Alesi woanɔ agbe kple vevesese si nye AS (Ankylosing Spondylitis) .

Esesẽna be nàgblɔ seselelãme si nye be wokpɔ dɔléle aɖe si le veve sem, si ate ŋu ade wò agbe afɔku me abe Ankylosing Spondylitis (AS) ene le agbemeɣeyiɣi nyuitɔ kekeake me, esime nènye sɔhɛ eye drɔ̃ewo, mɔkpɔkpɔwo, kple ɖoɖowo yɔ wò fũu la ɖe nyagbewo me. Le go ɖeka me la, èle agbagba dzem be yeadze yeƒe agbe gɔme yeyee, eye le go bubu me la, ele be nàdze ŋgɔ kuxi ma tɔgbe. Esia nye agba kpekpe vavã. Ke hã, ame aɖewo li le mía dome siwo di mɔ siwo dzi woato anɔ agbe dzidzedzetɔe kple nɔnɔme sia eye woava lɔ̃ ɖe woƒe agbenɔnɔ yeyea dzi. Egbea, ame eve siawo tɔgbe ŋue míele nu ƒom tsoe.

‘Mevɔ̃ ŋutɔ’ – Ivan ƒe ŋutinya

Azɔlizɔzɔ ƒe kuxiwo le fu ɖem na Ivan tso eƒe ɖevime ke. Ɣeaɖewoɣi la, ele nɛ be wòazã atizɔtiwo ahano vevesesenutsitikewo hafi ate ŋu ato ŋkekea me. Edze ŋugbledede hã gɔme le eƒe ɖevime be yeate ŋu anɔ te ɖe vevesese sia nu.

Esi Ivan xɔ ƒe 21, esime wònɔ nu srɔ̃m hena dɔnɔdzikpɔkpɔ ƒe dodokpɔ la, ekpɔe be dzesi siwo yekpɔ ɣeyiɣi didi aɖe la sɔ kple nɔnɔme aɖe si ŋu woƒo nu tsoe le nusrɔ̃gbalẽ aɖe me hena dodokpɔa wɔwɔ. Esi ɖikeke ma nɔ eme ta la, eyi ɖakpɔ ƒunukpeƒeŋutinunyala, si nye ɖɔkta si bi ɖe ƒunukpeƒewo kple akɔta ƒe kuxiwo me. Esi wodoe kpɔ vɔ la, wokpɔe be Ankylosing Spondylitis (AS) le eŋu.

Vɔvɔ̃ gãtɔ si va susu me nɛ le nyadzɔdzɔ sia tae nye dɔ si wòtia.

Ivan gblɔ be: “Esi mekpɔ dɔ abe dɔnɔdzikpɔla ene si le dɔ wɔm le Atikewɔwɔ Kpata ƒe Dɔwɔƒe (ETU) la, vɔvɔ̃ ɖom ŋutɔ.” "Menɔ vɔvɔ̃m be ne nye lãme gblẽ la, nyemate ŋu awɔ dɔ o. Mekpɔe be ne medi be madzudzɔ drɔ̃e baɖa si nye nuwɔametɔzuzu le nye ƒe 20-awo me la be wòagava eme o la, ele be malé be na nye lãmesẽ le mɔ ɖesiaɖe si mate ŋui nu."

Eyata, edze vevesese ŋuti susuŋutinunyala aɖe si fia mɔ siwo dzi wòato akpɔ vevesese gbɔ atike manɔmee lae. Ete atike aɖe si woyɔna be Acceptance and Commitment Therapy (ACT) hã kpɔ . Kpuie ko la, atikewɔwɔ sia kpena ɖe mía ŋu míedzudzɔa avuwɔwɔ kple míaƒe tamesusuwo kple seselelãmewo eye míexɔa wo boŋ.

Ivan gblɔ be: "Atikewɔwɔ ƒe ɣeyiɣi mawo dometɔ ʋɛ aɖewo koe mede. Gake ekpe ɖe ŋunye meɖu susu me vevesese kple blanuiléle si wu ƒe ewo dzi." "Metiae be malɔ̃ ɖe nɔnɔme sia dzi. Meda akpe ɖe mɔnukpɔkpɔ si su asinye be maɖu kuxi sia dzi ahanɔ agbe si me dzidzɔ le la ta."

Viktor Frankl ƒe agbalẽ si nye ‘Amegbetɔ ƒe Gɔmesese Didi’ hã nye gbɔgbɔmeʋaʋã gã aɖe nɛ be wòatu susu sia ɖo. Agbalẽa ƒo nu tso ɣeyiɣi si me wònɔ gamenɔla le Nazitɔwo ƒe fuwɔamegaxɔ me ŋu. Eƒo nu tso alesi wònɔ agbe le bubu me le ɣeyiɣi sesẽ ma me eye wòva kpɔ gɔmesese le agbe ŋu.

Ivan ƒe nɔnɔmea le ɖeɖem kpɔtɔ ɣleti 14 enye sia.Nuɖuɖu nyuie, atike siwo woŋlɔ nɛ, kple kamedede (ewɔa yoga, kɔa kpekpemewo, eye wòwɔa cardio aɖabaƒoƒo 75 ya teti le kwasiɖa me) katã kpe ɖe eŋu ŋutɔ le eƒe hayahaya me.

"Edzɔ dzi nam ŋutɔ be mɔnukpɔkpɔ su asinye be mawɔ dɔ nyuie eye mase le ɖokuinye me be mekpɔ dzidzedze abe dɔnɔdzikpɔla ene. Azɔ hã, meda akpe ɖe AS ta, le mɔ aɖe nu. Elabena zi dzinye be matsɔ nye susu kple ŋutilã ƒe lãmesẽ aɖo nɔƒe gbãtɔ le nye ɖevime alea."

Egblɔ be: "Vevesese kple lãmeka sesẽ gakpɔtɔ le ŋunye, gake edzɔ dzi nam ŋutɔ be mele nye agbe nɔm egbea, si me dɔléle sesẽ siwo ɖe fu nam ƒe 10 sɔŋ la mevo o." Ele dzadzram ɖo hã be yeawɔ yeƒe drɔ̃e gãtɔwo dometɔ ɖeka dzi: be yeaxɔ mɔkeke ƒe ɖeka alo eve tso dɔnɔdzikpɔkpɔ kple gasɔdodo le anyigbagãwo dzi.

‘Mesusu be nye vodadae katã’ – Tristan ƒe ŋutinya

Le ƒe 2013 me la, Tristan nye sukuvi bibi aɖe si nɔ atikeŋutinunya ƒe ɖaseɖigbalẽ xɔm. Gake le ƒe ma ƒe kele me la, ɖeɖi te eŋu le mɔ si womate ŋu aɖe o nu. Mete ŋu fɔna le ŋdi me o, eye sukudɔdasiwo va to eŋu.

Egblɔ be: "Mesusu be nyemeɖɔ ŋu ɖo o. Mesusu be nye vodadae wònye."

Emegbe hafi Tristan va nya be dɔléle aɖe si woyɔna be non-radiographic axial spondyloarthritis (nr-AxSpA), si nye AS ƒomevi aɖe, le ye ŋu. Kpuie ko la, AS kple nr-AxSpA siaa nye akɔta ƒe dɔdzẽ. Le nr-AxSpA me la, nusiwo gblẽ le akɔta ŋu medzena le X-ray me o le dɔlélea ƒe gɔmedzedze ta. Ne dɔlélea le sesẽm ɖe edzi la, akɔtaƒu siwo le akɔta ate ŋu aƒo ƒu ɖekae. Ɣeaɖewoɣi la, esia ate ŋu agblẽ nu le ŋutinu bubuwo abe ŋkuwo ene ŋu.

"Kuxiae nye be, ne dɔdzẽ si le nye ŋutilã me dzi ɖe edzi la, ewɔna nam abe nye ahɔhɔ̃ ƒe dɔwɔwɔ dzi ɖena kpɔtɔna ene. Ele abe 'ahɔhɔ̃ ƒe afu' ene," eɖe eme.

"Esi menɔ atikeŋutinunya srɔ̃m la, nyemete ŋu wɔa dodokpɔxɔ me dɔ o. Ebia be matsi tre ɣeyiɣi didi aɖe eye mawɔ ahuhɔ̃ewo ŋudɔ nyuie, gake esesẽ nam."

Mlɔeba la, ele nɛ be wòawɔ nyametsotso sesẽ aɖe ŋutɔ - be wòadzudzɔ sukudede.

Egblɔ be: "Menye amesi si dzo le ŋutɔ eye wòku drɔ̃e be mawɔ dɔ le atikeŋutinunya ƒe akpa dzi. Nu mawo katã ƒe bu la sesẽ ŋutɔ be woado dzi."

Gake Tristan metɔ ɖe afima o. Eɖoe be yeaʋu ʋɔtru bubu. Togbɔ be menye kamedefefewɔlae wònye kpɔ o hã la, kamedede va zu eƒe agbe ƒe akpa vevi aɖe. Edze akɔta kple akɔta keke wɔwɔ gɔme eye wòkɔ kpekpeme siwo sɔ. Gake eƒe kamedede ƒe ɖoɖoa ƒe ɣletivi ŋutɔŋutɔe nye mɔ̃ aɖe si woyɔna be vibration plate . Mɔ̃ sia nana lãmekawo ƒoa ƒu heɖea dzi ɖi zi geɖe le sɛkɛnd ɖeka me. Wogblɔ be enaa ŋusẽ dzina ɖe edzi, te ŋu trɔna ɖe nɔnɔmewo ŋu, eye wòɖea vevesese dzi kpɔtɔna. Tristan zãnɛ aɖabaƒoƒo 10 ŋdi sia ŋdi.

"Ʋuʋuʋu mawo ɖea nye ŋutilã ƒe sesẽ dzi kpɔtɔna ŋutɔŋutɔ. Ɣeaɖewoɣi la, mewɔa avu kple nye ƒunukpeƒewo vevie, gake le esia wɔwɔ vɔ megbe la, mekpɔa gbɔdzɔe enumake."

Esi wòhaya vie la, ɣeyiɣia de be wòadi dɔ si asɔ na eƒe agbe yeyea. Tristan fia kɔmpiutadziɖoɖowo wɔwɔ eɖokui. Egbea la, ewɔa dɔ abe kɔmpiuta dzi ɖoɖowɔla ene.

Fifia Tristan wɔa dɔ le dɔtɔ aɖe si se eƒe nɔnɔmea kple kuxi siwo wòhena vɛ la te.

"Esesẽna nam kokoko be mawɔ dɔ tso ŋdi ga 9 vaseɖe fiẽ ga 5 abe ame bubu ɖesiaɖe ene. Ŋdi ƒe duƒuƒu sesẽ wu. Gake dzɔgbenyuie le ŋunye, elabena nye dɔtɔ sea nu gɔme nam eye wòkpena ɖe ŋunye."

Egblɔ be: “Esesẽna be nàwɔ nu kple agbe si dim nèle ƒe anyimanɔmanɔ.” "Tsã la, menye amesi wɔa nu wògbɔa eme, ame si nye 'ƒomevi A'. Ele nam be malɔ̃ ɖe edzi be nyemeƒua du abe tsã ene o, eye be mehiã be mawɔ nusiwo gbɔ eme hafi akpɔ dzidzɔ o."

"Mate ŋu ayi aƒeme azɔ aɖase vivi na fiẽsi si me tomefafa le, eye mase vivi na azɔlizɔzɔ kpui aɖe le tsaɖibɔa me. Esesẽ ŋutɔ be maɖo afisia, gake alesi mekpɔa agbee la trɔ kura."

Ŋutinya siawo evea siaa ɖe alesi gbegbe wòsesẽna be woanɔ agbe kple dɔléle si nɔa anyi didi abe AS ene la fia mí. Gake ne atikewɔlawo ƒe aɖaŋuɖoɖo nyuitɔ, susuŋutinunya ƒe kpekpeɖeŋu, agbenɔnɔ ƒe tɔtrɔ, kple nɔnɔme sesẽ le ame si la, .Wole kpe ɖom edzi na mí be míate ŋu aɖu kuxi sia dzi ɖekae. Ne nɔnɔme sia tɔgbi le fu ɖem na wò la, mègasusu be ye ɖeka koe o. Ƒo nu kple wò ɖɔkta eye nàxɔ kpekpeɖeŋu si nèhiã.