Ède dzesii kpɔ be ame aɖewo ƒe mo, ŋgonu, alo ta ƒe ŋutigbalẽ biã, eye wokɔ ɖe dzi viea? Ɣeaɖewoɣi la, amesiawo meɖea veve alo vea ame o. Togbɔ be ame geɖe bua esia be enye ŋutigbalẽ ƒe nɔnɔme si sɔ hã la, esia ate ŋu anye dɔléle si abia be woalé ŋku ɖe eŋu vie. Egbea míele nu ƒom tso nɔnɔme aɖe si woyɔna be ‘Discoid Lupus’ si hea dzesi siawo vɛ ŋu. Togbɔ be ŋkɔ sia nye esi womenya o vie hã la, ele vevie ŋutɔ be nànya nu tso eŋu.

Kpuie ko la, nukae nye Discoid Lupus?

Discoid Lupus, si woyɔna nyuie wu be `Discoid Lupus Erythematosus (DLE),` nye dɔléle si gblẽa nu le míaƒe ŋutigbalẽ ŋu tẽ. Enye `Cutaneous Lupus Erythematosus (CLE)` ƒe hatsotso si nye lupus me tɔ. Nya `Cutaneous' gɔmee nye `si do ƒome kple ŋutigbalẽ.` Esia fia be lupus ƒomevi siawo gblẽa nu le míaƒe ŋutigbalẽ ŋu koŋ.

Ame si ŋu discoid lupus le la xɔa abi goglo, biã, si kɔ vie, eye wòkɔna ɖe ŋutigbalẽ ŋu, vevietɔ le mo, ŋgonu, ŋɔti, kple taɖa ŋu. Esiawo ate ŋu ava zu ƒuƒuie le ɣeyiɣi aɖe megbe. Wogayɔa esia be ŋutigbalẽ me lupus si nɔa anyi didi. Nusi nɔa anyi didi gɔmee nye nusi nɔa anyi didi.

Eyata nukae nye ‘Lupus’?

Ne míele nu ƒom tso ‘lupus’ ŋu la, zi geɖe la, míeyɔa dɔléle aɖe si woyɔna be `Systemic Lupus Erythematosus (SLE).` Esiae nye lupus ƒomevi si bɔ wu. Dɔléle sia le lupus dɔnɔ siwo ade 70 le 100 ɖesiaɖe me.

Fifia kpɔ ɖa, togbɔ be ŋutigbalẽa koŋue discoid lupus (DLE) gblẽa nu le hã la, ƒomevi si woyɔna be SLE ya gblẽa nu le ŋutilã bliboa ŋu. Emae nye nusi ‘ɖoɖowɔɖi’ fia. Enye dɔléle si dɔlélenutsiŋutete ŋutɔ hena vɛ . Kpuie ko la, míaƒe ŋutilã ƒe ametakpɔnu, si nye dɔlélenutsiŋutete, zɔna le mɔ gbegblẽ nu eye wòdzea mía ŋutɔwo ƒe lãmenugbagbevi kple lãkusi siwo le lãmesẽ me dzi dzedze gɔme. Esia nana abi, alo abi, le ŋutilã bliboa me.

Zi geɖe la, amesi ŋu SLE le ate ŋu akpɔ dzesiwo abe esiawo ene:

• Asrã si vaa ame dzi le susu aɖeke manɔmee
• Ƒunukpeƒewo ƒe vevesese kple vuvu
• Ðeɖiteameŋu ɣesiaɣi
• Akɔtave
• Teƒe kple ɖiƒoƒo vovovowo ƒe dzedzeme le ŋutigbalẽa ŋu
• Ɣe ƒe keklẽ ƒe seselelãme (kekeli ƒe seselelãme) .

Lupus (CLE) ƒomevi kawoe gblẽa nu le ŋutigbalẽ ŋu?

Abe alesi míegblɔe va yi ene la, discoid lupus nye lupus ƒomevi aɖe si gblẽa nu le ŋutigbalẽ ŋu. Wole ƒomevi vevi etɔ̃ me. Ƒomevi ɖesiaɖe ƒe ŋutigbalẽ ƒe abi ƒe nɔnɔme to vovo vie.

Ðe ame aɖe ate ŋu axɔ lupus ƒomevi siwo wu ɖekaa?

Ẽ, ate ŋu adzɔ. Lupus ƒomevi ɖeka koe le ame aɖewo ŋu. Ema fia be SLE koe ate ŋu anɔ ame aɖewo ŋu, eye DLE koe ate ŋu anɔ ame bubuwo ŋu. Gake ɣeaɖewoɣi la, lupus ƒomevi siwo wu ɖeka ate ŋu adze ame dzi le ɣeyiɣi ɖeka me.

Gake ɖo ŋku esia dzi. Ame akpa gãtɔ siwo ŋu discoid lupus (DLE) le la mekpɔa systemic lupus erythematosus (SLE), si gblẽa nu le ŋutilã bliboa ŋu o. Ame siwo ŋu DLE le la dometɔ siwo ade 5%, alo abe ame 5 le 100 ɖesiaɖe me, ava xɔ SLE emegbe. Azɔ hã, amesiwo ŋu SLE le ƒe akpa enelia (25%) lɔƒo axɔ ŋutigbalẽ ƒe abi siwo sɔ kple esiwo wokpɔna le discoid lupus me. Eyata kadodo le nɔnɔme eveawo dome, gake menye amesiame si si ɖeka le lae atu evelia ɖo o.

Nukae hea discoid lupus vɛ? Amekae le afɔku me wu?

Le nyateƒe me la, ɖɔktawo menya nusi tututu gbɔ lupus tsona haɖe o, eye discoid lupus hã le eme. Gake edze ƒã be nane si gblẽ le míaƒe dɔlélenutsiŋutete ŋu gbɔe wòtso. Azɔ hã, dɔléle sia te ŋu ƒua du le ƒomewo me . Esia fia be ne dɔléle si dɔlékuiwutikewo tsona abe lupus ene le wò ƒomea me la, àte ŋu aɖo afɔku me hã.

Mina míalé ŋku ɖe amesiwo le afɔku gã me be woaxɔ discoid lupus ŋu.

Nukawoe nye discoid lupus ƒe dzesiwo kple kuxi siwo dona tso eme?

Dzesi vevitɔe nye diskoid ƒe abi siwo ŋu míeƒo nu tsoe va yi.

• Teƒe: Wokpɔnɛ zi geɖe le ta kple mo, gake ate ŋu adzɔ le ŋutilã ƒe akpa bubuwo hã, vevietɔ teƒe siwo ŋdɔ ʋuna le.
• Nɔnɔmewo: Zi geɖe la, teƒe siawo mevea ame o, eye womeʋãna hã o . Wobiãna, wokɔna ɖe dzi vie, eye ɣeaɖewoɣi la, woƒe gowo dzena abe aŋɔ ene.
• Nɔnɔme siwo ava emegbe: Ne teƒe siawo haya la, woate ŋu axɔ abi eye woƒe amadede natrɔ . Ɣeaɖewoɣi la, ŋutigbalẽa ate ŋu azu ɣie alo azu blɔ/yibɔ.

Kuxi siwo ate ŋu ado mo ɖa

• Taɖa ƒe vuvu: Ne teƒe siawo dze le taɖa ŋu la, taɖa siwo le teƒe ma ate ŋu age. Nusi gblẽ wue nye be ne abi aɖe va le teƒe ma la, taɖa ƒe tsitsi ate ŋu atɔ te tegbee .
• Ŋutilã me kansa ƒe afɔku:Ne discoid lupus ƒe teƒeteƒewo le ŋuwò ɣeyiɣi didi la, afɔku sue aɖe koe li be ŋutigbalẽ me kansa xɔxɔ le teƒe mawo. Vevietɔ ne teƒe siawo do le nu me la, ate ŋu anɔ eme be ŋutigbalẽ me kansa ƒomevi aɖe si woyɔna be squamous cell carcinoma xɔxɔ ate ŋu adzi ɖe edzi.
• Chilblain Lupus: Esia nye dɔléle si mebɔ kura o. Le nɔnɔme sia me la, teƒe alo teƒe siwo le dzo dam la dzena le ŋutigbalẽa ŋu ne wotsɔe de vuvɔ me. Esiawo ate ŋu ave ame ŋutɔ.

Aleke woawɔ anya dɔléle sia?

Ne dzesi siawo le ŋuwò la, nu nyuitɔ si nàwɔe nye be nàyi ŋutigbalẽŋutinunyala gbɔ . Ado wò kpɔ eye wòawɔ dodokpɔwo atsɔ aɖo kpe dɔlélea dzi.

Woyɔa esia be ŋutigbalẽ ƒe lãmenugbagbeviwo ɖeɖe . Esia bia be woaɖe ŋutigbalẽ sue aɖe ŋutɔ tso teƒe si teƒea le le atike si naa alɔ̃dɔdɔ ame me. Emegbe woɖonɛ ɖe dodokpɔxɔ aɖe me eye wodonɛ kpɔ le nusuekpɔmɔ̃ me. Ne míelé ŋku ɖe tɔtrɔ siwo va le lãmenugbagbevi mawo me ŋu la, míate ŋu anyae kple kakaɖedzi nenye be discoid lupus alo ŋutigbalẽdɔ bubue.

Nukawoe nye atikewɔmɔnuawo?

Womate ŋu ada discoid lupus keŋkeŋ o. Gake atikewɔwɔ ate ŋu akpe ɖe ŋuwò nàɖu dzesiawo dzi, axe mɔ ɖe dɔléle yeyewo ƒe dodo nu, eye wòakpe ɖe ŋuwò nànɔ agbe si sɔ. Wò ɖɔkta aŋlɔ atike nyuitɔ na wò le alesi wò dzesiawo nu sẽe nu.

Woŋlɔ atikewɔwɔmɔnu vevi siwo wozãna dometɔ aɖewo ɖe ete.

Aleke woawɔ axe mɔ ɖe dzobibi nu?

Nusi wòle be amesiame si ŋu discoid lupus le nanyae nye esi. Le lupus dɔnɔ siwo ade 70% gome la, dzesiawo gagblẽna ɖe edzi ne wodo go ultraviolet (UV) keklẽ si tso ɣea gbɔ. Esia fia be teƒe yeyewo ate ŋu ado, teƒe siwo li xoxo ate ŋu azu dzĩ, alo alolo. Esia le vevie ŋutɔ na amesi le dukɔ abe mía tɔ ene si me ŋdɔ sesẽ le le ƒe bliboa me.

Be nàkpɔ ɖokuiwò ta tso ŋdɔkutsu nu eye nàxe mɔ ɖe dɔlélea nu be wòagagblẽ ɖe edzi o la, wɔ nu siwo gbɔna:

• De ɣe ƒe keklẽŋusẽtikewo ŋu gbesiagbe hafi nàdo go le ŋdɔ me. Tia ɣe ƒe keklẽŋusẽtike si ƒe dɔwɔwɔ keke ta (ekpɔa ame ta tso UVA kple UVB siaa me) si me SPF 30 ya teti le.
• Anyo be nàzã ɣe ƒe keklẽŋusẽtike menye ne èle gota ko o, ke ne èle xɔ me hã, vevietɔ ne èle fesre aɖe gbɔ.
• Gbugbɔ de ɣe ƒe keklẽŋusẽtikewo ŋu gaƒoƒo 4 ɖesiaɖe. Gbugbɔ dee hafi nàfi fi alo ayi tsia me.
• Ƒo asa na ɣe ƒe keklẽ sesẽtɔ kekeake le ŋdi ga 10 kple fiẽ ga 4 dome alesi nàte ŋui.
• Ne èle gota yim la, zã nuwo abe awu siwo ƒe abɔwo didi, kposɔ siwo ƒe abɔwo keke, kple akɔtakpoxɔnuwo ene .
• Fluorescent-kaɖi siwo le xɔ me gɔ̃ hã ate ŋu ana UV keklẽ aɖewo nado, eyata ƒo asa na akaɖi mawo te nɔnɔ ɣeyiɣi didi akpa.
• Mègazã abati siwo wotsɔ ɖɔa lãgbalẽe gbeɖe o .

Ne èwɔ ɖe afɔɖeɖe siawo dzi nyuie la, àte ŋu aɖu wò dzesiwo dzi vaseɖe afi aɖe.