E aʻo e pili ana i ka inikini Belimumab: he lāʻau lapaʻau no ka lupus

Ua kuhikuhi ʻia paha ʻoe e kāu kauka i kahi lāʻau lapaʻau no kahi maʻi e like me ka lupus. Inā pēlā, ua lohe paha ʻoe i ka inoa ʻo 'Belimumab'. I kēia lā, e kamaʻilio mākou e pili ana i ke ʻano o kēia lāʻau lapaʻau, pehea e pili ai i ko mākou kino, a me nā mea e pono ai mākou e ʻike e pili ana i ia mea. E ho'āʻo kākou e hoʻomaopopo maʻalahi, me he mea lā e wehewehe ana kekahi hoaaloha iā ʻoe.

He aha ke ʻano lāʻau lapaʻau ʻo Belimumab?

I ka ʻōlelo maʻalahi, he lāʻau lapaʻau ʻo Belimumab i hoʻohana ʻia e mālama i kekahi mau maʻi, e like me ka lupus. ʻIke ʻoe, aia i ko mākou kino kahi mea i kapa ʻia ʻo ka ʻōnaehana pale. Ua like kēia me kahi kiaʻi kino e pale iā mākou mai nā maʻi. Akā, i nā kūlana e like me ka lupus, lilo kēia ʻōnaehana pale i mea hana nui a hoʻomaka e hoʻouka i ko mākou mau hunaola kino ponoʻī. Me he mea lā e hakakā ana ko mākou kiaʻi kino ponoʻī me mākou.

ʻO ia ka manawa e hiki mai ai kēia lāʻau i kapa ʻia ʻo 'Belimumab' i ke kōkua. No loko ia o kahi papa o nā lāʻau i kapa ʻia ʻo 'monoclonal antibodies'. ʻO ka hana a kēia lāʻau, ʻo ia ke hoʻolohi i ka ʻōnaehana pale hana nui a kāohi iā ia. A laila, ua hoʻemi nui ʻia ka mumū a me ka pehu e kū mai ana i loko o ke kino. Hiki ke loaʻa ma ka mākeke ma lalo o nā inoa e like me 'Benlysta'.

Eia nō naʻe, hiki i nā kauka ke hoʻohana i kēia lāʻau lapaʻau no nā kūlana ʻē aʻe. No laila, inā he mau nīnau kāu, ʻoi aku ka maikaʻi o ka nīnau ʻana i kāu kauka a mea kūʻai lāʻau paha.

He aha kaʻu e haʻi aku ai i ke kauka ma mua o ka lawe ʻana i kēia lāʻau lapaʻau?

Ma mua o kou hoʻomaka ʻana e lawe iā Belimumab, he mea nui e haʻi i kāu hui mālama i kekahi mau ʻike koʻikoʻi. E kōkua kēia ʻike iā lākou e hoʻoholo inā kūpono kēia lāʻau lapaʻau iā ʻoe, a me nā hana palekana e pono e hana ʻia.

Inā loaʻa iā ʻoe kekahi o kēia mau kūlana, e ʻoluʻolu e haʻi mai iā mākou e pili ana iā lākou:

• Inā loaʻa iā ʻoe ka maʻi kanesa a i ʻole ua loaʻa mua iā ʻoe.
• Inā loaʻa iā ʻoe kahi maʻi e like me ke kaumaha .
• Inā he mau pilikia ʻē aʻe kāu me kāu ʻōnaehana pale .
• Inā loaʻa iā ʻoe kahi maʻi i kēia manawa (e like me ke kuni, ke anu, ka ʻūhā).
• Inā ua loaʻa iā ʻoe kahi lāʻau pale i hala koke aku nei , a i ʻole ke hoʻolālā nei e loaʻa i hoʻokahi i ka wā e hiki mai ana.
• Inā he mau manaʻo pepehi kanaka kou, ua hoʻolālā ʻoe e hana pēlā, a i ʻole ua hoʻāʻo paha e hana pēlā ma mua.
• Inā ua loaʻa iā ʻoe kahi hopena maʻi i ka Belimumab, kekahi lāʻau lapaʻau ʻē aʻe, meaʻai, nā kala, a i ʻole nā ​​​​mea mālama.
• Inā ʻoe e hāpai ana a i ʻole e hoʻāʻo ana e hāpai.
• Ke hānai waiū nei ʻoe.Inā he makuahine.

He mea nui loa ia no kou palekana ponoʻī ke ʻōlelo i kēia mau mea me ka hūnā ʻole ʻana.

Pehea e pono ai iaʻu ke hoʻohana i kēia lāʻau lapaʻau?

ʻElua ala e hiki ai ke hāʻawi ʻia kēia lāʻau lapaʻau i kapa ʻia ʻo 'Belimumab' iā ʻoe. ʻO kekahi ma ke ʻano he inikini i loko o kahi aa . Hāʻawi pinepine ʻia kēia iā ʻoe e ke kauka a kahu maʻi paha ma kahi haukapila a i ʻole ke keʻena lapaʻau.

ʻO ke ʻano hana ʻē aʻe, ʻo ia ke komo ʻana ma lalo o ka ʻili . I kekahi manawa, ua aʻo ʻia ʻoe pehea e hana ai i kēia ma ka home. Inā ʻoe e hana ana ma ka home, e aʻo ʻia ʻoe pehea e hoʻomākaukau pono ai a pehea e komo ai. He mea nui loa ia e lawe pololei e like me ke kuhikuhi ʻana, ma ka nui kūpono, a ma ka manawa kūpono . E hoʻomau i ka hoʻohana ʻana a hiki i ka wā e ʻōlelo ai kāu kauka iā ʻoe e hoʻōki.

E loaʻa iā ʻoe kahi pepa kuhikuhi NO KA HOʻOHANA ʻANA me kēia lāʻau lapaʻau. E heluhelu pono. Inā he mea āu e maopopo ʻole ai, mai makaʻu e nīnau i kāu kauka lāʻau lapaʻau a kauka paha.

ʻO ka mea nui loa, inā ʻoe e hoʻokomo ana iā ʻoe iho ma ka home, mai hoʻolei i nā nila a me nā syringe i hoʻohana ʻia , ʻeā? Aia kahi "pahu ʻoi" kūikawā no lākou. He pahu kūikawā kēlā no ke kau ʻana i nā mea ʻoi. ʻO ia kahi e waiho ai iā lākou. Mai hoʻolei iā lākou i loko o ka ʻōpala. Inā ʻaʻohe āu, e noi i kāu hale kūʻai lāʻau lapaʻau a kauka paha no hoʻokahi.

Eia kekahi, i kēlā me kēia manawa āu e loaʻa ai kēia lāʻau lapaʻau mai ka hale kūʻai lāʻau lapaʻau, a i kēlā me kēia manawa āu e loaʻa ai kahi hoʻopihapiha, e hāʻawi ʻia ʻoe i kahi `MedGuide` kūikawā, kahi pepa liʻiliʻi me ka ʻike e pili ana i ka lāʻau lapaʻau. Inā hāʻawi ʻia kēia lāʻau lapaʻau iā ʻoe ma kahi haukapila a i ʻole ke keʻena lapaʻau, e hāʻawi ʻia kēia `MedGuide` iā ʻoe ma mua o kēlā me kēia lāʻau lapaʻau. E hoʻomanaʻo mau e heluhelu pono .

Hiki ke hāʻawi ʻia kēia lāʻau lapaʻau i nā keiki liʻiliʻi?

No kekahi mau kūlana i koho ʻia, hiki ke hāʻawi ʻia kēia lāʻau lapaʻau i nā keiki e like me 5 mau makahiki. Eia nō naʻe, aia kekahi mau mea e makaʻala ai. No laila, inā ʻoe e hāʻawi ana i kēia lāʻau lapaʻau i kāu keiki, e kamaʻilio pono me kāu kauka e pili ana i ia mea a e ʻike i nā kikoʻī.

He aha ka mea e hana ai inā lawe ʻoe i ka nui o ka lāʻau lapaʻau?

Inā manaʻo ʻoe ua lawe ʻoe i ka mea ʻoi aku ma mua o kou manaʻo, e kāhea koke i ke kikowaena hoʻomalu lāʻau make a i ʻole ke keʻena pilikia . No kāu hoʻohana ponoʻī wale nō kēia lāʻau lapaʻau, mai kaʻana like me nā poʻe ʻē aʻe.

He aha kāu e hana ai inā e hala ʻoe i kahi manawa hoʻopaʻa lāʻau lapaʻau?

Inā hāʻawi ʻia kēia lāʻau lapaʻau iā ʻoe ma kahi haukapila a i ʻole ke keʻena lapaʻau, he mea nui loa ia ʻaʻole e haʻalele i kāu manawa i hoʻonohonoho ʻia. Inā ʻaʻole hiki iā ʻoe ke hele i ka lā i hoʻonohonoho ʻia, e kelepona i ka hui lapaʻau a e hoʻomaopopo iā lākou.

Inā ʻoe e lawe ana i kēia lāʻau lapaʻau ma ka home, inā e poina iā ʻoe kahi mahele lāʻau, e lawe koke iā ia i kou hoʻomanaʻo ʻana. A laila, e hoʻomaka hou e lawe iā ia i ka lā āu e lawe mau ai, a i ʻole e hoʻomaka e lawe iā ia ma kahi papa hana hebedoma hou e hoʻomaka ana mai ka lā āu i poina ai. Inā kokoke ka manawa no kāu mahele lāʻau aʻe, e lawe wale ia i kēlā manawa.Mai lawe i kahi mahele lāʻau pālua a ʻoi aku paha. Inā he mau nīnau kāu, e kamaʻilio me kāu hui mālama ola.

He aha nā pilina hiki ke hana ʻia me kēia lāʻau lapaʻau? (Nā pilina)

Aia kekahi mau lāʻau lapaʻau e hiki ke hoʻopilikia i ka wā e lawe pū ʻia me Belimumab. No laila, pono ʻoe e haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau ʻē aʻe āu e lawe nei.

ʻOi aku hoʻi, mai lawe i kēia lāʻau me kēia mau mea:

• Nā lāʻau pale ola

Eia kekahi, hiki i nā lāʻau lapaʻau e hiki mai ana ke launa pū me Belimumab:

• ʻO nā lāʻau lapaʻau olaola - ʻO nā laʻana e komo pū me ʻadalimumab, certolizumab, etanercept, golimumab, infliximab.
• ʻO Cyclophosphamide
• ʻO nā antibodies monoclonal - ʻo nā hiʻohiʻona e komo pū me ocrelizumab, ofatumumab, a me rituximab.

ʻAʻole paha i piha kēia papa inoa. No laila, e haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau āpau āu e lawe ai (me nā huaora, nā lāʻau lapaʻau lāʻau, a me nā mea hoʻohui) , a inā ʻoe e puhipaka, inu waiʻona, a hoʻohana paha i nā lāʻau ʻē aʻe.

He aha nā hana palekana kūikawā e pono e hana ʻia i ka wā e lawe ai i kēia lāʻau lapaʻau?

E ʻike pinepine i kāu kauka e nānā i ke ʻano o kāu mau hōʻailona a inā paha e hana ana ka lāʻau. Inā ʻaʻole hoʻomaikaʻi a ʻoi aku paha ka ʻino o kāu mau hōʻailona, ​​e haʻi i kāu hui mālama ola.

Hiki paha iā ʻoe ke piʻi iki ka pilikia o ka loaʻa ʻana o nā maʻi i ka wā e lawe ana i kēia lāʻau. No laila, inā loaʻa iā ʻoe nā hōʻailona e like me ke kuni, ke anu, ka ʻāʻī ʻeha, ka ihu wai, a i ʻole ke kuni, mai hoʻōla ponoʻī. E kelepona koke i ke kauka no ka ʻōlelo aʻo. E hoʻāʻo e noho mamao aku mai ka poʻe maʻi.

I kekahi poʻe, hiki i kēia lāʻau lapaʻau ke hoʻoulu i kahi maʻi lolo koʻikoʻi , hiki ke make. Inā pilikia ʻoe i ka ʻike ʻana, ka noʻonoʻo ʻana, ka ʻōlelo ʻana, a i ʻole ka hele wāwae ʻana a i ʻole ke kū ʻana, e haʻi koke aku i kāu hui mālama ola . Inā ʻaʻole hiki iā ʻoe ke kamaʻilio me ke kauka, e kiʻi koke i ke kōkua lapaʻau ʻē aʻe.

Eia kekahi, e kamaʻilio me kāu kauka e pili ana i kou pilikia o ka maʻi kanesa . ʻO ka lawe ʻana i kēia lāʻau lapaʻau e hoʻonui paha i kou pilikia o ka loaʻa ʻana o kekahi mau ʻano maʻi kanesa.

He aha nā hopena ʻaoʻao e hiki ke loaʻa mai kēia lāʻau lapaʻau?

E like me nā lāʻau lapaʻau āpau, hiki iā Belimumab ke hana i kekahi mau hopena ʻaoʻao. He koʻikoʻi kekahi, aʻo kekahi he mea maʻamau.

Nā hopena ʻaoʻao e pono ʻoe e haʻi koke aku i kāu kauka :

• Nā hopena maʻi ʻaleka - ka ʻulaʻula o ka ʻili, ka maneʻo, ka pehu ʻana o ka maka, nā lehelehe, ke alelo, a i ʻole ka puʻu.
• Ka poniuniu, ka nalowale o ke kaulike a i ʻole nā ​​pilikia, ka huikau, a i ʻole ka paʻakikī i ka ʻōlelo ʻana.
• Ka maʻi - Ke kuni, ke anu, ke kuʻi, ka ʻāʻī ʻeha, nā ʻeha e ho'ōla ʻole ʻia, ka ʻeha a i ʻole ka paʻakikī o ka mimi ʻana, ka manaʻo maʻi a maʻi ʻole paha.
• Nā manaʻo e pepehi iā ʻoe iho a i ʻole e hōʻeha iā ʻoe iho, ka ʻoi ʻana o ke olakino noʻonoʻo, a i ʻole nā ​​​​manaʻo kaumaha.

Inā loaʻa kekahi mea e like me kēia , e ʻimi koke i ke kōkua lapaʻau .

Nā hopena ʻaoʻao ʻaʻole pono ka ʻōlelo aʻoaʻo lapaʻau (akā inā hoʻomau a hoʻopilikia paha, pono ʻoe e haʻi i kāu kauka ):

• Ka maʻi pākī
• ʻEha poʻo
• Ka luaʻi
• ʻEha, ʻulaʻula, a huhū paha ma kahi i inikini ʻia
• Ihu wai a i ʻole ka ihu paʻa
• Pilikia i ka hiamoe ʻana

ʻAʻole paha e komo pū kēia papa inoa me nā hopena ʻaoʻao āpau. Inā ʻike ʻoe i kekahi mea ʻē aʻe i ʻike ʻole ʻia, e kāhea i kāu kauka a haʻi iā lākou e pili ana i ia mea.

Ma hea kahi e mālama ai i kēia lāʻau lapaʻau?

E mālama i kēia lāʻau lapaʻau mai ka hiki ʻana aku o nā keiki a me nā holoholona .

E mālama i loko o ka pahu hau. Mai mālama i loko o ka pahu hau . E mālama i ka lāʻau lapaʻau i loko o ka pahu kumu a hiki i kou mākaukau e lawe. E pale mai ka mālamalama. E pale i ka wela nui. Mai hoʻohana i ka lāʻau lapaʻau i hala i kona lā palena pau; e hoʻolei aku.

Mea nui: Inā ua waiho ʻia kēia lāʻau lapaʻau ma ka mahana o ka lumi no nā hola he 12 a ʻoi, mai hoʻokomo i loko o ka friji a hoʻohana hou paha. Inā ua waiho ʻia ma ka mahana o ka lumi, e hoʻolei aku ma hope o 12 mau hola a i ʻole ma hope o ka lā pau (ʻo ka mea mua).

Pehea ʻoe e hoʻolei aku ai i nā lāʻau lapaʻau i pau a hoʻohana ʻole ʻia?

• Aia nā papahana lawe hoʻihoʻi lāʻau. E nānā me kāu hale kūʻai lāʻau lapaʻau a i ʻole nā ​​mākaʻi e ʻike inā loaʻa iā lākou kekahi.
• Inā ʻaʻohe ala e hoʻihoʻi ai, e nīnau i kāu kauka lāʻau a kauka paha pehea e hoʻolei palekana ai i kēia lāʻau.

ʻO ka mea hope loa, leka lawe i ka home:

He lāʻau koʻikoʻi ʻo Belimumab no nā maʻi ʻōnaehana pale e like me lupus. Hana ia ma ka kaohi ʻana i kā mākou ʻōnaehana pale ikaika a me ka hōʻemi ʻana i nā hōʻailona.

Akā, e hoʻomanaʻo,

• Ma mua o ka lawe ʻana i kēia lāʻau lapaʻau, e haʻi i kāu kauka e pili ana i kou mau kūlana olakino a me nā lāʻau lapaʻau ʻē aʻe āu e lawe nei.
• E lawe i ka lāʻau lapaʻau e like me ka ʻōlelo a ke kauka, ma ke ʻano i kauoha ʻia a ma ka manawa i kauoha ʻia.
• E makaʻala i nā hopena ʻaoʻao, ʻoiai inā ʻike ʻoe i nā hōʻailona o nā hopena ʻaoʻao koʻikoʻi, a e ʻike koke i ke kauka.
• E hoʻolei aku i nā mea e like me nā nila inikini me ka palekana.
• E ʻike pinepine i kāu kauka e nānā i kou kūlana.

Inā he mau nīnau hou aku kāu e pili ana i kēia lāʻau lapaʻau, mai kānalua e nīnau i kāu kauka, kahu maʻi, a kauka lāʻau paha. E kōkua lākou iā ʻoe.

ʻO Belimumab, Lupus, ʻŌnaehana Palekana, Nā Antibodies Monoclonal, Benlysta, Inikini, Nā hopena ʻaoʻao