Yala kuru dɔ bɛ aw kolotugudaw dɔ kɛrɛfɛ min bɛ bonya dɔɔni dɔɔni wa? An ka kunnafoni sɔrɔ Tenosynovial Giant Cell Tumor kan!

Yala aw delila k’a ye ko kuru fitini dɔ bɛ aw fari la, kɛrɛnkɛrɛnnenya la kolotuguda dɔ kɛrɛfɛ wa? A yɛrɛ bɛ se ka dimi dɔɔni ni aw ye a digi. A bɛnnen don ka siran dɔɔni ni i ye nin ɲɔgɔnna fɛn ye. Nka kurukuru bɛɛ tɛ kansɛri ye. Bi an bɛna kuma o kuru sugu kelen kan, o min tɛ kansɛri ye, nka a bɛ hami dɔw de wajibiya. O ye bana ye min bɛ wele ko `(Tenosynovial Giant Cell Tumor)`.

Nin ye kuru sugu jumɛn ye? `(Tenosynovial Giant Cell Tumor)` dɔrɔn

N’an y’a fɔ cogo nɔgɔman na, Tenosynovial Giant Cell Tumor ye kuru ye min tɛ kansɛri ye, a bɛ sɔrɔ i kolotugudaw lamini yɔrɔ nɔgɔlenw na. A ka ca a la, olu bɛ wele ko tumu ɲumanw. O kɔrɔ ye ko u tɛ kansɛri ye, wa u tɛ kansɛri bila mɔgɔ la.

Olu ye kuru suguya dɔ ye min man ca, n’o bɛ wele ko ``Tumu belebeleba selilɛri.`` A ka ca a la, o kuru ninnu tɛ jɛnsɛn yɔrɔ dɔ la ka taa yɔrɔ wɛrɛ la farikolo la. Nka, u bɛ Se ka bonya ka yiriwa joona kosɛbɛ u bɛ Bɔ yɔrɔ min na.

Ka kɛɲɛ ni kuru bɛ ​​yɔrɔ min na, o bɛ se ka a gɛlɛya ka kolotuguda lamaga o yɔrɔ la ani ka dimi bila mɔgɔ la. Tuma dɔw la, o kurukuru ninnu bɛ se ka bonya ka digi kolotugudaw kan, hali ka kolo kari.

A ka ca a la, opereli ka kan ka kɛ walasa ka nin ``Tenosynovial Giant Cell Tumor.`` in bɔ.Mɔgɔ dɔw fana mago bɛ se ka kɛ ni fiɲɛ ye.

O bɛ nɔ bila farikolo la cogo di ?

``Tenosynovial Giant Cell Tumor'' suguya saba bɛ yen, ka kɛɲɛ ni u bɛ sɔrɔ cogo min na farikolo yɔrɔw la:

1. Kurukuru minnu bɛ kɛ aw kolotugudaw la : Olu bɛ sɔrɔ ɲɛgɛnɛsira finman na min bɛ aw kolotugudaw kɔnɔna lamini (synovium). I n’a fɔ kɔnɔna kolotugudaw i n’a fɔ aw gɛnɛgɛnɛw ni aw kɔkiliw.

2. Tendon Sheath Cysts: Tendons ye fɛnw ye minnu bɛ i n’a fɔ bandi, minnu bɛ an farikolo ni an kolo siri ɲɔgɔn na. O kurukuru ninnu bɛ se ka kɛ farikolo tangalan kɔnɔ min bɛ o sɔgɔsɔgɔninjɛ ninnu lamini, o bɛ wele ko Tendon Sheath.

3. Bursal cysts : Bursae ye bɔrɔ misɛnninw ye minnu falen don ji la, minnu bɛ sɔrɔ kolotugudaw kɛrɛfɛ, farikolo ni senkɔniw ani kolotugudaw bɛ ɲɔgɔn sɔrɔ yɔrɔ minnu na. U bɛ joli-sira-funu ni lakanani di joli-sira-funu ma. Bursae fana bɛ se ka yiriwa.

Hali ni nin ``Tenosynovial Giant Cell Tumors`` ninnu bɛ se ka kɛ farikolo yɔrɔ bɛɛ la, u bɛ ye ka caya nin yɔrɔ ninnu na:

• Bolo walima bolokɔnincininw
• Senkɔniw walima Senw
• Gɛnɛgɛnɛw
• Bololabaarakɛlaw
• Kɔnɔw

A bɛ fɔ fana ko hali ni nin ɲɔgɔnna kuru in kɛnɛyara, mɔgɔ dɔw ka teli dɔɔni ka sɔgɔsɔgɔninjɛ walima kolotugudaw sɔrɔ o kolotuguda la kɔfɛ.

Jɔn de bɛ ninnu sɔrɔ ka caya? A ka ca cogo di?

Mɔgɔ o mɔgɔ bɛ se ka nin ``Tenosynovial Giant Cell Tumor'' in sɔrɔ. Nka, a ka ca kulu dɔw la:

• A ka ca musow la ka tɛmɛ cɛw kan.
• A si bɛ san 30 la ka se san 50 maA ka ca mɔgɔkɔrɔbaw la.

Nka aw kana aw hakili ɲagami, nin `(Tenosynovial Giant Cell Tumors)` ye bana ye min man ca kosɛbɛ. Diɲɛ kɔnɔ, mɔgɔ miliyɔn 50 tɛ se ka o bana ninnu sɔrɔ san o san. O la, nin tɛ bana ye min bɛ bɛɛ minɛ.

A taamasiɲɛw ye mun ye?

Nin kuru in taamasiɲɛ minnu ka teli ka ye olu ye:

• Kuru walima kuru min bɛ bɔ kolotugudaw la.
• Dimi bɛ bonya ni aw ye o yɔrɔ lamaga.
• Funu dɔ.

Ka fara o kan, kolotuguda min bɛ kuru kɛrɛfɛ, nin taamasiɲɛ ninnu bɛ se ka kɛ:

• Dusukunnata min bɛ kɛ ni a sirilen don, ka a datugu, walima ka "click" mankan bɔ ni aw bɛ kolotugudaw lamaga.
• A bɛ fari sumaya fari la kolotuguda lamini na.
• A bɛ gɛlɛya kolotugudaw la.
• kolotuguda bɛ a ye ko a barika ka dɔgɔ ani ko ɲɛnamaya tɛ a la .

Aw bɛ taamasiɲɛ minnu sɔrɔ ani u juguya cogo min na, o bɛ bɔ fɛn caman na:

• Tumu in dilannen don ni farikolo yɔrɔ sugu jumɛn ye.
• A bɛ min farikolo la?
• Tumu in ka bon cogo min.

Mɔgɔ caman bɛ a ye dɔrɔn ko Tenosynovial Giant Cell Tumor bɛ u la san caman taamasiɲɛw kɔfɛ. O la, a ka fisa aw ka o fɔ dɔgɔtɔrɔ ye ni aw ye fɛn kuraw yeli ye aw fari la walima ni kurukuruw bɛ aw fari la.

Mun na nin ɲɔgɔnna kurukuruw bɛ sɔrɔ?

Fɛn dɔnbagaw ma sababu kɛrɛnkɛrɛnnen sɔrɔ fɔlɔ nin ``Tenosynovial Giant Cell Tumors.`` ninnu sɔrɔli la.Nka, sɛgɛsɛgɛli dɔw y'a jira ko fɛn dɔw bɛ yeli kɛ mɔgɔ minnu ka kolosinsinnanw na, olu ka kolosinsinnanw bɛ nin kuru ninnu sɔrɔ.

Chromosomes ye an ka selilu yɔrɔw ye minnu kɔnɔ an ka jamu kunnafoniw (ADN). Ni o kolosinsinnanw tiɲɛna, u bɛ se ka yɛlɛma suguya caman kɛ farikolo la. Kɛrɛnkɛrɛnnenya la, a bɛ miiri sisan ko nin kuru ninnu bɛ sɔrɔ taabolo dɔ fɛ min bɛ wele ko ``Translocation``, o min na, kolosinsinnan yɔrɔ dɔw bɛ kari ka fara ɲɔgɔn kan kokura cogo kura la.

I b’o dɔn cogo di?

Dɔgɔtɔrɔ bɛna nin ``Tenosynovial Giant Cell Tumor'' in sɛgɛsɛgɛ ni a ye i sɛgɛsɛgɛ, ka ``Physical Exam'' kɛ, ani ka ``Imaging Tests'' dɔw kɛ.

Ka kɛɲɛ ni kuru bɛ ​​yɔrɔ min na, aw bɛ se k’a ye aw fari jukɔrɔ. Dɔgɔtɔrɔ bɛna kuru ni a lamini sɛgɛsɛgɛ ka ɲɛ. Ka fara o kan, u bɛna nin sɛgɛsɛgɛli kelen walima caman kɛ walasa ka kuru ja ta:

• X-ray (X-ray) minnu bɛ kɛ
• MRI (Magnetic Resonance Imaging) sɛgɛsɛgɛli
• Ultrason (ultrason) sɛgɛsɛgɛli

Dɔgɔtɔrɔ bɛ se fana ka kuru walima a lamini fɛnɲɛnamafagalan dɔ ta ka taa laboratuwari la walasa ka a sɛgɛsɛgɛ. O bɛ wele ko ``biopsie.'' O bɛ se ka dɛmɛ ka a dɔn tigitigi a ye kuru suguya min ye.

A bɛ furakɛ cogo di?

A ka ca a la, tenosynovial Giant Cell Tumors bɛ bɔ opereli fɛ. Aw ka operelikɛla bɛna kuru bɔ opereli dafalen fɛ walima fɛɛrɛ dɔ fɛ min bɛ wele ko joli-sira-funu. Tuma dɔw la, kuru bɛ ​​se ka bɔ ka fara a lamini yɔrɔ bananenw kan.

Jolilabanaw ye fɛɛrɛ ye min kɔnɔ, tubabukan jan finman dɔ bɛ don a kɔnɔ, kamera ni yeelen bɛ min kɔnɔ (a bɛ fɔ o ma ko jolilabanaw) bɛ don yɔrɔ misɛnni damadɔw fɛ fari la kolotuguda kɛrɛfɛ. Ni aw bɛ joli kɔnɔna lajɛ, minɛn misɛnniw bɛ kɛ ka kuru ni farikolo yɔrɔ tiɲɛnen wɛrɛw bɔ. Nin wale in tɛ kɛ ni tigɛba ye, o la a kɛnɛyali bɛ se ka teliya.

Aw ka operelikɛla bɛna a ɲɛfɔ aw ye aw bɛna opereli suguya min kɛ ani aw bɛna min makɔnɔ o kɔfɛ. A kɛnɛyali waati bɛna bɔ ninnu na:

• A tun bɛ bɔ farikolo la, kuru in bɛ yɔrɔ min na.
• A bɛ bɔ a bonya hakɛ la.
• Ka kɛɲɛ ni farikolo yɔrɔ caman wɛrɛw tun ka kan ka bɔ opereli senfɛ.

Tenosynovial Giant Cell Tumors dɔw bɛ se ka furakɛ ni chimiothérapie suguya dɔw ye, o ye kansɛri furakɛli ye. Hali ni a ka ca a la, chimiothérapie bɛ kɛ ka kansɛribanakisɛw faga, chimiothérapie suguya dɔw fana bɛ se ka o kuru ɲumanw laɲini ka u faga.

Fɛn minnu bɛ nin `(Tenosynovial Giant Cell Tumors)` ninnu na, olu dɔ ye ko u ka `(Recurrence Rate)` ka bon. O kɔrɔ ye ko hali n’u bɔra ka ɲɛ ni opereli ye walima n’u tiɲɛna ni `(Chimiothérapie) ye,` a ka ca a la o kuru sugu bɛ bɔ tuguni.

A man teli kosɛbɛ, ni kuru ye kolotuguda tiɲɛ kosɛbɛ, a bɛ se ka kɛ a yɛrɛ ka kan ka kolotuguda yɔrɔ dɔ bɔ, i n’a fɔ bolo walima sen, kolotuguda bɛ min na. Nka, o bɛ kɛ a man teli kosɛbɛ.

Yala o bɛ se ka bali ka kɛ wa?

A fɔ man di nka, fɛɛrɛ si tɛ yen min bɛ se ka nin `(Tenosynovial Giant Cell Tumor)` in falenni bali aw fari la. Ikomi o fɛnɲɛnɛmaw sababu tigitigi ma Dɔn, a tɛ Se ka Fɔ k’a Fɔ k’u bɛna Bɔ waati min na, jɔn na, walima mun na.

Mun bɛ kɛ ni nin kuru in ɲɔgɔn bɛ aw la?

Tenosynovial Giant Cell Tumor bɔlen kɔfɛ, aw bɛ se ka jigi ka kɛnɛya dafalen sɔrɔ. Tumu bɔlen kɔfɛ, aw ka kan ka to ka kuma aw ka dɔgɔtɔrɔ fɛ ani ka taa tugu-tugu-ɲɔgɔn kɔ lajɛw la tuma bɛɛ. Aw ka dɔgɔtɔrɔ bɛna aw ka kɛnɛya kɔlɔsi ani ka a lajɛ ni kuru kura tɛ a la. Ni kuru kura bɔra, a bɛ se ka dɔn ka furakɛ joona.

Hali ni ninnu tɛ kansɛri ye wa u tɛ kansɛri bila mɔgɔ la, a ka ca a la aw bɛna Tenosynovial Giant Cell Tumors caman sɔrɔ. Nin bana in kɛra mɔgɔ minnu na, olu tilancɛ ni kɔ bɛna nin kuru ninnu sɔrɔ tuguni. Laala u bɔra yɔrɔ min na fɔlɔ, walima farikolo yɔrɔ wɛrɛw la. Dɔgɔtɔrɔ bɛ se fana k’o wele ko kɔsegin.

Yala ne tɛna se ka taa baara/lakɔli la fo ne ka kɛnɛya wa?

Tenosynovial Giant Cell Tumor bɔlen kɔfɛ, a bɛ se ka kɛ aw tɛ se ka taa baara la walima lakɔli la fo a ka kɛnɛya. Misali la, ni aw ka kan ka jɔ baarakɛyɔrɔ la, ni kuru tun bɛ aw senkɔni na, walima ni aw bɛ waati caman kɛ ka sɛbɛnni kɛ ɔridinatɛri kan, ni opereli kɛra aw bolokɔni na, a bɛ se ka kɛ aw ka kan ka lafiɲɛ waati dɔ ta baara la walima kalansow la walasa ka waati di aw farikolo ma a ka kɛnɛya. Aw bɛna waati hakɛ min ta, o bɛ bɔ opereli kɛra yɔrɔ min na ani kuru bonya. Aw ka operelikɛla bɛna o fɔ aw ye.

Aw kana ɲinɛ ka dɔgɔtɔrɔ walima operelikɛla ɲininka sani aw ka baara kɛcogo kɔrɔw daminɛ kokura walima ka farikoloɲɛnajɛ kɛ opereli kɔfɛ.

Tuma jumɛn na ne ka kan ka taa dɔgɔtɔrɔso la?

Ni aw ye kuru walima falen kura ye aw fari yɔrɔ o yɔrɔ la, kɛrɛnkɛrɛnnenya la kolotuguda kɛrɛfɛ, ani kɛrɛnkɛrɛnnenya la ni dimi bɛ a la, aw ye aw jija ka taa dɔgɔtɔrɔso la. Hali ni a tɛ ``Tenosynovial Giant Cell Tumor'' ye, ni i ye dɔgɔtɔrɔso lajɛ joona kuru o kuru ko la, a bɛ se ka dɔn joona ani ka furakɛ.

Ni aw barika banna ka kolotugudaw lamaga, o ye kɔrɔtɔko ye. N’o kɛra, aw bɛ taa dɔgɔtɔrɔso la o yɔrɔnin bɛɛ.

Ɲininkali nafama minnu ka kan ka kɛ dɔgɔtɔrɔ fɛ

Ni aw y’a dɔn ko nin bana in bɛ aw la, ɲininkali nafama dɔw bɛ yen aw ka kan ka minnu kɛ aw ka dɔgɔtɔrɔ la:

• Tenosynovial Giant Cell Tumor suguya jumɛn bɛ ne la?
• Ne ka kan ka sɛgɛsɛgɛli jumɛnw kɛ?
• Yala ne mago bɛ opereli la tiɲɛ na wa?
• Nin kuru in bɛ segin ka bonya cogo jumɛn na?

Yala nin kuru ninnu ni `(Ganglion Cysts)` tɛ kelen ye wa?

``Tenosynovial Giant Cell Tumors'' ni ``Ganglion Cysts'' fila bɛɛ ye kuru suguyaw ye minnu bɛ sɔrɔ kolotugudaw la.

Danfaraba min bɛ u fla ni ɲɔgɔn cɛ o ye u bɛ Kɛ yɔrɔ min na. Tenosynovial Giant Cell Tumors bɛ sɔrɔ kolotuguda la walima a lamini na. Ganglion Cysts ye kurukuruw ye minnu falen don ji la, minnu bɛ sɔrɔ aw fari jukɔrɔ.

Nin kuru suguya fila bɛɛ tɛ kɛ bana jugu ye abada, o kɔrɔ ye ko kansɛri tɛ u la.

Ni aw ye kurukuru walima kurukuru kuraw ye aw fari la, kɛrɛnkɛrɛnnenya la ni dimi bɛ a la walima ni a ka gɛlɛn ka kolotugudaw lamaga, aw bɛ taa dɔgɔtɔrɔso la.

A laban na, fɛn minnu ka kan ka to an hakili la

Tiɲɛ don, n'i ye "tumor" daɲɛ mɛn i bɛ siran. Nka "tenosynovial giant cell tumors" tɛ kansɛri ye abada, wa u tɛ kansɛri bila mɔgɔ la. A ka ca a la, opereli de ka kan ka kɛ walasa ka o kurukuru ninnu bɔ. Ni "tenosynovial giant cell tumor" kelen bɔra, a bɛ se ka kɛ ko dɔ wɛrɛw bɛna bɔ don nataw la.

O la, aw ka kan ka aw janto fɛn minnu na, aw bɛ kuma aw ka dɔgɔtɔrɔ fɛ. Ni aw ye kuru walima bonya kura kɔlɔsi, aw bɛ taa dɔgɔtɔrɔso la o yɔrɔnin bɛɛ. Fɛn min nafa ka bon kosɛbɛ, o ye ka kɛ mɔgɔ lafiyalen ye, ka kunnafoni ɲumanw sɔrɔ, ani ka furakɛli ɲuman sɔrɔ.

` Tenosynovial giant cell crises, kolotugudaw, kolotugudaw, farikolo yɔrɔ nɔgɔlenw, kolotugudaw dimi, opereli, kuru minnu tɛ kansɛri ye