Ke ʻike nā kauka iā ʻoe a i ʻole kekahi āu i ʻike ai me ka maʻi ʻaʻai umauma , he mea maʻamau ka manaʻo kaumaha a loaʻa nā nīnau he nui. "He aha kaʻu e hana ai i kēia manawa?", "Pehea wau e kū ai?", "Pehea ka paʻakikī o ka lāʻau lapaʻau?", a pēlā aku, hiki ke hele i kou manaʻo i hoʻokahi tausani manawa. I kahi manawa e like me kēia, ʻo ka heluhelu ʻana i kahi puke maikaʻi e komo pū ana me nā ʻike o nā poʻe ʻē aʻe i hele i ka huakaʻi like a me nā ʻōlelo aʻoaʻo a nā kauka hiki ke hāʻawi iā ʻoe i ka ikaika nui, ka ʻike, a me ka maluhia o ka noʻonoʻo. I kēia lā, ke kamaʻilio nei mākou e pili ana i kekahi mau puke waiwai nui no ka poʻe e hakakā nei i kēia ʻano maʻi ʻaʻai a me ko lākou mau ʻohana.
Nā puke e kōkua iā ʻoe e hoʻomaopopo i kou ʻike
Ke heluhelu au i nā puke e kamaʻilio ana e pili ana i ke ʻano maoli o ke ola ʻana me ka maʻi kanesa, ke kaumaha, ka hauʻoli, a me ka makaʻu e hele pū me ia, manaʻo wau i kahi manaʻo nui o ka hōʻoluʻolu ʻaʻole wau wale nō ka mea e manaʻo nei i kēia mau mea.
"Pink Ribbon Blues" na Gayle Sulik
E pili ana kēia puke iā Nancy Stodahl, ka mea i ʻike ʻia he maʻi ʻaʻai umauma pae IIB i ka makahiki 2010. Ua ʻōlelo ʻo ia he mea wehe maka ka puke nona. Ke komo hohonu nei ka puke i loko o ka moʻomeheu ma hope o ka "lipino poni" a mākou e ʻike ai ma nā wahi āpau, a pehea e hūnā ai i nā pilikia olakino maoli e kū nei i nā wahine.
"ʻAʻole he makana ka maʻi kanesa a ʻaʻole ia i hoʻolilo iaʻu i kanaka maikaʻi aʻe" na Nancy Stordahl
He puke nō hoʻi kēia na Nancy Stodahl. Ua loaʻa pū i kona makuahine ka maʻi ʻaʻai umauma metastatic . No laila, ua kākau ʻo ia me ka ʻoiaʻiʻo e pili ana i kāna mau ʻike ma ke ʻano he kahu no kona makuahine a ma ke ʻano he maʻi maʻi kanesa ponoʻī. Ua ʻōlelo maopopo ʻo ia ʻaʻole he moʻolelo koa ka maʻi kanesa, he ʻike ʻino loa ia a maoli. Aia pū kekahi i loko nā mea e pono ai ʻoe e ʻike ma mua o ka hana ʻana i nā lāʻau lapaʻau chemotherapy , a pehea e lanakila ai i kou makaʻu iā ia.
"Ka Waena" na Kelly Corrigan
I ka wā i ʻike ʻia ai ʻo Kelly me ka maʻi ʻaʻai umauma, ua loaʻa pū kekahi i kona makuakāne ka maʻi ʻaʻai a pono ʻo ia e mālama iā ia. Kākau ʻo ia ma kēia puke me ke ʻano naʻau nui a me kekahi manawa me ka ʻakaʻaka e pili ana i kēlā "ma waena" o ka mālama ʻana i kona makuakāne i kona wā kamaliʻi a me ka hakakā ʻana me kona maʻi ponoʻī ma ke ʻano he makuahine.
E hoʻomanaʻo, he kūpono kou mau manaʻo i kāu huakaʻi me ke kanesa. ʻO ka makaʻu, ke kaumaha, ka huhū, a me ka manaʻolana nā ʻāpana a pau o kēia huakaʻi.
E lilo ʻoe i mea ikaika no kou ʻohana a me kou mau hoaaloha.
Ke haʻi ʻia aku iā ʻoe he maʻi kanesa kou, he mea hoʻohoka nui ia no ka poʻe aloha a puni ʻoe. Makemake lākou e kōkua iā ʻoe, akā ʻaʻole paha lākou i ʻike pehea. He kōkua nui kēia mau puke iā lākou.
"Ua loaʻa i koʻu makua ka maʻi kanesa a he mea ʻino maoli ia" na Maya lāua ʻo Marc Silver
ʻO Barbara Jacoby, he mea i pakele i ka maʻi ʻaʻai umauma ʻelua manawa, paipai i kēia puke. Ua ʻōlelo ʻo ia, "ʻOiai e mālama ʻia ana, ʻo ka mālama ʻana i nā hana o ka home, a me ka heluhelu ʻana i kahi puke hiki ke hoʻoluhi i ka mea maʻi. Akā pono nō hoʻi mākou e noʻonoʻo e pili ana i ko mākou mau ʻohana." Ua kākau ʻia ka puke e Maya lāua ʻo kona makuakāne. He 15 makahiki ʻo Maya i ka wā i ʻike ʻia ai kona makuahine me ka maʻi ʻaʻai umauma. No laila, hāʻawi ia i nā ʻōlelo aʻoaʻo kūpono no ka nānā ʻana i kēia ʻike mai ka manaʻo o kahi keiki ʻōpio, a pehea e kōkua ai i nā keiki i kēlā mau manawa.
"Ke pale nei i nā Dandelions" na Ron Richards
He puke kūikawā loa kēia. No ka mea, ua kākau ʻia e ke kāne a ka wahine i nalowale iā ia i ka maʻi kanesa. He moʻolelo koʻikoʻi ia no ka manaʻo o ke kāne i ka huakaʻi a kāna wahine ma ke kanesa, ka ʻeha, ka manaʻolana, a me ka nalowale āna i ʻike ai. E lilo kēia puke i mea kōkua nui i kāu hoa i ka hoʻomaopopo ʻana iā ʻoe.
"E ke Hoaaloha: Nā Leka Hoʻoikaika, Hoʻomākeʻaka, a me ke Aloha no nā Wahine me ka Maʻi ʻAʻai Umauma" na Gina Mulligan
He mea kupaianaha kēia puke. He hōʻiliʻili ia o nā leka i kākau ʻia e nā wāhine i loaʻa i ka maʻi ʻaʻai umauma , a na nā wāhine ʻē aʻe i ʻike hou ʻia. Aia ke aloha, ka wiwo ʻole, a me ka ʻakaʻaka i loko o nā leka. He mea hoʻoikaika loa ka lohe ʻana, "ʻAʻole ʻoe hoʻokahi, ua ʻike pū mākou i kēia."
No nā ʻōlelo aʻoaʻo kūpono a me ka hoʻoikaika
I kekahi manawa, ʻaʻole wale ka ʻike e pono ai mākou, akā, ʻo ka ʻōlelo aʻoaʻo kūpono hoʻi e maʻalahi ai kēia huakaʻi.
"ʻO ka lumi kuke e hakakā ana i ke kanesa" na Rebecca Katz
ʻO Anna Krolman, ka mea i ʻike ʻia he maʻi kanesa i ka makahiki 27, ʻo ia ka mea kākau o kēia puke. He mea maʻamau ka ʻike ʻana i nā hopena ʻaoʻao e like me ka nalowale o ka makemake, ka nausea, ka luhi, a me ka pohō kaumaha i ka wā o ka mālama ʻana. Aia i loko o kēia puke ma mua o 100 mau meaʻai ʻono e maʻalahi ke hana a e kōkua i ka hōʻemi ʻana i kēia mau hopena ʻaoʻao, hoʻonui i kou makemake, a kōkua iā ʻoe e ʻoluʻolu no ka manawa lōʻihi.
"Ma waena o nā lā: He Memoir e pili ana i ke ola ʻana me ka maʻi kanesa" na Teva Harrison
He ʻokoʻa kēia puke mai nā mea ʻē aʻe no ka mea, aia ia ma ke ʻano he puke moʻolelo kiʻi. He maʻalahi loa ka heluhelu ʻana. ʻO Tewa, ka mea i ʻike ʻia he maʻi ʻaʻai umauma metastatic i kona mau makahiki kanakolu, ua wehewehe ʻo ia i kona ʻike ma o nā kiʻi a me nā memo pōkole. He hōʻike manaʻo nui a ikaika hoʻi.
| Inoa Puke | Mea kākau | ʻOi loa no wai? |
|---|---|---|
| Nā Pulu Lipine ʻĀkala | ʻO Gayle Sulik | No ka poʻe makemake e ʻike i ke ʻano maoli o ka moʻomeheu kanesa. |
| Loaʻa i koʻu makua ka maʻi kanesa a he mea ʻino maoli ia | Maya & Marc Silver | No nā keiki ʻōpio a me nā mākua i loko o nā ʻohana o nā maʻi maʻi kanesa. |
| ʻO ka lumi kuke e hakakā ana i ka maʻi kanesa | ʻO Rebecca Katz | No nā mea maʻi a me ko lākou poʻe mālama e makemake ana e aʻo e pili ana i nā meaʻai momona i ka wā o ka mālama ʻana. |
| ʻAʻole he makana ka maʻi kanesa... | ʻO Nancy Stordahl | No ka poʻe e makemake e hoʻomaopopo maoli i ke ʻano ʻino o ka maʻi kanesa. |
E hoʻomaopopo kēia mau puke iā ʻoe e like me ʻoe e paʻa ana i ka lima o kekahi i kou hele ʻana i kēia huakaʻi paʻakikī. Akā, e hoʻomanaʻo, ma hope o ka heluhelu ʻana i kēia mau puke, ʻo ke kanaka maikaʻi loa e kamaʻilio pū ai e pili ana i kekahi pilikia olakino āu, nā hopohopo āu e pili ana i ka lāʻau lapaʻau, nā makaʻu āu, ʻo ia kāu kauka . Mai makaʻu e kamaʻilio me ia e pili ana i nā mea āpau me ka wehe ʻia.
Leka Lawe-Home
- Ke ʻike ʻia ʻoe he maʻi ʻaʻai umauma, e ʻike ʻoe ʻaʻole ʻoe hoʻokahi. He mau tausani o nā wāhine ʻē aʻe a puni ka honua i hele ma kēia huakaʻi a ke hele nei hoʻi ma ia mea.
- ʻO ka heluhelu ʻana i nā ʻike a me nā memoir a haʻi e hiki ke hāʻawi iā ʻoe i ka ikaika noʻonoʻo nui a me ka ʻike maoli.
- He mea paʻakikī kēia ʻike no kou ʻohana, nā keiki, a me ka hoa. Mai poina he mau puke e hiki ke kōkua iā lākou e hoʻomaopopo i kēia kūlana.
- He mea nui ka hoʻolohe ʻana i nā mea pono e like me ka meaʻai i ka wā o ka mālama ʻana i ka hopena ʻaoʻao.
- ʻOiai hiki i ka heluhelu ʻana i kēia mau puke ke lilo i mea hōʻoluʻolu nui, e kūkākūkā mau me kāu kauka ma mua o ka hoʻoholo ʻana e pili ana i kāu mau pilikia olakino a me ka mālama ʻana.
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