Ke manaʻo nei ʻoe i kekahi manawa ua pehu koke kou mau lehelehe, maka, alelo, a i ʻole nā ʻāpana ʻē aʻe o kou kino? Hiki paha iā ʻoe ke paʻakikī i ka hanu ʻana. Kāhea mākou i kēia ʻano he angioedema . Hiki ke lilo i mea weliweli a ʻoluʻolu ʻole. No laila i kēia lā e kamaʻilio mākou e pili ana i kahi lāʻau lapaʻau kūikawā i hāʻawi ʻia e kāohi i ka pehu koke ke hana ʻia ka angioedema. ʻO ia hoʻi, he lāʻau pale i kapa ʻia ʻo C1 Esterase Inhibitor, Recombinant . Ua lohe paha ʻoe iā ia ma lalo o ka inoa inoa ʻo RUCONEST .
He aha kēia lāʻau lapaʻau? No ke aha i hāʻawi ʻia ai?
I ka ʻōlelo maʻalahi, ʻo kēia C1 Esterase Inhibitor, Recombinant he lāʻau lapaʻau ia e kōkua ai i ka mālama ʻana i nā hoʻouka pehu koke e kū mai ana i kahi kūlana i kapa ʻia ʻo Angioedema .
E noʻonoʻo e pili ana i ia mea, pono i ko kākou kino ke kaulike o nā kemika like ʻole e noho olakino. Loaʻa paha i kekahi poʻe kahi protein i kapa ʻia ʻo C1 esterase inhibitor i loko o ko lākou kino, a i ʻole ʻaʻole paha e hana pono. Ke haʻahaʻa kēia protein, e like me kā lākou i ʻōlelo ai, hoʻomaka koke ke kino e pehu ma nā wahi, ʻo ia hoʻi ka angioedema.
No laila, ʻo ka hana a kēia lāʻau pale, ʻo ia ke kōkua i ka hoʻihoʻi ʻana i ka hana o ka mea hoʻopaʻa C1 esterase i nalowale a i ʻole hana hewa. Kōkua kēia i ka kaohi ʻana i ka pehu a hāʻawi i ka hōʻoluʻolu i ka mea maʻi. Hāʻawi pinepine ʻia i ka poʻe me ka angioedema hoʻoilina (HAE) . Hiki ke hoʻohana ʻia kēia lāʻau lapaʻau no nā kūlana ʻē aʻe; e nīnau i kāu kauka a kauka lāʻau paha e pili ana i ia mea.
He aha kāu e haʻi aku ai i kāu kauka ma mua o ka lawe ʻana i kēia lāʻau?
Ma mua o kou loaʻa ʻana o kēia lāʻau pale C1 Esterase Inhibitor, Recombinant, aia kekahi mau mea e pono ai ʻoe e haʻi i kāu kauka a i ʻole ka hui mālama. No ka mea, e kōkua kēlā ʻike iā lākou e hoʻoholo inā kūpono kēia lāʻau lapaʻau iā ʻoe a pehea e hāʻawi ʻia ai. ʻAe, e nānā kākou i kēlā mau mea:
- Inā he moʻolelo kou o nā ʻūpā koko: Inā ua loaʻa iā ʻoe kahi ʻūpā koko i loko o kou kino ma mua, inā paha ma loko o kahi aa koko hohonu, māmā, a i ʻole ka lolo, a ua mālama ʻia no ia mea, e ʻoluʻolu e haʻi mai iā mākou e pili ana i ia mea. Hiki i kēia lāʻau lapaʻau ke hoʻonui iki i ka pilikia o nā ʻūpā koko.
- Inā ua loaʻa iā ʻoe kahi hopena maʻamau ʻole a i ʻole ka maʻi ʻaleka i ka mea hoʻopaʻa C1 esterase, nā lāpaki, a i ʻole nā lāʻau lapaʻau ʻē aʻe, nā meaʻai, nā kala, a i ʻole nā mea mālama:He mea nui loa kēia. No ka mea, ua hana ʻia kēia lāʻau lapaʻau me ka hoʻohana ʻana i ka ʻenehana genetic (recombinant), hiki ke loaʻa nā ʻōnaehana cell i hoʻohana ʻia mai nā lāpaki. No laila, inā he allergy kou i nā lāpaki, pono ʻoe e haʻi mai iā mākou e pili ana i ia mea. Eia kekahi, inā he allergy ʻē aʻe kāu i nā lāʻau lapaʻau, nā meaʻai, a i ʻole nā waiʻoluʻu, e haʻi mai iā mākou e pili ana iā lākou. A laila hiki i ke kauka ke akahele loa i ka hāʻawi ʻana iā ʻoe i kēia lāʻau lapaʻau.
- Inā hāpai ʻoe a i ʻole e hoʻāʻo ana e hāpai: E haʻi i kāu kauka inā ua hāpai mua ʻoe a i ʻole e hoʻolālā ana e loaʻa koke kahi pēpē. ʻAʻole i ʻike piha ʻia ka palekana o kēia lāʻau lapaʻau i ka wā hāpai, no laila e hoʻoholo kāu kauka inā e hāʻawi iā ʻoe.
- Inā ʻoe e hānai waiū ana: Inā ʻoe e hānai waiū ana, pono ʻoe e haʻi i kāu kauka e pili ana i ka hele ʻana o kēia lāʻau lapaʻau i loko o kou waiū umauma a inā paha e hoʻopilikia ia i kāu pēpē.
Inā ʻōlelo pololei ʻoe i kēia mau mea, hiki i ke kauka ke mālama iā ʻoe me ka palekana.
Pehea ʻoe e hoʻohana ai i kēia lāʻau lapaʻau?
ʻO kēia lāʻau lapaʻau, i kapa ʻia ʻo C1 Esterase Inhibitor, Recombinant, hāʻawi ʻia ma ke ʻano he inikini i loko o kahi aa . Hāʻawi pinepine ʻia e kekahi loea mālama ola ma kahi haukapila a i ʻole ke keʻena lapaʻau. ʻO ke ʻano kēia e hāʻawi aku ke kauka a i ʻole ke kahu maʻi i aʻo ʻia i kēia inikini iā ʻoe.
Eia nō naʻe, i kekahi mau hihia, inā hoʻoholo kāu kauka, hiki paha iā ʻoe ke hoʻohana i kēia lāʻau lapaʻau ma ka home. Inā pēlā, e hāʻawi ʻia ʻoe i ke aʻo maikaʻi i ke ʻano o ka hoʻomākaukau ʻana a me ka hāʻawi ʻana i kēia lāʻau lapaʻau. Pono ʻoe e hahai i nā ʻōlelo a ke kauka e like me kā lākou e ʻōlelo nei. Mai hoʻāʻo i kēia ma kāu iho, me ka ʻike ʻole i ka mea e hana ai, ʻae?
ʻO ka mea nui loa! Mai hoʻolei i kāu mau nila a me nā syringe i hoʻohana ʻia i loko o ka ʻōpala. Pono e waiho ʻia i loko o kahi pahu ʻoi kūikawā. Inā ʻaʻohe āu, e noi i kāu kauka lāʻau a kauka paha no hoʻokahi. He mea nui kēia no ke kaiapuni a no ka palekana o nā poʻe ʻē aʻe.
Hiki ke hāʻawi ʻia kēia lāʻau lapaʻau i nā keiki?
ʻAe, i kekahi manawa pono e hāʻawi ʻia kēia lāʻau i nā keiki. Akā, pono ia i ka mālama kūikawā . No laila, inā makemake ʻoe e hāʻawi i kēia lāʻau i kāu keiki, e kamaʻilio me ke kauka pediatric a e hahai i kāna mau kuhikuhi.
He aha kāu e hana ai inā lawe ʻoe i ka nui o ka lāʻau lapaʻau? (Overdosage)
Inā manaʻo ʻoe ua lawe ʻoe i ka nui o kēia lāʻau lapaʻau, ʻo ia hoʻi, ʻoi aku ma mua o ka nui i kuhikuhi ʻia, e kāhea koke i kahi kikowaena hoʻomalu lāʻau make a i ʻole ke keʻena pilikia. Mai hoʻonele i ka manawa.
Nā mea nui: Ua kuhikuhi ʻia kēia lāʻau lapaʻau nou wale nō.Mai kaʻana like i kēia me nā poʻe ʻē aʻe, ʻoiai inā loaʻa iā lākou nā hōʻailona like me ʻoe. He ʻokoʻa ka lāʻau lapaʻau kūpono a me ka nui no kēlā me kēia kanaka.
He aha inā e hala wau i kahi lāʻau?
ʻAʻole pili kēia nīnau ma ʻaneʻi. No ka mea, ʻo kēia lāʻau lapaʻau i kapa ʻia ʻo C1 Esterase Inhibitor, Recombinant , ʻaʻole ia he lāʻau lapaʻau i hoʻohana ʻia i kēlā me kēia lā (ʻaʻole no ka hoʻohana mau) . Hāʻawi wale ʻia ia i ka wā e pehu koke ai (hoʻouka) o ka angioedema. No laila, ʻaʻole ʻoe e loaʻa i kahi 'menstruation missed'.
He aha nā lāʻau ʻē aʻe e hiki ke launa pū me kēia lāʻau?
E like me ka mea i ʻike ʻia i kēia manawa, ʻaʻohe pilina nui i manaʻo ʻia ma waena o kēia lāʻau lapaʻau a me nā lāʻau lapaʻau ʻē aʻe.
Eia nō naʻe, e hoʻomanaʻo ʻaʻole kēia papa inoa e wehewehe i kēlā me kēia pilina. No laila, e haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau āpau, nā mea kanu, nā lāʻau lapaʻau i kauoha ʻole ʻia, a i ʻole nā mea hoʻohui meaʻai āu e lawe nei. Eia kekahi, e haʻi i kāu kauka inā ʻoe e puhipaka, inu waiʻona, a hoʻohana paha i nā lāʻau lapaʻau kū ʻole i ke kānāwai. Hiki i kekahi mau mea ke launa pū me kāu lāʻau lapaʻau.
He aha kaʻu e makaʻala ai i ka wā e hoʻohana ai i kēia lāʻau lapaʻau?
Ke hāʻawi ʻia kēia lāʻau lapaʻau iā ʻoe, e nānā pono kāu kauka a kauka paha i kou kūlana .
Eia kekahi, inā ʻaʻole e hoʻomaikaʻi a ʻoi aku ka ʻino o kāu mau hōʻailona ma hope o ka lawe ʻana i kēia lāʻau lapaʻau, e haʻi koke aku i kāu kauka a i ʻole ke kauka olakino. Mai kali. ʻO ka wikiwiki o kou haʻi ʻana iā lākou, ʻo ka nui o kā lākou hana.
He aha nā hopena ʻaoʻao e hiki iaʻu ke loaʻa mai kēia lāʻau lapaʻau?
E like me nā lāʻau lapaʻau āpau, hiki i kēia lāʻau pale C1 Esterase Inhibitor, Recombinant ke hana i nā hopena ʻaoʻao i kekahi poʻe. ʻAʻole loaʻa i nā kānaka a pau, akā he mea maikaʻi ke makaʻala i nā mea hiki ke loaʻa.
Nā hopena ʻaoʻao e pono e hōʻike koke ʻia i kāu kauka a i ʻole ke kauka olakino:
- Nā hopena maʻi ʻaleka: ʻŌhūhū ʻili, maneʻo, hives, pehu o ka maka, lehelehe, a i ʻole ke alelo. Inā ʻike ʻoe i kekahi o kēia mau mea, e haʻi koke i kāu kauka, no ka mea hiki ke koʻikoʻi.
- Nā hōʻailona a me nā ʻōuli o ke koko koko:
- Nā pilikia hanu
- Nā loli i ka ʻike - ʻike pōwehiwehi koke, ʻike pālua
- ʻEha umauma
- ʻEha poʻo koʻikoʻi a koke
- ʻEha, pehu, mehana i ka wāwae - ʻoiai ma kekahi wāwae
- Pilikia i ka ʻōlelo ʻana - nā huaʻōlelo slurring, me ka manaʻo ʻaʻole hiki iā ʻoe ke ʻōlelo i kāu mea e hoʻāʻo nei e ʻōlelo
- Ka mae koke ʻana a i ʻole ka nāwaliwali o ka maka, ka lima a i ʻole ka wāwae - ʻoiai ma kekahi ʻaoʻao o ke kino
Inā ʻike ʻoe i kekahi o kēia mau hōʻailona, he pilikia paha ia, no laila e ʻimi koke i ke kōkua lapaʻau.
Nā hopena ʻaoʻao ʻaʻole pono ka ʻōlelo aʻoaʻo lapaʻau (akā inā hoʻomau a hoʻopilikia paha, pono ʻoe e haʻi i kāu kauka ):
- Ka maʻi pākī
- ʻEha poʻo - he ʻeha poʻo maʻamau
- Nausea - manaʻo e like me ʻoe e luaʻi ana
ʻAʻole paha e komo pū kēia papa inoa me nā hopena ʻaoʻao āpau. Inā ʻike ʻoe i kekahi mea ʻē, e kamaʻilio me kāu kauka. Hiki iā ʻoe ke hōʻike i nā hopena ʻaoʻao i ka FDA (Food and Drug Administration) (ʻo kā lākou helu he 1-800-FDA-1088, akā ma Sri Lanka ʻoi aku ka maikaʻi o ka haʻi ʻana i kāu kauka ).
Ma hea kahi e mālama ai i kaʻu lāʻau lapaʻau?
Pono e mālama ʻia kēia lāʻau lapaʻau mai ka hiki ʻana aku o nā keiki . He mea maʻamau kēlā i nā lāʻau lapaʻau a pau.
Inā ʻoe e hoʻohana ana i kēia lāʻau lapaʻau ma ka home, e loaʻa iā ʻoe nā kuhikuhi no ka mālama ʻana i kēia lāʻau lapaʻau. Hiki paha iā ia ke ʻōlelo e mālama iā ia i loko o ka pahu hau a i ʻole ma ka mahana o ka lumi. E hahai pono i kēlā mau kuhikuhi.
E hoʻolei aku i nā lāʻau lapaʻau i hoʻohana ʻole ʻia i hala ka lā palena pau ma ka lepili. Mai mālama.
ʻO ka mea hope loa, e hoʻomanaʻo i kēia (Leka Lawe-Home)
ʻAe, ke lana nei koʻu manaʻo ua ʻike maikaʻi ʻoe i ka lāʻau a mākou i kamaʻilio ai i kēia lā i kapa ʻia ʻo C1 Esterase Inhibitor, Recombinant.
E hoʻomanaʻo, he inikini kūikawā kēia i hāʻawi ʻia e kāohi i ka pehu koke ʻana i ke kūlana o Angioedema. Hoʻohana wale ʻia ia ma ke ʻōlelo aʻo a ke kauka.
- Ma mua o ka hāʻawi ʻia ʻana o kēia lāʻau lapaʻau iā ʻoe, mai poina e haʻi i kāu kauka i nā mea āpau e pili ana i kou kūlana olakino, nā maʻi allergies, a me nā lāʻau lapaʻau ʻē aʻe āu e lawe nei .
- ʻOiai e hoʻohana ana i ka lāʻau lapaʻau, e makaʻala i nā hōʻailona ʻē aʻe, ʻoiai nā hopena alerika a i ʻole nā hōʻailona o ke koko . Inā ʻike ʻoe i kekahi o kēia mau mea, e haʻi koke i kāu kauka .
- Inā hoʻohana ma ka home, e hōʻoia e loaʻa iā ʻoe ke aʻo kūpono a hahai i nā kuhikuhi. E hoʻolei pono i nā mea ʻoi a me nā mea ʻē aʻe.
- He lāʻau lapaʻau kēia i hāʻawi ʻia iā ʻoe wale nō. Mai kaʻana like me nā poʻe ʻē aʻe.
He ʻano hoʻonāukiuki iki ka Angioedema, akā me ka mālama pono ʻana a me ka mālama ʻana, hiki ke hoʻomalu maikaʻi ʻia. Mai hopohopo, e kūkākūkā i nā mea āpau me kāu kauka a e hahai i kāna mau kuhikuhi. A laila hiki iā ʻoe ke hoʻōla koke!
ʻO ka mea hoʻopaʻa i ka esterase C1, recombinant, angioedema, RUCONEST, pehu, allergy, lāʻau pale, lāʻau lapaʻau
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