ʻO ka ʻulaʻula pepeke ma ka maka: E aʻo kākou e pili ana i ka Acute Cutaneous Lupus (ACLE) ma nā huaʻōlelo maʻalahi

Ua loaʻa anei iā ʻoe kahi ʻulaʻula e like me nā ʻēheu o ka pulelehua, a i ʻole he ʻulaʻula ma kou mau papālina a me kou ihu? Manaʻo ka poʻe he nui he ʻā ʻana o ka lā a he maʻi allergy paha. Akā i kekahi manawa hiki ke lilo i hōʻailona o kahi mea ʻoi aku ka koʻikoʻi. I kēia lā ke kamaʻilio nei mākou e pili ana i ka 'Acute Cutaneous Lupus', kahi ʻano lupus e hoʻopilikia ana i ka ʻili a loaʻa iā ia kēia mau hōʻailona.

ʻO ka mea mua, e nānā kākou, he aha ʻo Lupus?

I ka ʻōlelo maʻalahi, he maʻi autoimmune ka lupus. E Pāpā, he mea paʻakikī iki anei kēlā? ʻAe, e wehewehe wau. E noʻonoʻo he ʻōnaehana pale ko ko kākou kino. Kāhea mākou iā ia he ʻōnaehana pale. ʻO kā lākou hana ka ʻike a hoʻouka i nā ʻenemi e like me nā germs, viruses, a me nā bacteria e komo i loko o ke kino mai waho, a pale iā mākou mai nā maʻi.

Akā, i loko o ke kanaka me ka maʻi autoimmune e like me lupus, hewa kekahi mea. Hana hewa kēlā ʻōnaehana pale a ʻaʻole hiki ke ʻike i ka ʻokoʻa ma waena o nā mea komo hewa mai nā ʻāina ʻē a me ko kākou mau ʻāpana olakino a me nā ʻiʻo. No laila, hoʻomaka lākou e hoʻouka i ko kākou mau ʻāpana olakino ponoʻī. Hiki i kēia ke hana i ka pehu ʻana, ka ʻeha, a me ka hōʻino ʻana ma nā ʻāpana like ʻole o ke kino.

ʻO ke ʻano lupus maʻamau a maʻamau loa ʻo ia ka Systemic Lupus Erythematosus (SLE) . I kēia kūlana, ʻaʻole i kaupalena ʻia ka hoʻouka kaua autoimmune i ka ʻili. Hiki iā ia ke hoʻopilikia i nā ʻōpū kūloko e like me nā puʻupaʻa, ka puʻuwai, nā māmā, a me nā hono. Ma kahi o ʻekolu o kēlā me kēia ʻehā o ka poʻe me ka lupus i loaʻa i kēia kūlana.

No laila he aha ka lupus ʻili?

ʻO ke ʻano o ka huaʻōlelo 'cutaneous' ʻo ia hoʻi "pili i ka ʻili." ʻO Cutaneous Lupus Erythematosus (CLE) kahi maʻi e hoʻopilikia nui ai ka lupus i ka ʻili. ʻO kēia ka manawa e hoʻouka pololei ai ka ʻōnaehana pale i nā ʻili o ka ʻili. Hoʻokumu kēia i nā ʻano kiko like ʻole, nā ʻeha, a me nā ʻeha ma ka ʻili.

ʻO ka Acute Cutaneous Lupus (ACLE) kahi ʻano lupus ʻili. ʻO ke ʻano o 'Acute' ʻo ia hoʻi "e hiki koke mai ana." No laila, ʻo ka mea e hana ʻia ma kēia hihia, ʻo ia ka ʻike koke ʻia ʻana o nā hōʻailona, ​​ʻoiai ka ʻulaʻula o ka pepeke. ʻO ka hapa nui o ka manawa, hana ʻia kēia ma hope o ka hōʻike ʻana i ka lā.

ʻO ka mea nui, he nui ka poʻe me ACLE i loaʻa i kēia mau hōʻailona ʻili me ke ʻano systemic lupus erythematosus (SLE) a mākou i kamaʻilio ai ma mua. ʻO ke ʻano kēia he pilina ikaika ma waena o nā mea ʻelua.

He aha nā ʻano o ka lupus ʻili?

ʻEkolu mau ʻano nui o ka lupus e hoʻopilikia ai i ka ʻili. He ʻokoʻa ka ʻōhū o kēlā me kēia ʻano. No ka hoʻomaopopo pono ʻana i kēia, e nānā i ka papa ma lalo.

ʻO wai ka mea i ʻoi aku ka paʻakikī ke loaʻa i kēia maʻi ACLE?

ʻAʻole i ʻike ʻia ke kumu kikoʻī o ka lupus, akā ua ʻike ʻia kekahi poʻe he kiʻekiʻe aʻe ka pilikia.

• Nā kumu hoʻoilina: Inā loaʻa i kekahi o kou ʻohana ka lupus a i ʻole nā ​​​​maʻi autoimmune ʻē aʻe, hiki paha iā ʻoe ke pilikia.
• Kāne: ʻO ka mea kupanaha, ʻoi aku ka maʻamau o kēia maʻi i waena o nā wahine.
• Makahiki: ʻIke pinepine ʻia i waena o nā wahine ma waena o 20 a me 50 mau makahiki.
• Lāhui: ʻOi aku ka maʻamau o kēia maʻi i waena o kekahi mau hui lāhui, no ka laʻana, ka poʻe o ʻApelika a me ʻAsia.

Ma kahi o ʻelua hapakolu o ka poʻe me SLE e loaʻa nā hōʻailona ʻili, me ACLE. Ua ʻike mua ʻia kekahi poʻe me ka lupus ma hope o ka puka ʻana o kēia ʻulaʻula pepeke.

He aha nā hōʻailona o ka ACLE?

ʻO ka hōʻailona nui a maopopo loa, ʻo ia ka ʻūlū pepeke a mākou i kamaʻilio ai. Ua kapa ʻia kēia ma ke ʻano lapaʻau he 'malar rash'. ʻO 'Malar' ke ʻano o ka papālina. ʻOiai ke ʻano like me ka lā wela o ka lā, ʻaʻole ia he ʻeha. Eia nō naʻe, i kekahi manawa hiki ke ʻā iki.

ʻO ka mea maikaʻi e pili ana i kēia ʻōhū, ʻaʻole ia e waiho i nā ʻōpala i ka hala ʻana o ka manawa. Eia nō naʻe, ma hope o ka ho'ōla ʻana o ka ʻōhū, ʻoi aku ka māmā a ʻeleʻele paha o ke kala o ka ʻili ma ia mau wahi ma mua o ka wā ma mua.

Ma waho aʻe o ka ʻulaʻula butterfly, hiki ke ʻike ʻia nā hōʻailona ʻē aʻe.

• Nā ʻulaʻula ma nā lima a me nā wāwae ma hope o ka hele ʻana i ka lā.
• Nā ʻeha ʻeha i loko o ka waha (nā ʻeha Canker).
• Nā pehu ʻeha a piʻi aʻe ma ka ʻili (hives).
• Ka nalowale o ka lauoho no ka manawa pōkole.

He aha kēia "puhi ʻana"?

ʻAʻole loaʻa i ke kanaka me ACLE nā hōʻailona i nā manawa a pau. Aia kahi pōʻaiapuni o nā hōʻailona e ʻike ʻia, e emi ana no kekahi manawa, a laila e ʻike hou ʻia. ʻO kēia piʻi koke ʻana o nā hōʻailona ka mea a mākou e kapa nei he "flare-up."

Aia kekahi mau kumu kikoʻī, a i ʻole 'nā mea hoʻoulu', e hoʻoulu ai i kēia mau lapalapa.

• Lā (nā kukuna UV): ʻO kēia ke kumu nui. ʻO ia ke kumu e ʻoi aku ai ka ʻino o ka ʻulaʻula ke hele ʻoe i waho i ka lā.
• Kaumaha: ʻO nā mea e like me ke kaomi nui a me ka hopohopo hiki ke hoʻonui i ka maʻi.
• Kekahi mau maʻi lele.
• ʻAʻole lawa ka hiamoe.

Pehea e ʻike ai i kēia maʻi?

Inā loaʻa iā ʻoe kēia mau hōʻailona, ​​ʻo ka mea mua āu e hana ai, ʻo ia ke ʻike i kāu kauka ʻohana. E kuhikuhi ʻo ia iā ʻoe i kahi kauka ʻili a i ʻole he kauka rheumatologist, inā pono.

E nānā kāu kauka i kou ʻili. I kekahi manawa , pono paha kahi biopsy ʻili e hana i kahi hōʻoia paʻa . Pili kēia i ka lawe ʻana i kahi ʻāpana ʻili liʻiliʻi mai kahi i loaʻa ai ka ʻulaʻula a nānā iā ia ma lalo o kahi microscope. Hiki i kēia ke kōkua i ka hoʻoholo ʻana inā ua hana ʻia ka ʻulaʻula e ACLE a i ʻole kekahi maʻi ʻili ʻē aʻe.

He aha nā lāʻau lapaʻau?

ʻAʻole hiki ke ho'ōla piha ʻia ka ACLE. Eia nō naʻe, hiki ke hoʻomalu maikaʻi ʻia nā hōʻailona a me nā ʻōhū me ka mālama pono ʻana. Na kāu kauka e kuhikuhi i ka lāʻau kūpono nou ma muli o ke koʻikoʻi o kāu mau hōʻailona.

• ʻO nā ʻaila steroid topical: ʻO kēia nā lāʻau lapaʻau i hoʻopili ʻia i ka ʻili kahi i loaʻa ai ka ʻulaʻula. No ka laʻana, fluocinolone acetonide a hydrocortisone butyrate paha. Hoʻemi kēia i ka pehu a me ka ʻulaʻula.
• Nā lāʻau lapaʻau anti-inflammatory: Hiki i nā lāʻau lapaʻau e like me dapsone a i ʻole methotrexate haʻahaʻa ke hōʻemi i ka ʻeha a me ka pehu.
• Nā lāʻau lapaʻau antimalarial: He kūpono loa nā lāʻau lapaʻau e like me ka hydroxychloroquine (Plaquenil®) i ka mālama ʻana i ka malaria. Hoʻemi lākou i ka luhi, ka ʻulaʻula, a me ka ʻeha o nā hono.
• Nā lāʻau hoʻomalu i ka pale ʻana i ka maʻi (nā mea hoʻopale Calcineurin): ʻO nā lāʻau e like me tacrolimus a i ʻole pimecrolimus ke kaohi i ka hana o ka ʻōnaehana pale i kekahi ʻano, e hōʻemi ana i kona hoʻouka ʻana ma ka ʻili.

He mea nui: Pono e hoʻohana ʻia kēia mau lāʻau lapaʻau a pau e like me ke kauoha a kāu kauka. ʻAʻole loa ʻoe e hoʻomaka a hoʻōki paha i ka lawe ʻana i kēia mau lāʻau lapaʻau ma kāu iho.

Pehea e pale aku ai i ka hoʻāla ʻana o nā maʻi?

ʻO ka mea nui e like me ka lawe ʻana i ka lāʻau lapaʻau, ʻo ia ka pale ʻana i nā mea hoʻoulu e hiki ai ke hoʻoulu i ka huhū. Ma waena o 40% a me 70% o ka poʻe me ka lupus e ʻike i ka huhū ma hope o ka hōʻike ʻana i ka mālamalama UV, no laila ʻo ka pale ʻana i ka lā ka mea mua.

• E hoʻohana i ka sunscreen i kēlā me kēia lā ke hele ʻoe i waho i ka lā. E koho i kahi sunscreen ākea me ka liʻiliʻi SPF 30 a ʻoi aku paha e pale aku ai i nā kukuna UVA a me UVB.
• E pale i nā hola wela loa o ka lā. E pale i ka hele ʻana i waho i ka lā i ka hiki ma waena o 10 am a me 4 pm.
• E ʻaʻahu i nā lole e uhi pono iā ʻoe. E hoʻohana i nā mea e like me nā lima lōʻihi, nā pāpale ākea, a me nā aniani maka.
• E hōʻalo loa i nā kumu kukui UV artificial e like me nā moena tanning .
• Hiki i kekahi mau kukui fluorescent i hoʻohana ʻia i loko o ka hale ke hoʻopuka i nā kukuna UV liʻiliʻi. No laila, e hoʻēmi i ka hoʻohana lōʻihi ʻana iā lākou.

He aha hou aʻe kāu e hana ai ma waho aʻe o ka pale ʻana iā ʻoe iho mai ka lā?

• E ʻai i ka meaʻai momona. E hoʻokomo i nā huaʻai, nā mea kanu, nā legume, a me nā palaoa piha i kāu papaʻai.
• Hoʻoikaika kino. E hana i nā hoʻoikaika kino palupalu, e like me ka hele wāwae a i ʻole ka yoga, i kēlā me kēia lā.
• E hoʻokele i ke kaumaha. E hoʻomaha i kou noʻonoʻo ma ke ʻano kūpono iā ʻoe, e like me ka noʻonoʻo ʻana a i ʻole ka hoʻolohe ʻana i ke mele.
• Moe maikaʻi. E hiamoe ma ka liʻiliʻi he 7-8 mau hola i ka lā.
• Inā ʻoe e puhipaka, e hoʻōki koke. Hiki i ka puhipaka ke hoʻonui i ka ʻili a hōʻemi i ka pono o nā lāʻau lapaʻau.