Ke ʻeha nei kāu keiki liʻiliʻi i kahi puʻupuʻu iwi? E aʻo kākou e pili ana i ka Eosinophilic Granuloma!

Ua makaʻu paha ʻoe i ka ʻike ʻana i kahi mea ʻē, e like me kahi puʻupuʻu ma ke kino o kāu keiki liʻiliʻi? I kekahi manawa ke ʻike mākou i ia mau mea, manaʻo koke mākou he maʻi koʻikoʻi ia. I kēia lā e kamaʻilio mākou e pili ana i kahi maʻi e hiki ke ulu i nā keiki liʻiliʻi, akā ʻaʻole ia he mea weliweli, akā pono mākou e makaʻala.

He aha ka Eosinophilic Granuloma?

I ka ʻōlelo maʻalahi, he puʻupuʻu iwi maikaʻi ʻole kēia. I ka pololei, ʻo ia ke ʻano palupalu loa o kahi maʻi laha ʻole i kapa ʻia ʻo `(Langerhans cell histiocytosis)`. Ma kēia kūlana i kapa ʻia ʻo `(Langerhans cell histiocytosis), hana ko mākou kino i nā cell pale ma mua o ka mea e pono ai. Akā e hoʻomanaʻo, ʻaʻole ʻo `(Eosinophilic Granuloma)` he maʻi kanesa ma kekahi ʻano, ʻaʻole hoʻi he hōʻailona o ka maʻi kanesa. ʻIke pinepine ʻia kēia mau mea i nā keiki ma lalo o 10 mau makahiki.

ʻO wai ka mea i hoʻopilikia nui ʻia e kēia maʻi? Pehea ka maʻamau o ia mea?

ʻOiai hiki ke ulu kēia ʻano maʻi, i kapa ʻia ʻo "Eosinophilic Granuloma," i loko o kekahi kanaka, ʻike pinepine ʻia ia i nā keiki liʻiliʻi ma waena o nā makahiki 5 a me 10. Ua ʻōlelo ʻia hoʻi he maʻalahi loa nā keikikāne e ulu i kēia ʻano maʻi.

He maʻi laha ʻole kēia. ʻOi aku ma mua o 1% o nā puʻupuʻu iwi āpau he Eosinophilic Granuloma. E noʻonoʻo, ʻoi aku ma mua o 5 mau keiki no 100,000 i ʻike ʻia me kēia maʻi i kēlā me kēia makahiki.

Pehea ka hopena o kēia (Eosinophilic Granuloma) i ke kino o ke keiki?

Hiki i kēia mau puʻupuʻu, i kapa ʻia ʻo "Eosinophilic Granuloma", ke hana ʻia ma kekahi iwi nui i loko o ke kino o ke keiki. He puʻupuʻu maoli lākou e hana ʻia ma luna a kokoke paha o ka iwi o ke keiki ke hōʻiliʻili a mānoanoa nā pūnaewele pale maʻi a mākou i ʻōlelo ai ma luna.

Eia nā wahi maʻamau kahi e hiki ai ke loaʻa:

• Iwi poʻo
• Pelvis
• ʻūhā
• Nā iwi ʻaoʻao
• Iwi lima luna (Humerus)
• Iwi ʻauwae `(Mandible)`
• iwi kuamoʻo

Ma muli o ka nui o ka puʻu, hiki i ke keiki ke ʻike i nā hōʻailona e like me ka ʻeha a i ʻole kahi puʻu ma lalo o ka ʻili .

Akā ʻo ka mea kupaianaha, ʻaʻole ʻike ka nui o nā keiki he loaʻa iā lākou kēia. I kekahi manawa ʻike ʻia ia ma ka ulia pōpilikia ke loaʻa iā lākou kahi mea e like me ka X-ray no kekahi kumu ʻē aʻe.

He aha nā hōʻailona o kahi granuloma eosinophilic?

ʻOiai ʻaʻole nā ​​​​keiki āpau e hōʻike i nā hōʻailona, ​​​​hiki i kekahi ke ʻike i nā mea e like me:

• ʻEha: E ʻeha paha ʻoe ma kahi o ka puʻupuʻu. E noʻonoʻo, i kekahi manawa ʻōlelo ke keiki, "Māmā, ʻeha koʻu wāwae," a paʻa paha i kona poʻo.
• Pehu: Hiki ke pehu ka ʻāpana i hoʻopilikia ʻia.
• Palupalu: He ʻeha ka ʻāpana ke hoʻopā aku .
• ʻEha ke poʻo, ka makewai nui, a me ka mimi pinepine:Ke hui pū ʻia kēia mau hōʻailona, ​​ua kapa ʻia hoʻi ʻo "Diabetes Insipidus". Hiki ke ʻike ʻia kēia i kekahi manawa.
• ʻOʻoleʻa kokoke i kahi hui: Inā kokoke ka puʻupuʻu i kahi hui, he mea paʻakikī paha ke kulou a hoʻopololei paha i kēlā hui, a hiki paha iā ʻoe ke manaʻo he ʻoʻoleʻa.
• ʻO ke kala ʻili: Hiki ke loli ke kala o ka ʻili ma luna a kokoke paha i ka puʻupuʻu. Hiki ke lilo i ʻulaʻula a ʻeleʻele paha.

No ke aha e hana ai kēia (Eosinophilic Granuloma)?

E like me kā mākou i ʻōlelo ai ma mua, ʻo kēia `(Eosinophilic Granuloma)` he ʻano maʻi i kapa ʻia ʻo `(Langerhans cell histiocytosis)` (i kapa ʻia hoʻi ʻo `(Histiocytosis X)`). ʻO kēia `(Langerhans cell histiocytosis)` he maʻi autoimmune. I ka ʻōlelo maʻalahi, ʻo ka mea e hana ʻia, ʻo ia ka hana ʻana o ke kino o ke keiki i nā mea ʻoi aku ma mua o ka mea e pono ai `(nā Langerhans cells), kahi ʻano keʻokeʻo koko e hakakā mau ana i ka maʻi.

I ka hala ʻana o ka manawa, hiki i kēia mau hunaola koko keʻokeʻo keu ke hui pū a hana i nā puʻupuʻu ma nā ʻāpana like ʻole o ke kino o ke keiki (ʻoi aku hoʻi i nā iwi) . ʻO ka granuloma eosinophilic he puʻupuʻu hoʻokahi e hana ʻia e like me kēia.

Pehea e ʻike ai nā kauka i kēia (Eosinophilic Granuloma)?

E hana ana kāu kauka i kekahi mau hoʻokolohua e hōʻoia inā he Eosinophilic Granuloma kēia. ʻO nā mea nui:

• Nā hoʻāʻo lab: Hiki ke hoʻohana ʻia nā hoʻāʻo koko e hoʻoholo ai inā he mau kūlana ʻē aʻe kāu, e like me ke kanesa.
• Nā hoʻāʻo kiʻi: E hoʻohana ke kauka i ka hui pū ʻana o nā hoʻāʻo, e like me nā X-ray, nā scan MRI, nā scan CT, nā ultrasound, a me nā scan iwi, e kiʻi i nā kiʻi o ka puʻupuʻu i loko o kāu keiki. ʻO nā hoʻāʻo e pono ai kāu keiki e pili ana i kahi o ka puʻupuʻu i loko o ke kino.
• Biopsy: I kekahi manawa pono paha ke kauka e lawe i kahi ʻāpana liʻiliʻi o ka puʻupuʻu a nānā iā ia ma lalo o kahi microscope. Ua kapa ʻia kēia he biopsy.

ʻO ka mea nui loa, pono ke kauka e hana i kekahi o kēia mau hoʻokolohua e hōʻoia inā he Eosinophilic Granuloma ko ke keiki, he ʻano puʻupuʻu ʻē aʻe, a he maʻi kanesa paha. No laila, mai hopohopo inā noi lākou iā ʻoe e hana i nā hoʻokolohua hou aʻe ma kahi o hoʻokahi a ʻelua paha.

Pehea e mālama ʻia ai ka Eosinophilic Granuloma?

ʻO ke ʻano o ka lāʻau e pono ai kāu keiki e hilinaʻi ia i kekahi mau kumu, me kahi o ka Eosinophilic Granuloma i loko o ke kino a inā paha e ʻike ana ke keiki i kekahi mau hōʻailona (e.g., ʻeha).

Aia kekahi mau koho lapaʻau:

• Nānā ʻana:ʻO ka hapa nui o ka manawa, ʻaʻole kēia mau puʻupuʻu e hōʻike i kekahi mau hōʻailona. I ka hala ʻana o ka manawa, hoʻopili ke kino o ke keiki iā lākou. ʻO ia ke kumu e hoʻomau ai ke kauka i ka nānā ʻana i ka puʻupuʻu e ʻike inā e loli a i ʻole e nui aʻe.
• Nā inikini steroid: Hiki i ke kauka ke inikini pololei i kahi corticosteroid i loko o ka puʻupuʻu. E hoʻēmi kēia i ka puʻupuʻu a hōʻoluʻolu i nā hōʻailona o kāu keiki.
• ʻO ka radiation therapy a i ʻole chemotherapy: I kekahi manawa e ʻōlelo paha kāu kauka i ka radiation therapy a i ʻole chemotherapy. Mai hopohopo, ʻaʻole ʻo Eosinophilic Granuloma he maʻi kanesa. Eia nō naʻe, hiki i kēia mau lāʻau ke pepehi i nā cell cancer a me nā ulu ʻana ʻaʻole cancerous.
• Wehe ʻoki kino: Wehe ke kauka ʻoki kino i ka puʻupuʻu. ʻO ke ʻano o ke ʻoki kino e pono ai kāu keiki ma muli o kahi o ka puʻupuʻu i loko o ke kino.

He aha nā pilikia e hiki mai ana mai ka Eosinophilic Granuloma?

ʻOiai ʻaʻole no nā kānaka a pau, i kekahi manawa hiki i kēia kūlana ke hana i nā pilikia e like me:

• ʻO ka hoʻonui ʻia o ka pilikia o ka hoʻomohala ʻana i kekahi mau ʻano maʻi kanesa ma hope aku o ke ola.
• Nā pilikia lohe a ʻike paha.
• Ka paʻakikī ke hoʻoneʻe i ke kino kahi i loaʻa ai ka puʻupuʻu.
• Ka lohi o ka ulu ʻana.
• Nā pilikia olakino noʻonoʻo, no ka laʻana, nā kūlana e like me ke kaumaha a me ka hopohopo paha.

Ka mālama ʻana a me nā manaʻolana e hiki mai ana

I kēia manawa, e nānā kākou i ka manawa lapaʻau, ka hoʻokele ʻana i nā hōʻailona, ​​​​a me nā mea e manaʻo ai e hana ana i kēia kūlana.

Pehea e mālama ai i nā hōʻailona o kāu keiki?

E aʻo aku kāu kauka iā ʻoe pehea e mālama ai i nā hōʻailona o kāu keiki. E pili kēia i ke koʻikoʻi o nā hōʻailona a me kahi o ka puʻupuʻu. Inā he ʻeha, e hāʻawi ke kauka iā ʻoe i nā lāʻau hōʻoluʻolu kūpono a hoʻomaha i kāu keiki .

ʻEhia ka lōʻihi e ola ai ke keiki ma hope o ka lāʻau lapaʻau?

Inā pono kāu keiki i ka lāʻau lapaʻau ma mua o ka nānā ʻana, hiki ke lōʻihi ka manawa e hoʻōla piha ai. ʻO kekahi mau lāʻau lapaʻau, e like me ka chemotherapy, hiki ke lōʻihi a hiki i hoʻokahi makahiki e holo pono ai. ʻOkoʻa nō hoʻi nā manawa hoʻōla no nā ʻoki kino.

ʻO ka lōʻihi o ka hoʻōla ʻana o kāu keiki ma muli o kahi i loaʻa ai ka puʻupuʻu ma ke kino a me ke ʻano o ka lāʻau i hoʻohana ʻia e wehe ai. No laila, e kamaʻilio me kāu kauka e pili ana i ka manawa hoʻōla o kāu keiki e ʻike pono ai i ka lōʻihi o ka manawa.

He aha kāu e manaʻo ai inā loaʻa i kāu keiki ka Eosinophilic Granuloma?

Inā loaʻa i kāu keiki ka Eosinophilic Granuloma, e manaʻo e loaʻa nā hoʻokolohua lapaʻau a me nā nānā kino maʻamau. ʻOiai inā ʻaʻohe hōʻailona o kāu keiki, pono ke kauka e nānā i ka puʻupuʻu e ʻike inā e loli, e nui aʻe, a e pālahalaha paha.

Inā ʻaʻohe hōʻailona o ke keiki, ʻaʻole pono ka lāʻau lapaʻau.

Pehea ka lōʻihi o ke ola ʻana o kahi granuloma eosinophilic?

E nalowale ana ka hapa nui o nā Eosinophilic Granulomas iā lākou iho i loko o hoʻokahi a ʻelua paha makahiki. ʻAʻole hōʻike ka hapa nui o lākou i kekahi mau hōʻailona.

ʻAʻole hiki i ke keiki ke hele i ke kula i ka wā e mālama ʻia ai?

Aia nō ia i ke ʻano o ka lāʻau e pono ai ke keiki. Inā nānā wale ke kauka i ka `(Eosinophilic Granuloma)`, ʻaʻohe pono e hana i kekahi hoʻololi i ka hana maʻamau o ke keiki.

E nīnau i kāu kauka a kauka ʻoki paha i nā hana a kāu keiki e hana ʻole ai i ka wā e loaʻa ana kekahi lāʻau lapaʻau.

He aha ka manaʻolana no ka Eosinophilic Granuloma?

He maikaʻi loa ko lākou kūlana no nā keiki me hoʻokahi puʻupuʻu wale nō. E nalowale ana ka hapa nui o nā Eosinophilic Granulomas i hoʻokahi a ʻelua paha makahiki me ka ʻole o ka hōʻike ʻana i nā hōʻailona koʻikoʻi.

Āhea wau e ʻike ai i ke kauka? He aha nā nīnau e pono ai iaʻu e nīnau?

E ʻike koke i ke kauka.

Inā hōʻike kāu keiki i kekahi mau hōʻailona hou, ʻoiai ke poʻo ʻeha, nā pilikia ʻike, a i ʻole ka paʻakikī i ka neʻe ʻana i ko lākou kino, e ʻike koke i ke kauka. ʻO ka wikiwiki o kou ʻike ʻana i nā loli i ke kino o kāu keiki, ʻo ka nui o kou hiki ke kāpae i ka maʻi kanesa a me nā maʻi ʻē aʻe ma mua o ko lākou lilo ʻana i mau pilikia koʻikoʻi.

Nā nīnau e nīnau aku ai i ke kauka

Eia kekahi mau nīnau hiki iā ʻoe ke nīnau i kāu kauka:

• He aha nā hoʻokolohua e pono ai kaʻu keiki?
• Pehea ka lōʻihi o kēia `(Eosinophilic Granuloma)`?
• ʻEhia mau hoʻokolohua hou aʻu e pono ai e hana?
• He aha ka lāʻau lapaʻau e pono ai kaʻu keiki?

He mea maʻamau ka makaʻu ke ʻike ʻoe he puʻupuʻu ko kāu keiki i loko o ko lākou kino. Akā e hoʻomanaʻo, ʻaʻole ʻo Eosinophilic Granuloma he maʻi kanesa. ʻAʻole paha ia e hōʻike i kekahi mau hōʻailona, ​​a ʻaʻole ʻike ka nui o nā keiki ua loaʻa iā lākou. E alakaʻi kāu kauka iā ʻoe ma o nā ʻanuʻu āpau e pono ai e ʻike a nānā i ke kūlana o kāu keiki.

ʻO ka leka a mākou e makemake ai e lawe i ka home mai kēia ʻatikala

ʻAe, no laila e hoʻomanaʻo wale kākou iā kākou iho i ka mea a kākou i ʻike ai e pili ana i ka `(Eosinophilic Granuloma)`:

• He puʻupuʻu laha ʻole ka granuloma Eosinophilic, ʻaʻole ia he maʻi kanesa e hana ʻia ana i loko o nā iwi. ʻIke pinepine ʻia ia i nā keiki ma lalo o 10 mau makahiki.
• He ʻano ʻoluʻolu kēia o kahi kūlana i kapa ʻia ʻo Langerhans cell histiocytosis, i hana ʻia e ka hana nui ʻana o nā pūnaewele pale.
• ʻAʻole hōʻike ka hapa nui o nā keiki i nā hōʻailona. Hiki i kekahi ke ʻeha a me ka pehu.
• Hiki ke ʻike pololei ʻia ka maʻi ma o nā hoʻokolohua e like me ka X-ray, MRI, CT scan, a me ka biopsy paha.
• Hiki ke ʻano o ka lāʻau lapaʻau mai ka nānā ʻana a i nā inikini steroid, ke ʻoki kino, a me ka radiation a i ʻole chemotherapy paha (ʻoiai inā ʻaʻole ia he maʻi kanesa).
• ʻO ka hapa nui o ka manawa, nalo wale kēia mau mea i loko o hoʻokahi a ʻelua paha makahiki, a he maikaʻi loa ka nānā ʻana.
• Inā loaʻa i kāu keiki nā hōʻailona hou, ʻoiai ke poʻo ʻeha, ka ʻike a i ʻole nā ​​pilikia neʻe ʻana, e ʻike koke i ke kauka.

ʻO ka mea nui loa, inā ʻike ʻoe ua loaʻa i kāu keiki kēia maʻi, mai hopohopo, e kamaʻilio me ke kauka, e kiʻi i ka ʻike kūpono, a e hahai i kāna mau kuhikuhi. E maikaʻi nā mea a pau!

ʻO ka Granuloma Eosinophilic, ʻO ka Granuloma Eosinophilic, nā puʻupuʻu iwi, Pediatrics, Langerhans Cell Histiocytosis, Ola Kino o ke Keiki, nā puʻupuʻu iwi ʻaʻole maʻi kanesa