Ua noʻonoʻo paha ʻoe pehea e hoʻopaʻa ʻia ai ko kākou mau iwi, nā ʻiʻo, ka ʻili, a me nā ʻōpū i kahi ʻano hoʻonohonoho pono? E like me ke kūkulu ʻana i hale me ka sima, ua pili kēia mau ʻāpana a pau o ko kākou kino a kākoʻo ʻia e kahi ʻano ʻiʻo kūikawā. Kāhea mākou i kēia mau mea ʻo "Nā ʻiʻo pili". ʻO kēia nā 'pili' o ko kākou kino. No laila, ʻo nā maʻi e hoʻopilikia ana i nā ʻiʻo pili i loaʻa ma nā wahi a pau o ko kākou kino ua kapa wale ʻia ʻo "Nā Maʻi ʻiʻo pili ".
I ka ʻōlelo maʻalahi, he aha kēia ʻiʻo hoʻopili?
E noʻonoʻo, ʻo kēia nā ʻōnaehana kūloko o ko kākou kino. Inā ʻaʻole lākou, e hiolo ko kākou kino i puʻu. ʻO kēia māhele o nā ʻiʻo hoʻopili:
- Nā iwi: ʻO ke ʻōnaehana paʻa e hāʻawi i ke ʻano a me ka ikaika i ko kākou kino.
- ʻO ke cartilage: ʻO ka ʻiʻo laumania ma waena o nā hono e pale ai i nā iwi ʻelua mai ka hamo ʻana. Loaʻa pū kekahi i kēia i loko o ko mākou ihu a me nā pepeiao.
- Nā Tendons: Nā ʻano ikaika, like me ke kaula e hoʻopili ai i nā ʻiʻo i nā iwi.
- Ligaments: ʻO nā ʻāpana e hoʻohui i nā iwi kekahi i kekahi a hoʻopaʻa i nā hono.
- ʻIli: ʻO ka ʻōkana nui loa e uhi a pale i ko mākou kino.
- ʻAila kino: ʻO nā ʻāpana o ke kino e mālama i ka ikehu a pale i nā ʻōkana.
- Fascia: He membrane lahilahi e hoʻopuni ana i nā ʻiʻo a me nā ʻōpū.
ʻIke ʻoe, aia kēia mau ʻiʻo ma ko kākou kino a pau, ma nā wahi a pau. ʻO ia ke kumu i ka wā e ulu ai kahi maʻi pili o nā ʻiʻo, ʻaʻole ia i kaupalena ʻia i hoʻokahi wahi o ke kino, akā hiki ke hoʻopilikia i nā wahi he nui. I kekahi manawa hoʻopilikia ia i hoʻokahi ʻano ʻiʻo wale nō, i kekahi manawa hoʻopilikia ia i nā ʻano ʻiʻo he nui, a me nā ʻōpū.
He aha nā ʻano nui o kēia mau maʻi?
Aia ma mua o 200 mau ʻano maʻi pili i ʻike ʻia i kēia manawa, akā hiki iā mākou ke hoʻokaʻawale iā lākou i ʻekolu mau ʻano nui.
1. Nā maʻi autoimmune: Nā maʻi i hoʻokumu ʻia e ka ʻōnaehana pale o ko mākou kino ponoʻī (ʻōnaehana pale) e hoʻouka ana i ko mākou mau ʻiʻo ponoʻī.
2. Nā maʻi hoʻoilina: Nā maʻi i loaʻa i ka wā hānau a ua hoʻokumu ʻia e kahi kīnā i loko o nā genes.
3. Nā maʻi ʻaʻai: Nā maʻi ʻaʻai e kū mai ana i loko o nā ʻiʻo pili. Kāhea mākou i kēia mau mea he (Sarcomas) .
I kēia manawa, e nānā kākou i kēlā me kēia ʻano me nā kikoʻī hou aku.
1. Nā maʻi pili ʻiʻo Autoimmune
ʻO kēia ke ʻano a ka hapa nui o ka poʻe i ʻike a kamaʻilio e pili ana i ka wā e ʻōlelo ai lākou "maʻi pili i nā ʻiʻo." He mea kupanaha loa kēia e hana ʻia ma ʻaneʻi. ʻO ka ʻōnaehana pale, e like me ka "pūʻali koa" i manaʻo ʻia e pale i ko mākou kino mai ka maʻi, hoʻomaka e hoʻouka i kā mākou mau ʻiʻo pili olakino me he mea lā ma ke kuhihewa. Hoʻoulu kēia i ka mumū mau, a i ʻole ka pehu ʻana, i loko o kēlā mau ʻiʻo.Hiki i kēia ke hōʻeha, pehu, a ma ka hopena e hōʻino mau loa i kēlā mau ʻiʻo inā hoʻomau kēia no ka manawa lōʻihi.
I ka ʻōlelo maʻalahi, ʻo ka mea e hana nei ma ʻaneʻi ua like ia me ko mākou mau kiaʻi ponoʻī e hoʻouka ana i ko mākou hale ponoʻī.
Aia ma lalo iho kekahi o nā maʻi nui e pili ana i kēia māhele.
| Inoa o ka maʻi | He wehewehe wale nō |
|---|---|
| ʻO ka ʻāʻī rheumatoid | ʻO ka hopena nui kēia i nā hono. Pehu a ʻoʻoleʻa nā hono, a ʻaʻole paha ʻoe e hiki ke kulou i kou mau manamana lima ke ala ʻoe i ke kakahiaka. I ka hala ʻana o ka manawa, hiki ke hōʻino ʻia nā hono a hiki i nā manamana lima ke kekee. I kekahi manawa hiki i kēia pehu ke laha i nā ʻōpū ʻē aʻe, e like me nā kīʻaha koko a me nā māmā. |
| Lupus | He maʻi paʻakikī kēia. Hiki i ka Lupus ke hoʻopilikia i kekahi ʻiʻo pili i loko o ke kino. Hiki iā ia ke hōʻino i nā ʻōpū nui e like me ka ʻili, nā hono, ka puʻuwai, nā māmā, nā puʻupaʻa, a me ka lolo. He hōʻailona kaulana ka ʻulaʻula, ʻano pepeke. |
| ʻO ka ʻeha koko | ʻO kēia ka manawa e hana ai ke kino i ka nui o ka protein i kapa ʻia ʻo collagen ma mua o ka mea e pono ai. ʻO kēia ke kumu o ka ʻili e mānoanoa, paʻa, a ʻoi aku ka palupalu. Hiki i kēia ke hoʻopilikia i nā ʻōpū o loko, e like me nā māmā, ka puʻuwai, a me ke ala ʻai. |
| ʻO ka maʻi Sjögren | Ma kēia, hoʻouka ka ʻōnaehana pale i nā glands e hana ana i ka makū i loko o ke kino. ʻO ia hoʻi, nā glands e hana ana i ka lawai a me nā waimaka. No laila, ʻo nā hōʻailona nui he mau maka maloʻo a me ka waha maloʻo. Hiki i kēia maloʻo ke hoʻopilikia i ka ʻili, ka ihu, a me ka puʻu. |
| ʻO ka maʻi ʻōpū | Hoʻopilikia kēia maʻi i nā ʻiʻo. Pehu a nāwaliwali nā ʻiʻo. Lilo i mea paʻakikī ke ala aʻe mai kahi noho a piʻi paha i nā alapiʻi. I kekahi mau ʻano, ma waho aʻe o nā ʻiʻo, hiki ke loaʻa ka eczema ma ka ʻili. |
I kekahi manawa, loaʻa paha i kekahi kanaka nā hōʻailona o kekahi o kēia mau maʻi i ka manawa like. Kāhea mākou i kēia ʻo Mixed Connective Tissue Disease . I kekahi manawa, aia nā hōʻailona, akā ʻaʻole hiki ke hoʻokaʻawale pololei ʻia me he maʻi kikoʻī. Kāhea mākou i kēia ʻo Undifferentiated Connective Tissue Disease .
2. Nā maʻi pili ʻiʻo hoʻoilina
ʻAʻole i hoʻokumu ʻia kēia mau maʻi e kahi hana hewa i loko o kā mākou ʻōnaehana pale ponoʻī. ʻO kēia nā kūlana i hānau ʻia ai mākou, i hoʻokumu ʻia e kahi mutation i loko o kā mākou mau genes. Hoʻololi kēia kīnā genetic i ke ʻano o ka hana ʻana o nā ʻiʻo pili. Hoʻopilikia nui kēia i ka hana ʻana o ʻelua mau protein i loko o kēia mau ʻiʻo i kapa ʻia ʻo collagen a me elastin . Hāʻawi ʻo Collagen i ka ikaika o nā ʻiʻo, a hāʻawi ʻo elastin iā lākou i ka maʻalahi.
| Inoa o ka maʻi | He wehewehe wale nō |
|---|---|
| ʻO ka maʻi Marfan | Hoʻopilikia kēia i nā olonā elastin, e hoʻolilo ana i ke kino i mea palupalu a palupalu. ʻO ke kiʻekiʻe o kēia poʻe he poʻe lōʻihi loa, me nā lālā a me nā manamana lima lōʻihi loa. He mea kēia e hopohopo ai no ka mea hiki ke hoʻopilikia i ke kīʻaha koko nui o ka puʻuwai (aorta). |
| ʻO ka maʻi ʻo Ehlers-Danlos (EDS) | Hoʻonāwaliwali kēia i ke kolakena, e hoʻolōʻihi nui ai i ka ʻili, e palupalu loa ai nā hono (e like me nā hono pālua), a palupalu loa. Māwae pinepine nā hono, a lōʻihi ka manawa e ho'ōla ai i nā ʻeha. |
| ʻOsteogenesis imperfecta | ʻO kekahi inoa no kēia ʻo "ka maʻi iwi brittle." I kēia kūlana, haki maʻalahi nā iwi ma muli o ka nele o kahi ʻano collagen. ʻOiai ka hāʻule iki ʻana hiki ke hana i nā haki. Hiki ke ʻike ʻia nā keʻokeʻo o nā maka i polū. |
ʻOkoʻa loa nā hōʻailona o ka poʻe i hānau ʻia me kēia maʻi hoʻoilina. Loaʻa paha i kekahi nā hōʻailona palupalu loa, aʻo kekahi poʻe he mau pilikia koʻikoʻi a hoʻoweliweli i ke ola. ʻOiai ʻaʻohe lāʻau lapaʻau no kēia kīnā hoʻoilina, hiki i nā kauka ke mālama wale i nā hōʻailona a me nā pilikia e kū mai ana.
3. Nā maʻi ʻaʻai o nā ʻiʻo pili (Nā maʻi ʻaʻai - Sarcomas)
He ʻano maʻi ʻaʻai ʻo Sarcoma e hoʻomaka ana i loko o nā ʻiʻo pili. Hiki i kēia mau mea ke hana ma nā wahi e like me ka iwi, ke cartilage, ka momona, nā ʻiʻo, nā tendon, a me nā ligaments.
ʻAʻole hōʻike pinepine kēia mau hōʻailona i nā pae mua. ʻIke wale ʻia nā hōʻailona ke ulu ka puʻupuʻu a kaomi i kahi ʻāpana kokoke a i ʻole ke kīʻaha koko. I kekahi manawa hiki ke hoʻomaka me ka ʻeha iwi a i ʻole ka ʻeha hui. Hiki i kekahi ke ʻike ʻia me he puʻupuʻu ma lalo o ka ʻili. Hiki i kēia ʻano maʻi kanesa ke laha i nā wahi ʻē aʻe o ke kino. ʻO kekahi mau laʻana ʻo osteosarcoma (kahi maʻi kanesa o ka iwi) a me liposarcoma (kahi maʻi kanesa o ka ʻiʻo momona).
He aha nā hōʻailona maʻamau o kēia mau maʻi?
Ma muli o ka nui o nā ʻano o kēia mau maʻi, ʻokoʻa loa nā hōʻailona. Akā hiki iā mākou ke ʻike i kekahi mau hiʻohiʻona maʻamau.
- ʻEha ma ke kino holoʻokoʻa: He mea maʻamau ka ʻeha a me ka ʻoʻoleʻa, ʻoiai ma nā ʻiʻo a me nā hono.
- Ka nāwaliwali a me ka luhi: ʻO ka luhi nui no ke kumu ʻike ʻole ʻia he hōʻailona maʻamau ia o nā maʻi he nui.
- Nā pilikia o ka ʻōnaehana hanu a me ka ʻōnaehana cardiovascular: He nui ka nui o nā ʻiʻo hoʻopili o ko kākou mau māmā. A no ka mea e holo ana nā kīʻaha koko ma o kēia ʻiʻo, hiki i ka mumū ma kekahi wahi ke laha maʻalahi i kēia mau ʻōkana. Hiki i kēia ke hana i nā pilikia hanu a me nā loli i ka helu o ka puʻuwai.
- Ka pehu ʻana o nā kīʻaha koko: Inā pehu nā kīʻaha koko, hiki iā lākou ke pohā a hoʻoheheʻe i ke koko i loko o ke kino.
ʻO ka mea nui, inā loaʻa iā ʻoe kekahi mau hōʻailona pili ʻole (e laʻa me ka ʻeha o nā hono, ka waha maloʻo, a me ka ʻulaʻula o ka ʻili) i ka manawa like, hiki ke lilo i mau ʻano like ʻole o ka maʻi hoʻokahi. No laila, mai hoʻowahāwahā iā lākou.
Aia kekahi kumu kikoʻī no kēia mau maʻi?
ʻO kaʻoiaʻiʻo, ʻaʻole i loaʻa i nā kānaka ʻepekema ke kumu pololei o kēia mau maʻi he nui. ʻO ka mea e hana ʻia ana, aia kahi hana hewa i kekahi kaʻina hana i loko o ko kākou kino. I nā maʻi autoimmune, hana hewa ka ʻōnaehana pale. I nā maʻi genetic, aia kahi hana hewa i loko o nā genes. I ke kanesa, hoʻomaka nā cell e māhele me ka ʻole o ke kāohi.
ʻOiai ʻaʻole hiki ke ʻōlelo pololei i ke kumu o kēia mau hemahema, ua ʻike ʻia kekahi mau mea pilikia e kōkua i kēia.
- ʻŌnaehana pale kino hana nui ma muli o nā maʻi koʻikoʻi.
- Ka ʻike ʻia ʻana i kekahi mau kemika ʻawahia.
- Loaʻa kahi moʻolelo ʻohana o kēia mau maʻi (nā kumu hoʻoilina).
Pehea e ʻike ai ke kauka i kēia maʻi?
Ke hele ʻoe e ʻike i kāu kauka me kāu mau hōʻailona, e nīnau mua ʻo ia iā ʻoe e pili ana i kou mōʻaukala olakino a me ka mōʻaukala olakino ʻohana. A laila e hana ʻo ia i kahi hoʻokolokolo kino a hiki iā ia ke kuhikuhi iā ʻoe no kekahi mau hoʻokolohua, inā pono.
- Nā hoʻāʻo koko: Hoʻohana ʻia nā hoʻāʻo e like me ka protein C-reactive (CRP) a me ESR e nānā no ka mumū i loko o ke kino. Nānā pū lākou i nā antibodies kikoʻī e ʻike ai i nā maʻi autoimmune.
- Nā hoʻokolohua kiʻi: Hiki i nā kiʻi X-ray a me MRI ke kōkua i ka ʻike ʻana i ka hōʻino ʻia ʻana o nā iwi, nā hono, a me nā ʻiʻo palupalu.
- Biopsy ʻiʻo: Ke lawe ʻana i kahi ʻāpana liʻiliʻi o ka ʻili a i ʻole nā ʻiʻo i hoʻopilikia ʻia a nānā iā ia ma lalo o kahi microscope.
- Ke nānā ʻana i nā maka maloʻo a me ka waha: Hana ʻia kēia mau hoʻokolohua inā kānalua ʻia nā kūlana e like me ka maʻi Sjögren.
He aha nā lāʻau lapaʻau no kēia?
He mau maʻi pili nā ʻiʻo pili he mau maʻi no ke ola holoʻokoʻa . ʻO ke ʻano kēia he paʻakikī ke ho'ōla loa iā lākou. No laila, ʻo ka pahuhopu nui o nā kauka ka hoʻēmi ʻana i ke koʻikoʻi o ka maʻi, kaohi ʻana i nā hōʻailona, pale i nā pilikia, a kōkua iā ʻoe e ola i kahi ola maʻamau.
Hiki i nā maʻi autoimmune a me nā maʻi kanesa ke hoʻomaha i kekahi manawa, ʻo ia hoʻi nā wā e hana ʻole ai ka maʻi a me ka ʻole o nā hōʻailona. Akā hiki nō hoʻi iā lākou ke hana hou.
- No nā maʻi autoimmune: Hāʻawi ʻia nā lāʻau anti-inflammatory (corticosteroids) a me nā immunosuppressants e kaohi i ka hana nui o ka ʻōnaehana pale.
- No ke kanesa (sarcomas): Hoʻohana ʻia nā lāʻau lapaʻau e like me ka wehe ʻana i ka puʻupuʻu, chemotherapy, a me ka radiation therapy .
- No nā maʻi genetic:Hoʻōla ʻia kēia mau mea e like me nā hōʻailona e kū mai ana. No ka laʻana, hāʻawi ʻia nā lāʻau hōʻeha no ka ʻeha, a me nā lāʻau lapaʻau no nā pilikia o ka puʻuwai.
Ma ka aneane o kēia mau maʻi a pau , he mea nui loa ka hoʻoikaika kino a me nā hoʻomaʻamaʻa kūpono i hana ʻia ma lalo o ke aʻo ʻana a ke kauka no ka kaohi ʻana i ka ʻeha a mālama i ka hana maikaʻi o nā hono a me nā ʻiʻo.
Leka Lawe-Home
- ʻO nā maʻi pili he hui ia o nā maʻi e hoʻopilikia ana i nā ʻiʻo e hoʻopaʻa pū ana i ko kākou kino. Hiki iā lākou ke hoʻopilikia i kekahi ʻāpana o ko kākou kino.
- Ua māhele nui ʻia kēia mau maʻi i ʻekolu ʻano: autoimmune, genetic, a me ke kanesa (sarcoma).
- E hopohopo inā loaʻa iā ʻoe ma mua o hoʻokahi mau hōʻailona, e like me ka ʻeha o nā hono, ka luhi nui, nā loli o ka ʻili, a me ka paʻakikī o ka hanu ʻana.
- ʻOiai ʻaʻole hiki ke ho'ōla loa ʻia ka nui o kēia mau maʻi, me ka mālama kūpono a me nā loli o ke ʻano o ka nohona, hiki ke kaohi ʻia nā hōʻailona a hiki ke ola i kahi ola maikaʻi.
- Inā loaʻa iā ʻoe kekahi o kēia mau hōʻailona, e ʻike pono i kāu kauka no ka ʻōlelo aʻo. He kōkua nui ka ʻike mua ʻana i ka mālama pono ʻana.
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