Loaʻa iā ʻoe ke kanesa ma ka ʻaoʻao haʻahaʻa o kou puʻu? E kamaʻilio kākou e pili ana i ke Kanesa Hypopharyngeal!

Ua noʻonoʻo paha ʻoe e pili ana i ke kanesa ʻāʻī ? Ua noʻonoʻo paha ʻoe. I kēia lā e kamaʻilio mākou e pili ana i kahi ʻano kanesa e kū mai ana i loko o ka ʻāʻī, akā ʻaʻole i kamaʻilio nui ʻia. Ua kapa ʻia kēia ʻo Hypopharyngeal Cancer . I ka ʻōlelo maʻalahi, ulu ia ma ka ʻaoʻao haʻahaʻa o ko mākou ʻāʻī, ʻo ia hoʻi, ma ka ʻaoʻao haʻahaʻa o ka ʻāʻī (`(Pharynx)`), ma hope pono o ka pahu leo ​​(`(Larynx)`). E nānā kākou i kēia me nā kikoʻī hou aku, ʻeā?

Pehea ka maʻamau o kēia maʻi kanesa?

ʻOiaʻiʻo, ʻaʻole maʻamau kēia maʻi ʻaʻai hypopharyngeal. E noʻonoʻo wale, ʻoiai ma kahi ʻāina e like me ʻAmelika, he 2000 a 4000 wale nō ka poʻe i ʻike ʻia me kēia maʻi i kēlā me kēia makahiki. Akā inā mākou e hoʻohālikelike iā ia me kahi mea e like me ke kanesa māmā , he haʻahaʻa loa kēlā helu. No ka laʻana, i ka makahiki 2023 wale nō, ua ʻōlelo ʻia ua ʻoi aku ma mua o ʻelua haneli tausani ka poʻe i ʻike ʻia me ke kanesa māmā ma ʻAmelika. No laila, ʻo ia hoʻi, he mea kakaikahi iki kēia, ʻo ia hoʻi, ʻaʻole ʻike pinepine ʻia.

He aha nā hōʻailona o ke kanesa hypopharyngeal?

ʻO kahi pilikia ma ʻaneʻi, ʻaʻole paha e hōʻike kēia maʻi kanesa i kekahi mau hōʻailona i nā pae mua . I kekahi manawa ua pālahalaha paha ke kanesa (metastasized) i ka manawa e ʻike ʻia ai nā hōʻailona. Eia nō naʻe, ʻo nā hōʻailona e ʻike ʻia e komo pū ana me:

• Ka ʻeha o ka puʻu a i ʻole ka manaʻo o kekahi mea i paʻa i loko o ka puʻu.
• Ka leo haʻahaʻa .
• Ka paʻakikī i ka ale ʻana i ka meaʻai .
• ʻEha pepeiao .
• Nā ʻāpana lymph pehu i ka ʻāʻī .
• Ka pōkole o ka hanu a i ʻole kekahi mea i paʻa i ka puʻu me ke kumu ʻole.
• Manaʻo luhi loa (` Fatigue` ).
• Nā loli leo .
• Paʻakikī ka hanu ʻana a i ʻole he walaʻau i ka wā e hanu ana (`(Stridor)`).
• Ke ʻū ʻana i ke koko .
• Ka wiwi ʻana me ke kumu ʻole.

ʻO ka mea nui loa, ʻaʻole ʻoe e makaʻu i ka loaʻa ʻana o kēia maʻi kanesa ma muli wale nō o kou loaʻa ʻana o kēia mau hōʻailona. No ka mea, hiki ke ʻike ʻia kēia mau hōʻailona i nā maʻi liʻiliʻi ʻē aʻe. Eia nō naʻe, inā mau kekahi o kēia mau hōʻailona no nā pule ʻelua a ʻoi, he mea naʻauao ke ʻike pono i ke kauka a ʻimi i ka ʻōlelo aʻo.

No ke aha e ulu ai ka maʻi ʻaʻai hypopharyngeal?

I ka ʻōlelo maʻalahi, ulu kēia maʻi kanesa i loko o nā pūnaewele e hoʻopili ana i kou hypopharynx (ka ʻāpana o kou puʻu e hoʻopili ana i kou puʻu haʻahaʻa). Hoʻololi kēia mau pūnaewele a lilo i maʻi kanesa, e māhelehele ana me ke kāohi ʻole a hana i nā puʻupuʻu. ʻAʻole hiki i nā loea ke ʻōlelo pololei i ke kumu o kēia. Eia nō naʻe, aia kekahi mau mea pilikia e hoʻonui nui i kou manawa e loaʻa ai kēia maʻi kanesa. ʻO lākou:

• Puhipaka: ʻO kēia ke kumu hoʻokahi nui loa no ka maʻi ʻaʻai puʻu, me ke kanesa hypopharyngeal. Hoʻokomo pū kēia me nā cigarettes, nā cigars, ka puhi paipu, ka hoʻohana ʻana i ka cigarette uila ("e-cigarettes)`), ka nau ʻana i ka paka, ka nau ʻana i ka gum, a me ka nau ʻana i ka paka.
• ʻInu pinepine a inu nui: Ua wehewehe ʻia ka inu pinepine a inu nui ʻana i ʻoi aku ma mua o ʻelua mau ʻāpana waiʻona i ka lā no nā kāne a ʻoi aku ma mua o hoʻokahi ʻāpana i ka lā no nā wahine.
• Maʻi HPV: He maʻi laha pili i ke moekolohe (STI) ka Human Papillomavirus (HPV). Hiki ke laha ma o ka moekolohe waha me kekahi mea i loaʻa i ka maʻi.

He aha nā pilikia e hiki ke kū mai mai kēia maʻi?

Hiki i ke kanesa hypopharyngeal ke laha i nā lymph node ma ka ʻāʻī i kona wā mua. No laila he mea nui e kamaʻilio me ke kauka inā ʻike ʻoe i kahi puʻupuʻu ma kou ʻāʻī. Inā ʻaʻole mālama ʻia, hiki i kēia kanesa ke laha i nā wahi aʻe:

• Kou ʻōpū (`(Esophagus)`).
• Nā ʻāpana ʻē aʻe o ka puʻu.
• ʻO ke kelepaʻi thyroid (`(Thyroid)`).
• ʻŌpū makani (trachea).
• Iwi Hyoid (`(Iwi Hyoid)`).
• ʻO ka uhi o ka lua o ka umauma.
• ʻO ka ʻiʻo e hoʻopuni ana i ka ʻaoʻao o luna o ka iwi kuamoʻo.
• ʻO ke aʻa Carotid (`(ʻO ke aʻa Carotid)`).

Pehea e ʻike ʻia ai kēia maʻi kanesa?

Ke ʻike ʻoe i ke kauka, e nīnau ʻo ia iā ʻoe e pili ana i kāu mau hōʻailona, ​​pehea ka lōʻihi o kou loaʻa ʻana iā lākou, a inā ʻoe e hoʻohana ana i ka paka a i ʻole ka waiʻona, no ka mea, hoʻonui kēia mau mea i kou pilikia o ka loaʻa ʻana o kēia maʻi kanesa.

A laila e nānā ke kauka iā ʻoe. E hoʻopā ʻo ia i kou ʻāʻī e ʻike inā ua pehu kou mau lymph nodes, a e nānā ʻo ia i kou puʻu.

Ma muli o kāu mau hōʻailona, ​​​​hiki i kāu kauka ke kuhikuhi iā ʻoe i kahi loea pepeiao, ihu, a me ka ʻāʻī (loea ENT a i ʻole Otolaryngologist). He loea ʻo ia i ka ʻike ʻana a me ka mālama ʻana i nā maʻi o ke poʻo a me ka ʻāʻī. Hiki iā ia ke kauoha i nā hoʻokolohua e like me:

• Endoscopy: Ma kēia hoʻāʻo, hoʻokomo ke kauka i kahi ʻōmole lōʻihi a lahilahi (endoscope) i lalo o kou puʻu e nānā i ka ʻaoʻao haʻahaʻa o kou puʻu. Hiki ke hana ʻia kahi hoʻāʻo i kapa ʻia he laryngoscopy e nānā i ka pahu leo ​​(larynx).
• Hoʻāʻo Biopsy (`(Biopsy)`):Hiki i ke kauka ke kauoha i kahi ʻomi nila maikaʻi (FNA) e lawe i kahi laʻana o nā ʻiʻo. A laila e nānā ʻia kēia laʻana ʻiʻo ma lalo o kahi microscope e kahi pathologist e nānā i nā hunaola kanesa.
• Nā hoʻāʻo kiʻi: Inā hōʻoia ka biopsy ua loaʻa iā ʻoe ka maʻi ʻaʻai hypopharyngeal, e kuhikuhi aku kāu loea ENT iā ʻoe i kahi oncologist. Hiki iā ia ke kauoha i nā hoʻāʻo kiʻi e ʻike inā ua pālahalaha ke kanesa mai ka ʻaoʻao haʻahaʻa o ka puʻu i nā ʻāpana ʻē aʻe o ke kino. Hiki i kēia ke komo pū me kahi CT scan (Computed Tomography), MRI scan (Magnetic Resonance Imaging), a i ʻole PET scan (Positron Emission Tomography).

E aʻo pū kākou e pili ana i ke kahua a me ka nui o ke kanesa.

ʻO ke ana ʻana i ke kanesa he ala ia no nā kauka oncology e kamaʻilio kikoʻī e pili ana i ke kanesa. Eia kekahi laʻana, kahi o ka puʻupuʻu, inā ua pālahalaha, a inā pēlā, ma hea, a inā paha ua pālahalaha ke kanesa i nā ʻāpana ʻē aʻe o ke kino.

ʻO nā pae o ke kanesa hypopharyngeal mai ka Pae I - i ka wā e paʻa ai ke kanesa i ka ʻaoʻao haʻahaʻa o ka puʻu a ʻaʻole i pālahalaha - a hiki i ka Pae IV. ʻO ka Pae IV ka wā e pālahalaha ai ke kanesa i nā ʻāpana ʻē aʻe o ka puʻu a me ka waha, ke kua o ka ihu (nasopharynx), ke kumu o ke poʻo, a me ka uhi o ka lua umauma.

Hoʻokaʻawale ʻia hoʻi ke kanesa hypopharyngeal e ke ʻano. ʻO ke ʻano o kahi kanesa e hiki ai i nā oncologists ke wānana i ka wikiwiki o ka laha ʻana o ke kanesa. Loaʻa kēia mau ʻano mai GX (he haʻahaʻa ka manawa e laha ai ke kanesa) a i G3 (he mea hiki loa ke laha ke kanesa).

He aha nā lāʻau lapaʻau no kēia?

ʻO ka lāʻau lapaʻau maʻamau ka ʻoki ʻana e wehe i ka puʻupuʻu a me ka radiation therapy e pepehi i nā hunaola kanesa i koe. Hiki i kāu oncologist ke hoʻohui pū i ke ʻoki ʻana me ka chemotherapy a i ʻole immunotherapy.

Eia kekahi mau koho ʻoki no ke kanesa hypopharyngeal:

• ʻO ka pharyngectomy hapa a piha paha: Wehe kēia ʻoki kino i kou puʻu a pau a i ʻole kekahi hapa. Hiki ke komo pū kekahi i kahi ʻoki kino i kapa ʻia he laryngectomy, kahi e wehe ai i ka pahu leo ​​(larynx). No ka mea e kōkua kou puʻu iā ʻoe e hanu, hana ʻia kahi stoma, a i ʻole ka puka ʻana, ma hope o ke ʻoki kino i hiki ai ke hoʻokomo ʻia kahi paipu laryngectomy. E hanu ʻoe ma o kēia paipu ma hope o ke ʻoki kino.
• ʻOki ʻana i ka Laryngectomy (`(Laryngectomy)`):Inā loaʻa iā ʻoe kahi laryngectomy, hiki i kāu kauka lapaʻau ke hana i kahi lua liʻiliʻi (tracheoesophageal puncture - TEP) ma waena o kou windpipe (trachea) a me kou esophagus (oesophagus). Maanei kahi e hoʻokomo ʻia ai kahi prosthesis leo (laryngectomy speaking device).
• ʻO ka dissection ʻāʻī: Hiki i ke kauka lapaʻau ke hana i kēia e wehe i nā lymph nodes i hoʻopilikia ʻia i ka ʻāʻī.
• ʻO ke ʻoki robotic Transoral (TORS): ʻAe kēia ʻoki i nā kauka lapaʻau e wehe i nā ʻōpū kanesa ma nā wahi paʻakikī ke hiki aku, e like me ka ʻaoʻao haʻahaʻa o ka puʻu.
• ʻO ke ʻoki hana hou: Ma hope o ke ʻoki ʻana e wehe i kahi āpau a i ʻole kekahi hapa o ka puʻu a i ʻole ka pahu leo, pono paha ke ʻoki hana hou e hoʻihoʻi i nā hana e like me ka ʻai ʻana, ka hanu ʻana, a me ka hiki ke hoʻohana i kahi mea leo.

Hiki i ke ʻoki kino no ka maʻi ʻaʻai puʻu ke hoʻopilikia i kou hiki ke ʻōlelo, ʻai, a hanu. Ma mua o ke ʻoki kino, e nīnau i kāu kauka ʻoki kino pehea e hoʻopilikia ai ka lāʻau iā ʻoe. No ka laʻana, hiki iā ʻoe ke hana pū me kahi pathologist ʻōlelo-ʻōlelo (Speech-language pathologist) e aʻo i nā ala e hoʻokele ai i kekahi mau pilikia ʻōlelo a ale paha e kū mai ana mai ke ʻoki kino.

Aia kekahi ala e pale aku ai i kēia maʻi kanesa?

ʻOiai ʻaʻole hiki ke pale loa ʻia, aia kekahi mau mea hiki iā ʻoe ke hana e hōʻemi i kou pilikia o ka loaʻa ʻana o ka maʻi ʻaʻai hypopharyngeal:

• Ke haʻalele loa nei i ka hoʻohana ʻana i ka paka a me ka pale ʻana i ka uahi lua.
• Ke ho'ōki nei i ka hoʻohana ʻana i ka waiʻona a i ʻole ka palena ʻana i ka nui o kāu mea e inu ai.
• E pale iā ʻoe iho mai ka maʻi HPV ma ka loaʻa ʻana o ka lāʻau pale kūʻē i ka maʻi HPV a me ka hana ʻana i ka moekolohe palekana.

He aha kaʻu e manaʻo ai inā loaʻa iaʻu kēia maʻi?

Hiki i ke kanesa hypopharyngeal ke hoʻi hou mai (recur) ma hope o ka mālama ʻana. Hoʻonui pū kēia i ka pilikia o ka hoʻomohala ʻana i kahi ʻano kanesa hou ma nā wahi ʻē aʻe o ke kino. Ua kapa ʻia kēia e nā kauka he "maʻi kanesa lua."

No laila, pono ʻoe e loaʻa nā manawa hoʻopaʻa maʻamau e kōkua i kāu hui mālama maʻi kanesa e nānā i kou olakino holoʻokoʻa a nānā i nā hōʻailona o ka hoʻi hou ʻana, ka laha ʻana (metastatic) ka maʻi kanesa hypopharyngeal, a i ʻole ka lua o ka maʻi kanesa. Hiki i kēia hana hoʻopaʻa ke komo pū me nā hoʻokolohua kiʻi a me nā hoʻokolohua kino. Hiki ke hoʻonohonoho ʻia kēia mau manawa penei:

• I kēlā me kēia ʻelua mahina no ka makahiki mua ma hope o ka mālama ʻana.
• I kēlā me kēia ʻehā mahina i ka makahiki ʻelua .
• I kēlā me kēia ʻeono mahina i ka makahiki ʻekolu .
• Hoʻokahi manawa i ka makahiki ma ka makahiki ʻehā a me ka ʻelima .
• I kekahi mau hihia, hiki i kāu hui mālama maʻi kanesa ke ʻōlelo i ka hahai ʻana i ke ola holoʻokoʻa .

He aha nā helu ola?

I ka noʻonoʻo ʻana i nā helu ola, he mea nui e hoʻomanaʻo he mau kuhi wale nō kēia e pili ana i nā ʻike o nā poʻe ʻē aʻe i loaʻa i ka maʻi ʻaʻai hypopharyngeal. ʻOkoʻa loa kēia mau helu ma muli o ka loaʻa ʻana o ke kanesa ma kahi like i hoʻomaka mua ʻia ai, ua pālahalaha i nā ʻiʻo kokoke a me nā lymph node ('regional'), a i ʻole ua pālahalaha i nā ʻāpana ʻē aʻe o ke kino ('mamao').

Eia kekahi, hiki ke ʻokoʻa kēia mau helu ma muli o kou olakino holoʻokoʻa a me nā kumu ʻē aʻe. E noi i kāu kauka oncology e wehewehe pehea e pili ai kēia mau helu ola i kou kūlana. Ua ʻike ʻo ia iā ʻoe a me kou olakino holoʻokoʻa, no laila ʻo ia ke kumu ʻike maikaʻi loa.

Hiki ke ho'ōla loa ʻia kēia?

I kekahi mau hihia, hiki ke ho'ōla ʻia ke kanesa hypopharyngeal me ke ʻoki ʻana a me nā lāʻau lapaʻau ʻē aʻe. ʻOi aku ka maʻalahi o kēia hana inā ʻoi aku ka liʻiliʻi o ka puʻupuʻu ma mua o 2 kenimika a ʻaʻole i pālahalaha. Eia naʻe, ʻo ka mea kaumaha, ua ʻike ʻia ka nui o ka poʻe me kēia kanesa i ka wā e holomua ai ka maʻi.

Pehea wau e mālama ai iaʻu iho?

Inā ua hana ʻia ʻoe i ke ʻoki ʻāʻī, pono ʻoe e aʻo i nā ala hou e hanu ai a ʻōlelo ai. Hiki ke lilo i hoʻololi nui e hoʻokele ai. No laila, mai kānalua e noi i kāu kauka ʻōlelo no ke kōkua. Loaʻa paha iā lākou nā manaʻo no nā hui kākoʻo no ka poʻe e hoʻōla ana mai ke ʻoki ʻāʻī.

Eia kekahi mau ala ʻē aʻe e hiki ai iā ʻoe ke mālama iā ʻoe iho:

• E noʻonoʻo e pili ana i ke ola ʻana i ke kanesa. Hiki ke hoʻi hou mai ke kanesa hypopharyngeal, a i ʻole hiki ke ulu mai kahi kanesa ʻelua. Hiki iā ʻoe ke hopohopo no ka wā e hiki mai ana. Nui nā papahana hoʻōla kanesa e komo pū ana me ke kākoʻo olakino noʻonoʻo.
• E hoʻomau i ka pale ʻana i ka hoʻohana ʻana i ka paka a e kaupalena i kāu inu ʻana i ka waiʻona.
• ʻAi maikaʻi. Hiki i ke ʻoki ʻāʻī ke hoʻopilikia i kou hiki ke ʻai a inu. E kūkākūkā me kahi meaʻai meaʻai (he loea meaʻai) no nā hoʻolālā pāʻina a me nā ʻōlelo aʻoaʻo. E nīnau i kāu mea lapaʻau ʻōlelo a me ka ʻōlelo e pili ana i nā ala e hoʻokele ai i nā pilikia e hoʻopilikia paha i ka ʻai maikaʻi ʻana.

Āhea wau e ʻike ai i ke kauka?

Aia maoli nō ia i kou kūlana a me ka mālama ʻana. E nīnau i kāu hui mālama maʻi kanesa i nā hōʻailona a i ʻole nā ​​​​pilikia āu e manaʻo ai, a i ka wā e pono ai ʻoe e hoʻokaʻaʻike aku iā lākou.

He aha nā nīnau e pono iaʻu e nīnau aku i ka oncologist?

Ke ʻike ʻoe i kāu kauka, he mea nui loa e nīnau i nā nīnau e like me kēia:

• He aha ke kahua o koʻu maʻi kanesa?
• He aha nā koho lapaʻau āu e paipai nei?
• Inā hana ʻia ke ʻoki kino iaʻu, he aha nā papahana kākoʻo e loaʻa ana e kōkua iaʻu e hoʻoponopono i nā loli e hiki ke hana ʻia?
• Pehea e pili ai ka lāʻau lapaʻau i koʻu ola maikaʻi?
• Aia kekahi mau hoʻokolohua lapaʻau e kūpono iaʻu?

Nā mea e hoʻomanaʻo ai i ka hōʻuluʻulu manaʻo

He maʻi hoʻoweliweli ola ka maʻi ʻaʻai hypopharyngeal. ʻO ka mea pōʻino, ʻike pinepine ʻia ma hope o ka laha ʻana o ke kanesa. I kēia hihia, pono paha ʻoe e hana i ke ʻoki kino nui a laila e hana i nā hoʻololi nui o ke ʻano o ka nohona a ma lalo o ka nānā ʻana o ke kauka no ke koena o kou ola.

Inā loaʻa iā ʻoe kēia maʻi kanesa, e hauʻoli ʻoe i ka ʻike ʻana ua hoʻolaʻa ʻia nā mea a pau o kāu hui mālama maʻi kanesa e kōkua iā ʻoe. E kōkua lākou iā ʻoe e hoʻomaopopo i kāu hōʻailona a me nā koho lapaʻau. E kākoʻo pū lākou iā ʻoe i kou aʻo ʻana e ola me nā loli e hiki ai i ka lāʻau lapaʻau ke lawe mai. Mai kānalua e noi i kā lākou kōkua. ʻOi aku ka maikaʻi o ka ʻimi ʻana i ka ʻōlelo aʻoaʻo lapaʻau inā loaʻa iā ʻoe ka ʻeha o ka puʻu, ka paʻakikī i ka moni ʻana, a i ʻole kahi loli i kou leo ​​​​e mau ana ma mua o ʻelua pule.