Inā loaʻa iā ʻoe ka Ankylosing Spondylitis (AS), ua kamaʻāina paha ʻoe i ka ʻeha hope, ka ʻoʻoleʻa o ke kakahiaka, ka ʻeha ʻāʻī, a me ka luhi. Manaʻo ka poʻe he maʻi kēia e hoʻopilikia wale ana i ka iwi kuamoʻo. Akā ʻo ka ʻoiaʻiʻo, hiki i kēia maʻi ke hoʻopilikia i nā ʻāpana koʻikoʻi ʻē aʻe o ko mākou kino, a i ʻole e like me kā mākou e kapa nei, 'nā pilikia'. No laila he mea nui loa ia e ʻike ʻoe i kēia. E kamaʻilio kākou e pili ana i ia mea ma nā ʻōlelo maʻalahi i kēia lā.
Hiki ke hoʻopilikia ʻia nā maka?
ʻAe, he pilikia maʻamau kēia i ʻike ʻia i nā poʻe maʻi AS. I ka manawa koke, e lilo kekahi o kou mau maka i ʻulaʻula, ʻeha, a he ʻike pohihihi iki. Hiki iā ʻoe ke ʻike i ka ʻike ʻana i ka mālamalama. Ua kapa mākou i kēia ʻano ma ke ʻano lapaʻau ʻo Iritis a i ʻole Anterior Uveitis .
Inā ʻike ʻoe i kekahi o kēia mau hōʻailona, mai manaʻo he maʻi maka maʻamau wale nō ia. E ʻike koke i ke kauka. Inā ʻaʻole mālama koke ʻia, aia kahi manawa e hōʻino mau ʻia ai kou ʻike. Hoʻohana pinepine ʻia nā kulu maka Corticosteroid ma ke ʻano he lāʻau lapaʻau.
E mālama ʻaʻole wale i kou iwi kuamoʻo, akā, i kou mau hono ʻē aʻe.
ʻAʻole i kaupalena ʻia ka mumū, a i ʻole ka pehu a me ka ʻeha, i hoʻokumu ʻia e AS i kou iwi kuamoʻo. Hiki iā ia ke hoʻopilikia i kou mau hono nui, e like me kou mau kuli, nā pūhaka, a me nā poʻohiwi . Ke hōʻino ʻia kēia mau hono i ka hala ʻana o ka manawa, hiki iā lākou ke lilo i ʻeha a hoʻolilo i mea paʻakikī ke hana i nā hana o kēlā me kēia lā. I kekahi mau hihia koʻikoʻi, inā nui loa ka pōʻino, hiki i kāu kauka ke paipai i ke ʻoki hoʻololi hono .
ʻO kekahi hihia kūikawā ʻo ka enthesitis . I ka ʻōlelo maʻalahi, ʻo ia ka mumū kahi e pili ai ko mākou mau tendon a me nā ligaments i ko mākou mau iwi. Hiki i kēia ke hōʻeha ma lalo a ma hope o kou mau kuʻekuʻe wāwae, ma luna o kou iwi ʻāʻī, a ma kahi e pili ai kou mau iwi ʻaoʻao i kou iwi umauma. Inā loaʻa iā ʻoe kēia ʻano ʻeha umauma, hiki iā ʻoe ke ʻeha i ka wā e hanu ai ʻoe. No laila, inā loaʻa iā ʻoe kekahi ʻano ʻeha umauma, e kamaʻilio me kāu kauka e hōʻoia ʻaʻole ia he hōʻailona o kahi mea koʻikoʻi.
Nā loli koʻikoʻi e hiki ke hana ma ka iwi kuamoʻo
ʻO ka mea nui e hiki ke hana ke koʻikoʻi ka AS, ʻo ia ka hoʻohui ʻia ʻana o nā iwi o ka iwi kuamoʻo, a i ʻole ka spinal fusion.ʻO kahi mea e hana ʻia ana, ʻo ia ka nalowale ʻana o ke kūlou o ka iwi kuamoʻo, a lilo ia i mea hiki ʻole ke hoʻopaʻa pololei i kona iwi kuamoʻo a kūlou i mua. Kāhea pū mākou i kēia he kyphosis .
Ke hōʻino ʻia ka iwi kuamoʻo ma kēia ʻano, kiʻekiʻe loa ka pilikia o ka haki ʻana o ke iwi kuamoʻo. No ka mea, ʻaʻole palupalu ke iwi kuamoʻo, hiki i kahi hāʻule liʻiliʻi ke hōʻeha nui. Eia kekahi, me kēia maʻi , ʻo ka osteoporosis , kahi kūlana e lahilahi ai a nāwaliwali nā iwi, he mea maʻamau nō hoʻi. Hiki i kēia ke alakaʻi i nā haki ma ke iwi kuamoʻo.
| ʻĀpana kino i hoʻopilikia ʻia | Ka pilikia hiki (paʻakikī) | Nā hōʻailona e makaʻala ai |
|---|---|---|
| Nā maka | ʻIritis/ Uveitis | ʻUlaʻula o ka maka, ʻeha, ʻike pōwehiwehi, ʻike i ka mālamalama. |
| iwi kuamoʻo | Hoʻohui ʻana o ke kuamoʻo, nā haki | Ke kūlou ʻana o ke kua i mua, ka ʻoʻoleʻa nui ʻana o ke kua, ka ʻeha hope koke. |
| Puʻuwai | ʻO ka maʻi cardiovascular, nā ʻano ʻē o ka puʻuwai | ʻEha ka umauma, paʻakikī ka hanu ʻana, luhi, puʻuwai kū ʻole i ke ʻano kūpono ʻole. |
| ʻŌnaehana hoʻoheheʻe | Ka mumū ʻōpū / IBD | ʻEha ʻōpū, diarrhea mau (diarrhea). |
| Nā māmā | Ka emi ʻana o ka hana o ka māmā, ka ʻeha o nā māmā (Fibrosis) | ʻO ka paʻakikī i ka hanu hohonu, ka ʻū mau, ka pōkole o ka hanu. |
| Pilikia! - E ʻimi koke i ke kōkua lapaʻau. | ||
| ʻĀpana haʻahaʻa o ka iwi kuamoʻo | ʻO ka maʻi Cauda Equina | ʻO ka mae ʻole ma nā puʻupuʻu a me ka ʻōpū lalo, ka hiki ʻole ke kāohi i ka mimi a me ka ʻōpala, ka nāwaliwali o nā wāwae a me ka paʻakikī i ka hele wāwae. He pilikia olakino kēia! |
Nā hopena ma ka puʻuwai, nā māmā, a me nā ʻōpū ʻē aʻe
Hiki i ka mumū ʻōnaehana i hana ʻia ma AS ke hoʻopili i nā ʻōpū ʻē aʻe o ke kino.
Ka pilikia o ka maʻi puʻuwai
ʻOi aku ka nui o ka pilikia o ka poʻe me AS i ka loaʻa ʻana o nā maʻi cardiovascular. Hoʻokomo pū kēia i nā kūlana e like me ka hahau ʻana. Hiki iā lākou ke loaʻa i nā kūlana e like me ka aortitis, nā pilikia ʻiʻo puʻuwai (cardiomyopathy), a me nā arrhythmias.
Nā pilikia o ka ʻōnaehana hoʻoheheʻe
Hiki i kekahi poʻe me AS ke loaʻa i kahi maʻi i kapa ʻia ʻo Inflammatory Bowel Disease (IBD) , hiki ke hana i nā hōʻailona e like me ka ʻeha mau o ka ʻōpū a me ka maʻi pākī.
Nā maʻi ʻili
Hiki ke ʻike ʻia ka psoriasis, kahi maʻi ʻili i hoʻopili ʻia e ka pale ʻana o ka maʻi, i nā poʻe maʻi AS. ʻO kēia ke kumu o ka ʻike ʻia ʻana o nā ʻāpana ʻulaʻula a unahi ma ka ʻili.
Nā pilikia o ka māmā
ʻOiai ʻaʻole kēia he mea maʻamau loa, hiki i ka AS ke hoʻopaʻa i ka iwi ʻaoʻao i loko o ka umauma, e hōʻemi ana i ka hiki ke hanu hohonu (ka hiki ke hanu i ka māmā). I nā hihia kakaikahi, hiki ke loaʻa ka ʻeha (fibrosis) ma ka ʻaoʻao o luna o nā māmā.
Mai poina hoʻi i ke olakino noʻonoʻo
I ka wā e noho ana me ka ʻeha a me ka ʻoluʻolu ʻole o ke kino no ka manawa lōʻihi, he mea maʻamau ka manaʻo kaumaha. ʻOi aku ka nui o ka pilikia o ka poʻe me AS no ke kaumaha a me ka hopohopo . Inā ʻoe e hopohopo nei, mai hūnā.E kamaʻilio me kāu kauka e pili ana i ia mea. He mea nui like ke olakino noʻonoʻo me ke olakino kino.
Nā pilikia kakaikahi loa akā he mea nui e makaʻala
He mea kākaʻikahi loa kēia mau kūlana, akā he mea nui e ʻike iā lākou.
- ʻO Cauda Equina Syndrome: He pilikia olakino kēia. Hoʻokumu ʻia ia e ke kaomi ʻana o nā aʻalolo ma ke kumu o ka iwi kuamoʻo. Inā ʻike ʻoe i nā hōʻailona e like me ka mae ʻana o ka ʻōpū ma lalo a me nā puʻupuʻu, ka nalowale ʻana o ka mana o ka ʻōpū mimi a me ka ʻōpū, a i ʻole ka nāwaliwali o kou mau wāwae e paʻakikī ai ka hele ʻana , e hele koke i ka Emergency Department (ETU) o ka haukapila kokoke loa .
- ʻAmyloidosis: Ma kēia kūlana, hiki i kahi protein ʻano ʻē i kapa ʻia ʻo amyloid ke hōʻiliʻili i loko o nā ʻōpū e like me nā puʻupaʻa a me ka puʻuwai. He mea kākaʻikahi loa kēia.
ʻAʻole manaʻo ʻia kēia mau mea e hoʻoweliweli iā ʻoe. Ua manaʻo ʻia lākou e hoʻonaʻauao iā ʻoe e pili ana i kou kūlana. ʻAʻole loaʻa i nā kānaka a pau kēia mau pilikia. Akā inā ʻike ʻoe i kēia mau hōʻailona, hiki iā ʻoe ke ʻike a ʻimi i ka lāʻau lapaʻau i ka wā mua inā kū mai kahi pilikia.
Leka Lawe-Home
- ʻAʻole wale ka Ankylosing Spondylitis (AS) he maʻi o ka iwi kuamoʻo. Hiki iā ia ke hoʻopilikia i nā maka, ka puʻuwai, nā māmā, nā ʻōpū, a me nā hono ʻē aʻe.
- E makaʻala mau i nā hōʻailona hou e kū mai ana i loko o kou kino (e laʻa me nā maka ʻulaʻula, ʻeha ka umauma, paʻakikī ke hanu). Mai hoʻowahāwahā iā lākou.
- E kamaʻilio ākea me kāu kauka e pili ana i nā hōʻailona hou a ʻano ʻē paha. Hiki i ka ʻike mua ʻana ke kōkua i ka pale ʻana i nā pilikia koʻikoʻi.
- Inā loaʻa iā ʻoe nā hōʻailona e like me ka mae ʻole ma ka ʻōpū lalo, ka nalowale o ke kaohi ʻana i ka mimi/fecal, e manaʻo he pilikia ia a hele koke i ka Emergency Department (ETU) o ka haukapila.
- E mālama i kou olakino noʻonoʻo a me kou olakino kino. Inā manaʻo ʻoe ua kaumaha ʻoe, e ʻimi i ke kōkua lapaʻau.
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