Ua lohe anei ʻoe i ka Chronic Lymphocytic Leukemia (CLL)? E kamaʻilio kākou e pili ana i ia mea me nā kikoʻī!

Ke luhi loa nei ʻoe i kekahi manawa? A i ʻole ke loaʻa pinepine nei ʻoe i ke kuni? Loaʻa iā ʻoe nā puʻupuʻu liʻiliʻi e like me he mea lā ma kou ʻāʻī, nā ʻauwae, a i ʻole ka ʻūhā? He mau hōʻailona paha kēia o ka Chronic Lymphocytic Leukemia, a i ʻole CLL no ka pōkole. Akā, mai hopohopo, no ka mea, ʻo ka loaʻa ʻana o kēia mau hōʻailona a pau, ʻaʻole ia he manaʻo ua loaʻa iā ʻoe kēia maʻi. Akā, he mea nui loa ka makaʻala i nā mea e like me kēia. No laila, e kamaʻilio kākou e pili ana iā CLL ma ke ʻano maʻalahi i kēia lā, ʻae?

He aha ka maʻi leukemia lymphocytic mau loa (CLL)? I ka ʻōlelo maʻalahi...

ʻO ka leukemia lymphocytic mau loa (CLL) kahi ʻano maʻi koko . ʻO ia ke ʻano maʻamau o ka leukemia i nā pākeke. Hoʻopuka ʻia nā hunaola koko i loko o ka iwi iwi. Hana ʻia kēia ʻano i ka wā e lilo ai nā lymphocytes, kahi ʻano o ke koko keʻokeʻo olakino i loko o ka iwi iwi, i mea ʻē, ʻo ia hoʻi ke loli a lilo i maʻi kanesa. Hoʻonui nui kēia mau hunaola kanesa me ka ʻole o ka hoʻomalu ʻana, e hoʻokuke ana i nā hunaola koko olakino a me nā platelets, e kōkua ana i ke kāpili ʻana o ke koko.

ʻIke pinepine ʻia ʻo CLL i nā poʻe ma luna o 65 mau makahiki. Eia nō naʻe, hiki ke loaʻa i kekahi manawa i nā poʻe ʻōpio e like me 30. Eia kekahi, hiki i kekahi poʻe ke loaʻa iā CLL me ka ʻole o nā hōʻailona . ʻIke ka poʻe he nui e pili ana i ke kūlana ke loaʻa iā lākou kahi hoʻāʻo koko no kekahi kūlana ʻē aʻe a i ʻole i ka wā o kahi nānā lapaʻau makahiki maʻamau.

I kēia manawa, ʻaʻohe lāʻau lapaʻau no CLL. Akā, ʻaʻole ia he kumu e hopohopo ai. I nā makahiki he ʻumi i hala iho nei, ua hoʻomohala nā kauka i nā lāʻau lapaʻau hou e hiki ke kāohi i ka CLL a hoʻihoʻi iā ia i ke kala ʻana . Ua ʻae kēia mau lāʻau lapaʻau i ka poʻe me CLL e ola lōʻihi.

He aha nā ʻano nui o CLL?

ʻElua ʻano nui o nā hunaola koko keʻokeʻo i loko o ko kākou kino, i kapa ʻia he lymphocytes. Hiki i ka CLL ke ulu i hoʻokahi wale nō o kēia mau ʻano ʻelua.

• Nā lymphocytes B (nā pūnaewele B): ʻO kēia nā pūnaewele e hana i nā antibodies, kahi ʻano protein e ʻike a hakakā i nā germs ʻino, bacteria, viruses, a me nā cell cancer.
• Nā T-lymphocytes (nā pūnaewele T): Hoʻomalu kēia mau mea i nā pane o ka ʻōnaehana pale o ko mākou kino. Loaʻa pū lākou a luku pololei i nā pūnaewele ʻē, e like me nā pūnaewele kanesa.

ʻO ke ʻano maʻamau o CLL ʻo ia ka B-cell CLL . Aia kekahi kūlana pili e hoʻopilikia ana i nā T-cell, i kapa ʻia ʻo T-cell prolymphocytic leukemia (PLL). Eia nō naʻe, ʻoi aku ka wikiwiki o ka hoʻomohala ʻana o ka poʻe me PLL i nā hōʻailona ma mua o ka poʻe me B- cell CLL.

Pehea ka maʻamau o kēia ʻano i kapa ʻia ʻo CLL?

ʻO ka ʻoiaʻiʻo, ʻo ka leukemia lymphocytic mau loa (CLL) kekahi o nā ʻano leukemia maʻamau i nā pākeke. Ma ʻAmelika Hui Pū ʻIa, pili ka maʻi i kahi 5 o 100,000 mau kānaka. Ua manaʻo ka American Cancer Society e loaʻa ana ma kahi o 18,700 mau hihia hou o CLL i ka makahiki 2023 wale nō. No ka hoʻokomo ʻana i kēia i loko o ka manaʻo, ʻoi aku ma mua o 238,000 mau hihia hou o ka maʻi kanesa māmā (kekahi o nā maʻi kanesa maʻamau) e manaʻo ʻia e hōʻike ʻia i ka makahiki 2023. No laila, ʻoiai ʻaʻole paha e like me ka mea maʻamau ka CLL, ʻo ia kekahi o nā ʻano leukemia maʻamau.

He aha nā hōʻailona o CLL?

E like me kā mākou i ʻōlelo ai ma mua, hiki i kekahi poʻe ke loaʻa iā CLL me ka ʻole o nā hōʻailona . Hiki ke hala i nā mahina a i ʻole nā ​​​​makahiki no ka ʻike ʻia ʻana o nā hōʻailona. ʻO nā hōʻailona maʻamau:

• Luhi: Hiki i ka CLL ke hoʻopilikia i kou mau hunaola koko ʻulaʻula, e hoʻoulu ai i ka anemia. ʻO ka luhi kahi hōʻailona maʻamau o ka anemia.
• Kuni: He hōʻailona ka kuni o ka maʻi. Ma muli o ka hoʻopilikia ʻana o CLL i nā hunaola koko keʻokeʻo olakino, ʻoi aku ka nui o ka loaʻa ʻana o nā maʻi.
• Nā kīʻaha lymph pehu i ka ʻāʻī, nā armpits, ka ʻūhā, a i ʻole ka ʻōpū.
• Ka hou o ka pō.
• Ka pohō kaumaha i wehewehe ʻole ʻia.
• ʻEha a i ʻole ka manaʻo o ka piha ma lalo o kou mau iwi ʻaoʻao: Hiki i ka CLL ke hoʻopilikia i kou akepaʻa a i ʻole ka spleen. Ke hōʻiliʻili nā hunaola kanesa i loko o kēia mau ʻōpū, hiki iā lākou ke pehu.

No ke aha e ulu ai ʻo CLL? He aha nā kumu pilikia?

Hoʻomaka ka maʻi leukemia lymphocytic mau (CLL) i ka wā e loaʻa ai kekahi mau mutations, a i ʻole nā ​​​​loli, i loko o kā mākou chromosomes a me nā genes i ko mākou ola. Eia nō naʻe, ʻaʻole maopopo i nā kānaka noiʻi lapaʻau ke kumu o kēia mau loli. Eia nō naʻe, ua ʻike lākou i kekahi mau mea pilikia e hiki ke hoʻopilikia iā ia:

• Moʻolelo ʻohana: Ua hōʻike ʻia e ka noiʻi inā loaʻa iā CLL kekahi o kou ʻohana pili, ʻo ia hoʻi kou makuahine, makuakāne, mau kaikaina, a i ʻole nā ​​keiki, hiki ke hoʻonui ʻia kou pilikia o ka hoʻomohala ʻana iā CLL i ʻelua a ʻehā manawa.
• Makahiki: Ma ka awelika, he 71 mau makahiki o nā maʻi i ka wā i ʻike ʻia ai me CLL.
• Kāne: ʻOi aku ka nui o nā kāne e hoʻomohala i ka CLL.
• Ka ʻike ʻia ʻana i ka Agent Orange: Ua hōʻike ʻia e ka noiʻi kahi pilina ma waena o Agent Orange, kahi kemika i hoʻohana ʻia i ka wā o ke Kaua Vietnam, a me CLL.
• ʻO ka lymphocytosis o nā pūnaewele B monoclonal:Ma kēia kūlana, ʻoi aku ka nui o hoʻokahi ʻano o nā cell-B i loko o kou koko ma mua o ka maʻamau. Inā loaʻa iā ʻoe kēia kūlana, he liʻiliʻi kou pilikia o ka loaʻa ʻana o CLL.

He aha nā pilikia e hiki ke loaʻa mai ka CLL?

Hoʻopilikia ka CLL i kāu mau hunaola koko ʻulaʻula, nā hunaola koko keʻokeʻo, a me nā platelets. E noʻonoʻo e pili ana i ia mea, lawe nā hunaola koko ʻulaʻula i ka oxygen ma ke kino holoʻokoʻa. Mālama nā hunaola koko keʻokeʻo iā mākou mai nā maʻi. Kōkua nā platelets i ke kāpili ʻana o ke koko. No laila, ke nalowale kēia mau hunaola koko olakino a me nā platelets, hiki iā ʻoe ke loaʻa nā pilikia e like me:

• Lymphoma: Ma waena o 2% a me 10% o ka poʻe me CLL e loaʻa i kahi ʻano maʻi kanesa i kapa ʻia ʻo lymphoma.
• ʻO ke kanesa ʻili, ke kanesa māmā, a i ʻole ke kanesa kolona: Hoʻonāwaliwali ka CLL i kāu ʻōnaehana pale, e emi ai kona hiki ke pale aku iā ʻoe mai nā mea komo hewa, me nā hunaola kanesa. Hiki i kēia ke hoʻonui i kou pilikia o ka hoʻomohala ʻana i nā ʻano kanesa ʻē aʻe.
• Anemia: Hiki ke ulu ka anemia ke lawa ʻole nā ​​​​​​huna koko ʻulaʻula e lawe i ka oxygen ma ke kino holoʻokoʻa.
• Thrombocytopenia: Hiki i ka CLL ke hoʻopilikia i kāu lako platelet. Hiki i kēia ke hoʻoheheʻe i ke koko.
• Nā maʻi pinepine: Me ka lawa ʻole o nā hunaola koko keʻokeʻo olakino, ʻoi aku ka nui o ka loaʻa ʻana o nā maʻi bacteria, fungal, a i ʻole viral.
• Nā maʻi Autoimmune: Hiki i kekahi poʻe me CLL ke hoʻomohala i nā kūlana e like me ka anemia hemolytic autoimmune.

Pehea e ʻike ʻia ai ʻo CLL?

Ke hele ʻoe e ʻike i ke kauka, e nīnau ʻo ia iā ʻoe e pili ana i kāu mau hōʻailona. A laila, e hana lākou i kahi hoʻokolokolo kino a kauoha paha i kekahi mau hoʻokolohua, e like me:

• Helu koko piha (CBC) a me ka ʻokoʻa: Ke ana kēia hoʻāʻo i ka helu o nā hunaola koko ʻulaʻula, nā hunaola koko keʻokeʻo, a me nā platelets i loko o kou koko. Nānā pū ia i ka nui o ka hemoglobin (ka protein e lawe ana i ka oxygen) i loko o kou mau hunaola koko ʻulaʻula.
• ʻO ka paʻi koko peripheral: Ke nānā nei kekahi loea hoʻokolohua lapaʻau i kāu mau hunaola koko ma lalo o kahi microscope e nānā i nā hunaola kanesa.
• ʻO ka cytometry kahe: Hiki i kēia hoʻāʻo lab ke hāʻawi i ka ʻike hou aku e pili ana i kāu mau hunaola koko. Ma CLL, hoʻohana ʻia ia e hoʻoholo pono inā loaʻa i kāu mau hunaola koko keʻokeʻo nā hunaola CLL.
• Nā hoʻokolohua genetic:Hoʻohana nā kauka i nā hoʻokolohua e like me ka fluorescent in situ hybridization (FISH) a me ka immunoglobulin heavy chain (IGHV) e nānā i kāu mau chromosomes a me nā genes. ʻO ka hoʻomaopopo ʻana i nā loli i hana ʻia i loko o kēia mau chromosomes a me nā genes e kōkua i nā kauka e hoʻoholo pehea e mālama ai iā CLL.

Nā Pae o CLL

Hoʻoholo nā kauka i ke kahua o kahi maʻi kanesa e hoʻolālā i ka lāʻau lapaʻau a wānana i ka prognosis. ʻElua mau ʻano nui i hoʻohana ʻia e hoʻopaʻa i ka CLL: ka ʻōnaehana hoʻonohonoho Rai a me ka ʻōnaehana hoʻonohonoho Binet .

I kekahi manawa, ke heluhelu ʻoe i kēia mau pae ma nā helu a me nā leka, e makaʻu iki paha ʻoe a ʻoluʻolu ʻole. Manaʻo paha ʻoe, "Penei anei ka wehewehe ʻana o koʻu maʻi ma ke ʻano he formula?" Hoʻomaopopo nā kauka i kēlā. Inā ʻaʻole ʻoe maopopo i ka mea e ʻōlelo ʻia nei, a inā he mea kaumaha ia iā ʻoe, e ʻoluʻolu e noi i kāu kauka e wehewehe pehea e pili ai kēia ʻōnaehana pae i kou kūlana.

ʻŌnaehana hoʻonohonoho Rai

Hoʻokaʻawale kēia ʻano hana iā CLL e like me ka hiki ke lilo i mea ʻino a inā paha e pono ka lāʻau lapaʻau:

• Ka pilikia haʻahaʻa (i ʻike mua ʻia ʻo Rai stage 0): Loaʻa iā ʻoe ka lymphocytosis (ka piʻi ʻana o ka helu o nā lymphocytes), a aia nā hunaola koko keʻokeʻo ʻē aʻe i loko o ke koko a/a i ʻole ka iwi iwi.
• Ka pilikia waena (i ʻike mua ʻia ʻo Rai stage I a i ʻole stage II): Loaʻa iā ʻoe ka lymphocytosis, nā lymph nodes pehu, a me ka spleen a me/a i ʻole ke akepaʻa i hoʻonui ʻia.
• Ka pilikia kiʻekiʻe (i ʻike mua ʻia ʻo Rai Stage III): Loaʻa iā ʻoe ka anemia a i ʻole thrombocytopenia (helu platelet haʻahaʻa).

ʻŌnaehana hoʻonohonoho Binet

Hoʻokumu ʻia kēia ʻano hana ma kāu helu koko a me nā helu platelet, a me ka helu o nā wahi me nā kīʻaha lymph pehu i loko o kou kino:

• Pae A: ʻAʻohe ou anemia (helu koko ʻulaʻula haʻahaʻa) a i ʻole helu platelet haʻahaʻa. Eia nō naʻe, he mau lymph node pehu kou ma ka liʻiliʻi ʻelua mau wahi ma kou kino. No ka laʻana, he mau lymph node pehu paha kou ma kou ʻāʻī a me kou ʻūhā.
• Pae B: Aia nā ʻāpana lymph pehu ma ʻekolu wahi o ke kino, a pehu paha ke akepaʻa a i ʻole ka spleen. Eia naʻe, ʻaʻohe anemia, a maʻamau ka pae platelet.
• Pae C: Loaʻa iā ʻoe ka anemia a me nā lymph nodes pehu ma ʻekolu a ʻoi aku paha mau wahi ma kou kino.

Pehea e mālama ʻia ai ʻo CLL?

Hoʻoholo ʻia nā koho lapaʻau e kāu mau hōʻailona a me nā hopena hoʻāʻo. No ka laʻana, inā loaʻa iā ʻoe ka CLL mua, hiki i kāu kauka ke ʻōlelo aku i ka "kiaʻi makaʻala/nānā ikaika."Hiki iā ʻoe ke hele me ke ʻano i kapa ʻia ʻo "monitoring." Pili kēia i ka nānā pono ʻana i kou olakino laulā, nā hōʻailona, ​​​​a me nā hopena hoʻāʻo me ka hoʻomaka ʻole ʻana i ka lāʻau lapaʻau.

Hiki i nā hopena o nā hoʻokolohua genetic ke hoʻopilikia i nā hoʻoholo lapaʻau. No ka laʻana, ʻo kekahi mau loli genetic ke ʻano e ʻoi aku ka wikiwiki o kou kūlana, a i ʻole ʻaʻole paha e hana maikaʻi nā lāʻau lapaʻau CLL maʻamau e like me ka mea i manaʻo ʻia.

ʻO nā lāʻau lapaʻau maʻamau no CLL ʻo ia ka lāʻau lapaʻau i hoʻolālā ʻia a me ka chemotherapy . I kekahi manawa hoʻohana ʻia ka radiation therapy e hōʻemi i nā hōʻailona o CLL. Hiki i kēlā me kēia o kēia mau lāʻau lapaʻau ke hana i nā hopena ʻaoʻao like ʻole. E wehewehe pono kāu kauka i nā pono, nā hopena ʻaoʻao, a me nā pilikia lōʻihi o ka lāʻau lapaʻau āu e loaʻa nei.

Hoʻōla i kuhikuhi ʻia

Hana kēia lāʻau lapaʻau ma ke kuhikuhi ʻana i nā hunaola kanesa. I ka maʻi leukemia lymphocytic mau loa, hana kēia lāʻau lapaʻau ma ke kāohi ʻana i ka ulu ʻana o nā hunaola koko keʻokeʻo kanesa. Pepehi kekahi mau lāʻau lapaʻau i kuhikuhi ʻia i nā hunaola kanesa me ka ʻole o ka hōʻeha ʻana i nā hunaola olakino. ʻO kekahi o nā lāʻau lapaʻau i hoʻohana ʻia no kēia:

• ʻO ka lāʻau lapaʻau inhibitor tyrosine kinase (BTK) a Bruton: Ke ālai nei kēia lāʻau i kahi enzyme e kōkua ana i nā cell-B e hana i nā cell koko keʻokeʻo hou aʻe. Nā laʻana: ibrutinib (Imbruvica®) , acalabrutinib (Calquence®) , a me zanubrutinib (Brukinsa ®) .
• Lapaʻau hoʻopaʻa BCL2: Ke ālai nei ka lāʻau venetoclax (Venclexta®) i kahi protein i kapa ʻia ʻo BCL2 i loaʻa i loko o nā cell leukemia, me nā cell CLL. Hiki i kēia lāʻau ke pepehi i nā cell leukemia a i ʻole e hoʻolilo iā lākou i mea ʻoi aku ka maʻalahi i nā lāʻau anticancer ʻē aʻe.
• ʻO ka lāʻau lapaʻau antibody monoclonal: He ʻano immunotherapy kēia. ʻO nā antibodies monoclonal kahi ʻano antibody i hana ʻia i loko o kahi keʻena hoʻokolohua. Hoʻōki lākou i ka ulu ʻana o nā hunaola kanesa a pepehi paha i nā hunaola kanesa. Nā laʻana: rituximab (Rituxan®) a me obinutuzumab (Gazyva®) .

Kemoterapia

Hiki i kāu kauka ke hoʻohana i ka chemotherapy ma ke ʻano he lāʻau lapaʻau mua no ka leukemia lymphocytic mau loa. ʻO kekahi o nā lāʻau chemotherapy maʻamau i hoʻohana ʻia no CLL:

• ʻO Fludarabine (Fludarabine - Fludara®)
• Chlorambucil (Chlorambucil - Leukeran®)
• Cyclophosphamide (Cytoxan®)
• Bendamustine (Bendamustine - Treanda®)

Hoʻōla lāʻau pale

Hana kēia ʻano lapaʻau ma ka hoʻihoʻi ʻana a i ʻole ka hoʻoikaika ʻana i kāu ʻōnaehana pale kino, e kōkua ana i ka luku ʻana i nā hunaola kanesa a hoʻolohi paha i ko lākou ulu ʻana.

No CLL i pane ʻole i ka chemotherapy, ua hoʻi hou mai (recurrent) CLL, a i ʻole e ʻoi aku ka ʻino, hiki i nā kauka ke hoʻohana i ka lāʻau immunotherapy lenalidomide (Revlimid®) .

Ke aʻo pū nei nā kānaka noiʻi lapaʻau i ka lāʻau lapaʻau chimeric antigen receptor (CAR-T) no nā poʻe maʻi CLL i pane ʻole i nā lāʻau lapaʻau maʻamau.

ʻEhia ka lōʻihi e hiki ai iā ʻoe ke ola me CLL?

ʻO ka maʻamau, lohi loa ka holomua ʻana o ka maʻi leukemia lymphocytic mau loa (CLL). Hiki iā ʻoe ke noho me CLL no nā makahiki ma mua o kou loaʻa ʻana o nā hōʻailona. Ke ʻike ʻia nā hōʻailona, ​​loaʻa i nā kauka nā lāʻau lapaʻau maikaʻi loa e hiki ai ke hoʻihoʻi iā CLL i ke kala ʻana . ʻO kēia kala ʻana mai CLL e mau ana no kekahi mau makahiki ma mua o ka hoʻi hou ʻana mai o ka maʻi. Eia nō naʻe, hiki i kāu kauka ke paipai i nā lāʻau lapaʻau ʻē aʻe e hiki ai ke hoʻihoʻi iā CLL i ke kala ʻana. ʻAʻole hiki ke ho'ōla piha ʻia ʻo CLL, akā hiki i ka poʻe me ka maʻi ke ola lōʻihi a piha.

Ua manaʻo ka National Cancer Institute he 87.9% o nā maʻi me CLL e ola ana i ʻelima mau makahiki ma hope o ka ʻike ʻia ʻana. Eia nō naʻe, i ka noʻonoʻo ʻana i kēia mau helu ola, he mea nui e hoʻomanaʻo he mau kuhi kēia i hoʻokumu ʻia ma ka ʻike o kahi hui nui o nā maʻi me CLL. Hiki i nā mea he nui ke hoʻopilikia i kēia mau helu ola, me kou olakino laulā, ke kahua o kou maʻi i ka wā i ʻike ʻia ai, a pehea ka maikaʻi o ka pane ʻana o kāu maʻi i ka lāʻau lapaʻau. Inā he mau nīnau kāu, e nīnau i kāu kauka i ka mea e manaʻo ai ma muli o kou kūlana.

He aha ka mea e hana ana ma ka pae hope loa o CLL?

ʻO ke ʻano o ka huaʻōlelo "end-stage" ʻaʻole pono nā lāʻau lapaʻau i ka kaohi ʻana a i ʻole ka hoʻōki ʻana i ka maʻi CLL. I kēlā manawa, loaʻa paha iā ʻoe nā maʻi e hoʻoweliweli ana i ke ola a i ʻole ke kahe koko i kāohi ʻole ʻia e hiki ʻole i nā kauka ke ho'ōla.

Hiki ke pale ʻia kēia kūlana?

ʻAʻohe ala i ʻike ʻia e pale aku ai iā CLL i kēia manawa.

He aha ke ʻano o ka noho ʻana me CLL?

Aia nō ia i kou kūlana. Hiki iā ʻoe ke loaʻa iā CLL me ka ʻole o nā hōʻailona. Inā loaʻa iā ʻoe nā hōʻailona, ​​​​aia nā lāʻau lapaʻau e hōʻemi iā lākou a mālama i ka maʻi. Eia naʻe, ʻaʻole e nalowale loa ka maʻi.

Eia kekahi mau manaʻo e hiki ke kōkua iā ʻoe i kou wā e noho ana me CLL:

• E pale iā ʻoe iho mai nā maʻi:ʻOi aku ka nui o ka pilikia o ka poʻe me CLL i ka loaʻa ʻana o nā maʻi. Hiki i kekahi mau maʻi ke hoʻoweliweli i ke ola. E nīnau i kāu kauka e pili ana i nā lāʻau pale kūpono iā ʻoe.
• E makaʻala i kou olakino holoʻokoʻa: Aia paha ʻoe i ka nui o ka pilikia o ka loaʻa ʻana o ka maʻi ʻili, ka maʻi ʻaʻai māmā, a i ʻole ka maʻi ʻaʻai colon. E nīnau i kāu kauka e pili ana i nā hoʻokolohua nānā ʻana i ka maʻi ʻaʻai.
• E hoʻokele i ke kaumaha: He nui ka poʻe me CLL e hele i nā pōʻaiapuni o ka hoʻomaha a me ka hoʻi hou ʻana. I ka holomua ʻana o ka maʻi, hiki iā ʻoe ke hopohopo a makaʻu. Inā pēlā, e nīnau i kāu kauka e pili ana i nā polokalamu a i ʻole nā ​​​​lawelawe e hiki ke kōkua iā ʻoe e hoʻokele i kou kaumaha.
• E ʻai i ka meaʻai olakino: Hiki i kekahi mau hōʻailona CLL ke hoʻolilo iā ʻoe i ka nalowale o kou makemake. E kamaʻilio me kāu kauka e pili ana i ka loaʻa ʻana o ka ʻōlelo aʻo mai kahi meaʻai meaʻai. Inā maikaʻi kou makemake, e hoʻāʻo e ʻai i kahi meaʻai kaulike e komo pū ana me nā protein lean, nā palaoa piha, nā huaʻai a me nā mea kanu, a me nā momona olakino. Hiki i kēia ke hoʻomaikaʻi i kou olakino holoʻokoʻa.
• Hoʻoikaika Kino: Kōkua ka hoʻoikaika kino iā ʻoe e hoʻokele i ke kaumaha a hoʻohauʻoli iā ʻoe.
• Hoʻomaha: Hiki i ka CLL ke hoʻoluhi loa iā ʻoe. E hoʻomaha ke manaʻo ʻoe e pono ʻoe e hoʻomaha.
• E ʻike i ka mea e manaʻo ai: ʻO ka ʻike ka mana. E nīnau i kāu kauka no nā hōʻailona e hōʻike ana e ʻoi aku ka ʻino o kou kūlana. Inā pēlā, hiki i kāu kauka ke kuhikuhi i nā lāʻau lapaʻau ʻē aʻe e hiki ke kōkua i ka mālama ʻana i kāu CLL.

He aha nā nīnau e pono iaʻu e nīnau aku i kaʻu kauka?

Makemake paha ʻoe e nīnau i nā nīnau e like me kēia:

• He aha ke ʻano o ka maʻi leukemia lymphocytic mau loa iaʻu?
• ʻAʻohe oʻu hōʻailona. Āhea wau e hoʻomaka ai i ka mālama ʻana?
• He aha nā koho lapaʻau e loaʻa iaʻu?
• Pono anei au e lawe i ka lāʻau lapaʻau no ka wā pau ʻole?
• E hoʻihoʻi anei ka lāʻau lapaʻau i koʻu kūlana i ke kala ʻana?

ʻO ka mea hope loa, nā mea e hoʻomanaʻo ai (Leka Lawe-Home)

ʻO ka leukemia lymphocytic mau loa (CLL) kahi ʻano leukemia i maʻamau i nā pākeke. Hiki iā ʻoe ke loaʻa i kēia maʻi no nā makahiki me ka ʻole o nā hōʻailona. Inā loaʻa iā ʻoe ʻo CLL, ʻaʻole pono ʻoe e hoʻomaka koke i ka lāʻau. ʻOiai ʻaʻole hiki i nā kauka ke ho'ōla piha iā ia, aia nā lāʻau lapaʻau e hiki ke hōʻoluʻolu i nā hōʻailona CLL a hoʻihoʻi i ka maʻi i ka hoʻomaha . Ola kekahi poʻe me CLL no nā makahiki.

ʻAʻole maʻalahi ka noho ʻana me kahi maʻi mau e like me CLL. Hiki iā ʻoe ke hele i kekahi mau pōʻaiapuni o ka hoʻomaha a me ka hoʻi hou ʻana. I loko o kēlā me kēia pōʻaiapuni, hopohopo paha ʻoe no ka mea e hiki mai ana. Hoʻomaopopo kāu mau kauka i ke ʻano o ka noho ʻana me kahi maʻi mau. E hauʻoli lākou e pane i nā nīnau āu e loaʻa ai a kōkua iā ʻoe ma nā ʻano āpau e hiki ai iā lākou. No laila, mai makaʻu e kamaʻilio me kāu kauka e pili ana i kou mau hopohopo.

Leukemia , CLL, maʻi ʻaʻai koko, nā hōʻailona, ​​​​lāʻau lapaʻau, lymphocytes, hoʻōla