Ke ʻike koke nei ʻoe i nā pehu ma kou ʻili e ʻānai ana? He Bullous Pemphigoid paha kēia!

Ua loaʻa koke anei iā ʻoe kahi ʻulaʻula ma kou ʻili i ʻike ʻole ʻia ma mua, a me ka ʻūlū, i kekahi manawa he wai piha i nā pehu? Makemake paha ʻoe e ʻike e pili ana i kahi maʻi i kapa ʻia ʻo bullous pemphigoid. He maʻi ʻili kakaikahi ia, akā he mea pono ke makaʻala. E kamaʻilio kākou e pili ana i ia mea ma ke ʻano maʻalahi hiki iā ʻoe ke hoʻomaopopo.

He aha ka Bullous Pemphigoid? He aha ke ʻano o ia maʻi?

I ka ʻōlelo maʻalahi, ʻo Bullous Pemphigoid kahi maʻi ʻili kakaʻikahi e hoʻoulu ai i nā ʻulaʻula, nā ʻūlū ma ka ʻili o ka ʻili, e like me ka eczema. I kekahi manawa, hiki i kēia mau ʻūlū ke ulu a lilo i mau pehu piha i ka wai. E noʻonoʻo e like me ka nahu ʻana o ka makika, me nā pehu nui e ʻūlū nui ana.

Hiki ke ʻike ʻia kēia mau pehu ma kahi liʻiliʻi o ke kino, a i ʻole hiki iā lākou ke pālahalaha ma ke kino holoʻokoʻa. ʻIke pinepine ʻia lākou ma nā wahi e pelu ai ka ʻili. No ka laʻana, ma lalo o nā armpits (axilla), ma ka ʻūhā, a i ʻole ma ka ʻōpū. Hiki i kekahi poʻe ke loaʻa i kēia mau pehu ma nā wahi e like me loko o ka waha, ke alelo, ka ʻāʻī, ka esophagus, a i ʻole nā ​​maka.

I kēia manawa, ke noʻonoʻo nei paha ʻoe, "No ke aha lā kēia e hana nei?" He maʻi autoimmune ka bullous pemphigoid. ʻO ke ʻano kēia, ʻo ka ʻōnaehana pale o ko mākou kino, ka mea i manaʻo ʻia e pale iā mākou, e hoʻouka hewa ana i nā ʻiʻo ma lalo o ko mākou ʻili ponoʻī. Ua like ia me ko mākou pūʻali koa ponoʻī e hoʻouka ana i ko mākou ʻāina ponoʻī.

ʻO wai ka mea e loaʻa pinepine ai kēia? Pehea ka maʻamau?

ʻO ka bullous pemphigoid kahi maʻi i ʻike nui ʻia i ka poʻe ma luna o 60 mau makahiki. Eia nō naʻe, hiki ke loaʻa i ka poʻe ʻōpio. ʻOiai he mea maʻamau ia ma nā ʻāina Komohana, ʻaʻole ia he mea maʻamau ma nā ʻāina ʻĀsia, ʻo ia hoʻi, ma ko mākou ʻāpana o ka honua.

Hiki i kēia ke hana i nā kāne a me nā wahine, me ka nānā ʻole i ke kāne.

Aia kekahi pilina me nā maʻi neurological?

ʻAe, ua ʻike ʻia ka poʻe me kekahi mau maʻi neurological e ʻoi aku ka nui o ka loaʻa ʻana o ka bullous pemphigoid. ʻO kēia mau mea:

• Dementia
• ka maʻi o Parkinson
• Hahau
• ʻEpilepsy
• ʻO ka sclerosis lehulehu

ʻAʻole kēia manaʻo e loaʻa i nā kānaka a pau me kēia mau kūlana ka bullous pemphigoid. Eia nō naʻe, wahi a nā kauka aia paha kahi pilina.

He mea maʻamau loa ia a ua hōʻike ʻia ka nui o ka maʻi ma waena o 2.4 a me 23 i kēlā me kēia miliona i ka heluna kanaka. Eia nō naʻe, ma waena o ka poʻe he 80 a ʻoi paha ka makahiki, aia ka nui ma waena o 190 a me 312 i kēlā me kēia miliona . ʻO ke ʻano kēia, ʻoi aku ka nui o ka loaʻa ʻana i ia mea i kou wā ʻelemakule.

✨ Hair care Verified Partner

Natural solutions for hair fall

100% natural hair solutions for alopecia and medical hair loss.

Check Availability →

He mea weliweli anei ka bullous pemphigoid? Hiki iā ia ke hoʻoweliweli i ke ola?

He mea weliweli iki paha kēia iā ʻoe. Akā eia ka ʻoiaʻiʻo: kāuHiki i ka bullous pemphigoid ke hoʻoweliweli i ke ola inā ʻaʻole maikaʻi kou olakino a inā ʻaʻole ʻoe e mālama pono iā ia, ʻoiai inā haki kou mau pehu a lilo i maʻi. ʻO ia ke kumu e ʻōlelo aku ai mākou e ʻike koke i ke kauka inā ʻike ʻoe i kekahi mea ʻē.

He aha nā hōʻailona? Pehea ʻoe e ʻike ai?

ʻO nā hōʻailona nui o ka bullous pemphigoid ka ʻike ʻia ʻana o nā ʻeha ʻulaʻula he nui e like me ka eczema (welts) a i ʻole nā ​​​​​​pehu i piha i ka wai (bullae) . ʻIke pinepine ʻia kēia mau mea ma:

• I loko o nā lima
• Ma nā wāwae
• Ma ka ʻāpana ʻōpū
• Ma ka ʻāpana ʻūhā
• I loko o ka waha

Hoʻokumu pinepine ʻia kēia mau pehu ma nā ʻāpana o ka ʻili, ma nā ʻāpana o ka ʻili. ʻO ka hapa nui o ka manawa, ʻaʻole lākou he ʻeha , akā inā haki lākou, hiki iā lākou ke lilo i ʻeha a ʻeha, a hiki ke lilo i mau ʻōpū.

Hiki ke moakāka a koko iki paha ke wai i loko o ka pehu. Hiki ke maʻamau ka ʻili a puni ka pehu a i ʻole ua loli ke kala (ʻulaʻula, poni, ʻeleʻele, a i ʻole he ʻeleʻele iki ke kala ma mua o kou ʻili).

ʻO ka nūhou maikaʻi, ʻaʻole paha e hoʻoulu kēia ʻulaʻula a me nā pehu i ka ʻeha.

No ke aha e ulu ai ka bullous pemphigoid? He aha nā kumu?

E like me kā mākou i ʻōlelo ai ma mua, ʻo ka bullous pemphigoid kahi maʻi i hoʻokumu ʻia e kahi hana hewa i loko o ka ʻōnaehana pale. Eia nō naʻe, ʻaʻole i loaʻa i nā kauka a me nā mea noiʻi kahi kumu paʻa no ke kumu e pane ai kā mākou ʻōnaehana pale i kēia ʻano.

Hiki i kekahi mau lāʻau lapaʻau ke hoʻoulu a hoʻonui paha i kēia kūlana. No ka laʻana, ʻo ka lāʻau maʻi diabetes ʻo alogliptin. Hiki i ke kukui Ultraviolet (UV) a me ka radiation ionizing mai ka lā ke hoʻoulu a hoʻonui paha i kēia kūlana.

Hiki i kekahi mau meaʻai a me nā mea inu ke hoʻonui i kēia?

He nīnau kēia a ka poʻe he nui e nīnau ai. ʻO ka ʻoiaʻiʻo, ʻaʻohe hōʻike ʻepekema maopopo a nā kauka e hōʻoia ai he pilina ma waena o ka meaʻai a me ka bullous pemphigoid. Wahi a kekahi poʻe ua hoʻomaikaʻi ʻia ko lākou mau hōʻailona i ka wā i hōʻoki ai lākou i kekahi mau meaʻai mai kā lākou ʻai. Eia naʻe, ʻaʻohe hōʻike ikaika e hōʻoia i kēia.

Inā loaʻa iā ʻoe ka bullous pemphigoid, e kamaʻilio me kāu kauka e pili ana i ka hiki ke kōkua i ka hoʻopau ʻana i kekahi mau meaʻai a me nā mea inu. Hiki iā ia ke haʻi iā ʻoe e mālama i kahi puke moʻolelo meaʻai . A laila hiki iā ʻoe ke ʻike inā hoʻonui kekahi mau meaʻai i kāu mau hōʻailona. Inā ʻike ʻoe e hana lākou, hiki iā ʻoe ke hoʻopau mālie i kēlā mau meaʻai a ʻike inā kōkua kēlā.

He maʻi lele anei kēia?

ʻAʻole, ʻaʻole laha ka bullous pemphigoid. ʻAʻole hiki ke laha i kekahi kanaka ma o ka pili ʻana o ka ʻili a i ka ʻili. No laila, mai hopohopo no ia mea.

Pehea e ʻike pololei ai ke kauka i kēia?

Ke hele ʻoe e ʻike i ke kauka, e nānā mua ʻo ia i nā wahi i hoʻopilikia ʻia o kou ʻili. A laila e nīnau lākou iā ʻoe i kekahi mau nīnau. Eia kekahi laʻana:

• "I ka manawa hea i hoʻomaka ai kēia mau hōʻailona?"
• "He ʻōpala a koko paha kou i loko o kou mau pehu?"
• "Ua loaʻa iā ʻoe ke kuni?"
• "Ua hoʻomaka anei ʻoe i kekahi mau lāʻau lapaʻau hou?"

Ma hope o ka nīnau ʻana i nā nīnau e like me kēia, hiki mai ke kauka i kahi hopena maʻamau e pili ana i nā pane āu e hāʻawi ai.

He aha nā hoʻokolohua e hana ʻia nei no kēia?

No ka hōʻoia ʻana i ka hōʻailona, ​​​​hiki i kāu kauka ke ʻōlelo iā ʻoe e hana i kēia mau hoʻokolohua:

• Hoʻāʻo koko: Hoʻohana ʻia kahi nila liʻiliʻi e lawe i kahi hāpana koko mai kahi aʻa koko i kou lima a hoʻouna aku i kahi hale hana no ka hoʻāʻo ʻana.
• ʻO ka biopsy ʻili: Pili kēia i ka lawe ʻana i kahi ʻāpana liʻiliʻi o kou ʻili a hoʻouna aku i kahi keʻena hoʻokolohua no ka hoʻāʻo ʻana. ʻO kēia wale nō ke ala e hōʻoia ai i ke kumu pololei o ke kūlana.

He aha nā lāʻau lapaʻau maikaʻi loa?

I nā hihia ʻoluʻolu o ka bullous pemphigoid, ʻo ka lāʻau maikaʻi loa ka hoʻopili ʻana i nā kirīmi corticosteroid a i ʻole nā ​​​​​​mea ʻaila pololei i nā wahi i hoʻopilikia ʻia.

Eia nō naʻe, i nā hihia kaulike a koʻikoʻi paha , hiki i kāu kauka ke hāʻawi iā ʻoe i nā pila corticosteroid waha, e like me ka prednisone , me ka hoʻohui ʻana i ka kirīmi corticosteroid. Hiki iā lākou ke hāʻawi iā ʻoe i nā mea hana immunomodulatory ʻē aʻe e hiki ke kōkua i ka hōʻemi ʻana i ka hoʻohana ʻana i nā steroids. No ka laʻana, nā lāʻau lapaʻau e like me dapsone, mycophenolate mofetil, azathioprine, methotrexate, a i ʻole chlorambucil.

Inā ʻaʻole hiki iā ʻoe ke lawe i nā corticosteroids a i ʻole nā ​​​​lāʻau lapaʻau ʻē aʻe e hoʻopau ana i ka pale ʻana, hiki i kāu kauka ke kuhikuhi i nā papa i kapa ʻia ʻo tetracycline a i ʻole doxycycline .

I kekahi manawa, inā ʻaʻole hiki i kēia mau lāʻau lapaʻau ke kāohi i ka maʻi (nā hihia paʻakikī), hiki i ke kauka ke ʻōlelo aku i nā lāʻau lapaʻau e like me Rituximab a i ʻole IVIG infusion (kahi wai i hāʻawi ʻia i loko o kahi aʻa) .

ʻO ka mea nui loa, mai hoʻohana i kekahi lāʻau lapaʻau me ka ʻole o ke kūkākūkā ʻana me ke kauka. ʻO ia ka mea nāna e hoʻoholo i ka lāʻau kūpono loa no kou kūlana.

Aia kekahi mau lāʻau lapaʻau e hiki ke hana ma ka home?

ʻAʻohe lāʻau lapaʻau home kikoʻī no ka bullous pemphigoid. Eia nō naʻe, aia kekahi mau mea hiki iā ʻoe ke hana e kōkua i ka hōʻemi ʻana i kāu mau hōʻailona a hāʻawi i kahi hōʻoluʻolu.

No nā pehu ma ka ʻili:

• E ʻaʻahu i nā lole palupalu a ākea i hana ʻia mai nā olonā kūlohelohe (e like me ka pulupulu).
• Mai noho lōʻihi i ka lā. Inā ʻoe e hele i waho, e kau i ka pale lā.
• E mālama i kou mau ʻeha a i ʻole nā ​​ʻeha ma ka holoi ʻana iā lākou me ke kopa antibacterial a me ka wai. Ma hope o kāu hana ʻana i kēia, e hoʻopili i kahi kirīmi antiseptic i nā ʻeha a uhi iā lākou me kahi kāʻei nonadhesive. Hiki i kēia ke kōkua i ka pale ʻana i ka maʻi.
• Inā he bullous pemphigoid kou ma kou mau wāwae, e pale i ke kū ʻana a i ʻole ka hele ʻana no ka manawa lōʻihi.
• E hoʻopili i ka moisturizer, kirīmi, ʻaila niu, a i ʻole ka pata shea e mālama i kou ʻili i ka maʻū.

Inā he mau ʻeha waha kou:

Inā he mau ʻeha pemphigoid bullous i loko o kou waha, hiki i kēia mau ʻōlelo aʻoaʻo ke kōkua iā ʻoe e pale i nā pilikia meaʻai a hoʻemi i kekahi o kāu mau hōʻailona:

• E ʻai i nā meaʻai palaka, e like me nā sopa, nā meaʻai i kuʻi ʻia, nā puddings, a me ka applesauce.
• I ka ʻai ʻana i nā meaʻai wela, e kali a hōʻalili ma mua o ka ʻai ʻana.
• E pale i ka ʻai ʻana i nā meaʻai ʻoi a palupalu (e like me nā ʻuala palai, nā meaʻai liʻiliʻi, nā ʻuala palai, nā ʻuala palai, nā huaʻai maka, a me nā mea ʻai māmā).
• Mai ʻai i nā meaʻai ʻakika loa (e.g., chili, salsa, limes, tōmato).
• E pale i ka inu ʻana i ka waiʻona.

ʻEhia ka manawa e ʻoi aku ai koʻu maikaʻi ke hoʻomaka wau i ka lāʻau lapaʻau?

Pono ʻoe e hoʻomaka e ʻoluʻolu i loko o kekahi mau lā o ka hoʻomaka ʻana o ka lāʻau lapaʻau. Eia nō naʻe, hiki ke ʻokoʻa kēia mai kēlā kanaka a kēia kanaka.

Aia kekahi ala e pale aku ai i kēia mai ka hana ʻana?

ʻO ka mea pōʻino, ʻaʻole ʻike nā kauka a me nā mea noiʻi i kahi ala e pale aku ai i ka ulu ʻana o ka bullous pemphigoid.

He aha ka mea e hiki mai ana inā loaʻa iaʻu kēia maʻi? He aha ka mea e hiki mai ana i ka wā e hiki mai ana?

ʻO ka maʻamau, e hoʻōla hou ka bullous pemphigoid iā ia iho i loko o ʻelima mau makahiki. Pane maikaʻi ia i ka lāʻau lapaʻau. Eia nō naʻe, i kekahi manawa hiki i ka maʻi ke hoʻāla a i kekahi manawa hiki ke hoʻomaha. I ka wā o ka hoʻomaha ʻana, hiki paha iā ʻoe ke hoʻōki i ka lāʻau lapaʻau (me ka ʻōlelo aʻo a kāu kauka).

Inā pahū a loaʻa ka maʻi i kou mau pehu, aia ʻoe i ka pilikia o ka loaʻa ʻana o kahi maʻi weliweli i ke ola i kapa ʻia ʻo sepsis . No laila, he mea nui loa ka mālama ʻana i kou mau pehu.

He aha nā manawa kūpono loa e ʻike ai i ke kauka?

Inā loaʻa iā ʻoe nā pehu i wehewehe ʻole ʻia , e ʻike koke i ke kauka. E like me ka mea i ʻōlelo ʻia ma mua, ʻoi aku ka maikaʻi o ka loaʻa ʻana o kahi hōʻailona a me ka lāʻau lapaʻau i ka wā hikiwawe.

Nā nīnau koʻikoʻi e nīnau aku i kāu kauka

Ke hele ʻoe e ʻike i ke kauka, he mea kōkua paha ka nīnau ʻana i kēia mau nīnau:

• "Pehea lā ʻoe e ʻōlelo ai he bullous pemphigoid koʻu?"
• "Inā ʻaʻohe oʻu bullous pemphigoid, he aha nā maʻi ʻili ʻē aʻe e loaʻa iaʻu?"
• "Pehea e hiki ai iaʻu ke mālama i kaʻu mau hōʻailona?"
• "He aha nā lāʻau lapaʻau āu e ʻōlelo mai nei noʻu?"
• "He mau hopena ʻaoʻao anei kēlā mau lāʻau lapaʻau?"
• "He aha hou aʻe kaʻu e hana ai e hoʻomaikaʻi ai i koʻu mau hōʻailona?"
• "Pehea ka lōʻihi o koʻu loaʻa ʻana i kēia maʻi bullous pemphigoid?"
• "Pono anei au e ʻike i ke kauka ʻili a i ʻole kekahi loea ʻē aʻe?"

He aha ka ʻokoʻa ma waena o ka Pemphigus Vulgaris a me ka Bullous Pemphigoid?

He mau maʻi ʻelua e hoʻoulu ai i nā pehu ma ka ʻili ma muli o ka hana hewa ʻana o ka ʻōnaehana pale. Loaʻa i ka Pemphigus vulgaris nā hōʻailona like me ka bullous pemphigoid. Eia nō naʻe, hoʻomaka pinepine ka pemphigus vulgaris i loko o nā membrane mucous i loko o ka waha. He kakaikahi ka poʻe e hoʻomohala i nā pehu ma ka ʻili. Eia kekahi, ʻoi aku ka palupalu o nā pehu ma ka pemphigus vulgaris ma mua o nā mea ma ka bullous pemphigoid.

Ke ʻike ʻia nā pehu pemphigus vulgaris, he mau ʻino pinepine ia, ʻaʻole nā ​​pehu i haki ʻole e like me ka bullous pemphigoid. Inā loaʻa iā ʻoe ka pemphigus vulgaris, e hoʻokaʻawale maʻalahi nā papa luna o kou ʻili mai nā papa lalo me kahi kaomi iki a i ʻole ka hamo ʻana (ua kapa ʻia kēia ʻo ka hōʻailona Nikolsky) .

ʻOiai ʻo ka hapa nui o nā kānaka me ka bullous pemphigoid he mau hopena ʻili, ʻo ka hapakolu wale nō (33%) o lākou e hoʻomohala i nā pehu ma ka waha .

ʻO ka mea hope loa, leka lawe i ka home

ʻAe, ua kamaʻilio nui mākou e pili ana i ka bullous pemphigoid. Eia kekahi o nā mea nui e hoʻomanaʻo:

• He maʻi laha ʻole ka bullous pemphigoid i loko o ka ʻōnaehana pale e hoʻoulu ai i nā pehu a i ʻole nā ​​​​ʻeha ma ka ʻili.
• ʻAʻole kēia he mea laha.
• ʻIke pinepine ʻia ia i nā poʻe ʻelemakule, akā hiki nō hoʻi ke hana i nā poʻe ʻōpio.
• Inā pehu a ʻānai paha kou ʻili me ke kumu ʻole, e ʻike koke i ke kauka.
• Me ka mālama pono ʻana, hiki ke kaohi maikaʻi ʻia kēia, a i ka hala ʻana o ka manawa, aia kahi hiki ke hoʻōla piha ʻia.
• Hiki i nā pehu ke lilo i mea weliweli inā loaʻa iā lākou ka maʻi, no laila he mea nui loa ia e mālama iā lākou i ka maʻemaʻe.

Inā loaʻa iā ʻoe kēia mau hōʻailona, ​​mai hopohopo. Ma ka hahai ʻana i nā ʻōlelo aʻoaʻo lapaʻau, hiki iā ʻoe ke ho'ōla koke.