Ke loaʻa nei kēia pilikia i kāu pēpē? Ua puka mai nā ʻōpū? - E aʻo kākou e pili ana i ka Gastroschisis

Ua hānau ʻia kāu pēpē me kahi ʻāpana liʻiliʻi o kona ʻōpū e puka ana i waho? He mea maʻamau no kekahi makuahine a makua paha ke hopohopo ke ʻike lākou i kahi mea e like me kēia. Akā inā ua ʻike pono ʻia ʻoe e pili ana i kēia, ʻaʻohe mea e hopohopo ai. I kēia lā, e kamaʻilio kākou e pili ana i kēia maʻi i kapa ʻia ʻo Gastroschisis. He maʻi nui paha kēia ke lohe ʻoe, akā e kamaʻilio maʻalahi kākou e pili ana.

He aha ka Gastroschisis? E hoʻomaopopo maʻalahi kākou

E noʻonoʻo, i ka wā e hānau mai ai kahi pēpē i kēia ao, ua puka mai kahi liʻiliʻi o kona mau ʻōpū (ʻo ia hoʻi, ka ʻōpū, ka ʻōpū liʻiliʻi, a me ka ʻōpū nui)? ʻO ia ka mea a mākou e kapa nei he gastroschisis. He maʻi hānau kēia. Puka mai kēia ʻōpū mai kahi lua liʻiliʻi i loko o ka ʻōpū o ka pēpē, ma kahi o 2 a 5 kenimika, ma ʻō aku o ke kaula umbilical.

Hana ʻia kēia i ka wā mua o ke ola o ka pēpē. ʻO ia hoʻi, i ka wā ʻaʻole i hoʻokumu piha ʻia ka paia ʻōpū o ka pēpē, waiho ʻia kahi hakahaka liʻiliʻi, a puka mai kēia ʻano ma loko. A laila, lana nā ʻōpū i puka mai i loko o ka wai amniotic, he wai wai i loko o ka ʻōpū o ka makuahine. Ma muli o kēia, i kekahi manawa hiki i kēia mau ʻano ke pehu iki a hoʻoulu i nā maʻi liʻiliʻi.

ʻO ka mea nui loa, ma kēia kūlana, pono maoli ke ʻoki kino e hoʻihoʻi i nā ʻōpū o ke pēpē i loko o ke kino a pani i ka lua.

He aha ka ʻokoʻa ma waena o Gastroschisis a me Omphalocele?

Aia kekahi kīnā hānau ʻē aʻe i kapa ʻia ʻo Omphalocele. Pili pū kēia i nā ʻōpū o ka pēpē e puka mai ana mai ke kahawai hānau. Eia nō naʻe, aia kahi ʻokoʻa iki ma waena o nā mea ʻelua.

• Gastroschisis: Maanei, puka mai nā ʻōpū me ka ʻole o ka uhi ʻana. ʻO ke ʻano kēia, ʻike pololei ʻia nā ʻōpū.
• ʻOmphalocele: Maanei, ua uhi ʻia nā ʻōkana e puka mai ana e kahi membrane lahilahi.

Hiki i nā kauka ke ʻike pinepine i kēia ʻokoʻa i ka wā o ka hoʻokolokolo ultrasound ma mua o ka hānau ʻana o ke pēpē.

ʻO wai ka mea i ʻoi aku ka pilikia o kēia kūlana?

ʻAʻole i loaʻa ke kumu kikoʻī o ka gastroschisis. ʻO ia hoʻi, he manawa kūpono ko kēlā me kēia wahine hāpai e loaʻa iā ia i loko o kāna pēpē. Eia nō naʻe, ua hōʻike kekahi mau noiʻi (no ka laʻana, nā noiʻi a nā Centers for Disease Control and Prevention - CDC) e hoʻonui paha kekahi mau mea i ka pilikia. ʻO kēia mau mea:

• Nā makuahine e hāpai ana i ka wā ʻōpiopio loa: ʻO ia hoʻi, ʻo ka poʻe e lilo i makuahine i ka wā ʻōpiopio.
• Ka hoʻohana ʻana i ka paka, ka inu ʻana i ka waiʻona, a i ʻole ka hoʻohana ʻana i nā lāʻau ʻē aʻe i ka wā hāpai.

ʻO kēia nā kumu pilikia i ʻike ʻia a hiki i kēia manawa. Akā e hoʻomanaʻo, hiki i kēia ʻano ke loaʻa i nā poʻe i hana ʻole i kekahi o kēia mau mea.

Pehea ka maʻamau o ka gastroschisis?

He kūlana kākaʻikahi loa kēia.Eia kekahi laʻana, ma ʻAmelika, hoʻopilikia kēia maʻi i hoʻokahi i loko o 2,000 mau pēpē i hānau ʻia i kēlā me kēia makahiki. ʻAʻole kēia he mea maʻamau ma Sri Lanka.

He aha nā hōʻailona o ka Gastroschisis?

ʻAʻole paha e ʻike ka makuahine i kekahi mau hōʻailona i ka wā hāpai ma muli o kēia kūlana. Eia nō naʻe, hiki i nā scan ultrasound ke hōʻike i kēia ma ka ʻaoʻao o ka pēpē:

• Me he mea lā aia ka ʻōpū o ka pēpē, ka ʻōpū liʻiliʻi, a i ʻole ka ʻōpū nui ma waho o ke kino .
• Ua pehu paha nā ʻōpū i puka mai .
• I kekahi manawa hiki ke wili ʻia nā ʻōpū .
• Ma hope o ka hānau ʻana o ke pēpē , e hāʻule paha ka mahana o kona kino (hypothermia).

He aha ke kumu o ka gastroschisis?

E like me ka mea i ʻōlelo ʻia ma mua, ʻaʻole i ʻike ʻia ke kumu kikoʻī o kēia. ʻO ia wale nō: I ka ulu ʻana o ka pēpē i loko o ka ʻōpū, ʻaʻole i hana piha ʻia ka paia o ka ʻōpū. ʻO ia ke kumu nui o kēia. Inā ʻoe e hoʻolālā ana e hāpai, he mea nui e kamaʻilio me kāu kauka e pili ana i nā ala e pale aku ai i nā kīnā hānau.

Pehea e ʻike ʻia ai ka Gastroschisis?

Ua ʻike ʻia kēia maʻi i ka wā hāpai a i ʻole ma hope o ka hānau ʻana o ka pēpē. ʻIke pinepine ʻia i ka wā o nā hoʻokolohua maʻamau i hana ʻia ma waena o 18 a me 20 mau pule o ka hāpai ʻana. He aha kēia mau hoʻokolohua?

• Ultrasound: Hoʻohana kēia hoʻāʻo i nā nalu kani e ʻike maopopo i nā ʻiʻo i loko o kou kino, a me ke pēpē. Hiki iā ia ke hōʻike inā ua puka mai nā ʻōpū.
• Nānā ʻana i ke koko: Ua ana ʻia kekahi mau mea i loko o ke koko o ka makuahine. ʻOi aku ka nui o ka protein i kapa ʻia ʻo alpha-fetoprotein ma mua o ka maʻamau (ʻoi aku hoʻi ma waena o 18-22 mau pule), he hōʻailona paha ia o kahi maʻi i kapa ʻia ʻo gastroschisis.
• Hoʻāʻo MRI (Magnetic Resonance Imaging): He hoʻāʻo kiʻi nō hoʻi kēia. Hiki iā ia ke kiʻi i nā kiʻi maopopo a kikoʻī hoʻi o loko o kou kino a me kāu pēpē. ʻAʻole pono nā kānaka a pau i kēia, akā hiki i nā kauka ke ʻōlelo aku iā ia i kekahi mau hihia kūikawā.

Pehea e mālama ʻia ai ka Gastroschisis?

ʻOiai inā ʻike ʻia kēia maʻi i ka wā hāpai, hiki ke hoʻomaka ka lāʻau lapaʻau ma hope o ka hānau ʻana o ka pēpē.

He mea koi ʻia ke ʻoki kino. ʻO kēia ʻoki kino e pili ana i ke kau ʻana i nā ʻōpū o ke pēpē i loko o ke kino a me ka pani ʻana i ka lua kokoke i ke kaula umbilical. E pale kēia i nā ʻōpū mai ka puka hou ʻana i waho.

Ma muli o ke koʻikoʻi o ke kūlana o ka pēpē a me ka nui o nā kino i puka mai, aia ʻelua ʻano hana ʻoki kino:

1. Hoʻoponopono mua: Inā hiki, hana ʻia ke ʻoki kino i ka wā e hānau ai ke pēpē a hoʻokomo ʻia nā ʻōpū e pani i ka lua ma ka ʻōpū. ʻO kēia ka mea i hoʻāʻo pinepine ʻia.

2. Hoʻoponopono pae:Inā ʻoi aku ka paʻakikī o ke kūlana gastroschisis, ʻo ia hoʻi, ʻaʻole lawa ke olakino o ka pēpē e kū i ke ʻoki ʻana, a i ʻole ʻaʻole lawa ka lumi i loko o ka ʻōpū o ka pēpē e hoʻokipa ai i kēia mau ʻōkana āpau i ka manawa hoʻokahi, e hana ke kauka ʻoki i ke ʻoki ʻana ma nā pae.

Mai ka wā i hānau ʻia ai ka pēpē a hiki i ke ʻoki ʻana, uhi ke kauka lapaʻau o ka pēpē i nā ʻōpū e kū mai ana i loko o kahi ʻeke palaki kūikawā i kapa ʻia he silo . Pale kēia i nā ʻōpū mai ka maʻi ʻana, ka maloʻo ʻana, a me ka hōʻino ʻia.

Ma hope o ke ʻoki kino mua, i kekahi manawa e pono ai nā ʻoki kino hou aʻe e kūkulu hou i nā ʻiʻo ʻōpū a i ʻole nā ​​​​​​naʻau o ka pēpē.

Aia kekahi mau pilikia ma hope o ke ʻoki ʻana?

ʻAe, aia kekahi mau pilikia e hiki ke kū mai ma hope o ke ʻoki ʻana o ka gastroschisis. He aha lākou?

• Ka maʻi ma kahi i hana ʻia ai ke ʻoki.
• Paʻakikī i ka ʻai ʻana.

I nā manawa e like me kēia, pono paha e hānai ʻia ke pēpē ma o kahi laina intravenous (IV), e like me ka saline , a i ʻole ma o kahi ʻōmole nasogastric a hiki i ka wā e hiki ai iā lākou ke ʻai pono hou.

Hiki ke loaʻa nā pilikia ʻōpū ma hope o ka mālama ʻana i ka gastroschisis?

Ma kahi o 25% o nā pēpē i hānau ʻia me ka gastroschisis e loaʻa paha kekahi mau pilikia me ka ulu ʻana o ko lākou ʻōpū. Pono paha kēia i ke ʻoki kino hou e mālama ai. Nā laʻana:

• ʻOki ʻōpū: Wehe ʻana i nā ʻāpana i hōʻino ʻia o ka ʻōpū me ke ʻoki kino.
• ʻIleostomy a i ʻole Colostomy: Pili kēia i ka wehe ʻana i kekahi ʻaoʻao o ka ʻōpū mai ka paia ʻōpū a kau i kahi ʻeke ma laila e hōʻiliʻili i ka ʻōpala. ʻAʻole pono kēia no nā kānaka a pau, i nā hihia kūikawā wale nō.

He aha nā hopena ʻaoʻao o ka Gastroschisis?

Hiki i nā pēpē i hānau ʻia me ka gastroschisis ke kū i kekahi mau pilikia olakino i ko lākou ola a pau:

• Hānau mua ʻia: Hiki i nā pēpē me ka gastroschisis ke hānau mua ʻia.
• Ka paʻa ʻana o ka ʻōpū: Ma hope o ke ʻoki ʻana, hiki i nā ʻōpū o ke pēpē ke lilo i mea haiki ma kekahi mau wahi, kahi e hiki ai ke hele pono ʻole ka meaʻai a me ka ʻōpala.
• ʻO ka maʻi ʻōpū pōkole: He maʻi laha ʻole kēia. ʻO kekahi mau pēpē he ʻuʻuku nā ʻāpana o ko lākou ʻōpū, hiki ke paʻakikī iā lākou ke omo pono i nā meaola mai ka meaʻai.

Āhea e hiki ai iaʻu ke lawe i kaʻu pēpē i ka home ma hope o ke ʻoki ʻana o ka gastroschisis?

Ma muli o ke koʻikoʻi o ke kūlana o ka pēpē, ua hoʻokomo ʻia ʻo ia i ka Neonatal Intensive Care Unit (NICU) o ka haukapila.Pono paha ʻoe e noho ma ka haukapila no kekahi manawa o ʻelua pule a i kekahi mau mahina. Hoʻoholo ʻia kēia manawa ma ka nānā pono ʻana i nā ʻeha o ka pēpē e ʻike inā e ho'ōla maikaʻi ana lākou a inā hiki iā lākou ke ʻai a hoʻoheheʻe pono i ka meaʻai. I kekahi manawa, inā pono nā ʻoki kino hou aʻe, hiki ke lōʻihi ka noho ʻana ma ka haukapila.

Pehea e hiki ai iaʻu ke hōʻemi i ka pilikia o ka hānau ʻana o kahi pēpē me ka gastroschisis?

ʻOiai ʻaʻole hiki ke hoʻopau loa ʻia kēia pilikia, hiki i ka hahai ʻana i kekahi mau mea ke kōkua i ka hōʻemi ʻana i ka pilikia:

• E pale i ka puhipaka a me ka hoʻohana ʻana i nā huahana paka.
• Mai inu i ka waiʻona i ka wā hāpai.
• Mai hoʻohana i nā lāʻau ʻeha (ʻoi aku hoʻi nā opioids) i ka wā hāpai me ka ʻole o ke aʻo ʻana a ke kauka.
• E ʻai i ka meaʻai momona a kaulike hoʻi .

He mea nui loa ka hahai ʻana i kēia mau mea no kou olakino a me ke olakino o kāu pēpē.

He aha kaʻu e manaʻo ai inā loaʻa ka gastroschisis i kaʻu pēpē?

I ka wā e hānau ai ke pēpē, pono ke ʻoki kino e pani i ka ʻōpū ma ke kau ʻana i kona mau kino. Inā nui ka lua ma ka ʻōpū, e hoʻokomo mālie nā kauka i nā kino i loko o kekahi mau lā a i ʻole nā ​​pule ma hope o ka hānau ʻana o ke pēpē.

Ma hope o ke ʻoki ʻana, e hāʻawi ʻia kāu pēpē i nā meaʻai IV (intravenous) a me nā antibiotics e pale aku i ka maʻi a hiki i kona hoʻōla ʻana. ʻAʻole hiki iā ʻoe ke hāʻawi i kāu pēpē i ka waiū umauma a i ʻole ka waiū formula ma hope koke o ke ʻoki ʻana. E haʻi aku kāu kauka iā ʻoe i ka wā e hiki ai iā ʻoe ke hoʻomaka e hāʻawi i kāu pēpē i ka waiū umauma/waiū formula.

I ka hapanui o nā hihia, inā he maʻi wale nō i kapa ʻia ʻo gastroschisis kāu pēpē, e hoʻōla piha ʻo ia a ulu aʻe e like me nā pēpē ʻē aʻe. Eia nō naʻe, aia kahi pilikia liʻiliʻi o ka loaʻa ʻana o kekahi mau pilikia o ka ʻōpū ma hope o ke ola. E kamaʻilio kāu kauka iā ʻoe e pili ana i kēia.

Pehea e hānau ai i kahi keiki me ka gastroschisis?

ʻOi aku ka maikaʻi o ka hānau ʻana i kāu pēpē ma kahi haukapila me kahi keʻena mālama koʻikoʻi neonatal (NICU) a me nā kauka i loea i ka mālama ʻana i kēia mau kūlana. Hiki ke hānau ʻia nā pēpē me ka gastroschisis ma ke ʻano vaginal a i ʻole ma ka ʻoki cesarean (C-section). E kōkua kāu kauka obstetric iā ʻoe e hoʻoholo i ke ʻano hana maikaʻi loa no kāu pēpē.

Āhea wau e ʻike ai i ke kauka ma hope o ke ʻoki ʻana?

Ma hope o ke ʻoki ʻana, pono ʻoe e ʻike koke i ke kauka inā loaʻa i kāu pēpē kekahi o kēia mau hōʻailona:

• Inā pehu a ʻulaʻula kahi i ʻoki ʻia .
• Inā e kahe ana kekahi mea e like me ke wai mai ka wahi ʻoki.
• Inā ʻoe e luaʻi ana a inā ʻaʻole ʻoe e kahe pono ana i ka lepo.

He mau hōʻailona paha kēia o kahi maʻi a i ʻole kekahi pilikia ʻē aʻe, no laila he mea nui e ʻimi koke i ka lāʻau lapaʻau.

He aha nā nīnau e pono iaʻu e nīnau aku i kaʻu kauka?

I ka manawa e like me kēia, nui paha kāu mau nīnau. Mai makaʻu e nīnau i kāu kauka. Eia kekahi mau laʻana:

• He aha nā pilikia lōʻihi o ka gastroschisis?
• ʻEhia ka lōʻihi e noho ai kaʻu pēpē ma ka haukapila ma hope o ke ʻoki kino?
• Āhea e hiki ai iaʻu ke hoʻomaka e hāʻawi i kaʻu pēpē i ka waiū umauma a i ʻole ka waiū formula?

Hiki ke hopohopo ke ʻike i nā kino o kāu pēpē e puka mai ana i waho i ka wā e hānau ʻia ai. Eia nō naʻe, ʻoi aku ka maikaʻi o ka manawa e hoʻōla ai kāu pēpē ma hope o ke ʻoki ʻana e hoʻihoʻi i nā kino. E wehewehe kāu hui lapaʻau i nā mea āpau iā ʻoe a alakaʻi iā ʻoe ma o ke ʻoki ʻana a me ke kaʻina hana hoʻōla.

## Leka Lawe-Home

• ʻO Gastroschisis ka wā e puka mai ai nā ʻōpū o kahi pēpē, e like me nā kino, ma o kahi lua liʻiliʻi i loko o ka ʻōpū.
• ʻAʻole maopopo iaʻu ke kumu kūpono o kēia.
• Hiki ke ʻike ʻia kēia ma o ka hoʻāʻo ʻana i ka ultrasound i ka wā hāpai.
• ʻO ka lāʻau lapaʻau, ʻo ia ke hana ʻoki kino e hoʻokomo i ke kino a pani i ka lua.
• Hoʻōla piha ka hapa nui o nā pēpē mai kēia maʻi a ulu maʻamau.
• I mea e hōʻemi ai i ka pilikia, he mea nui e hahai i kahi nohona olakino i ka wā hāpai.
• Inā he mau nīnau a hopohopo paha kāu, mai makaʻu e kamaʻilio me kāu kauka. E kōkua lākou iā ʻoe.

Manaʻolana wau he mea kōkua kēia ʻike iā ʻoe. E hoʻomanaʻo, ʻaʻole ʻoe hoʻokahi. Aia mau nā kauka a me nā kahu maʻi e kōkua iā ʻoe a me kāu pēpē.

ʻO ka Gastroschisis, nā kīnā hānau, ka prolapse ʻōpū, ke olakino pēpē, ka hāpai ʻana, ke ʻoki kino neonatal, ka mālama ʻana i ka neonatal