Yala i b’a miiri ko i barika ka dɔgɔ wa? Yala i farikolo yɔrɔw bɛ kirin wa? An ka CIDP (Polyneuropathie démyélinatrice chronique inflammatoire) dɔn!

Yala tuma dɔw la i bɛ sɛgɛn kosɛbɛ, i bolow ni i senw bɛ sɔgɔsɔgɔ, walima i bɛ kirin wa? Tuma dɔw la, a bɛ se ka kɛ ko i tɛna i janto o kow la kosɛbɛ. Nka, a man teli ka kɛ, o taamasiɲɛw bɛ se ka kɛ fɛn dɔ taamasiɲɛ ye min ka jugu kosɛbɛ. O bana sugu dɔ min man teli ka sɔrɔ, nka a nafa ka bon, aw ka kan ka min dɔn, o bɛ wele ko CIDP (Chronic Inflammatory Demyelinating Polyneuropathy) . Hali n’a tɔgɔ bɛ se ka kɛ i n’a fɔ a ka jan dɔɔnin, an k’a nɔgɔya.

CIDP (Polyneuropathie démyélinative inflammatoire chronique) ye mun ye?

Hali n’a bɛ se ka kɛ ko nin tɔgɔ in ka gɛlɛn dɔɔnin, n’an y’a kɔrɔ tiɲɛ, an bɛ se ka hakilina ɲuman sɔrɔ bana in kan.

• Kɔrɔlen: O kɔrɔ ye ko "waati jan." O kɔrɔ ye ko CIDP tɛ barika sɔrɔ ka kɛnɛya joona. A bɛ yiriwa dɔɔni dɔɔni, dɔgɔkun 8 ni kɔ kɔnɔ. Tuma dɔw la, a taamasiɲɛw bɛ nɔgɔya ka sɔrɔ ka segin ka bɔ kalo caman walima hali san caman o kɔfɛ. A bɛ iko gɛlɛya min bɛ segin-ka-bɔ.

• Funu : O kɔrɔ ye "funu" . Ni an ye joginda sɔrɔ an fari yɔrɔ dɔ la, a bɛ funu ka kɛ bilen ye, tiɲɛ tɛ? O de ye o ye. Nka CIDP la, o funu in bɛ sɔrɔ gɛlɛya dɔw fɛ an yɛrɛ farikolo farikolo tangacogo la . N’an y’a fɔ cogo nɔgɔman na, sɔrɔdasi minnu ka kan k’an farikolo lakana, olu bɛ daminɛ ka bin an yɛrɛ ka nɛrɛw kan fili la. O bɛ wele ko ``Binnkanni yɛrɛmahɔrɔnyalen'' . funu kojugu min bɛ sɔrɔ o fɛ , o bɛ an ka farikolo yɔrɔw tiɲɛ . O lamini-nɛrɛw ye nɛrɛw ye minnu bɛ bɔ kunsɛmɛ ni kɔkolo la.

• Demyelinating: Nin ye daɲɛ ye min ka dun dɔɔnin. An ka senfagabana bɛ ni datugulan ye min bɛ u lamini. A bɛ i n’a fɔ plastiki bɔrɔ min bɛ kuran nɛgɛ lamini. O datugulan in bɛ wele ko ` (Myelin Sheath)` . Nin miyɛlini bɔgɔlan in de bɛ a to nɛrɛmuguma cikanw bɛ taa teliya la ani cogo bɛnnen na. `(Demyelinating)` kɔrɔ ye ko miyɛlini dawolo tiɲɛna walima a tiɲɛna. O kɔfɛ, i n’a fɔ ni plastiki min bɛ nɛgɛ kan, o bɔra cogo min na, kuran bɛ bɔ, ani nɛrɛ cikanw tɛ taa ka ɲɛ.

• Polyneuropathie: "Poly" kɔrɔ ye "caman" ye. "Neuropathie" kɔrɔ ye tiɲɛni ye farikolojidɛsɛ la. Polyneuropathie kɔrɔ ye farikolo lamini nɛrɛ caman tiɲɛni ye waati kelen na. O bɛ se ka gɛlɛya suguya caman lase mɔgɔ ma i n’a fɔ farikolo fanga dɔgɔyali, sɔgɔsɔgɔninjɛ, ani paresthesia.

O la, n’an y’a fɔ cogo nɔgɔman na, CIDP ye bana ye min bɛ mɛn sen na, min kɔnɔ, miyɛlini (miélin) min bɛ farikolo lamini na, o bɛ tiɲɛ ka a sababu kɛ an yɛrɛ farikolo tangacogo baarakɛbaliya ye, o bɛ na ni farikolo yɔrɔ caman baarakɛbaliya ye. Yala i y’a faamu wa?

Danfara jumɛn bɛ Guillain-Barré Syndrome (GBS) ni CIDP cɛ?

N’a sɔrɔ i b’a fɛN’a sɔrɔ aw ye ` (Guillain-Barré Syndrome)` walima ` (GBS) .` bana in CIDP ni GBS bɔlen don kosɛbɛ. Dɔgɔtɔrɔw bɛ CIDP jate GBS suguya ye min bɛ mɛn sen na. GBS fana ye bana ye min man teli ka sɔrɔ, an farikolo tangalanw bɛ bin farikolo yɔrɔw kan.

Nka danfaraba min bɛ u ni ɲɔgɔn cɛ, o ye waati ye. A ka ca a la, GBS jugumanba bɛ na dɔgɔkun fila fo dɔgɔkun saba taamasiɲɛw daminɛ kɔfɛ. Nka mɔgɔ fanba bɛ kɛnɛya dɔɔni dɔɔni o kɔfɛ. Nka CIDP bɛ mɛn ka tɛmɛ o kan. bana taamasiɲɛw bɛ juguya dɔɔni dɔɔni dɔgɔkun 8 kɔnɔ .

CIDP ka ca cogo di?

Tiɲɛ na, CIDP ye bana ye min man ca kosɛbɛ . Ɲininikalaw ka fɔ la, CIDP banakisɛ kura minnu bɛ Ameriki, olu hakɛ bɛ 0,8 ni 8,9 cɛ mɔgɔ 100.000 o san kɔnɔ. Nin yɔrɔ in ka bon dɔɔni, barisa CIDP bɛ se ka mɔgɔ suguya caman minɛ cogoya wɛrɛw la, ani ka da a kan bana in sɛgɛsɛgɛli ka gɛlɛn.

CIDP bɛ se ka yiriwa san o san.

CIDP taamasiɲɛw ye jumɛnw ye?

CIDP taamasiɲɛw bɛ se ka ɲɔgɔn ta ka kɛɲɛ ni a suguya ye. Nka, a taamasiɲɛ min ka teli ka kɛ, o ye farikolo fanga dɔgɔyali ye ka taa a fɛ, min bɛ mɛn dɔgɔkun 8 la. A ka ca a la o bɛ farikolo fan fila bɛɛ minɛ ɲɔgɔn fɛ. Kɛrɛnkɛrɛnnenya la:

• Kɔnɔbara ni cɛya yɔrɔ fasaw
• Kamankun ni bolokɔni sanfɛla yɔrɔ fasaw
• Bololabaara ni bolokɔnincininw
• Senw ni senkɔniw

Miiri k’a filɛ, a barika ka gɛlɛn i ma ka wuli ka bɔ sigilan kan, k’a ye ko i tɛ se ka yele ɛrɛzɛnsun dɔ kan, walima a ka gɛlɛn i ma ka i kunsigi sɔgɔ walima ka tasa minɛ. Nin ɲɔgɔnna kow bɛ se ka kɛ.

Taamasiɲɛ wɛrɛ minnu bɛ se ka ye, olu ye:

• Farikolo minnu banana, olu ka sɔgɔsɔgɔninjɛ
• bolokɔniw ni senkɔniw bɛ sɔgɔsɔgɔ, ka kirin, walima ka u senw bɔ u la (Paresthesia) .
• Gɛlɛya farikolo balansi marali ani baarakɛɲɔgɔnya jugu (i n’a fɔ senna-tɛgɛrɛ) .
• Taama gɛlɛya walima taamabaliya pewu
• Tendon reflexes jugumanw bɔnɛni walima u fanga dɔgɔyali (o ye dɔgɔtɔrɔ bɛna min sɛgɛsɛgɛ ni a ye gɛnɛgɛnɛ gosi ni marifa fitinin ye) .
• Dimi min bɛ sɔrɔ senfagabana fɛ. Nin ye dimi ye min bɛ kɛ i n’a fɔ jenini walima kuran.

A man teli kosɛbɛ, aw bɛ se ka bana taamasiɲɛw fana ye i n’a fɔ:

• Munumunu gɛlɛya (Dysphagia) ani kɔ sanfɛla barikantanya
• Yeli fila yecogo

Nin taamasiɲɛ ninnu bɛ se ka yɛlɛma waati tɛmɛnen kɔfɛ. U bɛ se ka daminɛ dɔɔni dɔɔni, walima u bɛ se ka taa ɲɛ joona. Tuma dɔw la, u bɛ se ka na ka taa, ka nɔgɔya tile damadɔ kɔfɛ, ka sɔrɔ ka segin. Ni nin taamasiɲɛ ninnu bɛ aw la, a nafa ka bon ka taa dɔgɔtɔrɔso la joona.Ni aw ye bana sɛgɛsɛgɛ joona ani ka a furakɛ, o bɛ taa ɲɛ ka ɲɛsin kɛnɛya ma.

Yala CIDP suguya wɛrɛw bɛ yen wa?

Ɔwɔ, CIDP suguya wɛrɛw bɛ yen, wa u taamasiɲɛw tɛ kelen ye dɔɔni.

A suguya min ka teli ka kɛ, o ye CIDP , min bɛ kɛ sababu ye ka farikolo fanga dɔgɔya ani ka dusukunnataw taamasiɲɛw (i n’a fɔ sɔgɔsɔgɔninjɛ) bila farikolo fan fila bɛɛ la.

A suguya dɔw ye atypical ye:

• ` (Multifocal Motor Neuropathy)`: O bɛ kɛ ni farikolo fanga dɔgɔyali dɔrɔn de ye. O barikantanya fana tɛ kelen ye, o kɔrɔ ye ko a bɛ se ka yɔrɔ kelen dɔrɔn de minɛ farikolo fan kelen fɛ, walima yɔrɔ caman na cogoya wɛrɛw la.
• ` (Lewis-Sumner Syndrome): O bɛ kɛ ni farikolo fanga dɔgɔyali ye min tɛ bɛn ɲɔgɔn ma ani dusukunnataw taamasiɲɛw.
• ` (Pure Sensory CIDP)`: O bɛ se ka kɛ sababu ye ka mɔgɔ farigan, ka dimi bila mɔgɔ la, ka balansi gɛlɛyaw lase mɔgɔ ma, ani ka taamacogo jugu lase mɔgɔ ma. Nka farikolo fanga dɔgɔyali tɛ yen.
• `(Pure Motor CIDP):`: O la, farikolo fanga dɔgɔyali ani farikolojidɛsɛ bɔnɛni min bɛ farikolo fan fila bɛɛ de minɛ, o bɛ se ka ye, nka dusukunnataw taamasiɲɛ si tɛ yen.

Ɲininikalaw bɛ ka CIDP suguya wɛrɛw sɛgɛsɛgɛ hali bi.

Mun de bɛ CIDP sababuya?

I n’a fɔ an y’a fɔ cogo min na ka tɛmɛ, ɲininikɛlaw dalen b’a la ko CIDP bɛ sɔrɔ an farikolo tangacogo baarakɛbaliya fɛ . Hali ni a sababu tigitigi ma dɔn fɔlɔ, an farikolo tangalanw bɛ miyɛlini dawolo ye i n’a fɔ jugu, o kɔfɛ a bɛ daminɛ ka bin a kan (an yɛrɛ tangacogo).

Miyelini bɔgɔlan ye an tangalan ye min bɛ an farikolo yɔrɔw lamini. A bɛ siri nɛrɛmuguma (axon) yɔrɔ jan na. Miyɛlini de bɛ a to kuran wulicogo ka taa nɛrɛmuguma fɛ ka ɲɛ. Ni miyɛlini tiɲɛna, o kuran wulicogo ninnu bɛ taa dɔɔni dɔɔni kosɛbɛ, walima u bɛ tunun pewu. O tuma na fɛ, "cikanw" tɛ Se u ka kan ka Taa yɔrɔ min na. O de bɛ CIDP taamasiɲɛw bila mɔgɔ la.

Miiri k’a filɛ kuran sirilan dɔ bɛ yen min sirilen don kosɛbɛ. A bɛ sisan ɲɛminɛ ka ɲɛ. Nka mun bɛ kɛ ni o nɛgɛso plastiki bɔgɔlan bɔra yɔrɔ dɔw la? Sisan bɛ bɔgɔbɔgɔ, walima a tɛ woyo ka ɲɛ, ɔnhɔn? O de bɛ kɛ ni miyɛlini dawolo tiɲɛna.

CIDP bɛ sɛgɛsɛgɛ cogo di?

CIDP sɛgɛsɛgɛli bɛ se ka gɛlɛya barisa suguya wɛrɛw taamasiɲɛw tɛ kelen ye. Walasa ka CIDP sɛgɛsɛgɛ, aw ka dɔgɔtɔrɔ bɛna:

• u bɛna aw ka bana taamasiɲɛw lamɛn kosɛbɛ ani ka aw ka furakɛli tariku ɲininka .
• Farikolo-sɛgɛsɛgɛli ni hakili-la-sɛgɛsɛgɛli bɛ kɛ.
• Sɛgɛsɛgɛli kɛrɛnkɛrɛnnen caman bɛ se ka yamaruya walasa ka bana sɛgɛsɛgɛli dafa walima ka bana wɛrɛw bɔ kɛnɛ kan.

Sɛgɛsɛgɛli jumɛnw bɛ kɛ walasa ka CIDP sɛgɛsɛgɛ?

Ninnu ye sɛgɛsɛgɛliw ye minnu bɛ se ka dɛmɛ don ka CIDP dafa ani ka sababu wɛrɛw bɔ kɛnɛ kan:

• Electromyography (EMG) ani Nerve Conduction Tests (Sɛgɛsɛgɛli minnu bɛ kɛ ni kuran ye: Nin sɛgɛsɛgɛliw bɛ i farikolo yɔrɔw kɛnɛya ni u baaracogo lajɛ ani nɛrɛ minnu bɛ u mara. Nin sɛgɛsɛgɛli ninnu nafa ka bon kɛrɛnkɛrɛnnenya la fɛn caman ɲinini na minnu bɛ kɛ sababu ye ka fɛn caman Changements demyélinating (sɔgɔsɔgɔninjɛ taamasiɲɛw cili dɔɔni dɔɔni, balili, a ɲɔgɔnnaw) i n’a fɔ CIDP. O bɛ se ka dɛmɛ don ka CIDP faranfasi ka bɔ polineuropathie suguya wɛrɛw la minnu ka ca.

• Kɔkolo sɔgɔli / kɔkolo sɔgɔli : Nin sɛgɛsɛgɛli in na, dɔgɔtɔrɔ bɛ pikirijikɛlan fitinin dɔ don i kɔ duguma ka sɔrɔ ka i ka kunsɛmɛji (CSF) ta . Nin misali in bɛ ci laboratuwari dɔ la walasa ka sɛgɛsɛgɛli kɛ. CIDP bɛ mɔgɔ minnu na, olu 85% ka se 90% ma, joli kuru finmanw hakɛ bɛ kɛ cogo la, nka farikolojɔli dumuniw hakɛ bɛ caya. CSF la, fɛn wɛrɛw bɛ se ka kɛ sababu ye ka bana wɛrɛ jira.

• Kɔkolo dugumayanfan sɛgɛsɛgɛli (MRI) : Ni i kɔ dugumayanfan nɛrɛmuguma jiriw ye danfaralan dɔ minɛ MRI sɛgɛsɛgɛli senfɛ, o bɛ se ka dɛmɛ don ka CIDP sɛgɛsɛgɛ.

• Joli sɛgɛsɛgɛli: Aw ka dɔgɔtɔrɔ bɛ se ka yamaruya di aw ka joli sɛgɛsɛgɛli kɛ walasa ka bana wɛrɛw bɔ kɛnɛ kan minnu bɛ se ka kɛ sababu ye ka farikolojidɛsɛ bila mɔgɔ la, i n’a fɔ sukarodunbana, witamini dɛsɛ, sɔgɔsɔgɔninjɛ, Lyme bana, sidabana, ani lanpoma. U bɛ se fana ka banakisɛfagalan dɔw lajɛ minnu ni CIDP bɛ ɲɔgɔn na.

• Nɛrɛmuguma: A man teli kosɛbɛ, dɔgɔtɔrɔ bɛ se ka farikoloɲɛnajɛ kɛ, o la, nɛrɛmugu yɔrɔ dɔ bɛ bɔ ka a lajɛ walasa ka a dɔn ni miyɛlini dawolo tiɲɛna.

CIDP furakɛcogo jumɛnw bɛ yen?

Furakɛli kunbaba saba (fɔlɔ) bɛ CIDP la:

• Kɔritikositɛriw : Stɛroyidi furaw, i n’a fɔ prednisolone, olu bɛ dɛmɛ ka funu dɔgɔya. Mɔgɔ caman fɛ, o furakisɛw dɔrɔn bɛ se ka dɛmɛ don ka bana taamasiɲɛw dɔgɔya. Nka, furakisɛw bɛ se ka kɔlɔlɔ jugumanw lase mɔgɔ ma, o la fura ninnu tali kuntaalajan bɛ dan. Aw ka dɔgɔtɔrɔ bɛ se ka fura wɛrɛw fana di aw ma (banakisɛfagalanw) ka fara furakisɛw kan.

• Plasma Exchange / Plasmapheresis : Nin furakɛli in na, masin dɔ bɛ joli bɔ i joli la, k’a furakɛ, ka sɔrɔ ka joli ni joli segin i fari la. N’an y’a fɔ cogo nɔgɔman na, a bɛ farikolojidɛsɛbanakisɛ juguw sama ka bɔ joli la minnu bɛ ka bin i ka nɛrɛmuguma kan. A ka ca a la, joli seginni bɛ baara kɛ dɔgɔkun damadɔ dɔrɔn de kɔnɔ. A bɛ se ka kɛ aw ka kan ka nin furakɛli in kɛ ani ka a dabila kalo caman kɔnɔ, walima san caman yɛrɛ kɔnɔ.

• Immunoglobuline furakɛli jolisira fɛ (IVIG): Nin furakɛli in na, farikolojɔlifɛn minnu bɛ wele ko immunoglobuline (poroteyini minnu bɛ an farikolo tangalanw dilan a yɛrɛ la walasa ka binkannikɛlaw kɛlɛ) olu bɛ di jolisira fɛ (IV). Nin immunoglobuline in bɛ sɔrɔ mɔgɔ kɛnɛman ba caman joli la. IVIG bɛ se ka dɔ bɔ aw farikolo tangacogo bɛ tiɲɛni min kɛ aw farikolo la. IVIG bɛ se ka kɛ a hakɛ camanba la a daminɛ na, wa aw bɛ se ka nin furakɛli in kɛ tuma ni tuma kalo caman kɔnɔ, walima san caman yɛrɛ kɔnɔ.

Ɲininikalaw bɛ ka CIDP furakɛcogo wɛrɛw sɛgɛsɛgɛ sisan. Aw bɛ se fana ka sababu sɔrɔ ka aw sen don CIDP ka kɛnɛyako sɛgɛsɛgɛli la . Aw bɛ kuma aw ka dɔgɔtɔrɔ fɛ o ko la.

Ɲɛnamaya bɛ cogo di ni CIDP ye? (Pronostic) (Kɔrɔfɔcogo) .

Bana in taabolo kuntaalajan bɛ bɔ fɛn caman na:

• Aw si hakɛ min na CIDP daminɛna.
• bana in bɛ sɔrɔ cogo min na ani bana suguya .
• bana in sɔrɔla joona cogo min na ani furakɛli daminɛna cogo min na .
• Aw farikolo bɛ furakɛli jaabi cogo min na a daminɛ na .

CIDP bɛ mɔgɔ minnu na, olu 90% ɲɔgɔn bɛ se ka kɛnɛya ni furakɛli ye. Nka mɔgɔ 50% ɲɔgɔn bɛ segin ka kɛ bana ye. A ka ca a la, mɔgɔ minnu sɔrɔla ni CIDP ye u denmisɛnman, olu ka ɲɛnamaya ɲɛfɔcogo kuntaalajan ka ɲi. Ni aw ma furakɛli si sɔrɔ CIDP la, farikolojidɛsɛ banbali bɛ se ka kɛ, o bɛ se ka kɛ sababu ye ka nalomanya dɔw lase aw ma.

Aw ka dɔgɔtɔrɔ bɛna se ka hakilina ɲuman di aw ma aw bɛ se ka min makɔnɔ ka taa ɲɛ ka da aw ka bana kɛrɛnkɛrɛnnen kan.

Yala CIDP bɛ mɔgɔ si hakɛ surunya wa?

CIDP tɛ bana ye min bɛ mɔgɔ faga. A ka ca a la nin bana in bɛ mɔgɔ minnu na, olu ni bana tɛ mɔgɔ min na, olu si hakɛ bɛ kɛ kelen ye. O la sa, hami foyi tɛ yen.

Yala CIDP bɛ se ka bali wa?

Ikomi ɲininikɛlaw ma CIDP sababu kɛrɛnkɛrɛnnen sɔrɔ fɔlɔ, sisan fɛɛrɛ dɔnnen tɛ yen min bɛ se ka bana in bali ka don a la.

Tuma jumɛn na ne ka kan ka taa dɔgɔtɔrɔso la? / Tuma jumɛn na ne ka kan ka taa kɔrɔtɔko yɔrɔ la?

Ni a sɔrɔla ko CIDP bɛ aw la, aw ka kan ka taa dɔgɔtɔrɔso la tuma bɛɛ walasa ka aw ka bana taamasiɲɛw kɔlɔsi ani ka furakɛli kɛ. CIDP taamasiɲɛw bɛ se ka na ka taa kalo caman walima san caman yɛrɛ kɔnɔ, o la furakɛli taabolo bɛ se ka kɛ wajibi ye.

A man teli kosɛbɛ, CIDP bɛ se ka nɔ bila farikolo yɔrɔw la minnu ka kan ka ninakili . Ni ninakili gɛlɛya bɛ aw la , aw bɛ 911 (walima aw ka sigida kɔrɔtɔko nimɔrɔ) wele joona, walima aw bɛ taa kɔrɔtɔko yɔrɔ la min ka surun aw la. Nin ye kɔrɔtɔko ye.

A laban na, fɛn minnu ka kan ka to an hakili la

A bɛ se ka kɛ siranfɛn ye ka a ye ko i tɛ se ka i farikolo kunbɛn. Nka kibaru duman ye ko CIDP (Chronic Inflammatory Demyelinating Polyneuropathy) taamasiɲɛw bɛ se ka furakɛ, kɛrɛnkɛrɛnnenya la ni aw ye furakɛli daminɛ joona. Aw ye aw hakili to a la ko aw ka dɔgɔtɔrɔso jɛkulu bɛ aw fɛ sira bɛɛ la walasa ka nin bana in kunbɛn. O la, aw jija ka aw ka dɔgɔtɔrɔ ka laadilikanw labato.

` CIDP, Farikoloɲɛnajɛ, Farikolo fanga dɔgɔyali, Farikoloɲɛnajɛ, Farikolo tangacogo, Miyɛlini, Farikoloɲɛnajɛ, CIDP furakɛli, Polyneuropathie chronique inflammatoire démyélinante