Ke nalowale koke nei nā lālā o ke keiki? E aʻo kākou e pili ana i kēia maʻi laha ʻole (Acute Flaccid Myelitis)

E noʻonoʻo i kāu keiki liʻiliʻi e holo ana a pāʻani ana, a laila ua like koke kekahi o ko lākou mau lima a i ʻole nā ​​wāwae me he mea lā ua lolo. A i ʻole ua nāwaliwali loa ko lākou mau lālā a ʻaʻole hiki iā lākou ke kū pololei. ʻO ka ʻike ʻana i kahi mea e like me kēia e hopohopo ai kekahi makua. I kēia lā e kamaʻilio mākou e pili ana i kahi maʻi neurological kakaʻikahi akā koʻikoʻi loa e hiki ke hiki koke mai. ʻO kēia ka Acute Flaccid Myelitis, a i ʻole AFM no ka pōkole.

He aha ka Acute Flaccid Myelitis (AFM)?

I ka ʻōlelo maʻalahi, he maʻi koʻikoʻi ka AFM e hoʻopilikia ai i kā mākou ʻōnaehana nerve. Hoʻoulu ia i ka mumū, a i ʻole ka pehu ʻana, i loko o ka hina hina o ko mākou kaula iwi kuamoʻo.

I kēia manawa, ke noʻonoʻo nei paha ʻoe i ke ʻano o kēia mea hina. E noʻonoʻo i ko kākou kino e like me ke kaapuni uila paʻakikī. ʻO ka lolo a me ke kaula kuamoʻo ke keʻena hoʻomalu nui o kēia. ʻO ka mea hina i loko o kēia keʻena hoʻomalu kahi nui e hoʻouna ai i nā hōʻailona e kāohi i ka neʻe ʻana o ko kākou mau ʻiʻo. No laila, i ka wā e hōʻino ʻia ai kēia wahi koʻikoʻi ma AFM, ʻaʻole hele pono nā hōʻailona i hoʻouna ʻia mai ka lolo i nā ʻiʻo. ʻO ka hopena, lilo koke nā lālā i nāwaliwali, mae, a nalowale nā ​​​​reflexes.

He maʻi hou kēia. Ua ʻike nā kauka he maʻi ʻokoʻa ia i ka makahiki 2014. Ma mua o kēlā, i ka wā i ʻike ʻia ai nā hōʻailona e like me kēia, ua manaʻo nā kauka he maʻi neurological ʻē aʻe ia e like me ka "transverse myelitis".

He aha ka ʻokoʻa ma waena o ka AFM a me ka Guillain-Barré Syndrome (GBS)?

ʻO kekahi maʻi a ka poʻe he nui e huikau ai me ka AFM ʻo ia ka 'Guillain-Barré Syndrome' (GBS no ka pōkole). ʻO ka hōʻailona nui o kēia mau maʻi ʻelua ka nāwaliwali o nā ʻiʻo. Akā, he ʻokoʻa loa nā mea ʻelua. E nānā kākou i kēlā mau ʻokoʻa.

E noʻonoʻo e like ko kākou ʻōnaehana nerve me kahi pūnaewele e hoʻolaha ana i ka uila ma ka ʻāina holoʻokoʻa.

• I loko o AFM, hiki mai ka pōʻino i: ka hale mana nui o kēia pūnaewele, ka mea hina i loko o ke kaula kuamoʻo. Ke hōʻino ʻia ka hale mana ponoʻī, ʻaʻole hiki iā ia ke hana a hoʻouna i ka uila.
• Nā pōʻino GBS: ʻO nā uea e lawe ana i ka uila mai ka hale hana mana i nā hale. Kāhea mākou i kēia mau aʻalolo peripheral. Ke hōʻino ʻia nā uea, ʻoiai ua hoʻouna ʻia ka uila mai ka hale hana mana, ʻaʻole ia e hōʻea pono i nā hale.

I ka ʻōlelo maʻalahi, he pilikia ka AFM o ka ʻōnaehana nerve waena . He pilikia ka GBS o ka ʻōnaehana nerve peripheral .

Aia kekahi ʻokoʻa i ke ʻano o ka laha ʻana o kēia mau hōʻailona.

• I ka GBS: Hoʻomaka ka nāwaliwali ma nā wāwae a laila neʻe mālie i luna o ke kino.
• Ma AFM: Hiki ke hoʻomaka ka nāwaliwali ma nā wahi āpau, ma ka lima hoʻokahi, a i ʻole ma nā wāwae ʻelua.

ʻO kekahi mea nui ʻo ia ka hui makahiki i loaʻa pinepine ai kēia maʻi. 90% o nā maʻi AFM he mau keiki ʻōpio ma waena o 1 a me 7 mau makahiki. Eia nō naʻe, ʻaʻole hiki ke loaʻa pinepine i nā pākeke. Eia nō naʻe, ʻike pinepine ʻia ka GBS i nā pākeke ma luna o 40 mau makahiki.

Pehea ka maʻamau o kēia maʻi? ʻO wai ka mea e loaʻa pinepine ai?

He maʻi laha ʻole ka AFM. ʻOiai ma kahi ʻāina e like me ʻAmelika Hui Pū ʻIa, ua manaʻo ʻia he emi ma mua o hoʻokahi i loko o hoʻokahi miliona mau kānaka e loaʻa ana i ka maʻi i kēlā me kēia makahiki. Eia nō naʻe, ua piʻi iki ka nui o nā hihia i hōʻike ʻia i kēia manawa.

E like me kā mākou i ʻōlelo ai ma mua, ʻoi aku ka maʻamau o kēia maʻi i nā keiki ʻōpio . ʻOi aku ka pilikia o nā keiki ma lalo o 7 mau makahiki. No ka mea hiki ke hana kēia i nā keiki, he mea nui iā mākou ma ke ʻano he mau mākua ke makaʻala i kēia.

He aha nā hōʻailona o AFM?

ʻO ka mea weliweli loa e pili ana i kēia maʻi, ʻo ia ka hiki koke ʻana mai o nā hōʻailona. Hiki ke ʻike ʻia kēia mau hōʻailona i loko o kekahi mau hola a i ʻole kekahi mau lā. Inā loaʻa i kāu keiki kēia mau hōʻailona, ​​mai hoʻowahāwahā iā lākou.

He aha ke kumu o kēia?

ʻO kēia ka nīnau a nā kauka i hiki ʻole ke hoʻomaopopo. ʻAʻole mākou i maopopo 100% i ke kumu pololei o AFM.

Eia nō naʻe, manaʻo ka nui o nā kānaka noiʻi a me nā kauka he ʻano maʻi ko lākou . Aia kekahi manaʻo nui e pili ana paha nā maʻi i loko o ka hui 'non-polio enteroviruses' i ke kumu.

E hoʻomanaʻo, ma mua o ka puka ʻana o nā hōʻailona AFM, he nui nā keiki i loaʻa i ka maʻi hanu, e like me ke anu maʻamau, ke kuni, a me ke kuni . Hoʻonui hou kēia i ke kānalua he pilina viral. ʻOi aku, ua ʻike ʻia nā virus 'Enterovirus D68' a me 'Enterovirus A71' i nā poʻe maʻi AFM he nui.

Pehea e ʻike pololei ai ke kauka i kēia maʻi?

He mea paʻakikī ka ʻike ʻana i ka AFM no ka mea he mea kakaikahi ia a he like loa nā hōʻailona me nā maʻi neurological ʻē aʻe e like me GBS, transverse myelitis, a me ka polio, a mākou i kūkākūkā ai ma mua.

No laila, pono ke kauka e hana i kekahi mau hoʻokolohua e hōʻoia inā he AFM kēia a i ʻole kekahi maʻi ʻē aʻe.

• Ka hoʻokolokolo kino a me ka hoʻokolokolo neurological: ʻO ka mea mua, e nānā pono ke kauka i ke keiki. E nānā lākou no ka nāwaliwali o nā lālā, ke kūlana o nā ʻiʻo, a pehea hoʻi nā reflexes.
• MRI scan: ʻO kēia ka hoʻāʻo koʻikoʻi a pono loa no ka ʻike ʻana i ka AFM. Hiki i kahi MRI scan o ka lolo a me ke kaula kuamoʻo ke hōʻike maopopo i nā loli, e like me ka mumū, i ʻano o AFM i loko o ka mea hina o ke kaula kuamoʻo.
• Spinal Tap/Lumbar Puncture: ʻO kēia ke komo ʻana i kahi nila liʻiliʻi i loko o ke kua haʻahaʻa a wehe i kahi wai liʻiliʻi a puni ke kaula spinal (cerebral spinal fluid - CSF). Hiki ke hoʻāʻo ʻia kēia wai e ʻike inā he maʻi a mumū paha.
• Ke hoʻāʻo ʻana i ka hana aʻalolo a me nā ʻiʻo: Hiki ke hana ʻia nā hoʻokolohua kūikawā, e like me nā haʻawina hoʻoili aʻalolo, e ana i ka wikiwiki o ka hele ʻana o nā hōʻailona ma o nā aʻalolo, a me ka electromyography, e ana i ka hana uila o nā ʻiʻo.

Hiki ke kauka i kahi hopena hope loa ma ka hoʻohui ʻana i ka ʻike i loaʻa mai kēia mau hoʻokolohua a pau.

Aia kekahi lāʻau lapaʻau no AFM?

ʻO ka mea pōʻino, ʻaʻohe lāʻau lapaʻau paʻa e hiki ke ho'ōla loa i ka AFM. No ka mea he maʻi hou ia, ke noiʻi nei nā kauka a me nā ʻepekema i ka lāʻau lapaʻau maikaʻi loa no ia.

No laila, ʻo ka pahuhopu nui o ka lāʻau lapaʻau, ʻo ia ke kāohi i nā hōʻailona a kōkua i ke keiki e hoʻōla i ka maikaʻi loa.

• Hoʻōla Kino a me ka Hoʻōla Hana: He ʻāpana koʻikoʻi kēia o ka lāʻau lapaʻau. Kōkua kēia mau hoʻōla i ka hoʻoikaika kino ʻana i nā lālā nāwaliwali, kūkulu hou i ka ikaika o nā ʻiʻo, a hoʻomaʻamaʻa i ke keiki e hana i nā hana me ke kūʻokoʻa.
• Nā lāʻau lapaʻau ʻē aʻe: I kekahi mau hihia, ua hōʻike ʻia nā mea e like me ke ʻoki ʻana i ke aʻalolo peripheral e kūleʻa i ka pale ʻana i ka hoʻopau ʻana o nā ʻiʻo. Eia nō naʻe, e hoʻoholo kekahi neurologist inā kūpono kēia mau mea no kēlā me kēia maʻi.

Inā hiki, ʻoi aku ka maikaʻi o ka ʻimi ʻana i ka lāʻau lapaʻau ma lalo o kahi neurologist i ʻike i kēia maʻi.

He aha ka wānana o ka maʻi a me nā pilikia e hiki mai ana?

No ka mea he maʻi hou ka AFM, ʻaʻole hiki i nā kānaka noiʻi ke ʻōlelo pololei i nā hopena lōʻihi ke hiki mai. Akā ma muli o ka mea i ʻike ʻia, hiki ke ʻokoʻa loa nā hopena mai kēlā kanaka a kēia kanaka.

• Hoʻōla lohi: Nui nā keiki, me ka mālama mau ʻana e like me ka hoʻōla kino, hoʻōla mālie i kekahi ʻano i ka hala ʻana o ka manawa. Piʻi mālie ka ikaika o nā ʻiʻo.
• Hoʻōla piha: ʻAʻole i hiki i ka 10% o nā maʻi AFM ke hoʻōla piha. Hiki i ka poʻe he nui ke hoʻomau i kekahi ʻano nāwaliwali.

Nā pilikia koʻikoʻi hiki ke loaʻa

• Ka Holo ʻole ʻana o ka Hanu: ʻO kēia ka pilikia weliweli loa a mākou i kūkākūkā ai ma mua. Inā nāwaliwali nā ʻiʻo e kōkua ana i ka hanu ʻana, ʻaʻole hiki i ka mea maʻi ke hanu iā lākou iho. I kēlā manawa, pono lākou e hoʻopili ʻia i kahi ventilator. Loaʻa kēia ʻano ma kahi o ka hapakolu o nā poʻe maʻi AFM.
• Nā pilikia neurological ʻē aʻe:Aia kahi hiki ke loaʻa nā pilikia koʻikoʻi e hoʻoweliweli ana i ke ola, e like me nā loli maʻamau ʻole i ka mahana o ke kino a me ke koko, a me ka puʻuwai puʻuwai kūpono ʻole.

Aia kekahi ala e pale aku ai i kēia?

ʻOiai ʻaʻole ʻike ʻia ke kumu kikoʻī o AFM, ʻaʻohe ala kikoʻī e pale aku ai. Eia nō naʻe, no ka mea, ua manaʻo nui ʻia ua hoʻokumu ʻia e nā maʻi viral, he mea nui loa ia e hahai i nā ʻano olakino a mākou e hahai mau ai e pale aku i nā virus.

• E holoi mau i kou mau lima me ke kopa a me ka wai. E aʻo i kāu mau keiki e holoi pono i ko lākou mau lima, ʻoiai ma mua o ka ʻai ʻana, ma hope o ka hoʻohana ʻana i ka lua, a ma hope o ka mālama ʻana i kahi maʻi.
• Mai hoʻopā i kou maka, maka, ihu, a me ka waha me nā lima holoi ʻole ʻia.
• E noho mamao aku mai ka poʻe maʻi.
• E hāʻawi i kāu keiki i nā lāʻau pale āpau e pono ai no ko lākou mau makahiki.
• E hoʻomaʻemaʻe i nā ʻili i hoʻopā pinepine ʻia (nā ʻūpā puka, nā papa ʻaina) me ka disinfectant.

Hiki i kēia mau ʻano olakino maʻalahi ke pale i kā mākou mau keiki mai ka AFM wale nō, akā, mai nā maʻi ʻē aʻe he nui.