɔrɔ?

ADEM bɛ se ka gɛlɛya dɔw lase mɔgɔ ma, i n’a fɔ:

• Hakililajiginbaliya
• Hakilila-jɔ-baara min bɛ mɛn sen na
• Koma

A man teli kosɛbɛ, ADEM taamasiɲɛw bɛ se ka mɔgɔ ka ɲɛnamaya bila farati la ni u juguyara. Nka o ka dɔgɔ kosɛbɛ .

Mɔgɔ dɔw bɛ se ka taamasiɲɛ dɔw sɔrɔ minnu bɛ to sen na hali furakɛli kɔfɛ:

• Kungolodimi jugumanba.
• Ɲɛgɛnɛsiraw
• Gɛlɛya min bɛ sɔrɔ jɛkafɔ la
• Yeli kɛcogo fitini

ADEM bɛ sɔrɔ cogo di?

Ni ADEM taamasiɲɛw bɛ aw la, dɔgɔtɔrɔ bɛna aw ka bana tariku caman ta, ka aw ka bana taamasiɲɛw ɲininka, ka farikoloɲɛnajɛ sɛgɛsɛgɛli kɛ , ka farikolo sɛgɛsɛgɛli bɛɛ kɛ, ani ka sɛgɛsɛgɛli caman wɛrɛw kɛ walasa k’a dɔn ni ADEM bɛ aw la.

Sɛgɛsɛgɛliw fana bɛ kɛ walasa ka bana wɛrɛw lajɛ minnu bɛ a kɔnɔ, i n’a fɔ MOGAD, minnu bɛ se ka kɛ sababu ye ka ADEM bila mɔgɔ la. Sɛgɛsɛgɛli minnu ka teli ka kɛ walasa ka ADEM sɛgɛsɛgɛ, olu ye joli sɛgɛsɛgɛliw ye ani:

• MRI sɛgɛsɛgɛli dɔ
• Kɔnɔbara basigilen sɛgɛsɛgɛli

MRI sɛgɛsɛgɛli bɛ mun de ɲini?

MRI (Magnetic Resonance Imaging) ye ja lajɛ fɛɛrɛ kɛrɛnkɛrɛnnen ye min bɛ se ka fɛn dɔw ɲini minnu bɛ se ka fɛn caman Changements (Yɛlɛma) ɲini mɔgɔ kunkolo kɔnɔna na. Dɔgɔtɔrɔw bɛ joginda walima nɔ minnu bɛ sɔrɔ ADEM fɛ, olu ɲini farikolo yɔrɔ koloma saba la: kunsɛmɛ, kɔkolo ani ɲɛkisɛw.

• Fɛn finman : Nin yɔrɔ in de la, nɛrɛmuguma bɛ datugu ni miyɛlini ye. Olu bɛ ye ka fin MRI la.
• Fɛnɲɛnɛma jɛman : Nin ye farikolojidɛsɛbanakisɛw farikolow ye. U bɛ ye dibi la MRI la barisa miyɛlini tɛ u la.

Kalo damadɔw MRI fɔlɔ kɛlen kɔfɛ, dɔgɔtɔrɔ bɛ se ka yamaruya di MRI wɛrɛ ma walasa k’a dɔn o yɔrɔw bɛ Changé cogo min na waati tɛmɛnen kɔfɛ.

Mun bɛ ɲini kɔkoloji sɛgɛsɛgɛli la?

o bɛ wele fana ko kɔkolo sɔgɔli . Nin ye sɛgɛsɛgɛli nafama ye walasa ka hakiliɲagami taamasiɲɛw sababu dɔn. O ye ka aw ka kunsɛmɛnasumaya (CSF) dɔɔni ta. CSF ye ji jɛlen ye, min tɛ kulɛri sɔrɔ, min bɛ i kunkolo ni i kɔkolo lamini, k’a tanga, ka balo di a ma.

ADEM la, joli kuru finmanw hakɛ bɛ caya kunsɛmɛ na, kɛrɛnkɛrɛnnenya la joli segin furakisɛw . O farikolokisɛw ye an ka farikolo tangacogo yɔrɔw ye minnu bɛ baara kɛ. Nin CSF sɛgɛsɛgɛli in bɛ kɛ ka a dɔn o farikolokisɛw bɛ banakisɛw walima banakisɛw jaabi cogo min na, a bɛ miiri ko olu de bɛ ADEM bila mɔgɔ la, ani ka farikolojidɛsɛbana wɛrɛw lajɛ.

ADEM furakɛcogo jumɛnw bɛ yen?

ADEM furakɛli kunba ye ka funu dɔgɔya kunsɛmɛ ni kɔkolo la . Nin furakɛlicogo ninnu bɛ se ka kɛ:

• Stɛroyidi furawStɛroyidi furaw : ADEM furakɛcogo fɔlɔ ye stɛroyidi ye jolisira fɛ (IV). O bɛ se ka kɛ jolisira fɛ tile damadɔ kɔnɔ. O kɔ, aw bɛ se ka furakisɛw di aw ma minnu bɛ kɛ da la tile damadɔ kɔnɔ.
• Immunoglobuline intraveineuse (IVIG) : Nin ye fura ye min kɔnɔ farikolo tangalanw bɛ sɔrɔ minnu dilannen don ni joli dibaga joli ye. O fana bɛ Di jolisira dɔ ma.
• Plasma exchange (walima plasmapheresis): O ye ka i joli dɔw ta, k’a boli masin dɔ fɛ min bɛ farikolo tangalan fanga dɔgɔya fɛn dɔw bɔ, ka sɔrɔ k’a don i fari la kokura. Nin furakɛli in bɛ se ka lɛri caman kɛ, wa a bɛ se ka kɛ siɲɛ caman.

Sɛgɛsɛgɛliw bɛ ka taa a fɛ walasa ka fɛn caman dɔn nin bana in kan ani ka fura kuraw sɔrɔ.

Aw ye aw hakili to a la ko furakɛli ninnu bɛ latigɛ aw ka dɔgɔtɔrɔ fɛ. A bɛna min sugandi min ka fisa i ka bana ma.

Yala kɔlɔlɔ dɔw bɛ nin furakɛli ninnu na wa?

I n’a fɔ furakɛli suguya bɛɛ, kɔlɔlɔ dɔw bɛ se ka sɔrɔ.

A ka ca a la, furakisɛ tali kuntaala surun kɔlɔlɔw bɛ kɛ waati dɔɔni kɔnɔ, nka u bɛ se ka kɛ:

• Sukaro hakɛ cayalenba joli la
• Potassium hakɛ dɔgɔyali
• Sunɔgɔbaliya gɛlɛya
• Dusukunnataw yeli (dimi, kasi, jɔrɔnanko) .
• Kisɛya sɔrɔli
• Dawolo bilenni
• Nɛgɛdaga dɔ sɔrɔli da kɔnɔ

`IVIG` furakɛli kɔlɔlɔw ni a gɛlɛyaw :

• Farikoloɲɛnajɛ min bɛ mɔgɔ la
• Banakisɛw
• Ninakili gɛlɛya
• Joli kurulenw
• Sugunɛ tiɲɛni
• Kunkolodimi.

Gɛlɛya minnu bɛ sɔrɔ joli-sira-funu na :

• Kɔlɔlɔ
• Joli bɔli
• Banakisɛw
• Sugunɛ tiɲɛni
• Joli bɛrɛ tɛ sɔrɔ farikolo yɔrɔ dɔ la (`Ischemia`) .

Aw bɛ kuma aw ka dɔgɔtɔrɔ fɛ nin kɔlɔlɔ ninnu kan. Tuma caman na, u bɛ se ka ɲɛnabɔ.

A bɛ waati joli ta ka kɛnɛya furakɛli kɔfɛ?

ADEM bɛ mɔgɔ minnu furakɛ , olu fanba bɛ daminɛ ka kɛnɛya tile damadɔ furakɛli kɔfɛ . Nka, ka kɛɲɛ ni aw ka bana taamasiɲɛw juguya ye, a bɛ se ka kalo wɔɔrɔ kɛ ka sɔrɔ ka kɛnɛya pewu. A man teli kosɛbɛ, mɔgɔ dɔw tɛ se ka kɛnɛya pewu. Nka, mɔgɔ fanba bɛ kɛnɛya ka ɲɛ.

Yala fɛɛrɛ bɛ yen min bɛ se ka ADEM bali wa?

Fɛɛrɛ kɛrɛnkɛrɛnnen tɛ yen min bɛ se ka ADEM bali. Nka, aw bɛ se ka dɔ bɔ aw ka farati la ni aw ye saniya kɛcogo ɲumanw dege walasa ka aw yɛrɛ tanga banakisɛw ni banakisɛw ma (misali la, aw bɛ to ka aw tɛgɛ ko ani ka aw yɔrɔ janya banabagatɔw la).

ADEM ka ɲɛtaa ye mun ye? Yala a bɛ se ka furakɛ wa?

ADEM bɛ mɔgɔ minnu na, olu fanba bɛ kɛnɛya pewu walima a bɛ ɲini ka kɛnɛya furakɛli kɔfɛ.. Ni funu ka jugu kosɛbɛ, a man teli ka kɛ mɔgɔ ka ɲɛnamaya bila farati la. Aw ka dɔgɔtɔrɔ bɛ se ka hakilina ɲuman di aw ma aw ka ko la.

A ka ca a la ADEM taamasiɲɛw bɛ kɛ siɲɛ kelen dɔrɔn , nka u bɛ se ka segin ka kɛ ka kɛɲɛ ni a sababu ye (i n’a fɔ MOGAD). A ka ca a la, ADEM bɛ ban ni furakɛli ye, nka a taamasiɲɛw bɛ se ka segin ka kɛ. Mɔgɔ fanba ka ɲɛnamaya bɛ kɛ cogo bɛnnen na.

Tuma jumɛn na ne ka kan ka taa dɔgɔtɔrɔso la?

Ni ADEM taamasiɲɛw bɛ aw la, kɛrɛnkɛrɛnnenya la banakisɛ sɔrɔlen kɔfɛ , aw ye aw jija ka taa dɔgɔtɔrɔso la. Ni a dɔnna joona, furakɛli bɛ se ka daminɛ joona.

Ɲininkali nafama minnu ka kan ka kɛ dɔgɔtɔrɔ fɛ

Ni a sɔrɔla ko ADEM bɛ aw la, aw bɛ se ka nin ɲininkali ninnu kɛ aw ka dɔgɔtɔrɔ la:

• Ne ka kan ka ne labɛn cogo di sɛgɛsɛgɛliw kama?
• Aw bɛ furakɛli sugu jumɛn fɔ?
• Furakɛli kɔlɔlɔ jumɛnw bɛ yen?
• Yala ne ka bana taamasiɲɛw bɛna to sen na furakɛli kɔfɛ wa?

A bɛnnen don ka jɔrɔ ani ka siran ni i ye bana taamasiɲɛw sɔrɔ yɔrɔnin kelen i n’a fɔ i tɛ se ka taama, ka i ɲɛnafin bɔ, walima ka kirinni sɔrɔ min ɲɛfɔlen tɛ. Aw ka dɔgɔtɔrɔso jɛkulu bɛna aw dɛmɛ ka o kunbɛn. Furakɛli dɔw bɛ se ka tile damadɔ walima lɛri damadɔ yɛrɛ ta. O waati kɔnɔna na, gafe dɔ kalan walima ka fɛn dɔ kɛ min bɛ i hakili sigi. Aw ye aw hakili to a la ko nin ye ko ye min bɛ kɛ siɲɛ kelen mɔgɔ fanba fɛ, nka a bɛ se ka kɛ tuguni.

Hakilina surun minnu ka kan ka to an hakili la

• ADEM ye kunsɛmɛ ni kɔkolo funu barikama ye.
• O man teli ka kɛ, wa a ka ca a la a bɛ kɛ banakisɛ sɔrɔlen kɔfɛ.
• A bɛ miiri ko o bɛ kɛ ni an yɛrɛ farikolo tangalanw filila ka bin farikolo kan.
• A taamasiɲɛw tɛ kelen ye, wa u bɛ se ka kɛ farigan, kungolodimi , farigan, yeli gɛlɛya, ani taama gɛlɛya.
• A bɛ sɔrɔ kɛrɛnkɛrɛnnenya la MRI ni kɔkoloji sɛgɛsɛgɛli fɛ.
• Furakɛli dɔw bɛ yen i n’a fɔ stɛroyi, IVIG, ani joli-sira-funu ɲɔgɔn falen-falen.
• Mɔgɔ fanba bɛ kɛnɛya ka ɲɛ, nka kɛnɛya dafalen bɛ se ka kalo damadɔw ta.
• Hali ni a kunbɛncogo kɛrɛnkɛrɛnnen tɛ yen, a nafa ka bon ka i yɛrɛ tanga banakisɛw ma.

N jigi b’a kan ko nin kunnafoni in bɛna aw dɛmɛ. Ni ɲininkali wɛrɛw bɛ aw fɛ, aw kana ɲinɛ ka kuma dɔgɔtɔrɔ dɔ fɛ.