Inā loaʻa iā ʻoe a i ʻole kekahi o kou ʻohana ka maʻi cell sickle, ʻaʻole pono ʻoe e kamaʻilio e pili ana i ka ʻeha weliweli e hele mai me ia, ʻeā? He paʻakikī ke wehewehe i ka ʻeha e hele mai ana mai nā hono o ke kino a i ka umauma ma nā huaʻōlelo. He nui nā manawa i hiki ʻole iā ʻoe ke hana i kekahi mea i kēlā me kēia lā a pono ʻoe e holo i ka haukapila. Aia kekahi mau manawa i hoʻolilo ai kēia ʻano i ke ola i mea ʻeha. Eia naʻe, me ka holomua o ka ʻepekema lapaʻau, ua hiki mai nā lāʻau lapaʻau hou e lawe mai i ka hōʻoluʻolu i kēlā mau maʻi. ʻO kekahi o ia mau manaʻolana hou ʻo ia ka lāʻau lapaʻau i kapa ʻia ʻo Crizanlizumab. E kamaʻilio kākou e pili ana i kēia i kēia lā.
I ka ʻōlelo maʻalahi, he aha ʻo Crizanlizumab?
ʻO Crizanlizumab (puana ʻia: Krizan-li-soo-mab) kahi lāʻau pale kūikawā i hāʻawi ʻia e kāohi i nā hōʻailona o ka poʻe me ka maʻi cell sickle . ʻO kona inoa kālepa ʻo ADAKVEO .
E noʻonoʻo i kēia ʻano: ua like nā kīʻaha koko i loko o ko kākou kino me nā alanui. Ua like nā hunaola koko ʻulaʻula me nā kaʻa e lawe ana i ka oxygen ma kēia mau alanui. He poepoe a laumania nā hunaola koko ʻulaʻula o ke kanaka olakino, no laila e neʻe maʻalahi lākou ma o nā kīʻaha koko me ka ʻole o ka paʻa.
Akā, ʻokoʻa iki nā hunaola koko ʻulaʻula o ke kanaka me ka maʻi ʻeha. Ua kūlou lākou i ke ʻano ʻeha (ʻano C) a he ʻano pipili ko lākou. Ma muli o kēia, pili pū kēia mau hunaola i loko o nā kīʻaha koko, hui pū, a ālai i ke kahe ʻana o ke koko. Ua like ia me ka pilikia kaʻa i ka wā e paʻa pū ai nā kaʻa he nui ma ke alanui. Ke ālai ʻia ke kahe ʻana o ke koko ma kēia ʻano, hoʻemi ʻia ka oxygen i nā ʻāpana like ʻole o ke kino. ʻO ia ka manawa e hiki mai ai ka ʻeha hiki ʻole ke hoʻomanawanui. Kāhea mākou i kēia he pilikia ʻeha . I kekahi manawa inā loaʻa kēia ʻano ma ka umauma, ua kapa ʻia ʻo Acute Chest Syndrome , he ʻano weliweli loa ia.
Hoʻōki ka lāʻau pale Crizanlizumab i kēlā mau ʻāpana pipili mai ka hui pū ʻana. ʻO ia hoʻi, hoʻēmi ia i ke kaʻa i loko o nā kīʻaha koko. A laila kahe mālie ke koko, a loaʻa i ke kino ka oxygen e pono ai. Hiki i kēia ke hōʻemi nui i ke alapine o kēlā mau hanana ʻeha nui.
No loko kēia o kahi papa o nā lāʻau i kapa ʻia he monoclonal antibodies . ʻO ia hoʻi, he protein i hoʻolālā kūikawā ʻia i loko o kahi keʻena hoʻokolohua, e like me nā ʻāpana o ka ʻōnaehana pale o ko mākou kino. Hele pololei ia e kuhikuhi a hoʻōki i ke kaʻina hana e hoʻopili ai kēlā mau cell.
Nā mea e pono ai ʻoe e haʻi i kāu kauka ma mua o ka lawe ʻana i kēia lāʻau lapaʻau
Ma mua o ka hoʻomaka ʻana i kēia lāʻau lapaʻau, he mea nui loa ia e haʻi i kāu kauka i kou mōʻaukala olakino piha. E hōʻoia e haʻi iā lākou e pili ana i kēia mau mea:
- E pili ana i kāu mau maʻi allergies: Inā he mau maʻi allergies kāu i ka crizanlizumab, kekahi lāʻau lapaʻau ʻē aʻe, meaʻai, nā mea hoʻoluʻu, a i ʻole nā mea mālama, e ʻoluʻolu e hoʻomaopopo mua iā mākou.
- Inā hāpai ʻoe a i ʻole e hoʻāʻo ana e hāpai:ʻAʻole maopopo loa pehea e pili ai kēia lāʻau lapaʻau i ka pēpē i ka wā hāpai. No laila, inā hāpai ʻoe a i ʻole e hoʻolālā ana e loaʻa koke kahi pēpē, pono ʻoe e kūkākūkā i kēia me kāu kauka.
- Inā he makuahine hānai ʻoe: He palena wale nō ka ʻike e pili ana i ka hele ʻana o kēia lāʻau lapaʻau i loko o ka waiū umauma. No laila, inā he makuahine hānai ʻoe, ʻoi aku ka maikaʻi o ke kūkākūkā ʻana i nā pono a me nā pilikia o ka mālama ʻana me kāu kauka ma mua o ka hoʻoholo ʻana.
Pehea e hāʻawi ʻia ai ka lāʻau pale?
ʻAʻole kēia he lāʻau lapaʻau hiki iā ʻoe ke lawe i ka home. Hāʻawi ʻia ka lāʻau pale crizanlizumab ma kahi haukapila a i ʻole ke keʻena lapaʻau e nā limahana lapaʻau i aʻo ʻia.
- Hāʻawi ʻia ka lāʻau pale i loko o kahi aʻa koko . ʻO ka maʻamau, he 30 mau minuke ka lōʻihi o kēia.
- E nānā pono ʻia kou kūlana e nā limahana lapaʻau i ka wā a no kekahi manawa ma hope o ka mālama ʻana, no ka mea, hiki i kekahi poʻe ke loaʻa nā hopena infusion i ka wā e loaʻa ai ka lāʻau pale.
- ʻO ka maʻamau, hāʻawi ʻia kēia lāʻau lapaʻau i nā poʻe he 16 makahiki a ʻoi . Inā hāʻawi ʻia kēia i nā keiki ma lalo o kēlā makahiki, pono e mālama pono ʻia. Na kāu kauka e hoʻoholo.
ʻO ka mea nui loa: Ua kuhikuhi ʻia kēia lāʻau lapaʻau nou wale nō. Mai kaʻana like i kēia lāʻau lapaʻau me kekahi no kekahi kumu.
He aha ka mea e hana ai inā ʻoe e lawe i ka overdose?
ʻOiai ua hāʻawi ʻia kēia ma kahi haukapila, ua haʻahaʻa loa ka pilikia o ka overdose. Eia nō naʻe, inā manaʻo ʻoe ua loaʻa iā ʻoe kekahi mea e like me kēia, e kelepona koke i ke Kikowaena ʻIke Poisons National ma ka Halemai Lahui . A i ʻole e hele i ka ʻOihana Pilikia (ETU) o ka haukapila kokoke loa.
He aha inā e hala wau i ka lā i manaʻo ʻia ai au e lawe i ka lāʻau lapaʻau?
He mea nui loa no ka holomua o kēia lāʻau lapaʻau e lawe ʻoe i ka lāʻau lapaʻau i nā lā i hoʻonohonoho ʻia a me nā manawa i hoʻonohonoho ʻia. Mai poina i kāu manawa i hoʻonohonoho ʻia, ʻo ia hoʻi, ka lā i ʻōlelo ʻia ai ʻoe e hele mai e loaʻa ka lāʻau lapaʻau.
Inā ʻaʻole hiki iā ʻoe ke hele mai i kēlā lā no kekahi kumu pilikia, e ʻoluʻolu e kelepona koke i kāu kauka a i ʻole ke keʻena lapaʻau a e hoʻomaopopo iā lākou. Na lākou e aʻo iā ʻoe i ka lā aʻe e hiki mai ana.
He aha nā hopena ʻaoʻao e hiki ke loaʻa mai kēia lāʻau lapaʻau?
E like me nā lāʻau lapaʻau āpau, hiki i kekahi poʻe ke loaʻa nā hopena ʻaoʻao me ka lāʻau pale Crizanlizumab. Akā, ʻaʻole loaʻa i nā kānaka a pau. He liʻiliʻi kekahi a nalowale i loko o kekahi mau lā. Akā, aia kekahi mau mea e pono ai mākou e makaʻala.
Hiki ke hoʻomaopopo maopopo ʻia kēia mai ka papa ma lalo nei.
| ʻAno o ka hopena ʻaoʻao | Nā hōʻailona e pono ai ʻoe e hopohopo |
|---|---|
| Nā hopena ʻaoʻao koʻikoʻi e pono e hōʻike koke ʻia i kāu kauka | |
| Nā hopena maʻi ʻaleka | ʻŌhūhū ʻili, maneʻo, pehu o ka maka, nā lehelehe, ke alelo a i ʻole ka puʻu. |
| Nā Hana Hoʻokomo | ʻEha ka umauma, paʻakikī ka hanu ʻana, poniuniu, a i ʻole ka māʻule ʻana. |
| Nā hopena ʻaoʻao ʻaʻole i koʻikoʻi pinepine, akā pono e hōʻike ʻia i ke kauka inā hoʻomau lākou | |
| ʻEha kino | ʻEha kua, ʻeha hono. |
| Nā hiʻohiʻona ʻē aʻe | Kuni, ʻeha poʻo, nausea, ʻeha ʻōpū. |
ʻAʻole i hoʻokomo ʻia nā hopena ʻaoʻao āpau i loko o kēia papa inoa. Inā ʻike ʻoe i kekahi mea ʻē aʻe ma waho aʻe o kēia mau mea, e kamaʻilio me kāu kauka e pili ana i ia mea.
Hiki paha nā pilikia me nā lāʻau lapaʻau ʻē aʻe?
E like me ka mea i ʻike ʻia i kēia manawa, ʻaʻohe hōʻike e pili ana i ka lāʻau lapaʻau Crizanlizumab e hoʻopili nui ai me nā lāʻau lapaʻau ʻē aʻe.
Eia naʻe, ʻaʻole ia manaʻo ʻaʻole pono ʻoe e haʻi i kāu kauka e pili ana i kēlā me kēia lāʻau āu e lawe ai.
E hāʻawi i kāu kauka i kahi papa inoa piha o nā mea āpau āu e lawe ai:
- Nā lāʻau lapaʻau i kuhikuhi ʻia e nā kauka no nā maʻi ʻē aʻe
- Nā lāʻau lapaʻau e like me nā mea ʻeha ʻeha āu e kūʻai ai mai kahi hale kūʻai lāʻau lapaʻau.
- Nā wikamina, nā lāʻau lapaʻau kuʻuna, nā lāʻau lapaʻau Ayurvedic a i ʻole nā mea hoʻohui ʻē aʻe
- Eia kekahi, e haʻi mai iā mākou inā ʻoe e puhipaka ana, inu waiʻona, a hoʻohana paha i nā lāʻau ʻē aʻe.
Hiki i kekahi mau mea ke launa pū me nā lāʻau lapaʻau ma nā ʻano a mākou e manaʻo ʻole ai. No laila, no kou palekana ponoʻī ke akaka e pili ana i nā mea āpau.
Leka Lawe-Home
- He lāʻau pale kūikawā ʻo Crizanlizumab i hāʻawi ʻia e hōʻemi i ke alapine (frequency) o nā pilikia ʻeha nui a me nā pilikia ʻē aʻe i hoʻokumu ʻia e ka maʻi sickle cell.
- Hoʻōki kēia lāʻau lapaʻau i nā hunaola koko ʻulaʻula mai ka pipili pū ʻana a me ka ʻākoakoa ʻana i loko o nā kīʻaha koko.
- He lāʻau lapaʻau kēia i hāʻawi ʻia ma ke ʻano intravenous ma ka haukapila a i ʻole ke keʻena lapaʻau. ʻAʻole hiki ke hoʻohana ʻia ma ka home.
- Ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau, e haʻi i kāu kauka e pili ana i kāu mau maʻi allergies āpau, inā ʻoe e hāpai ana a hānai waiū paha, a me nā lāʻau lapaʻau ʻē aʻe āu e lawe nei.
- Mai poina i kāu mau manawa i hoʻonohonoho ʻia. Inā ʻaʻole hiki iā ʻoe ke hele, e ʻoluʻolu e hoʻomaopopo i ke kauka ma mua.
- Inā loaʻa iā ʻoe nā hōʻailona koʻikoʻi e like me ka paʻakikī o ka hanu ʻana, ka ʻeha o ka umauma, a i ʻole ka pehu ʻana o ka maka i ka wā a ma hope paha o ka lāʻau pale ʻana, e ʻimi koke i ke kōkua lapaʻau.
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