A bɛnnen don ka siran kosɛbɛ ni aw ye joli ye aw ka sugunɛ na. Ani fana, ni koli ka gɛlɛn aw ma walima ni aw bɛ to ka sugunɛbilenni sɔrɔ, aw man kan ka aw ɲɛmajɔ o taamasiɲɛw la dɔrɔn. Olu bɛ se ka kɛ sugunɛbilenni taamasiɲɛw ye, kɛrɛnkɛrɛnnenya la a suguya min ka jugu kosɛbɛ, n’o ye Muscle Invasive Bladder Cancer ye. Hali ni nin ye bana jugumanba ye, aw kana siran. Bi, an bɛna kuma o kan ni kuma nɔgɔmanw ye, o kɔrɔ ye ko a taamasiɲɛw, a sababuw ani a furakɛcogo.
Muscle Invasive Bladder Cancer (MIBC) ye mun ye?
N’an y’a fɔ cogo nɔgɔman na, nin ye sugunɛbilenni kansɛri bana ye min bɛ taa ɲɛ dɔɔni, walima min jɛnsɛnna.
An ka sugunɛ ye farikolo yɔrɔ ye min bɛ i n’a fɔ bɔrɔ, a dilannen don ni kogo caman ye. A ka ca a la, sugunɛbaralabana bɛ daminɛ kogo in kɔnɔna na. Sugunɛbilenni kansɛri bɛ mɔgɔ 100 o 100 la, 70 ɲɔgɔn bɛ nin sanfɛla kansɛri in sɔrɔ. A ma don a jugumanba la.
Nka, Muscle Invasive Bladder Cancer (MIBC) la, kansɛribanakisɛw bɛ don sugunɛ kɔnɔna na ka don farikolo yɔrɔ belebeleba la . Tuma dɔw la, u bɛ se ka jɛnsɛn ka tɛmɛ o layini kan. Sugunɛbilenni kansɛri bɛ mɔgɔ 100 o 100 la, 30 ɲɔgɔn bɛ nin bana jugumanba in sɔrɔ.
Mun na nin kansɛri sugu bɛ sɔrɔ? Farati minnu bɛ o la, olu ye mun ye?
I n’a fɔ kansɛri suguya bɛɛ, a bɛ daminɛ ni fɛn caman Changements (`mutations`) ye jamu kunnafoniw na, walima ADN, an farikolo yɔrɔw la. O farikolokisɛw bɛ tila cogo la min tɛ se ka kunbɛn, ka `tumor` kɛ. MIBC la, o kuru ninnu bɛ jɛnsɛn fo ka se sugunɛ kogo ma.
Mɔgɔ dɔw ka teli ka nin kansɛri in sɔrɔ. An k’a lajɛ o faratiw ye mun ye.
| Farati min bɛ a la | Cogojirali |
|---|---|
| Sigarɛtimin | O de ye faratiba ye min nafa ka bon kosɛbɛ. Sigarɛti kɔnɔ furakisɛw bɛ sugunɛ tiɲɛ ni u bɔra sugunɛ fɛ. |
| Si hakɛ ni cɛya ni musoya | Cɛw ka teli ka a sɔrɔ ka tɛmɛ musow ni mɔgɔ minnu si tɛmɛna san 55 kan. |
| Sugunɛbilenni minnu bɛ to ka sɔrɔ | Sugunɛbilenni basigilen bɛ se ka kɛ sababu ye ka fɛn caman Changements dans les cellules. |
| A tali kemikɛlifɛnw na | Mɔgɔ minnu bɛ baara kɛ iziniw na minnu bɛ lastikuw, pentiw ani kalali dilan, olu de bɛ farati la kɛrɛnkɛrɛnnenya la. Fura minnu bɛ i n’a fɔ asɛki, olu fana bɛ se ka kɛ sababu ye. |
| Kansɛri furakɛli tɛmɛnen | Farati bɛ a la ni aw ye fiɲɛ bila kɔkolo yɔrɔ la walima ni aw ye furaw ta i n’a fɔ siklofosfamidi. |
| Denbaya ka tariku | Ni denbaya kɔnɔ mɔgɔ dɔ ye sugunɛbilenni kansɛri sɔrɔ walima ni jamu bana dɔ bɛ a la i n’a fɔ Lynch syndrome. |
Nin bana in taamasiɲɛw ye jumɛnw ye?
sugunɛbilenni taamasiɲɛ fɔlɔ ni a fɔlɔ ye joli ye sugunɛ na . Tuma dɔw la, sugunɛ bɛ kɛ bilen ye, tuma wɛrɛw la, a bɛ kɛ pinɛ ye. Ani fana, fɛn dɔw bɛ se ka sɔrɔ i n’a fɔ jeninida ni dimi sugunɛbara la ka sɔrɔ bana si ma kɛ a la.
Ni kansɛri bɛ taa ɲɛ, o kɔrɔ ye ko a bɛ se MIBC hakɛ ma, taamasiɲɛ wɛrɛw fana bɛ se ka bɔ kɛnɛ kan.
- Koli tɛ se ka min kɛ fewu.
- Dimi bɛ kɛ kɔnɔbara duguma walima kɔ fan kelen na.
- Dumuni nege dɔgɔyali ani farikolo girinya dɔgɔyali kun tɛ.
- Senw fununi.
- Dimi bɛ kɛ kolotugudaw la.
Nin taamasiɲɛ ninnu bɛ se ka kɛ bana wɛrɛw fana na. Nka, ni joli bɛ aw ka sugunɛ na ka fara ninnu kelen walima caman kan, aw bɛ taa dɔgɔtɔrɔso la joona.
Bana in bɛ se ka sɛgɛsɛgɛ cogo di?
Walasa ka MIBC sɛgɛsɛgɛ, aw ka kan ka a lajɛ kosɛbɛ ni kansɛribanakisɛw bɛ yen ani u donna sugunɛ kogo la cogo min na.
1. Sugunɛ sɛgɛsɛgɛli : A fɔlɔ ye sugunɛ sɛgɛsɛgɛli nɔgɔman ye. O bɛ joli walima kansɛri banakisɛw lajɛ sugunɛ na.
2. Sistoskɔpi ni sɛgɛsɛgɛli:O kɔfɛ, dɔgɔtɔrɔ bɛ tubabufura finman dɔ don a kɔnɔ ni kamera ye sugunɛbaralabana fɛ walasa ka sugunɛ kɔnɔna lajɛ. O bɛ wele ko sistoskɔpi. Sɛgɛsɛgɛli kɛrɛnkɛrɛnnenw i n’a fɔ `CT urogramme` walima `retrograde pyelogram` fana bɛ se ka kɛ.
3. Biyopisi (biopsie) : Ni kuru dɔ sɔrɔla sugunɛ kɔnɔ, banabagatɔ bɛ lafiya, ka kuru fitini dɔ ta ka taa laboratuwari la walasa ka a sɛgɛsɛgɛ. O bɛ wele ko biyopisi. Tuma dɔw la, kuru bɛɛ bɛ se ka bɔ ni nin opereli in ye (TURBT - Transurethral Resection of Bladder Tumor). O bɛ kɛ bana sɛgɛsɛgɛli ni furakɛli fila bɛɛ la.
4. Sɛgɛsɛgɛliw kɛ walasa ka a dɔn ni kansɛri jɛnsɛnna: Ni bana in tiɲɛna, sɛgɛsɛgɛli suguya caman wɛrɛw bɛ kɛ walasa ka a dɔn ni kansɛri jɛnsɛnna ka tɛmɛ sugunɛbara kan, ka taa ɲɛgɛnɛsiraw la, sugunɛ na, fogonfogonw walima kolotugudaw la.
- CT scan (CT scan) kɛcogo
- MRI sɛgɛsɛgɛli
- PET scan (PET scan) ye
- Kolow sɛgɛsɛgɛli
- Disi X-ray (sɛgɛsɛgɛli) kɛ
Kansɛri ka ‘Grade’ ni ‘Stage’ ye mun ye?
A nafa ka bon ka nin daɲɛ fila kɔrɔ tigitigi dɔn.
- Karamɔgɔya: O bɛ kansɛribanakisɛw ye cogo min na u tɛ cogo la walima u bɛ kɛ cogo min na ni mikroskɔpu ye. `Low-grade` kɔrɔ ye ko seliluw tɛ kɛlɛ kɛ kosɛbɛ wa u bɛ jɛnsɛn dɔɔni dɔɔni. `High-grade` kɔrɔ ye ko seliluw bɛ kɛlɛ kosɛbɛ wa u bɛ jɛnsɛn joona. A ka ca a la MIBC ye kansɛri ye min ka bon kosɛbɛ.
- Taabolo : O b’a jira kansɛri jɛnsɛnna farikolo la fo ka se yɔrɔ min na. O bɛ dɔn ni kuru bonya ye (T), ni a jɛnsɛnna ɲɛgɛnɛsiraw la (N), ani ni a jɛnsɛnna farikolo yɔrɔ wɛrɛw la (M).
Taabolo filanan : Kansɛri jɛnsɛnna sugunɛbaralabana fasa kogo la. (MIBC bɛ daminɛ nin yɔrɔ in de la.)
Taabolo sabanan : Kansɛri jɛnsɛnna ka tɛmɛ farikolo kogo kan ka don tulumafɛnw na minnu bɛ sugunɛ lamini.
Taabolo IV : Kansɛri jɛnsɛnna ka tɛmɛ sugunɛbara kan, ka taa ɲɛgɛnɛsira la, kolotugudaw walima farikolo yɔrɔ wɛrɛw la.
Walasa ka kansɛri furakɛ ka ɲɛ, a nafa ka bon ka a hakɛ tigitigi dɔn.
Furakɛliw ye jumɛnw ye?
Ikomi MIBC ye bana jugumanba ye, furakɛli bɛ se ka gɛlɛya dɔɔni. Furakɛli kunba ye opereli ye.
Operelikɛyɔrɔ
- Kɔnɔbara basigilen : O ye opereli ye min bɛ kɛ ka sugunɛbara bɛɛ bɔ. A bɛ ɲɛgɛnɛsira kɛrɛfɛtaw ni farikolo yɔrɔw fana bɔ, kansɛri bɛ se ka jɛnsɛn yɔrɔ minnu na. Cɛw ka ɲɛgɛnɛsira ani musow ka denso ni kɔnɔbara basigilen fana bɛ se ka bɔ.
- Koli kɛcogo kura dɔ:Sugunɛ bɔlen kɔ, fɛɛrɛ kura ka kan ka labɛn walasa ka sugunɛ bɔ sugunɛ na.
- Urostomie (Urostomie): Nin ye fɛɛrɛ ye min ka teli ka kɛ. Da fitini (stoma) bɛ kɛ kɔnɔbara la ka foroko dɔ siri walasa ka sugunɛ lajɛ.
- Jidagayɔrɔ : Banakɔtaa yɔrɔ dɔ bɛ kɛ ka foroko dɔ dilan farikolo kɔnɔ walasa ka sugunɛ lajɛ. Tubabufura (catheter) bɛ don dingɛ fitini dɔ fɛ kɔnɔbara la walasa ka foroko lankolonya.
- Sugunɛ kura : Sugunɛ kura bɛ dilan ka bɔ banakɔtaa yɔrɔ dɔ la ka a siri sugunɛbara la. O fɛɛrɛ in na, sugunɛ fana bɛ bɔ tubabufura fɛ.
Sugunɛbilenni furakɛli
Banabagatɔ dɔw fɛ, minnu tɛ se ka opereli kɛ walima minnu t’a fɛ ka sugunɛ bɔ, furakɛli wɛrɛw bɛ yen. `TURBT` ye fɛɛrɛ ye min bɛ kɛ ka kuru bɔ ani ka chimiothérapie ni radiation kɛ waati kelen na.
Furakɛli wɛrɛw
- Chimiothérapie : Nin furakɛli in bɛ kɛ walasa ka tumu dɔgɔya sani opereli ka kɛ walima mɔgɔ minnu tɛ se ka opereli kɛ.
- Banakisɛfagalanw tali: Bi furaw tali minnu bɛ farikolo yɛrɛ ka farikolo tangacogo lawuli walasa ka kansɛribanakisɛw tiɲɛ.
- Furakɛcogo laɲininen : Fura minnu bɛ farikolojɔli dumuni kɛrɛnkɛrɛnnenw laɲini minnu nafa ka bon kansɛribanakisɛw falenni na ani k’u jɔ.
Aw ka dɔgɔtɔrɔ bɛna fura sugandi min ka fisa aw ka bana ma. Aw bɛ se ka kuma aw ka dɔgɔtɔrɔ fɛ fana furakɛli kura sɛgɛsɛgɛliw kan minnu bɛ kɛ kɛnɛyaso la.
Take-Home cikan
- Muscle Invasive Bladder Cancer (MIBC) ye sugunɛbilenni kansɛri jugumanba ye, min ka jugu.
- Joli min bɛ sugunɛ na, o de ye a taamasiɲɛ fɔlɔ ye min ka teli ka kɛ. I kana i ɲɛmajɔ o la abada.
- A taamasiɲɛw fana bɛ se ka kɛ i n’a fɔ kɔnɔbara duguma dimi, kɔdimi, ani farikolo girinya dɔgɔyali.
- Sigarɛtimin ye kansɛri in faratiba ye.
- Bana in sɛgɛsɛgɛli tigitigi ani a hakɛ dɔnni nafa ka bon walasa furakɛli ka ɲɛ.
- Bi furakɛlicogo caman bɛ yen bi, i n’a fɔ opereli, chimiothérapie, radiation therapy ani fɛn wɛrɛw.
- Hali ni ɲɛnamaya kɛcogo furakɛli kɔfɛ ye fɛnba ye, mɔgɔ fanba bɛ se ka u yɛrɛ dege o la ani ka ɲɛnamaya kɛ cogo bɛnnen na. Aw ka dɔgɔtɔrɔ ni kɛnɛyabaarakɛlaw bɛna aw dɛmɛ o la.
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