Miiri k’a filɛ, i fa, i cɛ, walima i gɛrɛgɛrɛ mɔgɔ min ka surun kosɛbɛ, o barika banna ka fɛn dɔ Changer pewu. Mɔgɔ min tun ye mɔgɔ dusu sumalen ye, min tun ka ɲi, ani min tun bɛ mɔgɔw fɛ kosɛbɛ, sisan o bɛ kuma juguw fɔ walima ka a yɛrɛ minɛ cogo bɛnbali la foroba la. I bɛ se k’a miiri a daminɛ na ko hakili ta fan fɛ ko don, laala degun. Nka, a bɛ se ka kɛ hakiliɲagami bana ye min tɛ kelen ye. Bi, Nirogi Lanka la, an bɛ kuma hakiliɲagami sugu dɔ kan min bɛ nin fɛn caman Changements profonds ninnu lase mɔgɔ ma—o ni Alzheimer bana tɛ kelen ye, wa mɔgɔ caman tɛ min dɔn kosɛbɛ: Frontotemporal Dementia, walima FTD.
Frontotemporal Dementia (FTD) ye mun ye?
N’an y’a fɔ cogo nɔgɔman na, FTD ye kunsɛmɛnasumaya ye min bɛ taa ɲɛ, a bɛ sɔrɔ kunsɛmɛ ɲɛfɛla ni a kɔkanna yɔrɔw tiɲɛni fɛ. O yɔrɔ kɛrɛnkɛrɛnnenw bɛ i ka mɔgɔya, i ka kɛwalew, i ka latigɛw, ani i ka kanko dɔnniyaw ɲɛminɛ. A tɛ i n’a fɔ Alzheimer bana min bɛ kɛ cogoya la, hakilijagabɔbaliya ye taamasiɲɛ fɔlɔ ye min na, tiɲɛni min bɛ yan, o bɛ na ni fɛn dɔw ye minnu bɛ tɛmɛ ɲinɛni kan kosɛbɛ. I bɛna fɛn caman kɔlɔsi u ka kɛwalew la, u ka kumacogo la, u ka kan faamuyali la, ani hali u farikolo lamagacogo la .
Hali ni a bɛ se ka kɛ ko FTD tɛ dɔn kosɛbɛ i n’a fɔ Alzheimer, a bɛ kɛ 10% fo 20% ɲɔgɔn ye hakiliɲagami banabagatɔ bɛɛ la. A bɛ tiɲɛni kɛ cogo kɛrɛnkɛrɛnnen na bawo, a tɛ i n’a fɔ hakiliɲagami suguya wɛrɛw, a ka teli ka sɔrɔ joona kosɛbɛ ɲɛnamaya kɔnɔ—a ka c’a la, a bɛ mɔgɔ kelen kelen bɛɛ minɛ minnu si bɛ san 45 ni san 60 cɛ .
A daminɛ na, barisa a taamasiɲɛw bɛ ye i n’a fɔ kɛwalew minnu bɛ kɛ ni kɔnɔnafili ye, minnu tɛ kɛwalew ye, walima minnu bɛ i n’a fɔ farigan, a ka ca a la a bɛ sɔrɔ cogo jugu la i n’a fɔ hakiliɲagami i n’a fɔ degun walima bipolar disorder min bɛ daminɛ kɔfɛ. O ye kun fɔlɔ ye min b’a to FTD sɛgɛsɛgɛli ɲuman bɛ to ka mɛn. Tariku kɔnɔ, aw ka dɔgɔtɔrɔ bɛ se ka nin bana in wele fana ko Pick ka bana.
FTD suguya kunbabaw ye jumɛnw ye?
FTD bɛ se ka tila ka kɛ kɛnɛyaso suguya fitininba caman ye ka da a taamasiɲɛ fɔlɔw kan minnu kɔlɔsira. Walisa k’i dɛmɛ k’o faamu ka ɲɛ, an ka nin ja in lajɛ.
| FTD suguya fitinin | Taamaʃyɛn fɔlɔw |
|---|---|
| Taamacogo caman ɲɔgɔnna FTD (bvFTD) . | A taamasiyɛn ye fɛn caman yeli ye mɔgɔya, kiritigɛcogo ani sigida taamacogo la. Misali dɔw ye ko a tɛ se ka hinɛ mɔgɔw la, ka a yɛrɛ bali, walima ka kɛwalew kɛ minnu bɛ kɛ ni kɔnɔnafili ye. Nin ye FTD suguya fitinin ye min ka teli ka kɛ. |
| FTD min bɛ kanw de la kosɛbɛ (Aphasie progressive primaire) . | O bɛ nɔ bila kumaɲɔgɔnya la fɔlɔ, wa a cogoya belebele fila bɛ yen: – Nonfluent/Agrammatic Variant PPA : A bɛ dɔn ni kuma bɔli ni kumasenw dilanni gɛlɛya ye. – Semantic Variant PPA : A bɛ dɔn ni daɲɛ kɔrɔ bɔnɛni ye, fɛnw tɔgɔladonni gɛlɛya, ani ɲɛda dɔntaw dɔnni gɛlɛya. |
| FTD suguya fitininw minnu bɛ lamaga-lamagali fɛ | Ninnu ye fɛn suguya caman ye: – FTD-ALS : A bɛ FTD taamasiɲɛw ni Amyotrophic Lateral Sclerosis (ALS) fara ɲɔgɔn kan, o bɛ na ni farikolo fanga dɔgɔyali ye ka taa a fɛ. – FTD bana minnu bɛ i n’a fɔ Parkinson : A bɛ dɔn ni lamaga-lamagali koɲɛw ye minnu ni Parkinson ka bana bɛ tali kɛ ɲɔgɔn na, i n’a fɔ yɛrɛyɛrɛ ni gɛlɛya. Misali dɔw ye bana ye min bɛ wele ko Progressive Supranucléaire Palse (PSP). |
Frontotemporal Dementia (FTD) taamasiɲɛw ye jumɛnw ye?
FTD taamasiɲɛw bɛ se ka ɲɔgɔn ta kosɛbɛ mɔgɔ ni mɔgɔ cɛ. Ikomi a ye bana ye min bɛ taa ɲɛ, a taamasiɲɛw bɛna juguya dɔɔni dɔɔni waati tɛmɛnen kɔfɛ. An ka taamasiɲɛw lajɛ minnu tilalen don kuluw kɔnɔ ka kɛɲɛ ni u bɛ nɔ bila i ka ɲɛnamaya la cogo min na:
Taamacogo Yɛlɛma
- Taamacogo min man ɲi sigida la: Ka kumaw fɔ minnu man kan, ka wale kɛ ni kɔnɔnafili ye, walima ka dankarili ni sigida dancɛw jira.
- Mɔgɔw ka hinɛ ni hinɛbaliya bɔnɛ: Sebaliya ka mɔgɔ wɛrɛw dusukunnataw faamu walima k’u jaabi, k’a kɛ i n’a fɔ a farigantɔ don walima a tɛ hami u la.
- I ɲɛmajɔbaliya: I tun bɛ baara minnu diyabɔ fɔlɔ, i tɛ diya i ye kosɛbɛ ani i ka dusu don i kɔnɔ kosɛbɛ.
- Taamacogo minnu bɛ segin-ka-bɔ: Ka kɛwalew kɛ minnu bɛ mɔgɔ wajibiya walima minnu bɛ segin-ka-bɔ, i n’a fɔ bolonɔbila, dawolo kinni, walima ka segin daɲɛw ni kumasen kelenw kan.
- I yɛrɛ saniyabaliya: Ka ɲinɛ walima ka ban ka i ko, ka ɲinw ko, walima ka i yɛrɛ labɛncogo mara.
- Yɛlɛma donna dumunikɛcogo la: Dumuni duman nege jugumanba sɔrɔli walima k’a ɲini ka fɛnw dun minnu tɛ se ka dun.
Yɛlɛma donna kanko ni kumaɲɔgɔnya la
- A ka gɛlɛn ka daɲɛ ɲumanw sɔrɔ ni i bɛ kuma.
- Daɲɛ minnu bɛ fɔ tuma caman na, olu kɔrɔ bɔnɛni.
- Baara kɛ ni kumasen nɔgɔmanw ye, kumasen minnu bɛ kɛ ni telefɔni ye, walima minnu ka surun kosɛbɛ.
- Ka kuma cogo la min tɛ labɛn walima min tɛ foyi ɲɛ.
Lamaga-lamagali ni Motɛri Yɛlɛma
- Ɲɛw lamagacogo kunbɛnni gɛlɛya.
- Farikolo yɛrɛyɛrɛ walima kirinni.
- Farikolo gɛlɛyali ni a gɛlɛyali.
- Baarakɛɲɔgɔnya bɔnɛni.
- Munumunu gɛlɛya (dysphagie).
- Kuma nɔgɔlen.
- A bɛ to ka bin ani ka taama gɛlɛyaw sɔrɔ.
Kɛrɛnkɛrɛnnenya la, mɔgɔ minnu bɛ ni Progressive Supranuclear Palsy (PSP) ye—o ye lamagacogo wɛrɛ ye min ni FTD bɛ tali kɛ ɲɔgɔn na—u jɔcogo tɛ kelen ye ni Parkinson ka bana bɛ mɔgɔ minnu na. Hali ni a ka ca a la, Parkinson bɛ mɔgɔ minnu na, olu bɛ u biri ɲɛfɛ, PSP bɛ mɔgɔ minnu na, olu ka teli ka jɔ ka ɲɛ kosɛbɛ walima ka u biri kɔfɛ, o bɛ a to u ka teli ka bin kɔfɛ.
Mun bɛ kɛ sababu ye ka ɲɛda ni hakiliɲagami (FTD) sɔrɔ ani farati jumɛnw bɛ a la?
FTD bɛ sɔrɔ ni farikolo yɔrɔw (neurons) minnu bɛ kunsɛmɛ na, olu sara, o bɛ kɛ sababu ye ka kunsɛmɛ yɔrɔ dɔw dɔgɔya. Dɔnniyakɛlaw dalen b’a la ko nin tiɲɛni in bɛ sɔrɔ farikolojɔlifɛn kɛrɛnkɛrɛnnenw ka ɲɔgɔn sɔrɔli fɛ cogo la min tɛ bɛn hakili la, kɛrɛnkɛrɛnnenya la tau ni TDP-43 farikolojɔlifɛn suguya caman caman cili.
Mɔgɔ minnu sɔrɔla ni FTD ye, olu 40% ɲɔgɔn bɛ ni bana in ye denbaya kɔnɔ , o b’a jira ko jɛɲɔgɔnya barikama bɛ u ni ɲɔgɔn cɛ jamu fɛ. Ka fara o kan, farati wɛrɛw bɛ se ka dɔ fara aw ka bana sɔrɔli kan:
- Kungolo jogin jugumanw : Kungolo joginniba bɛ se ka dɔ fara aw ka FTD sɔrɔli kan fo ka se siɲɛ saba ma.
- Thyroïde bana : Ko minnu bɛ i ka thyroïde glande la, olu bɛ se ka kɛ sababu ye ka FTD sɔrɔ siɲɛ fila.
Frontotemporal Dementia (FTD) bɛ sɔrɔ cogo di?
FTD sɛgɛsɛgɛli ni dannaya ye, o bɛ se ka kɛ gɛlɛyaba ye, barisa a taamasiɲɛw ka teli ka ɲɔgɔn sɔrɔ ni bana wɛrɛw ye i n’a fɔ Parkinson ka bana, Alzheimer, degun, walima hakiliɲagami banaw.
O de kosɔn, n’i ye fɛn kabakoma dɔw kɔlɔsi walima minnu ma ɲɛfɔ i diyanye mɔgɔ dɔ ka kɛwalew la, i kana i ɲɛmajɔ o la. Nirogi Lanka la, an b’a ɲini aw fɛ kosɛbɛ aw ka taa dɔgɔtɔrɔso la joona.
Aw ka dɔgɔtɔrɔ bɛna denbaya ka furakɛli tariku caman ta ani a bɛ se ka yamaruya di aw ka joli sɛgɛsɛgɛli kɛ walasa ka furakɛli cogoya wɛrɛw bɔ a la. Tuma caman na, u bɛna i bila hakililabaarakɛla dɔ fɛ, o min bɛna balansi, hakilijagabɔ, hakilijagabɔ ani hakililata sekow jateminɛ. Walasa ka FTD sɛgɛsɛgɛli dafa, dɔgɔtɔrɔ kɛrɛnkɛrɛnnen bɛ se ka nin jateminɛ ninnu fɔ:
- CT scan: Jala sɛgɛsɛgɛli kɛrɛnkɛrɛnnen dɔ min bɛ kɛ sababu ye ka hakili yɔrɔw tigɛcogo ɲɛfɔlenw di ni X-ray ye.
- MRI scan: A bɛ baara kɛ ni magnɛti fanga barikamaw ye ani arajo fiɲɛw ye walasa ka ja caman dilan minnu bɛ mɔgɔ kunkolo cogoya jira.
- FDG-PET scan : A bɛ baara kɛ ni tracer radioactif hakɛ fitinin ye jolisira fɛ walasa ka a jira cogo min na sugunɛ yɔrɔw danfaralenw bɛ baara kɛ ni baara ye.
- EEG (Electroencephalogramme): A bɛ hakili ka kuran baara suman ani k’a sɛbɛn.
- Kɔkolo tap (kɔkolo sɔgɔli): A bɛ kunsɛmɛji sɛgɛsɛgɛ min bɛ kunsɛmɛ ni kɔkolo lamini.
- Hakilila-sɛgɛsɛgɛli : A bɛ kɛ ni hakili-la-baaraw, ɲininkalisɛbɛnw ani puzzles ye walasa ka hakilijagabɔ, kanko seko, hakilinata ani hakili baara wɛrɛw jateminɛ.
Frontotemporal Dementia (FTD) furakɛcogo jumɛnw bɛ yen?
Sisan, fura tɛ FTD la, furakɛli fana tɛ yen min bɛ se k’a ka taa ɲɛ. A nafa ka bon kosɛbɛ k’a dɔn ko fura minnu bɛ di ka caya Alzheimer bana na, olu tɛ se ka kɛ FTD la, wa, a dɔw la, u bɛ se ka aw ka bana taamasiɲɛw juguya yɛrɛ.
Nka, furakɛli ni fura caman bɛ yen minnu bɛ aw dɛmɛ ka bana taamasiɲɛw kunbɛn ani ka don o don ɲɛnamaya ɲɛ:
- Degun furaw : Ninnu bɛ se ka kɛ sababu ye ka dusukunnataw jiginni, dimi ani kɛwale gɛlɛyaw kunbɛn.
- Hakiliɲagamifura : Hali ni o furaw bɛ se ka dɛmɛ don ka kɛwale caman yeli kunbɛn, u bɛ se ka kɔlɔlɔ jugumanw lase mɔgɔ ma. U ka kan ka kɛ dɔrɔn aw ka dɔgɔtɔrɔso kɛrɛnkɛrɛnnen ka kɔlɔsili gɛlɛn kɔnɔ.
- Kuma furakɛli: O nafa ka bon kosɛbɛ kumaɲɔgɔnya, kanko ani munumunu gɛlɛyaw ɲɛnabɔli la.
Ka ɲɛnamaya kɛ ni FTD ye ani ka i ka mɔgɔ kanulen ladon
FTD sɛgɛsɛgɛli ye gɛlɛya ye min tɛ se ka da a la, a tɛ kɛ mɔgɔ kelen-kelen bɛɛ dɔrɔn ta ye, nka a bɛ kɛ denbaya bɛɛ ye. O de kama, ka bilasirali ɲini dɔgɔtɔrɔ kɛrɛnkɛrɛnnen dɔ fɛ, ni i ye bana sɛgɛsɛgɛ dɔrɔn, o nafa ka bon kosɛbɛ.
Ni I bɛ ka mɔgɔ dɔ ladon min bɛ ni FTD ye...
Ka baara kɛ i n’a fɔ ladonbaga, o bɛ se ka gɛlɛya farikolo ni dusukunnata ta fan fɛ. Yan Nirogi Lanka, an b’a fɛ ka fɛɛrɛ nafama dɔw fɔ walasa ka dɛmɛ don k’aw dɛmɛ nin taama in na:
- Aw ye kɛwalew sɛbɛn dɔ mara: Yɛlɛma o yɛlɛma bɛ kɛwalew la ani u bɛ se ka kɛ sababu ye ka o kɔlɔsi. O bɛ se k’i dɛmɛ ka ko gɛlɛnw makɔnɔ ani ka i yɛrɛ tanga ko gɛlɛnw ma.
- Aw ye delinako sigilen sigi sen kan: Ni aw ye dumuni, aw ko ani sunɔgɔ waatiw mara cogo basigilen na, o bɛ se ka dususalo ni sabatili di aw diyanyemɔgɔ ma.
- Aw ye denbaya ni dunanw kalan: Aw ka kɔn ka o cogoya ɲɛfɔ aw somɔgɔw ni dunanw ye nɔgɔya la walasa u k’a faamu u bɛ se ka min makɔnɔ.
- Aw ye aw yɛrɛ ka kɛnɛya bila jɔyɔrɔ fɔlɔ la: O nafa ka bon kosɛbɛ. I bɛ se k’i janto i diyanyemɔgɔ la dɔrɔn ni i farikolo ni i hakili ka ɲi. Aw ye aw jija ka dumuni nafamaw dun, ka lafiɲɛ ka ɲɛ, ka to farikoloɲɛnajɛ la, ani ka baara kɛ ni dɔnnikɛlaw ka lafiɲɛbɔ ladonni ye walasa ka lafiɲɛbɔ wajibiyalenw kɛ.
- Aw ye siniko boloda joona: Waati tɛmɛnen kɔfɛ, FTD bɛ taa ɲɛ fo ka se yɔrɔ la, ladonni bɛ kɛ sanga 24 kɔnɔ. Ka wuli ka taa dɔgɔtɔrɔso baarakɛla ŋana dɔ la walima hakilijagabɔyɔrɔ la, o bɛ se ka kɛ wajibi ye, o la, ka baro kɛ o kan ani ka a labɛn joona, o ka ɲi kosɛbɛ.
FTD sɛgɛsɛgɛli kɔfɛ, mɔgɔ si hakɛ bɛ se san 7,5 ɲɔgɔn ma. A nafa ka bon ka a dɔn ko saya bɛ sɔrɔ tuma caman na bana in gɛlɛyaw fɛ sanni ka bɔ bana yɛrɛ la. Misali la, dumuni munumunu gɛlɛya (dumunikɛbaliya) min bɛ na ni sɔgɔsɔgɔninjɛ ye min bɛ kɛ ni fiɲɛ ye, o ye gɛlɛyaw dɔ ye minnu ka teli ka sɔrɔ.
Key Takeaways (I ka Take-Home cikan) .
- Frontotemporal Dementia (FTD) ye bana ye min bɛ nɔ bila fɔlɔ kɛwalew, mɔgɔya ani kumaɲɔgɔnya la a daminɛ na, sanni ka nɔ bila hakilijagabɔ la.
- FTD tɛ i n’a fɔ Alzheimer bana, a ka ca a la a bɛ daminɛ a si hakɛ fitinin na, a ka ca a la a bɛ mɔgɔ kelen kelen bɛɛ minɛ minnu si bɛ san 45 ni san 60 cɛ .
- Hali ni fura tɛ yen, furakɛli suguya caman ni furakɛli fɛɛrɛ suguya caman bɛ yen walasa ka dɛmɛ don ka bana taamasiɲɛw kunbɛn ani ka aw ka ɲɛnamaya kɛcogo ɲɛ.
- N’i ye denbaya kɔnɔmɔgɔ dɔ ka kɛwalew yeli barikamaw kɔlɔsi, minnu ma ɲɛfɔ, i kana i ɲɛmajɔ o la. Aw bɛ dɔgɔtɔrɔ dɔ ka ladilikan ɲini joona.
- I farikolo ni hakili lafiya i n’a fɔ ladonbaga, o nafa ka bon i n’a fɔ i bɛ banabagatɔ min ladon, o ka kɛnɛya.
Frontotemporal Dementia, FTD, Hakiliɲagami, Sugunɛ kɛnɛya, Taamacogo caman yeli, Hakililajigin, hakiliɲagami, Nirogi Lanka
