He mea maʻamau ke koko e paʻa a hoʻōki i ke kahe ʻana o ke koko ke loaʻa iā kākou kahi ʻeha. He ʻano pale ia o ko kākou kino. Eia nō naʻe, inā e hana pinepine ana nā paʻa koko i loko o nā aʻa o ke kino me ke kumu ʻole, he mea hopohopo ia. ʻOi loa aku inā hoʻomau ʻoe i ka hāʻule ʻana i ka wā hāpai, ʻo ke kumu paha kēia maʻi i kapa ʻia ʻo Antiphospholipid Syndrome (APS), a mākou e kamaʻilio nei i kēia lā.
He aha wale nō ka APS?
I ka ʻōlelo maʻalahi, ʻo ka Antiphospholipid Syndrome (APS) kahi kūlana e hoʻonui ai i kou kino i ka hana ʻana i nā ʻūpā koko ma mua o ka maʻamau. I kekahi manawa kapa ʻia ʻo ia e nā kauka ʻo Antiphospholipid antibody syndrome.
Hiki i kēia mau ʻūpā koko ke hana i nā pilikia koʻikoʻi, a hiki i ke ola, e like me nā hahau . Hoʻonui pū ke ʻano i ka pilikia o nā hāʻule ʻana a me nā pilikia ʻē aʻe i ka wā hāpai.
He maʻi autoimmune maoli ka APS. E noʻonoʻo, he ʻōnaehana pale ko kākou i loko o ko kākou kino e like me ka pūʻali koa. Kāhea mākou iā ia he ʻōnaehana pale. ʻO kāna hana ke pale iā kākou mai nā germs a me nā maʻi e hoʻoulu ai i ka maʻi. Akā i loko o kēia maʻi autoimmune, ʻo ka mea e hana ʻia, ʻo ia ka hoʻomaka hewa ʻana o kā kākou ʻōnaehana pale ponoʻī e hoʻouka i nā cell maikaʻi i loko o ko kākou kino ponoʻī.
He aha nā hōʻailona o kēia maʻi?
Hiki i kekahi poʻe me APS ke loaʻa nā kiko ʻeleʻele ma ko lākou ʻili e like me ka ʻupena. Ua kapa ʻia kēia ma ke ʻano lapaʻau he livedo reticulitis . Eia nō naʻe, ʻo ka hapa nui o ka poʻe me APS ʻaʻohe o lākou mau hōʻailona a hiki i ka wā e loaʻa ai kahi ʻūpā koko a i ʻole kahi pilikia i ka wā hāpai.
ʻO kēia nā hōʻailona e hiki ke loaʻa inā hana ʻia kahi ʻūpā koko. Pono ʻoe e makaʻala loa i kēia mau mea.
| Hōʻailona | Wehewehena |
|---|---|
| ʻEha umauma | Hiki ke hana ʻia e kahi ʻūpā koko i loko o ka puʻuwai a i ʻole nā māmā. |
| Ka paʻakikī o ka hanu ʻana (dyspnea) | Hiki ke hana ʻia, ʻoiai hoʻi, e kahi ʻaʻa koko i loko o ka māmā (pulmonary embolism). |
| ʻEha poʻo pinepine | Aia paha he pilikia me nā kīʻaha koko e hiki aku ana i ka lolo. |
| ʻEha koke | ʻEha koke ma nā lima, nā wāwae, ke kua, ka ʻāʻī, a i ʻole ka ʻauwae. |
| Ka pehu ʻana a i ʻole ka ʻulaʻula | Hiki ke hana ʻia e kahi ʻūpā koko, ʻoiai ma ka lima a i ʻole ka wāwae. |
| ʻeha ka ʻōpū | Hiki ke hana ʻia e nā ʻōpū koko i loko o nā kīʻaha koko e hoʻolako ana i ke koko i nā ʻōpū o ka ʻōpū. |
ʻO ka mea nui loa: He pilikia weliweli ke koko ʻūlū. Inā he kānalua kou he koko ʻūlū kou, e hele koke i ka keʻena pilikia o ka haukapila kokoke loa (ETU).
Ma waho aʻe o kēia mau hōʻailona, hiki i ka APS ke hana i kekahi mau hōʻailona i hiki ʻole iā mākou ke ʻike a manaʻo paha.
- Ua hoʻemi ʻia nā pae platelet koko.
- ʻAʻohe maʻi koko.
- Nā ʻano ʻino o ka valve puʻuwai.
No ke aha lā kēia e hana nei?
ʻO ka maʻamau, he mau protein kūikawā nā antibodies e ʻimi a luku i nā germs a me nā allergens e komo i loko o ko kākou kino. Ua like lākou me nā robots pale.
Akā i loko o kekahi me APS, hoʻouka kēia mau antibodies, i hana ʻia e ka ʻōnaehana pale, i nā protein i hoʻopili ʻia i nā phospholipids (kahi ʻano momona) i loko o kā mākou mau cell ponoʻī. Hoʻopōʻino kēia hoʻouka i nā phospholipids, e hoʻonui ai i ko lākou pili pū ʻana a hana i nā ʻūpā koko.
ʻEkolu mau ʻano nui o nā antibodies e hiki ke hana i ka APS:
- Lāʻau anticoagulant Lupus
- ʻAʻai hoʻemi i ke kaumaha o ke kino
- ʻO ka glycoprotein Anti-B2 1
Loaʻa paha i kekahi kanaka me APS hoʻokahi, ʻelua, a ʻekolu paha o kēia mau antibodies. Akā ʻo ka mea kupanaha loa, loaʻa paha i kekahi poʻe kēia mau antibodies akā ʻaʻole loa e loaʻa nā hōʻailona o APS. ʻAʻole maopopo i nā loea ka mea e hoʻoulu ai i kā mākou ʻōnaehana pale e hana i kēia mau antibodies hewa.
ʻO wai ka mea i pilikia nui no kēia maʻi?
Hiki i kekahi ke loaʻa iā APS. Eia nō naʻe, hiki iā ʻoe ke piʻi iki aʻe ka pilikia inā ʻoe:
- Inā he wahine ʻoe .
- Inā ʻoe ma waena o 30 a me 40 mau makahiki .
- Inā loaʻa iā ʻoe nā maʻi autoimmune ʻē aʻe, e like me ka lupus a i ʻole ka rheumatoid arthritis.
- Inā loaʻa iā APS kekahi o kou ʻohana pili (nā mākua, nā kūpuna).
He aha nā pilikia e hiki ke hana ma muli o ka APS?
Hiki i ka maʻi antiphospholipid ke hoʻoulu i nā pilikia koʻikoʻi, i kekahi manawa make. ʻO nā pilikia koʻikoʻi loa e kū mai ana i ka wā e hana ʻia ai nā ʻūpā koko a ālai i nā aʻa e hoʻolako ana i ke koko i nā ʻōpū koʻikoʻi o kou kino.
- Lolo: nā hahau
- Puʻuwai: Hoʻouka puʻuwai (thrombosis)
- Nā māmā: Ke ālai ʻia ʻana o nā kīʻaha koko i loko o nā māmā (pulmonary embolism)
- Nā puʻupaʻa: Ka hōʻino ʻana o nā puʻupaʻa
Inā hāpai ʻoe, hiki i kahi ʻūpā koko e ālai ana i ka lako o nā meaʻai i ka placenta ke kumu o ka hāʻule ʻana o ka hāpai keiki. Hoʻonui pū ia i ka pilikia o ka preeclampsia, kahi kūlana e loaʻa ai ke koko kiʻekiʻe i ka wā hāpai.
He pilikia koʻikoʻi akā laha ʻole ka maʻi catastrophic antiphospholipid syndrome (CAPS) o ka APS. He kūlana ia e hana ʻia ai nā ʻōpū koko ma nā ʻāpana he nui o ke kino i loko o kekahi mau lā. Ma kahi o ka hapalua o ka poʻe e loaʻa ana i kēia maʻi e make. Eia nō naʻe, ʻike ʻia ʻo CAPS ma lalo o 1% o ka poʻe me APS.
ʻAʻole maʻamau ka APS e hoʻopilikia i kou ola. Eia nō naʻe, inā hōʻino kahi ʻōpū koko i kahi ʻōkana koʻikoʻi, ʻoiai ma ke ʻano e like me CAPS, hiki ke make.
Pehea e ʻike pololei ai ke kauka i kēia maʻi?
Hoʻomaopopo pinepine ʻia ka APS ma hope o ke kūkulu ʻia ʻana o kahi ʻūpē koko a i ʻole ma hope o nā hāʻule pinepine ʻana. Loaʻa paha i kekahi poʻe nā antibodies antiphospholipid akā ʻaʻole loa e loaʻa nā hōʻailona.
E hōʻoia ke kauka inā loaʻa iā ʻoe ka APS ma o nā hoʻāʻo koko . E lawe lākou i kahi hāpana o kou koko a nānā i ke alo o nā ʻano antibodies ʻekolu i ʻōlelo ʻia ma mua. No ka hōʻoia ʻana i ka maʻi, pono ma ka liʻiliʻi hoʻokahi hoʻāʻo koko e maikaʻi ma ʻelua mau manawa, ʻoi aku ma mua o ʻekolu mahina ka mamao.
He aha nā lāʻau lapaʻau no kēia?
E paipai kāu kauka i nā lāʻau lapaʻau e hōʻemi i ka pilikia o nā ʻūpā koko. ʻO nā lāʻau lapaʻau maʻamau ka mea hoʻokahe koko, a i ʻole nā anticoagulants .
| ʻAno lāʻau lapaʻau | Pehea e hoʻohana ai a me ka hana |
|---|---|
| Lapaʻau laulā | |
| Heparin | He lāʻau lapaʻau intravenous (IV) kēia e kōkua ai i ka hoʻoheheʻe ʻana i kahi ʻōpū koko inā ʻoe e hoʻokomo ʻia i ka haukapila. |
| ʻO Warfarin | He pila kēia āu e lawe ai ma ka waha. Hoʻomāmā ia i ke koko a pale i ke kūkulu ʻia ʻana o nā ʻōpū koko hou. |
| ʻAspirina | Hiki i kāu kauka ke ʻōlelo aku e lawe i ka aspirin haʻahaʻa e pale aku i ke kūkulu ʻana o nā ʻōpū koko i loko o kou mau aʻa. |
| Nā lāʻau lapaʻau i hoʻohana ʻia i ka wā hāpai | |
| ʻEnoxaparin | He inikini kēia i hāʻawi ʻia ma lalo o ka ʻili. Paipai pinepine ʻia me ka aspirin haʻahaʻa e pale aku i ka hāʻule ʻana o ka hāpai keiki. |
| ʻO ka immunoglobulin intravenous (IVIG) | ʻO kēia lāʻau lapaʻau, i hāʻawi ʻia ma ke ʻano intravenous, kaohi i ka hana o ka ʻōnaehana pale a hoʻemi i ka pilikia o ka hāʻule ʻana o ka hāpai keiki. |
| Nā Corticosteroids | Hoʻemi kēia mau lāʻau i ka mumū i loko o ke kino a kāohi i ka hana nui o ka ʻōnaehana pale. |
Inā hāpai ʻoe, palekana kēia lāʻau nou a me kāu pēpē, no laila ʻaʻohe pono e hopohopo no ia mea.
E makaʻala hoʻi kākou i nā hopena ʻaoʻao o nā lāʻau hoʻokahe koko.
Ke lawe ʻoe i nā lāʻau hoʻokahe koko, ʻoi aku ka nui o ke kahe ʻana o ke koko i kou kino. No laila pono ʻoe e makaʻala loa i kēia mau hōʻailona. Inā loaʻa iā ʻoe kekahi o kēia mau mea , e kamaʻilio koke me kāu kauka.
- Ke kahe ʻana o ke koko mai nā ʻāʻī a i ʻole ka ihu me ke kumu ʻole .
- Ke kahe ʻana o ke koko ma mua o ka maʻamau i ka wā menstruation.
- Ka luaʻi ʻana i ʻulaʻula māmā a i ʻole ke kala o ka ʻōpala kofe .
- Koko ʻulaʻula ʻōlinolino i loko o ka noho a i ʻole ke koko ʻeleʻele a ʻālohilohi i loko o ka noho.
- ʻEha nui ka ʻōpū a i ʻole ke poʻo ʻeha nui .
- Nā loli koke i ka ʻike .
- Ka nalowale koke ʻana o ka manaʻo ma nā lima a i ʻole nā wāwae .
Nā mea e noʻonoʻo ai i ka wā e noho ai me APS
ʻO ka mea nui loa i ka wā e noho ai me APS, ʻo ia ka pale ʻana i nā ʻūpā koko. No kēia, he mea nui e lawe pono i nā lāʻau hoʻokahe koko.
Eia kekahi, he mea nui e kāohi i nā kūlana olakino ʻē aʻe e hoʻonui ai i kou pilikia o ke koko. Inā loaʻa iā ʻoe kekahi o kēia mau kūlana, e kamaʻilio me kāu kauka a e kāohi iā lākou:
- Maʻi diabetes
- Ke koko kiʻekiʻe
- Kolesterol kiʻekiʻe
- Momona
- Nā maʻi autoimmune ʻē aʻe
Hoʻonui ka puhipaka i ka pilikia o ke kāpili ʻana o ke koko, ʻoiai no kekahi me ke ʻano e like me APS.
Pono anei ʻoe e makaʻala i ka meaʻai a me ka mea inu?
ʻAʻole pono ka poʻe me APS e hahai i kahi papaʻai kūikawā. Eia nō naʻe, inā ʻoe e lawe ana i ka lāʻau Warfarin , pono ʻoe e makaʻala e pili ana i nā meaʻai waiwai i ka wikamina K (nā mea kanu ʻōmaʻomaʻo ʻeleʻele e like me ka spinach). ʻO ka ʻai ʻana i nā meaʻai waiwai nui i ka wikamina K i ka manawa hoʻokahi hiki ke hoʻonui i kou pilikia o nā ʻōpū koko. No laila e noi i kāu kauka no ka ʻōlelo aʻo.
Eia kekahi, e nīnau i kāu kauka e pili ana i ka inu ʻana i ka waiʻona. Hoʻomāmā ka waiʻona i ke koko, no laila ʻo ka hoʻohui ʻana me nā lāʻau hoʻomāmā koko hiki ke hoʻonui i ka hopena.
Āhea wau e ʻike ai i ke kauka?
Inā ʻoe e lawe ana i nā lāʻau hoʻokahe koko, pono ʻoe e ʻike pinepine i kāu kauka no nā hoʻāʻo koko e hōʻoia i kou pae koko i loko o ka pae kūpono.
Inā ʻoe e manaʻo nei e hāpai, he mea nui loa e kamaʻilio me kāu kauka e pili ana i kēia ma mua a loaʻa ka ʻōlelo aʻoaʻo.
Āhea wau e hele ai i ka ʻOihana Pōpilikia (ETU)?
E hele koke i ka ʻOihana Pilikia (ETU) o ka haukapila:
- Ke kānalua nei au he ʻūpā koko kou.Inā hana ia.
- Inā ʻike ʻia kekahi mau hōʻailona o ke koko koko.
- Inā ʻoe e kahe koko ana me ka hiki ʻole ke kāohi .
Leka Lawe-Home
- ʻO ka Antiphospholipid Syndrome (APS) kahi kūlana e hoʻonui ai i ka pilikia o nā ʻaʻa koko no ka mea ke hoʻouka nei kāu ʻōnaehana pale ponoʻī i kou kino.
- ʻAʻohe mea kēia e makaʻu ai, a hiki ke hoʻomalu maikaʻi ʻia me ka mālama kūpono (ʻoiai nā lāʻau hoʻokahe koko).
- ʻOiai hiki ke loaʻa nā hāʻule ʻana a me nā pilikia ʻē aʻe i ka wā hāpai, hiki nō ke hānau i nā keiki olakino ma lalo o ka nānā pono ʻana o ke kauka.
- Inā ʻike ʻoe i nā hōʻailona o ke koko ʻaʻa, e like me ka ʻeha o ka umauma, ka paʻakikī o ka hanu ʻana, a i ʻole ka pehu ʻana o ka wāwae, e noʻonoʻo he pilikia ia a hele koke i ka haukapila.
- He mea nui loa e hahai pololei i nā ʻōlelo a kāu kauka a e hana i nā hoʻokolohua maʻamau.
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