Ðe wò ŋutilã tsi, gake wò susu ya le ablɔɖe mea? Mina míaƒo nu tso Locked-in Syndrome (LiS) ŋu .

Bu eŋu kpɔ be yeate ŋu ase nusianu si nèdi gɔme ahase nu, gake màte ŋu aƒo nu alo aʋuʋu wò ŋutilã o... abe ɖe nètsi wò ŋutɔ wò ŋutilã me ene. Ðe mesena le eɖokui me be yemate ŋu awɔ naneke le esia ŋu oa? Ema tututue nye ahɔhɔ̃mekawo ƒe nɔnɔme wɔnublanui, gake mebɔ kura o si ŋu míaƒo nu tsoe egbea. Woyɔa esia be Locked-in Syndrome, alo `(LiS)` kpuie.

Nukae Nye Locked-in Syndrome ƒe Dɔléle?

Kpuie ko la, locked-in syndrome nye ahɔhɔ̃mekawo ƒe dɔléle si mebɔ o si me wò lɔlɔ̃nu faa lãmekawo katã megawɔa dɔ o, negbe lãmeka siwo kpɔa wò ŋku ƒe ʋuʋu dzi koe mele eme o. Esia fia be màte ŋu awɔ naneke si nèdi be yeawɔ, abe wò abɔ alo afɔ ʋuʋu, nuƒoƒo, alo seselelãmewo ɖeɖefia kple mo ene o.

Gake nusi wɔ nuku enye be, amesi le nɔnɔme sia me ƒe sidzenuwo, nunya, kple ŋkuɖoɖonudzi katã le abe alesi wòle dzɔdzɔmee ene. Woate ŋu ase nusiwo le edzi yim ƒo xlã wo ahase wo gɔme. Gake mɔ aɖeke meli si dzi woato awɔ nu ɖe ​​eŋu o. Ele abe ame aɖe si xaxa ɖe woawo ŋutɔ ƒe ŋutilã me, si mete ŋu ƒoa nu alo ʋãna o ene.

Zi geɖe la, ame siawo ɖoa dze to woƒe ŋkuwo ʋuʋu yi dzi kple anyime, alo ŋkuʋuʋu, si dzi woate ŋu aɖu la me. Ɣeaɖewoɣi la, wozãa mɔ̃ɖaŋununya tɔxɛ siwo kpena ɖe ame ŋu hena esia wɔwɔ.

Nusi koŋ gbɔ nɔnɔme sia tsonae nye nusiwo gblẽ le míaƒe ahɔhɔ̃meka ƒe akpa aɖe koŋ si woyɔna be pons ŋu. Míaƒo nu tso esia ŋu tsitotsito emegbe.

Nukawoe nye dɔléle si nye locked-in syndrome (LiS) ƒomevi veviwo?

Wode dzesi dɔléle si nye locked-in syndrome (LiS) ƒomevi vevi etɔ̃. Na míalé ŋku ɖe nusiwo wonye ŋu.

1. Klasik nɔnɔme

Esiae nye nɔnɔme si bɔ wu. Le go sia me la, ŋutilã bliboa meʋãna kura o. Ema fia be womate ŋu awɔ lɔlɔ̃nu faa ʋuʋu aɖeke o. Ke hã, woate ŋu aʋuʋu woƒe ŋkuwo ayi dzi kple anyime ahanɔ ŋku lém ɖe wo ŋu. Azɔ hã, woƒe susu kple nunya gakpɔtɔ le dzɔdzɔme nu. Wote ŋu sea nusiwo le dzɔdzɔm ƒo xlã wo nyuie ŋutɔ.

2. Nuŋlɔɖi si mede blibo o

Esia sɔ kple blema ƒomevi si wozãna. Eyae nye be, ne ŋutilã bliboa me agbe mele o hã la, ŋkuawo ate ŋu aʋuʋu yi dzi kple anyime, agbã ŋku. Gake le go sia me la, ɣeaɖewoɣi la, ʋuʋu kple seselelãme aɖewo ate ŋu asusɔ ɖe ŋutilã ƒe akpa aɖewo. Emae nye vovototo sue si le afisia.

3. Total Immobility Mɔnu

Esiae nye dɔléle si nu sẽ wu eye mebɔ o wu. Le esia me la, ŋutilã bliboa tuna keŋkeŋ, eye ŋutete si le ame si be wòaʋuʋu ŋkuwo la nu yina. Gake nukutɔe la, ame siawo hã ƒe tamebubu kple nunya sɔ. Ðɔktawo ɖo kpe esia dzi to ahɔhɔ̃mekawo ƒe dɔwɔwɔ (cortical function) dodokpɔ kple dodokpɔwo abe ``electroencephalogram - EEG)``, si dzidzea ahɔhɔ̃ ƒe ƒutsotsoewo.

Amekae ate ŋu axɔ dɔléle si nye locked-in syndrome (LiS)?

Le nyateƒe me la, nɔnɔme sia si woyɔna be locked-in syndrome (LiS) ate ŋu adzɔ le ƒe ɖesiaɖe me. Gake numekukuwo ɖee fia be ebɔ ɖe amesiwo xɔ tso ƒe 30 va ɖo ƒe 50 dome wu .

Aleke gbegbee nɔnɔme sia bɔe?

Locked-in syndrome (LiS) nye dɔléle si mebɔ kura o. Esi wònye be ɣeaɖewoɣi la, wobua eŋu vodadatɔe alo susui vodadatɔe be enye atikewɔwɔ ta la, esesẽna na numekulawo be woagblɔ ame agbɔsɔsɔme si tututu wòxɔna ƒe sia ƒe. Gake ame geɖe lɔ̃ ɖe edzi be ƒã ŋutɔ.

Nukawoe nye locked-in syndrome (LiS) ƒe dzesiwo?

Dɔ si wògblẽna ɖe ŋutilã ŋu ate ŋu ato vovo vie le dɔléle si nye locked-in syndrome (LiS) si le ŋuwò nu.

Zi geɖe la, ne èkpɔ ame aɖe si ŋu locked-in syndrome le zi gbãtɔ la, èsusuna be eƒe susu megale dɔ wɔm o, si fia be ele alɔ̃ me. Esia le alea elabena womete ŋu ɖoa nya ŋu le mɔ aɖeke nu o. Emegbe hafi nèva kpɔnɛ be woƒe susu le nu ŋu.

Nu siwo ame geɖe mate ŋu awɔ o:

• Nuɖuɖu ɖuɖu
• Nu mimi
• Nuƒoƒo
• Modzakaɖeɖe (abe alɔgbɔnukoko, blanuiléle ene) .
• Ŋutilã ƒe ʋuʋu aɖeke mele ŋkuwo te o

Nusiwo ame geɖe ate ŋu awɔ (le blematɔwo kple blibomademade ƒe nɔnɔmewo me):

• Àte ŋu aʋuʋu wò ŋkuwo ayi dzi kple anyime (gake menye tso axa ɖeka yi axadzi o, si fia be nànɔ tsia dzi o).
• Àte ŋu aʋuʋu ŋku.

Nusiwo amesiame (le nɔnɔme ɖesiaɖe me) ate ŋu awɔ:

• Mete ŋu sea nuwo le dzɔdzɔm ƒo xlãm, amewo le nu ƒom.
• Àte ŋu ase egɔme ne ame aɖe ƒo nu alo xlẽ nane.
• Àte ŋu abu tame ahade ŋugble abe alesi nèwɔe hafi nɔnɔme sia do mo ɖa ene.
• Alɔ̃dɔdɔ kple nyɔnyrɔ̃ ƒe tsatsam sɔ.

Ðe nèsea veve le locked-in syndrome (LiS) ta?

Esia hã nɔ te ɖe Locked-In Syndrome (LiS) ƒomevi si le ŋuwò dzi.

• Ame si mete ŋu ʋãna kura o la mesea veve le ŋutilã me o elabena woƒe ŋutilã bliboa meʋãna kura o.
• Ame si ƒe nɔnɔme mede blibo o ate ŋu ase veve kple seselelãme bubuwo le ŋutilã ƒe akpa aɖewo.

Nukae hea dɔléle si nye locked-in syndrome (LiS) vɛ?

Abe alesi míegblɔe va yi ene la, nusi koŋ gbɔ locked-in syndrome (LiS) tsonae nye nusiwo gblẽ le míaƒe ahɔhɔ̃meka ƒe akpa aɖe koŋ si woyɔna be pons ŋu.

Nusiwo gblẽ le ahɔhɔ̃a ƒe akpa si nye pons ŋu

Pons nye lãmekawo ƒe ƒuƒoƒo si le abe sɔ ƒe afɔkpa ene. Enɔa medulla oblongata, si nye ahɔhɔ̃meka ƒe akpa si le anyime wu, kple ahɔhɔ̃meka si kpɔa míaƒe ŋutilã ƒe ʋuʋu dzi, vevietɔ dadasɔ dzi.

Pons nye ahɔhɔ̃a ƒe akpa aɖe si woyɔna be ahɔhɔ̃meka, si me lãmekawo ƒe mɔ vevi geɖe siwo doa ka kple míaƒe ahɔhɔ̃meka, aklã, kple ahɔhɔ̃mekawo le. Le locked-in syndrome me la, ne pons la gblẽ la, lãmeka ƒe dzesi siwo katã tso ahɔhɔ̃a gbɔ yia lãmeka siwo le ŋutilãa me gbɔ la xea mɔ. Esia tae ŋutilã bliboa zua lãmetututɔ ɖo. Nusiwo gblẽ le ame ŋu sia gblẽa nu le ahɔhɔ̃a ƒe titina siwo kpɔa mo ƒe dzedzeme kple nuƒoƒo dzi hã ŋu. Esia tae míate ŋu atsɔ míaƒe mo aɖe seselelãmewo afia, aɖu nuɖuɖu, ami nu, alo aƒo nu o.

Nu vevitɔ si gblẽa nu le pons ŋu eye wòbɔ wue nye ʋu ƒe sisi alo ʋu ƒe sisi, si gblẽa nu le ahɔhɔ̃mekawo ƒe lãkusi, lãkusi, kple lãkusi ƒe mɔ siwo le ahɔhɔ̃mekawo me ŋu.

• Ischemic stroke nye ne ʋu ƒe sisi xe ʋuka aɖe si naa ʋu yia ahɔhɔ̃a me, si wɔnɛ be ʋu si yia ahɔhɔ̃a me la nu tso.
• Ʋusɔgbɔdɔ nye ne ʋu si le dodom tso ʋuka aɖe si le ahɔhɔ̃a me me dze sisi yi ahɔhɔ̃a me zi ɖeka.

Nu bubu siwo gblẽa nu le pons ŋu

Tsɔ kpe ɖe ʋusɔgbɔdɔ ŋu la, nu bubu geɖe siwo mebɔ o ate ŋu agblẽ nu le pons ŋu, si ana woaxɔ locked-in syndrome (LiS).

• Dɔlékuiwo ƒe gege ɖe ahɔhɔ̃a ƒe akpa aɖewo me.
• Tumor alo masses le pons alo ahɔhɔ̃ ƒe ke me.
• Demyelination nye ametakpɔnu (myelin) si ƒo xlã lãmekawo ƒe lãmenugbagbeviwo ƒe bu.
• Le kpɔɖeŋu me , atikewɔwɔ ƒe nɔnɔme aɖewo , amyotrophic lateral sclerosis (ALS) kple Guillain-Barre ƒe dɔléle .
• Trauma na pons la.
• Atike vɔ̃ɖiwo zazã ɖe mɔ gbegblẽ nu .

Aleke wokpɔa dɔléle si nye locked-in syndrome (LiS) dzea sii?

Esi wònye be amesiwo ŋu locked-in syndrome (LiS) le mewɔa nu ɖe ​​vevesese ƒe nuwɔna (i.e., woƒe lãmekawo ƒe dɔwɔwɔ ƒe ŋuɖoɖo aɖeke mele wo si o) siwo ɖɔktawo zãna tsɔ léa ŋku ɖe dɔwɔwɔ ŋu kpɔna ŋu o ta la, ɖɔktawo ate ŋu abu vodadatɔe le gɔmedzedzea me be yewomenya nu tso eŋu o. Eyata dɔléle (LiS) didi ate ŋu asesẽ ɣeaɖewoɣi eye wòaxɔ ɣeyiɣi geɖe.

Nu vevitɔ kekeake le dɔléle si nye locked-in syndrome (LiS) didi me enye be woaɖe nɔnɔme bubu siwo ate ŋu ahe dzesi siawo vɛ la ɖa. Azɔ hã, abe dɔlélea didi kple edada ƒe ɖoɖoa ƒe akpa aɖe ene la, ele vevie be woanya nusi gbɔ locked-in syndrome ƒe dɔlélea tso.

Dodokpɔ siwo wowɔna tsɔ dia dɔlélewoe

Ðɔktawo zãa dodokpɔ geɖe tsɔ dea dzesi dɔléle si nye locked-in syndrome (LiS), dia nusi gbɔ wòtso, eye woɖea nɔnɔme bubuwo ɖa.

• MRI (Magnetic Resonance Imaging - MRI) scan alo CT (Computed Tomography - CT) scan: Dodokpɔ siawo ate ŋu akpɔe ɖa be nu gblẽ le wò pons alo wò ahɔhɔ̃ ƒe akpa bubuwo ŋu hã.
• Cerebral angiography: Dodokpɔ sia ate ŋu ade dzesii ne ʋu ƒo ɖe ahɔhɔ̃a ƒe ʋukawo me alo le ahɔhɔ̃a ƒe teƒe bubu.
• Electroencephalogram (EEG): Esia dzidzea ahɔhɔ̃a ƒe elektrikŋusẽ ƒe dɔwɔwɔ. Esia wɔnɛ be ɖɔktawo kpɔae ɖa be wò ahɔhɔ̃ ƒe dɔwɔwɔ kple alɔ̃dɔdɔ kple nyɔnyrɔ̃ ƒe tsatsam sɔ hã. Ate ŋu akpe ɖe ame ŋu be woade vovototo LiS kple nɔnɔme bubuwo dome.
• Ŋutete siwo nyɔa ame: Esiawo dzidzea elektrikŋusẽ ƒe dɔwɔwɔ le ahɔhɔ̃a kple aklã ƒe akpa aɖewo le nuwo abe vevesese, tosese, alo nukpɔkpɔ ƒe nuwɔna ene ŋu. Ðɔktawo zãa wo tsɔ daa ahɔhɔ̃a ƒe dɔwɔwɔ siwo gblẽ kple ahɔhɔ̃a ƒe dɔwɔwɔ nyuie kpɔna.
• Electromyography: Esia dzidzea alesi wò lãmekawo kple lãmekawo le dɔ wɔm nyuie. Woate ŋu azã dodokpɔ sia atsɔ agbe lãmekawo kple lãmekawo ƒe gbegblẽ.
• Ʋudodokpɔ: Lãmetsiŋusẽ ƒe ƒuƒoƒo aɖe, vevietɔ to sodium ƒe agbɔsɔsɔ si le ʋua me kpɔkpɔ me, ate ŋu akpe ɖe ame ŋu wòanya ne nɔnɔme aɖe si woyɔna be pontine myelinolysis ye gbɔe wòtso.
• Ahɔhɔ̃ me tsi (CSF) dodokpɔ: Esia ate ŋu akpe ɖe ame ŋu wòanya nenye be dɔlékui alo dɔlélenutsiŋutete ƒe dɔléle aɖee le dzesiawo hem vɛ.

Aleke wodaa locked-in syndrome (LiS) ƒe dɔléleae?

Ne míagblɔe tututu la, atike alo atike aɖeke koŋ meli na locked-in syndrome (LiS) o. Nusi ko woawɔ, ne anya wɔ la, enye be woada nusi gbɔ dɔlélea tso eye woaxe mɔ ɖe kuxi bubuwo nu.

Dɔléle si wotu ɖe xɔ me dzi kpɔkpɔ lɔ atikewɔwɔ si kpena ɖe ame ŋu kple kadodo ƒe hehenana ɖe eme .

Atikewɔwɔ si kpena ɖe ame ŋu

Beléle si kpena ɖe ame ŋu le gbɔgbɔ kple nuɖuɖu nana me le vevie, vevietɔ le eƒe gɔmedzedze. Zi geɖe la, amesiwo ŋu LiS le hiãa gbɔgbɔ ƒe kpekpeɖeŋu si wowɔ kple asi. Wowɔa yaƒoƒomɔ̃ (si nye mɔ̃ si wotsɔ dea do sue aɖe si le kɔ me me yia yaƒoƒomɔ̃a me) hã.

Esi wònye be mele dedie be woaɖu nu alo ano nu to nu me kple LiS o ta la, zi geɖe la, wotsɔa mɔ̃ sue aɖe si woyɔna be gastrostomy tube (G-tube) dea ame siawo ƒe dɔgbo me tẽ. Afi siae wonaa nuɖuɖu kple tsi le.

Dɔdamɔnu bubu siwo wozãna tsɔ kpena ɖe eŋu dometɔ aɖewoe nye:

• Mɔxexe ɖe kuxi siwo ate ŋu ado mo ɖa le ame ƒe ʋuʋu me nu. Le kpɔɖeŋu me:Nuwo abe aklãdɔ, aɖuɖɔtoedɔléle (UTIs), kple ʋu ƒe sisi (thrombosis).
• Mɔxexe ɖe abixɔxɔ/abadzivɔwo ƒe nyaƒoɖeamenu nu .
• Na kamedede be woaxe mɔ ɖe abɔ kple afɔ ƒe tete nu, si nye ʋuʋu ƒe didime dzi ɖeɖe kpɔtɔ si tsoa abɔ kple afɔ ƒe ƒunukpeƒewo, lãmekawo, alo lãkusi falɛfalɛwo ƒe sesẽ gbɔ.
• Na kamedede be woatsɔ agbugbɔ lɔlɔ̃nu faa ʋuʋu sue ɖesiaɖe si susɔ alo esi le hayahayam (ne woli) la aɖɔ ɖo.

Dzeɖoɖo ƒe hehenana

Nuƒoƒodɔdalawo ate ŋu akpe ɖe amesiwo ŋu locked-in syndrome (LiS) le ŋu be woaɖo dze nyuie wu to ŋkuʋuʋu kple ŋkuʋuʋu me. Dzeɖoɖomɔnu sia le etɔxɛ na ame ɖesiaɖe. Le kpɔɖeŋu me, ŋkuléle ɖe dzi ate ŋu afia "ɛ̃" eye ŋkuléle ɖe anyi ate ŋu afia "ao" (alo eƒe akpa bubu). Azɔ hã, ne ame bubu xlẽ lɛta aɖe la, ate ŋu afia asi ŋɔŋlɔdzesi si wodi be yewoazã atsɔ awɔ nyawo kple nyagbewoe.

Tsɔ kpe ɖe ŋku ƒe ʋuʋu ƒe dzesiwo ŋu la, elektrɔnik kadodomɔ̃wo , abe ŋku ƒe ʋuʋu ƒe dzesi siwo ƒe amadede nye infrared kple kɔmpiuta dzi gbeɖiɖi ƒe ŋutilã ƒe wɔwɔme ene, na amesiwo ŋu LiS le te ŋu ɖoa dze faa wu eye woate ŋu akpɔ Internet.

Ðe wòanya wɔ be woahaya bliboe tso locked-in syndrome (LiS) mea?

Le nusi gbɔ locked-in syndrome (LiS) tsona nu la, lãmekawo ƒe dɔwɔwɔ ƒe ŋutete aɖewo ate ŋu atrɔ ava. Gake ƒã hafi ame ƒe hayahaya keŋkeŋ. Ame aɖewo siwo ŋu LiS le ate ŋu aʋuʋu kple seselelãme aɖewo le woƒe ŋutilã ƒe akpa aɖewo.

Ame geɖe megakpɔa lãmeka siwo bu la ƒe dɔwɔwɔ gbeɖe o, gake woate ŋu asrɔ̃ alesi woaɖo dze to ŋku ƒe ʋuʋu me.

Ðe woate ŋu axe mɔ ɖe dɔléle si nye locked-in syndrome (LiS) nua?

Nublanuitɔe la, womate ŋu axe mɔ ɖe locked-in syndrome (LiS) ƒe dɔléle akpa gãtɔ nu o. Gake ne ʋusɔgbɔdɔ ƒe afɔku gã aɖe le ŋuwò la, LiS xɔxɔ ƒe afɔkua hã ate ŋu adzi ɖe edzi.

Ðo dze kple wò ɖɔkta tso afɔku si le ŋuwò be nàxɔ ʋusɔgbɔdɔ kple mɔ siwo dzi nàto aɖe afɔku ma dzi akpɔtɔ ŋu.

Nukae nye mɔkpɔkpɔ na amesi ŋu locked-in syndrome (LiS) le?

Nusiwo wogblɔ ɖi na amesiwo ŋu locked-in syndrome (LiS) le nɔ te ɖe nusi gbɔ dɔlélea tso, dɔlélea ƒomevi, kple kpekpeɖeŋu kple beléle si woxɔna na wo dzi.

Numekuku aɖe si wowɔ nyitsɔ laa ɖee fia be amesiwo ŋu LiS le gblɔ be yewole agbe si me dzidzɔ le wu eye gɔmesese le wo ŋu wu, vevietɔ ne woxɔ hadomekpekpeɖeŋu nyuiwo kple mɔ̃ɖaŋununya si trɔna ɖe nɔnɔmewo ŋu si kpena ɖe yewo ŋu wowɔa akpa si sɔ le aƒeme kple hadomegbenɔnɔ me.

Ame geɖe siwo ŋu LiS le ate ŋu azã bunɔkeke si ŋu mɔ̃ le kple kɔmpiuta si me mɔ̃ɖaŋununya si trɔna ɖe nɔnɔmewo ŋu le.

Ɣeyiɣi didi kae nàte ŋu anɔ agbe kple dɔléle si nye locked-in syndrome (LiS)?

Ame aɖewo siwo ŋu locked-in syndrome (LiS) le la menɔa agbe wu dɔlélea ƒe gɔmedzedze o, le atikewɔwɔ me kuxiwo ta. Ke hã, ame bubuwo nɔa agbe ƒe 10 va ɖo ƒe 20 eye wogblɔna be yewoƒe agbenɔnɔ nyo.

Aleke malé be na ɖokuinye, alo ame aɖe si ŋu LiS le?

Ne locked-in syndrome (LiS) le ŋuwò la, ele vevie be nàkpɔ egbɔ be yexɔ atike nyuiwo be nàxe mɔ ɖe kuxiwo abe aklãdɔ kple abadzivɔ siwo tsoa ʋuʋumawɔmawɔ ta ene nu.

Ele vevie hã be woadi mɔnu siwo dzi woato aɖo dze – eɖanye to ŋku ƒe ʋuʋu alo kpekpeɖeŋu mɔ̃ɖaŋununya abe ŋkuléleɖenuŋu mɔ̃ɖaŋununya ene o. Bu eŋu kpɔ be yeage ɖe kpekpeɖeŋunaha aɖe me be yeado go ame bubu siwo to nuteƒekpɔkpɔ mawo tɔgbe me kpɔ hã.

Ne èle ame aɖe si ŋu `(LiS)` le dzi kpɔm la, ele vevie be nàʋli wo ta be nàkpɔ egbɔ be woxɔ atikewɔwɔ nyuitɔ kekeake eye mɔ̃ɖaŋununya siwo akpe ɖe wo ŋu woate ŋu aɖo dze eye woanɔ wo ɖokui si wu la nasu wo si.

Mlɔeba la, nu vevitɔ kekeake (Take-Home Message) .

Locked-in Syndrome (LiS) nye dɔléle si mebɔ o eye wòsẽna ŋutɔ. Dɔléle sia tɔgbe xɔxɔ ate ŋu agbɔ eme. Gake ɖo ŋku edzi be wò atikewɔlawo ƒe ƒuƒoƒoa li be yewoado alɔ wò kple wò lɔlɔ̃tɔwo. Ele vevie be woayi edzi anɔ atikewɔwɔ nyui xɔm eye woasrɔ̃ mɔ yeye siwo dzi woato aɖo dze ne wole LiS gbɔ.

Esi egbegbe kpekpeɖeŋunana deŋgɔwo kple mɔ̃ɖaŋununya ƒe ŋgɔyiyi ta la, ame geɖe siwo ŋu Locked-In Syndrome (LiS) le la le agbe si me dzidzeme le eye gɔmesese le wo ŋu. Eyata mègana mɔkpɔkpɔ gbeɖe o. Kuxi ɖesiaɖe gbɔ kpɔnu li, mɔ aɖe li si dzi woato adze ŋgɔ kuxi ɖesiaɖe.

` Locked-in Syndrome, Pons, Ahɔhɔ̃medɔléle, Ahɔhɔ̃ŋutinunya, Lãmetsiŋusẽ, Kadodo