Ke manaʻo nei ʻoe i kekahi manawa e kūlou ana kou mau lihilihi me ke kāohi ʻole ʻia, ua paʻakikī kāu mau ʻōlelo ke ʻōlelo ʻoe, ua paʻakikī iā ʻoe ke ale, a ua mae paha kou mau lālā a ua paʻakikī ke hana i nā hana liʻiliʻi loa? He mau hōʻailona paha kēia o kahi maʻi i kapa ʻia ʻo Myasthenia Gravis . He ʻano kēia e nāwaliwali mālie ai nā ʻiʻo ma muli o kahi kīnā i loko o ka ʻōnaehana pale o ko mākou kino. No laila, ʻo kahi lāʻau lapaʻau hou a kikoʻī i hoʻohana ʻia e mālama ai i kēia ʻano ʻo ia ka lāʻau pale ʻo Efgartigimod Alfa. E kamaʻilio kākou e pili ana i kēia me ka maʻalahi a me ka maopopo i kēia lā.
He aha ke ʻano lāʻau lapaʻau ʻo Efgartigimod Alfa?
I ka ʻōlelo maʻalahi, he lāʻau lapaʻau kēia e kuhikuhi ana i kahi kīnā i ka ʻōnaehana pale o kou kino a kōkua i ka hoʻoponopono ʻana iā ia.
E noʻonoʻo i nā antibodies e like me nā koa e pale ana i ko mākou kino. Akā i ka myasthenia gravis, hoʻomaka hewa kekahi o kēia mau antibodies e hoʻouka i nā loulou kamaʻilio ma waena o ko mākou mau aʻalolo a me nā ʻiʻo. Ua like ia me kā mākou mau koa ponoʻī e hoʻouka ana i ko mākou ʻāina ponoʻī. ʻO ia ke kumu e nāwaliwali ai ko mākou mau ʻiʻo.
Hana kēia lāʻau lapaʻau, i kapa ʻia ʻo Efgartigimod Alfa, ma ka hoʻēmi ʻana i nā pae o kēlā mau antibodies hana hewa i loko o kou koko. Hoʻēmi kēia i ka hōʻino ʻia o nā ʻiʻo a hoʻomaka mālie ko lākou nāwaliwali e hoʻi i ka maʻamau.
Nā mea e pono ai ʻoe e haʻi i kāu kauka ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau
Ma mua o ka hoʻoholo ʻana inā kūpono kēia lāʻau lapaʻau iā ʻoe, he mea nui loa ia e wehewehe pono i kēia i kāu kauka.
| ʻIke e pono ai ʻoe e hāʻawi | No ke aha he mea nui kēlā? |
|---|---|
| Inā loaʻa iā ʻoe kahi maʻi i kēia manawa (e like me ke anu, ka maʻi palū, ka maʻi ʻōpū mimi) | Hiki i kēia lāʻau lapaʻau ke loaʻa kekahi hopena ma ka ʻōnaehana pale maʻi, kahi e hoʻonui ai i kahi maʻi e kū nei. |
| Inā he maʻi puʻupaʻa kou | He kuleana koʻikoʻi ko nā puʻupaʻa i ka wehe ʻana i nā lāʻau lapaʻau mai ke kino. No laila, pono ke kauka e makaʻala i ka hana o nā puʻupaʻa. |
| Inā he maʻi ʻoe i nā lāʻau lapaʻau a meaʻai paha | Ma muli o ka liʻiliʻi loa o ka manawa kūpono o kahi hopena alerika i kēia lāʻau lapaʻau, he mea nui e ʻike i kou mōʻaukala alerika. |
| Inā hāpai ʻoe a i ʻole e hoʻāʻo nei e hāpai | ʻAʻohe ʻikepili piha e pili ana i ka palekana o kēia lāʻau lapaʻau i ka wā hāpai, no laila e kamaʻilio me kāu kauka e pili ana i kēia. |
| Inā he makuahine hānai ʻoe | Pono ʻoe e kūkākūkā me kāu kauka inā hiki i ka lāʻau lapaʻau ke hele i ka pēpē ma o ka waiū umauma. |
Pehea e hiki ai iaʻu ke hāʻawi iā ʻoe i kēia lāʻau lapaʻau?
ʻAʻole kēia he lāʻau lapaʻau hiki iā ʻoe ke lawe i ka home.
- He lāʻau lapaʻau kēia i hāʻawi ʻia ma o kahi aʻa koko, e like me ka saline infusion (intravenous infusion) .
- Hāʻawi wale ʻia kēia lāʻau lapaʻau ma lalo o ka mākaʻikaʻi lapaʻau ma kahi haukapila a i ʻole ke keʻena lapaʻau .
- ʻO ka maʻamau, hāʻawi ʻia kēia lāʻau lapaʻau i nā pōʻaiapuni i kēlā me kēia mau pule. Na kāu kauka e hoʻoholo i ka papa hana kūpono e pili ana i kou kūlana.
He mea nui loa: Mai poina i kāu mau lā a me nā manawa lapaʻau i hoʻonohonoho ʻia no kekahi kumu. Inā no kekahi kumu ʻaʻole hiki iā ʻoe ke hele i kāu lā i hoʻonohonoho ʻia, e ʻoluʻolu e kelepona koke i kāu hui lapaʻau a e hoʻomaopopo iā lākou.
He aha ka mea e hana ai inā ʻoe e lawe i ka overdose?
ʻOiai he lāʻau lapaʻau kēia i hāʻawi ʻia ma ka haukapila, haʻahaʻa loa ka manawa e hiki ai kēia. Eia nō naʻe, inā manaʻo ʻoe ua hiki kēia, e kelepona koke i ke Kikowaena ʻIke Poisons Lahui ma ka Halemai Lahui ʻo Colombo a i ʻole e hele i ka Emergency Treatment Unit (ETU) o ka haukapila kokoke loa.
Nā mea e hoʻomanaʻo ai i ka wā e mālama ʻia ai
- E pale iā ʻoe iho mai nā maʻi: Hiki i kēia lāʻau lapaʻau ke hoʻopilikia i kāu ʻōnaehana pale, kahi e hoʻonui iki ai i kou pilikia o ka loaʻa ʻana o nā maʻi. No laila,Inā loaʻa iā ʻoe nā hōʻailona e like me ke kuni, ke anu, ke kuni, ka ʻāʻī ʻeha, nā ʻeha ʻaʻole e ho'ōla, ka ʻeha a i ʻole ke kuni ʻana i ka wā e mimi ai, a i ʻole ke ʻano maikaʻi ʻole, mai hoʻōla ponoʻī a e hoʻomaopopo koke i kāu kauka . He mea naʻauao nō hoʻi e noho mamao aku mai ka poʻe maʻi i kēia manawa.
- Nā lāʻau lapaʻau ʻē aʻe a me nā lāʻau pale: E haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau ʻē aʻe (no nā kūlana ʻē aʻe), nā huaora, a me nā lāʻau lapaʻau lāʻau āu e lawe nei. ʻOi aku ka nui, ʻaʻole pono e hāʻawi ʻia nā lāʻau pale i loaʻa nā maʻi ola (e.g. measles, mumps, rubella - MMR) i ka wā e lawe ana i kēia lāʻau. E noi i kāu kauka no ka ʻōlelo aʻo.
He aha nā hopena ʻaoʻao?
E like me nā lāʻau lapaʻau āpau, hiki iā Efgartigimod Alfa ke hana i nā hopena ʻaoʻao, ʻoiai ʻaʻole loaʻa i nā kānaka a pau.
| Nā hopena ʻaoʻao e pono e hōʻike koke ʻia i kāu kauka a i ʻole ETU | |
|---|---|
| Nā hopena aleri koʻikoʻi | ʻŌhūhū ʻili, maneʻo nui, pehu ʻana o ka maka, nā lehelehe, ke alelo a i ʻole ka puʻu (he pilikia koʻikoʻi kēia no ka mea hiki ke pilikia i ka hanu ʻana). |
| Nā Hōʻailona o ka Maʻi | Kuni, anu, ʻū mau, ʻeha ʻāʻī, nā ʻeha ʻaʻole e ho'ōla ʻia, nā maʻi ʻaʻai mimi, a me ka maʻi ʻaʻai. |
| Nā hopena ʻaoʻao ʻaʻole i koʻikoʻi pinepine, akā pono e hōʻike ʻia i ke kauka inā hoʻomau lākou | |
| ʻEha poʻo | He ʻeha poʻo maʻamau. |
| ʻEha ʻiʻo | Manaʻo e ʻeha ana kou kino. |
| Māʻule | Manaʻo o ka maeʻele a i ʻole ka ʻeha a puni ka waha, ma nā lālā. |
Inā loaʻa iā ʻoe kekahi mau hōʻailona ʻē aʻe i ʻōlelo ʻole ʻia ma kēia papa inoa, e kamaʻilio pū me kāu kauka e pili ana iā lākou.
Leka Lawe-Home
- He lāʻau pale kūikawā ʻo Efgartigimod Alfa i hoʻopili ʻia i ka ʻōnaehana pale o ke kino a mālama i ka myasthenia gravis.
- Hāʻawi ʻia kēia ma ka haukapila, ma o kahi aa koko. ʻAʻole hāʻawi ʻia iā ʻoe e hoʻohana ma ka home.
- Ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau, e hōʻoia e haʻi i kāu kauka e pili ana i kou mau maʻi āpau, nā maʻi allergies, a me nā lāʻau lapaʻau ʻē aʻe āu e lawe nei.
- Inā ʻike ʻia nā hōʻailona o ka maʻi e like me ke kuni a me ke kuni i ka wā o ka mālama ʻana, e ʻimi koke i ke kōkua lapaʻau.
- E ʻoluʻolu e makaʻala ʻaʻole e poina i kāu mau lā lapaʻau. Inā ʻaʻole hiki iā ʻoe ke hele mai, e ʻoluʻolu e hoʻomaopopo mai iā mākou ma mua.
- Inā loaʻa iā ʻoe nā hōʻailona maʻi ʻaleka koʻikoʻi, e like me ka pehu ʻana o ka maka a i ʻole ka ʻāʻī, e manaʻo he pilikia ia a hele koke i ka Emergency Department (ETU) o ka haukapila.
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