He mea maʻamau ke kaumaha ke haʻi aku ke kauka iā ʻoe a i ʻole kekahi o kou ʻohana he Amyotrophic Lateral Sclerosis, a i ʻole ALS . I ka manawa e like me kēia, he mea hōʻoluʻolu nui ka aʻo ʻana e pili ana i nā lāʻau lapaʻau e hiki ke kōkua iā ʻoe e ola me kēia maʻi. No laila i kēia lā e kamaʻilio mākou e pili ana iā Edaravone, kahi lāʻau pale e lawe mai i ka manaʻolana i nā poʻe maʻi ALS. Inā ua kuhikuhi ʻia kēia iā ʻoe a i ʻole kahi mea aloha, e kōkua nui kēia ʻatikala iā ʻoe.
I ka ʻōlelo maʻalahi, he aha ʻo Edaravone?
He lāʻau lapaʻau ʻo Edaravone i hoʻohana ʻia e mālama i ka Amyotrophic Lateral Sclerosis (ALS) . Ua ʻike ʻia ʻo ALS ʻo ka maʻi ʻo Lou Gehrig. ʻAe, e nānā kākou i ka mea a kēia e hana ai.
Neʻe nā ʻiʻo o ko kākou kino, e like me ka neʻe ʻana o ko kākou mau lima a me nā wāwae, ka ʻōlelo ʻana, a me ke ale ʻana, ma o nā leka aʻalolo i hoʻouna ʻia mai ka lolo. I ka ALS, ua hōʻino mālie ʻia nā hunaola aʻalolo e lawe ana i kēia mau leka. I ka hala ʻana o ka manawa, ua nalowale ka mana o nā ʻiʻo.
ʻO ka mea nui, ʻaʻole ʻo Edaravone he lāʻau lapaʻau no ka ALS. Akā, hana ia i kahi mea nui loa. Kōkua ia i ka mālama ʻana i nā hunaola aʻalolo i loko o kou kino. No laila, hiki i kēia lāʻau lapaʻau ke hoʻolohi i ka wikiwiki o ka maʻi e hoʻopau ai i ka nalowale o nā ʻiʻo, ʻo ia hoʻi, hiki ke hoʻolohi i ka holomua o ka maʻi.
Nā mea e haʻi aku i kāu kauka ma mua o ka lawe ʻana i kēia lāʻau lapaʻau
Ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau ʻo Edaravone, he mea nui e hāʻawi i kāu kauka i kahi wehewehe piha o kou kūlana olakino. E hōʻoia e haʻi i kēia mau mea:
- Inā loaʻa iā ʻoe ka hānō: ʻO ke ʻano kēia he pilikia kou i ka māmā a i ʻole ka hanu ʻana.
- Inā loaʻa iā ʻoe kekahi mau maʻi ʻaleka: ʻOi loa aku inā loaʻa iā ʻoe kekahi mau maʻi ʻaleka iā Edaravone, sulfites, nā lāʻau lapaʻau ʻē aʻe, nā meaʻai, nā kala, a i ʻole nā mea mālama, pono ʻoe e haʻi i kāu kauka.
- Inā ʻoe e hāpai ana a i ʻole e hoʻāʻo ana e hāpai.
- Inā he makuahine hānai waiū ʻoe.
Ma muli o kēia ʻike, e hoʻoholo ke kauka inā kūpono kēia lāʻau lapaʻau iā ʻoe a ʻaʻole paha a pehea e lawelawe palekana ai.
Pehea ʻoe e hoʻohana ai i kēia lāʻau lapaʻau?
Hāʻawi ʻia kēia lāʻau lapaʻau ma ke ʻano he inikini i loko o kahi aʻa. Hāʻawi pinepine ʻia kēia e nā limahana lapaʻau ma kahi haukapila a i ʻole ke keʻena lapaʻau. Eia nō naʻe, i kekahi manawa hiki ke aʻo ʻia ʻoe a i ʻole kahi mea mālama pehea e hāʻawi ai i kēia inikini ma ka home.
E hahai pono i ka papa kuhikuhi lāʻau lapaʻau!
ʻO kēia ka ʻāpana koʻikoʻi loa o kēia lāʻau lapaʻau. Hāʻawi ʻia ʻo Edaravone ma nā "pōʻaiapuni." I ka ʻōlelo maʻalahi, he ʻano kikoʻī kona.
- Pōʻaiapuni mua: ʻO ka maʻamau, hāʻawi ʻia ka lāʻau lapaʻau no 14 mau lā i ka lālani. A laila, ʻaʻole hāʻawi ʻia ka lāʻau lapaʻau no 14 mau lā.
- Pōʻaiapuni Aʻe: Ma nā pōʻaiapuni ma hope, hāʻawi ʻia ka lāʻau lapaʻau no 10 mau lā i loko o kahi manawa he 14 lā, a ukali ʻia e kahi hoʻomaha he 14 lā.
E wehewehe pono ana kāu kauka i kēia papa kuhikuhi iā ʻoe. He mea nui loa ia e hahai pololei i kēia papa kuhikuhi. ʻO ka lawe ʻana i ka nui ma mua o ka nui i kauoha ʻia a i ʻole no nā lā ʻoi aku ma mua o ka helu i kauoha ʻia hiki ke hana i nā hopena ʻaoʻao koʻikoʻi.
He aha kāu e hana ai inā e poina ʻoe i kahi mahele o ka lāʻau lapaʻau?
- Inā ʻoe e lawe ana i kāu lāʻau lapaʻau ma kahi haukapila a i ʻole ke keʻena lapaʻau: Inā ʻaʻole hiki iā ʻoe ke hele i kāu lā i hoʻonohonoho ʻia, e kelepona koke i kāu hui mālama ola kino a e hoʻomaopopo iā lākou. He mea nui loa ia ʻaʻole e haʻalele i kāu manawa hoʻonohonoho lāʻau lapaʻau.
- Inā ʻoe e lawe ana i kāu lāʻau lapaʻau ma ka home: Inā e poina iā ʻoe kahi lāʻau, e lawe koke iā ia i kou hoʻomanaʻo ʻana. Eia nō naʻe, inā kokoke ka manawa no kāu lāʻau aʻe, e kāpae i ka lāʻau i poina a lawe i kāu lāʻau aʻe i ka manawa i hoʻonohonoho ʻia. Mai lawe pālua i ka lāʻau. Inā kānalua ʻoe, e kamaʻilio me kāu kauka.
He aha inā lawe nui wau i ka lāʻau lapaʻau?
Inā manaʻo ʻoe ua lawe ʻoe i nā lāʻau lapaʻau ma mua o kou manaʻo, e kāhea koke aku i ke Kikowaena ʻIke ʻAi Poisons ma ka Halemai Lahui ʻo Colombo , a i ʻole e hele i ka ETU (Emergency Treatment Unit) ma ka haukapila kokoke loa.
He aha nā hopena ʻaoʻao e hiki ke loaʻa mai kēia lāʻau lapaʻau?
E like me nā lāʻau lapaʻau āpau, hiki iā Edaravone ke hana i nā hopena ʻaoʻao. He koʻikoʻi kekahi, aʻo kekahi he mea maʻamau. ʻO ka mea nui, ʻo ia ka makaʻala i kēia mau mea a hana koke inā pono.
| Ka hopena ʻaoʻao | Ka wehewehe a me nā mea e hana ai |
|---|---|
| Nā hopena ʻaoʻao e pono ai ke kōkua koke ʻana o ke kauka | |
| Nā hopena alerika | ʻŌhūhū ʻili, maneʻo, pehu o ka maka, nā lehelehe, ke alelo, a i ʻole ka puʻu. E haʻi koke aku i kāu kauka no ka mea hiki i kēia ke lilo i mea koʻikoʻi. |
| Paʻakikī ka hanu ʻana | Inā ʻoi aku ka ʻino o kou hānō a i ʻole ʻoe e loaʻa i nā pilikia hanu hou, e ʻimi koke i ke kōkua lapaʻau. |
| Ke koko haʻahaʻa | Pōniuniu , māʻule, ʻike maka pohihihi. E haʻi i kāu kauka inā loaʻa iā ʻoe kēia mau hōʻailona. |
| Nā hopena ʻaoʻao e pono e hōʻike ʻia i ke kauka inā hoʻomau lākou | |
| ʻEha poʻo | Hiki ke loaʻa kahi ʻeha poʻo maʻamau, akā inā hoʻomau a koʻikoʻi paha, e haʻi i kāu kauka . |
| Ka nalowale o ke kaulike o ke kino | Ka paʻakikī i ka mālama ʻana i ke kaulike i ka wā e hele ana a kū ana paha. |
| ʻO ka ʻeha maʻamau ʻole | ʻOiai kahi ʻeha liʻiliʻi i ke kino hiki ke hana i kahi palapū nui a palapū paha. |
Inā loaʻa iā ʻoe kekahi mau hōʻailona ʻē aʻe i ʻōlelo ʻole ʻia ma kēia papa inoa, mai makaʻu e haʻi aku i kāu kauka e pili ana iā lākou.
Nā mea ʻē aʻe e noʻonoʻo ai a me ka mālama ʻana i nā lāʻau lapaʻau
Nā pilikia me nā lāʻau lapaʻau ʻē aʻe?
ʻAʻohe hōʻike o nā lāʻau lapaʻau ʻē aʻe e hoʻopilikia nui ana i ka edaravone. Eia nō naʻe, he mea nui e haʻi i kāu kauka e pili ana i nā mea āpau āu e lawe nei . ʻO kēia kekahi:
- Nā lāʻau lapaʻau no nā maʻi ʻē aʻe
- Nā huaora, nā huahana lāʻau lapaʻau a i ʻole nā mea hoʻohui
- Inā ʻoe e puhipaka a inu waiʻona paha, e haʻi mai iā mākou e pili ana i ia mea.
Pehea e mālama ai i ka lāʻau lapaʻau?
Inā ʻoe e hoʻohana ana i nā lāʻau lapaʻau ma ka home, e makaʻala i kēia mau mea.
- E mālama i kahi hiki ʻole i nā keiki a me nā holoholona ke kiʻi aku.
- E mālama ma kahi mahana ma lalo o 25 kekelē Celsius (77 Fahrenheit), ʻo ia hoʻi, ma ka mahana lumi maʻamau.
- E mālama i ka lāʻau lapaʻau i loko o kāna pahu kumu a hiki i ka manawa e hoʻohana ai.
- E pale mai ka mālamalama.
- Mai hoʻohana i ka lāʻau lapaʻau i pau ka lāʻau. E noi i kāu kauka no ka ʻōlelo aʻo no ka hoʻolei palekana ʻana i ka lāʻau lapaʻau i hoʻohana ʻole ʻia a i ʻole i pau ka lāʻau.
Ua kuhikuhi ʻia kēia lāʻau lapaʻau nou wale nō. Mai kaʻana like i kēia lāʻau lapaʻau me kekahi no kekahi kumu.
He maʻi paʻakikī ka ALS, akā hiki i nā lāʻau lapaʻau e like me Edaravone ke kōkua i ka hoʻolohi ʻana i ka holomua o ka maʻi. E kamaʻilio pinepine me kāu kauka a e wehe e pili ana i kou holomua a me nā hopohopo āu e loaʻa ai.
Leka Lawe-Home
- ʻAʻole ʻo Edaravone he lāʻau lapaʻau no ka ALS, akā kōkua ia i ka pale ʻana i nā hunaola nerve a hoʻolohi i ka holomua o ka maʻi.
- He mea nui loa ia e hahai pono i ka papa hana pōʻaiapuni i hāʻawi ʻia e kāu kauka. Mai lawe ʻoi aku ma mua o ka nui i kauoha ʻia.
- E haʻi i kāu kauka e pili ana i kekahi mau kūlana e like me ka hānō, nā maʻi allergies, a me ka hāpai ʻana ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau.
- Inā ʻike ʻoe i nā hōʻailona e like me ka paʻakikī o ka hanu ʻana a i ʻole nā hopena maʻi koʻikoʻi, e ʻimi koke i ke kōkua lapaʻau.
- E kamaʻilio ākea me kāu kauka e pili ana i nā nīnau a hopohopo paha āu. ʻAʻole ʻoe hoʻokahi.
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