Ua luhi mau ʻoe? E kamaʻilio kākou e pili ana i ka Idiopathic Hypersomnia?

He mea maʻamau no kākou a pau ke luhi a me ka hiamoe i kekahi manawa. Akā, ke hiamoe nei ʻoe a luhi loa i ka lā a pau, ʻoiai ma hope o ka hiamoe ʻana no nā hola i ka pō? Ke paʻakikī nei ʻoe e ala i ke kakahiaka? Ke manaʻo nei ʻoe ʻaʻole lawa kou hiamoe ʻoiai ma hope o ke kau ʻana i nā leo hoʻāla he nui? A laila he mea nui paha kēia iā ʻoe. I kēia lā, e kamaʻilio mākou e pili ana i kēia ʻano i kapa ʻia ʻo "idiopathic hypersomnia," a i ʻole e like me ke kāhea ʻana o nā kauka.

He aha ka Idiopathic Hypersomnia?

I ka ʻōlelo maʻalahi, ʻo (Idiopathic Hypersomnia) kahi maʻi hiamoe kahi āu e manaʻo ai e pono ai ke hiamoe nui. ʻO ka mea e hana ʻia, ʻoiai inā hiamoe ʻoe e like me kou makemake i ka pō, ʻo ia hoʻi, no nā hola ʻeiwa a ʻoi aku, ʻaʻole ʻoe e manaʻo i ka hoʻomaha a i ʻole ka hou i kou ala ʻana i ke kakahiaka. ʻO ke ʻano o ka huaʻōlelo "idiopathic" ʻaʻole ʻike ʻia ke kumu pololei o kēia ʻano .

Inā loaʻa iā ʻoe kēia ʻano maʻi, e ala paha ʻoe i ke kakahiaka me ka manaʻo hoʻomaha ʻole a me ka hoʻomaha ʻole. Pono paha ʻoe e hoʻonohonoho i nā alarm he nui a hakakā e ala aʻe mai kahi moe. Hiki paha iā ʻoe ke luhi ma hope o ka hiamoe ʻana. ʻO ka manaʻo luhi i ka lā a pau ke kumu nui o kāu mau hana o kēlā me kēia lā.

Akā, mai hopohopo, hiki iā ʻoe ke ʻimi i ke kōkua mai ke kauka e mālama i kēia mau hōʻailona.

Pehea ka laha ʻole o kēia maʻi?

Wahi a nā noiʻi i mālama ʻia ma ʻAmelika Hui Pū ʻIa, hoʻopilikia kēia maʻi (Idiopathic Hypersomnia) ma kahi o ʻumi o kēlā me kēia haneli tausani kānaka. ʻO ia hoʻi, he maʻi kakaikahi iki ia.

✨ Clinical nutrition Verified Partner

Clinical vitamins and nutritional supplements

Clinically proven high quality vitamins, minerals and immune nutritional supplements.

Check Availability →

He aha nā hōʻailona o kēia?

ʻO nā hōʻailona nui o ke kūlana "Idiopathic Hypersomnia":

• Ka hiamoe nui i ke ao: Hiki iā ʻoe ke hiamoe i kēlā me kēia manawa o ka lā.
• ʻO ka hiamoe ʻana ma mua o 11 mau hola i loko o 24 mau hola: Hoʻokomo pū kēia i ka hiamoe ʻana i ke ao. A i ʻole ka hiamoe ʻana ma mua o 9 mau hola i ka pō.
• Paʻakikī ke ala aʻe: ʻOiai ma hope o ka hiamoe maikaʻi ʻana i ka pō, paʻakikī ke ala aʻe i ke kakahiaka. Manaʻo ʻoe ua nele ʻoe i ka hoʻoikaika a me ka poniuniu ke ala ʻoe ('sleep inertia').

Hiki i kēia mau hōʻailona ke hoʻolilo i mea paʻakikī loa ka hana ʻana i nā hana o kēlā me kēia lā. ʻO ka maʻamau, e hōʻoia ke kauka i kēia hōʻailona inā loaʻa kēia mau hōʻailona i kekahi mau lā o ka pule, a kokoke i kēlā me kēia lā, no ka liʻiliʻi he ʻekolu mahina. I kekahi manawa, hiki ke loaʻa kēia mau hōʻailona no nā makahiki, a ʻaʻole paha i hana ʻia kahi hōʻailona maopopo.

ʻOiai ʻoe e ala ana, me ka luhi ʻole, hiki iā ʻoe ke manaʻo i nā mea e like me:

• Noe lolo: Paʻakikī i ka noʻonoʻo pono.
• Huikau: Me he mea lā ʻaʻole hiki iā ʻoe ke hoʻomaopopo i ka mea e hana nei.
• Kaumaha: Manaʻo kaumaha, me he mea lā ua luhi ʻoe i nā mea āpau.
• Pōʻaiʻī.
• Nā ʻeha poʻo.
• Hoʻonāukiuki.

He aha ke kumu o kēia?

ʻAʻole ʻike ʻia ke kumu kikoʻī o ka Idiopathic Hypersomnia . Ke hoʻomau nei ka noiʻi, akā ua hōʻike kekahi mau noiʻi e pili ana paha kēia mau mea:

• Nā ʻano like ʻole / mutations genetic: Hiki i nā loli i kekahi mau genes ke hoʻopilikia i ke ʻano o ka kamaʻilio ʻana o kou mau hunaola lolo a me ka kaohi ʻana i kāu pōʻaiapuni hiamoe-ala.
• He pane kūlohelohe ʻole o ka ʻōnaehana pale: Hiki i kāu ʻōnaehana pale ponoʻī ke hoʻouka hewa i nā ʻōnaehana olakino i loko o ka ʻōnaehana nerve, e ʻike ana iā lākou he mea hoʻoweliweli.

He aha nā mea hoʻoulu no kēia kūlana?

ʻO nā mea hoʻoulu he mau mea ia e hiki ai ke hoʻoulu a hoʻonui paha i nā hōʻailona. Hiki ke hoʻoulu ʻia ka Idiopathic Hypersomnia e:

• Nā loli koke i kāu pōʻaiapuni hiamoe-ala.
• Hoʻoikaika nui.
• ʻO ka anesthesia laulā no kekahi mea e like me ke ʻoki kino.
• He maʻi viral.
• ʻEha poʻo.

ʻO wai ka mea i pilikia nui no kēia?

Loaʻa paha iā ʻoe kahi predisposition genetic i ka Idiopathic Hypersomnia. ʻO ke ʻano kēia, inā loaʻa i kekahi o kou ʻohana kēia maʻi a i ʻole kekahi maʻi pili hiamoe ʻē aʻe, he liʻiliʻi kou manawa e loaʻa ai iā ia.

He aha nā pilikia e hiki ai i kēia ke hana?

Inā luhi mau ʻoe, he mea maʻamau ke manaʻo ʻaʻole hiki iā ʻoe ke hana i kāu mea maikaʻi loa. He mea paʻakikī paha nā mea e like me kēia iā ʻoe:

• Hana i nā hana e like me ka mea i manaʻo ʻia i ka lā (e like me nā hana o kēlā me kēia lā, e noho ana ma ka noʻonoʻo i hoʻokahi mea).
• Ka mālama ʻana i ka pilina me nā poʻe aloha.
• Ke hoʻokō ʻana i nā kuleana ma ka hana, ke kula, a ma ke ola pilikino.
• Ka mālama ʻana i kou olakino noʻonoʻo a me ke kaulike o ka naʻau.

E noʻonoʻo e pili ana i ia mea, ʻo ka hoʻokele ʻana i kahi kaʻa a i ʻole ka hoʻohana ʻana i nā mīkini kaumaha e pono ai kou nānā piha. Inā hiamoe ʻoe i ka manawa e like me kēia, hiki ke lilo i mea weliweli nou a no nā poʻe ʻē aʻe.

Pehea e ʻike ʻia ai kēia?

E nānā ke kauka iā ʻoe a hana i nā hoʻokolohua e pono ai e hoʻoholo inā he Idiopathic Hypersomnia kou. I ka wā o ka hoʻokolokolo ʻana, e hoʻolohe pono ke kauka i kāu mau hōʻailona a e noi paha iā ʻoe e pane i kahi nīnau i kapa ʻia ʻo Epworth Sleepiness Scale, kahi e ana i ke ʻano o kou hiamoe.

E noi ʻia paha ʻoe e mālama i kahi puke moʻolelo hiamoe no kekahi mau pule. E kōkua kēia iā ʻoe e mālama i nā manawa āu e hiamoe ai a ala ai. Hiki i kāu kauka ke hāʻawi iā ʻoe i kahi mea liʻiliʻi i kapa ʻia he actigraph e kau ai ma kou lima. E kōkua kēia iā ʻoe e hahai i kāu mau ʻano hiamoe.

Eia kekahi, nā haʻawina hiamoe kikoʻīEia kekahi laʻana, hiki ke hana ʻia kahi polysomnography a i ʻole ka hoʻāʻo latency hiamoe lehulehu (MSLT). E nānā ke kauka i nā hopena o kēia mau hoʻāʻo a hana i nā hoʻāʻo hou aʻe e kāpae i nā kūlana ʻē aʻe e hiki ai ke hoʻoulu i nā hōʻailona like.

Aia kekahi lāʻau lapaʻau piha no kēia?

ʻAʻohe lāʻau lapaʻau i kēia manawa no ke ʻano "Idiopathic Hypersomnia." Eia nō naʻe, aia nā lāʻau lapaʻau e hiki ke kōkua i ka kaohi ʻana i nā hōʻailona.

Pehea e mālama ʻia ai kēia?

Hoʻohana pinepine ʻia nā lāʻau lapaʻau me ka holomua e kāohi i nā hōʻailona o ka "Idiopathic Hypersomnia."

Eia kekahi, aia kekahi psychotherapy kikoʻī i kapa ʻia ʻo "Cognitive Behavioral Therapy for Hypersomnia (CBT-H)". Ua hoʻolālā ʻia kēia e kōkua i ke kūlana "Idiopathic Hypersomnia". Ke hoʻohana ʻia me ka lāʻau lapaʻau, hiki i kēia therapy ke hoʻomaikaʻi i ka maikaʻi o ka hiamoe holoʻokoʻa a me ka hana o kēlā me kēia lā.

Nā lāʻau lapaʻau no ka hypersomnia idiopathic

Aia kekahi mau ʻano lāʻau lapaʻau e hiki ke hoʻohana ʻia e mālama i kēia maʻi:

• Nā lāʻau lapaʻau e hoʻoulu ai i ka ʻōnaehana nerve waena ('Central nervous system stimulants') - no ka laʻana, nā lāʻau lapaʻau o ke ʻano '(amphetamines)'.
• Nā lāʻau lapaʻau e hoʻoulu ai i ka ʻōnaehana nerve waena ʻaʻole no ka hui amphetamine - no ka laʻana, (modafinil).
• Nā lāʻau hoʻohaʻahaʻa i ke kikowaena o ke kikowaena - no ka laʻana, sodium oxybate (he lāʻau lapaʻau kēia i ʻāpono ʻia e ka FDA).
• Nā mea kū'ē i ka mea loaʻa GABA - no ka laʻana, flumazenil.

ʻOkoʻa nā hopena ʻaoʻao o kēia mau lāʻau lapaʻau. Inā ʻoe e lawe nei i nā lāʻau lapaʻau ʻē aʻe, he mea nui e kamaʻilio me kāu kauka e ʻike inā hiki iā lākou ke launa pū me ka lāʻau lapaʻau hou. Mai hoʻololi i kāu papa hana lāʻau me ka ʻole o ka ʻae ʻia e kāu kauka.

Hiki i ke kauka ke noi iā ʻoe e lawe i ka Epworth Sleepiness Scale ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau a i ka wā o ka lāʻau lapaʻau e ʻike ai pehea ka maikaʻi o ka lāʻau lapaʻau.

He aha kāu e manaʻo ai i ka wā e noho ai me kēia maʻi?

He mea maʻamau ka manaʻo hoʻonāukiuki i ka wā e noho ana me ka Idiopathic Hypersomnia. ʻOiai ʻoe e hiamoe ana no nā hola i kēlā me kēia pō, luhi nō ʻoe i ke ao. Hiki i kēia ke hoʻolilo iā ia i mea paʻakikī ke hana i nā hana o kēlā me kēia lā, e like me ka hele ʻana i ke kula a i ʻole ka hana i ka manawa kūpono.

Hiki i kāu kauka ke kuhikuhi i ka lāʻau lapaʻau e kōkua iā ʻoe e ala i ke ao. Hiki ke lōʻihi ka manawa e ʻike ai i ka lāʻau lapaʻau kūpono a me ka nui nou, a pono paha ʻoe e hoʻāʻo i kekahi mau lāʻau lapaʻau like ʻole. E nānā pinepine kāu kauka iā ʻoe e ʻike pehea e hana ai ka lāʻau lapaʻau nou.

Āhea wau e ʻike ai i ke kauka?

Inā hiamoe maikaʻi ʻoe i ka pō akā manaʻo ʻoe ua luhi loa a hiamoe paha i ke ao, he mea nui e ʻike i ke kauka . Eia kekahi laʻana, inā ʻike ʻoe iā ʻoe iho e hiamoe ana i ka papa, ma ka hana, a i ʻole ke kamaʻilio ʻana me nā hoaaloha, mai hoʻowahāwahā iā ia. Hiki i ke kauka ke kōkua iā ʻoe e hoʻokele i kāu mau hōʻailona ma nā ʻano e kōkua ai iā ʻoe e ala.

He aha nā nīnau e pono iaʻu e nīnau aku i ke kauka?

Ke ʻike ʻoe i kāu kauka, hiki iā ʻoe ke nīnau i nā nīnau e like me kēia:

• No ke aha lā wau i luhi ai i ke ao?
• Pono anei au e hoʻololi i kaʻu papa hana hiamoe?
• He aha ke ʻano o ka lāʻau lapaʻau āu e paipai nei?
• Aia kekahi mau hopena ʻaoʻao o kēia lāʻau lapaʻau?
• Āhea wau e lawe ai i ka lāʻau lapaʻau āu i kuhikuhi mai ai?

ʻOiai inā loaʻa iā ʻoe kahi hiamoe maikaʻi i ka pō, hiki ke paʻakikī ke hauʻoli i ke ola ke loaʻa ʻole i kou kino ka hoʻomaha e pono ai. Hiki i ka Idiopathic Hypersomnia ke hoʻolilo iā ʻoe e haʻalele i nā hālāwai, noho lohi, nalowale ka noʻonoʻo, a i kekahi manawa manaʻo e ala aʻe mai kahi moe. Hiki paha iā ʻoe ke manaʻo e pale i nā pilina pili kanaka no ka makaʻu i ka hiamoe ʻana i ka wā e kamaʻilio ana me nā hoaaloha. Hiki i kēia mau mea a pau ke loaʻa ka hopena nui i kou olakino noʻonoʻo.

ʻO ka mea pōmaikaʻi, ʻaʻole pono ʻoe e noho me kēia mau hōʻailona. Hiki i ke kauka ke kōkua iā ʻoe e ʻike i ke kumu e loaʻa ʻole ai iā ʻoe ka hoʻomaha āu e pono ai a hāʻawi i nā lāʻau lapaʻau e hiki ke kōkua iā ʻoe e ala.

ʻO ka mea hope loa, leka lawe i ka home:

Inā ʻike ʻoe iā ʻoe iho e hiamoe nui ana a luhi hoʻi i ka lā a pau, mai hoʻokuʻu wale iā ia he "luhi." He hōʻailona paha ia o kahi maʻi olakino. ʻO Idiopathic Hypersomnia kekahi o ia ʻano maʻi.

E hoʻomanaʻo, aia nā lāʻau lapaʻau no kēia. ʻO ke kamaʻilio ʻana me ke kauka e pili ana i kāu mau hōʻailona ka hana mua. Me ka ʻike kūpono a me ka lāʻau lapaʻau kūpono, hiki ke hoʻomaikaʻi maoli i kou ʻano ola. ʻAʻole ʻoe hoʻokahi, a mai makaʻu e noi i ke kōkua!