Ke hoʻomaka koke nei kāu keiki liʻiliʻi e ʻoniʻoni? ʻO kēia anei kā mākou manaʻo no nā Spasms Infantile? E ʻike kākou!

Ua ʻike anei ʻoe i kāu keiki liʻiliʻi e ʻoni koke ana a ʻoʻoleʻa ana? Hana pinepine ʻia kēia i nā manawa he nui i ka lā. Ke noʻonoʻo nei paha ʻoe inā he mea maʻamau kēia a i ʻole he ʻano kūikawā paha ia e hoʻopilikia ai i nā pēpē. ʻO ia ka mea a mākou e kamaʻilio ai i kēia lā. Ua kapa ʻia kēia ʻano he `(Infantile Spasms)`. E nānā kākou i ke ʻano o ia mea, no ke aha e hana ʻia ai, he aha nā hōʻailona, ​​pehea e ʻike ai, a he aha nā lāʻau lapaʻau.

He aha kēia (Infantile Spasms)?

I ka ʻōlelo maʻalahi, ʻo `(Infantile Spasms)` he ʻano maʻi epilepsy e loaʻa ana i nā pēpē ma lalo o hoʻokahi makahiki, ʻo ia hoʻi, ma lalo o 12 mahina . ʻO ka Epilepsy kahi maʻi (`neurological disorders`) i hoʻokumu ʻia e kahi pilikia maʻamau me ka hana uila o ka lolo o kāu pēpē. Ke hana ʻia kēia mau `(Infantile Spasms)`, ʻo ke kino o ka pēpē, ʻoiai ka ʻōpū, ke poʻo, ka ʻāʻī, nā lima, a me nā wāwae, e ʻūlū koke a me he mea lā e lele ana.

He manawa pōkole loa kēia mau ʻūmiʻi ʻana, ma kahi o hoʻokahi a ʻelua paha kekona . Akā hiki iā lākou ke hana i loko o kahi moʻo, ʻo ia hoʻi, hiki mai kekahi ʻūmiʻi a laila kekahi ma hope o 5 a 10 paha kekona, a i ʻole i loko o kahi 'hui'. E noʻonoʻo i kahi pēpē e kīkēkē ana i nā manawa he nui i ka lālani. ʻO ka hapa nui o ka manawa, hiki mai kēia mau ʻūmiʻi ma hope o ke ala ʻana o nā pēpē mai ka hiamoe .

ʻO ka mea kaumaha, he nui nā pēpē e ʻeha nei i kēia maʻi, ua lohi paha ko lākou ulu ʻana, a i ʻole e ulu paha lākou ma hope. ʻO ia hoʻi, ua lohi ka pēpē i ka hana ʻana i nā mea kūpono no ko lākou mau makahiki.

He aha ka ʻokoʻa ma waena o (Infantile Spasms) a me (West Syndrome)?

I kēia manawa, ke noʻonoʻo nei paha ʻoe i ke ʻano o kēia "West Syndrome". I kekahi manawa kapa pū nā kauka iā ia penei. ʻO "West Syndrome" kahi hōʻiliʻili o nā hōʻailona. ʻO ia hoʻi:

• Loaʻa iā mākou kēia "Infantile Spasms" a mākou e kamaʻilio nei.
• Aia kekahi ʻano ʻē i loko o ke ʻano uila o ka lolo i kapa ʻia ʻo `(Hypsarrhythmia)`. (ʻIke ʻia kēia e kahi hoʻāʻo `(EEG)`, e kamaʻilio mākou e pili ana ma hope).
• Aia nā lohi o ka ulu ʻana a i ʻole ka nalowale ʻana o nā hiki i loaʻa mua ('developmental regression').

Eia naʻe, ʻaʻole nā ​​​​pēpē a pau me `(Infantile Spasms)` e loaʻa iā `(West Syndrome).` ʻO ia hoʻi, hiki ke loaʻa iā `(Infantile Spasms)` me ka ʻole o ka lohi o ka ulu ʻana.

He aha ka ʻokoʻa ma waena o nā spasms a me nā seizures?

ʻAe, he nīnau koʻikoʻi kēia. ʻO ka `(Infantile Spasms)` he ʻano hopu maoli nō ia. ʻO ka ``Seizure`` he hana uila koke a kaohi ʻole ʻia ma waena o nā hunaola o ka lolo. Hiki i kēia ke hana i ka ʻoʻoleʻa o nā ʻiʻo no ka manawa pōkole, nā loli i ka neʻe ʻana, ke ʻano, a me nā loli maʻamau ʻole i nā manaʻo. ʻAʻole like nā hopu āpau.

Ke hoʻohālikelike ʻia me nā ʻōhū tonic-clonic a i ʻole grand mal a mākou e noʻonoʻo pinepine ai i ka wā e noʻonoʻo ai mākou i nā ʻōhū, ʻoi aku ka pōkole o kēia mau ʻōhū pēpē. ʻO ka mau ʻana o nā ʻōhū pēpē ma kahi o hoʻokahi a ʻelua paha kekona, akā hele mai lākou i nā hui. Hiki i nā ʻano ʻōhū ʻē aʻe ke mau ma nā wahi a pau mai 30 kekona a i ʻelua mau minuke.

He aha ka ʻokoʻa ma waena o nā Spasms Infantile a me ka Startle Reflex?

He mea kēia e huikau ai nā mākua he nui, no ka mea, ʻo ke ʻano o ka "Infantile Spasms" e like paha me ke ʻano o ka ʻoni mau ʻana o nā pēpē.

Hoʻohoka pinepine nā pēpē (i kapa ʻia hoʻi ʻo Moro reflex) ke lohe lākou i kahi leo nui a i ʻole ke neʻe koke ʻia lākou. A laila hoʻolei ke pēpē i ko lākou poʻo i hope, hohola i ko lākou mau lima a me nā wāwae, a hoʻohuli i ko lākou poʻo i luna. I kekahi manawa e uē paha lākou, a laila huki i ko lākou mau lima a me nā wāwae i ko lākou kino.

Akā, i loko o nā `(Infantile Spasms)` ʻaʻohe kumu o waho . ʻO ia hoʻi, ʻaʻole i loaʻa nā spasms ma muli o kahi leo a i ʻole kekahi mea ʻē aʻe. ʻO kekahi, ʻo ia ka hele ʻana mai o nā `(Infantile Spasms)` i nā hui . ʻO ia hoʻi, hele mai kekahi, a laila kekahi, a me kekahi. ʻAʻole lōʻihi ka spasm maʻamau. Eia kekahi, i ka wā e loaʻa ai ka spasm, hiki i nā maka o ka pēpē ke ʻōwili i luna, a i ʻole e like me he mea lā e ʻūlū ana ʻo ia . ʻAʻole maʻamau kēia mau mea i nā spasms maʻamau.

I ka makahiki hea e hoʻomaka ai nā spasms pēpē?

Wahi a nā kauka, 90% o nā `(Infantile Spasms)` i ʻike ʻia i nā pēpē ma lalo o 12 mau mahina, ʻo ia hoʻi, i nā pēpē ma lalo o hoʻokahi makahiki. ʻO ka mea maʻamau ma waena o nā makahiki ʻehā a me ʻehiku mahina . Eia nō naʻe, i kekahi manawa hiki i nā keiki ma luna o 12 mau mahina ke loaʻa i kēia ʻano spasm. I kēlā hihia, ua hoʻokaʻawale ʻia ʻo ia he `(Epileptic Spasms)`.

Pehea ka maʻamau o kēia ʻano?

ʻAʻole kēia he maʻi maʻamau loa, akā ʻaʻole ia he mea ʻole. Ua manaʻo ʻia ma kahi o hoʻokahi i loko o 2,000 a 4,000 mau pēpē e hoʻopilikia ʻia e kēia maʻi (Infantile Spasms).

He aha nā hōʻailona o nā spasms i nā keiki?

Ke hiki mai kēia mau ʻūmiʻi, ʻoʻoleʻa koke ke kino o kāu pēpē, a ʻūlū paha. He mau kekona wale nō ia. Hiki i ke pēpē ke kūlou i ko lākou kua, kūlou i ko lākou mau lima, nā wāwae, a me ke poʻo i mua. E like me kā mākou i ʻōlelo ai ma mua, hiki mai kēia mau ʻūmiʻi i kahi hui, kekahi ma hope o kekahi, me kahi hoʻomaha 5-10 kekona.

Ma hope o kahi kīkē a i ʻole kekahi mau kīkē, hiki i ke pēpē ke hopohopo a uē. Akā, ʻaʻole ia e hana mau ʻia.

I kekahi manawa, hiki mai kēia mau "(Infantile Spasms)" me ka maʻalahi loa . ʻAʻole paha mākou e ʻike maʻalahi iā lākou. ʻO ia mau hōʻailona maʻalahi:

• Ke ʻōwili nei i kou mau maka.
• ʻEha ʻōpū.
• Nā neʻe ʻana o ka ʻauwae.
• ʻUmiʻumi.
• Kuno ke poʻo.

Inā loaʻa ka haʻalulu i kahi ʻano ʻē i ka lolo o ka pēpē, hiki ke hoʻopilikia pinepine i hoʻokahi ʻaoʻao o ke kino. A i ʻole e like paha ke poʻo a i ʻole nā ​​maka me he mea lā ua huki ʻia i hoʻokahi ʻaoʻao.

ʻO ka mea nui loa, ʻo ia ka hana pinepine ʻana o kēia kīkē ma hope o ke ala ʻana o ka pēpē mai ka hiamoe . He mea kākaʻikahi loa ia i ka wā e hiamoe ana ka pēpē.

ʻAʻole i liʻuliʻu ma hope o ka hoʻomaka ʻana o kēia mau kīkē, e ʻike ʻoe i nā loli ʻē aʻe i kāu pēpē:

• Ua nalowale nā ​​​​​​mea nui o ka ulu ʻana e like me ka ʻōwili ʻana, ka noho ʻana i luna, ke kukuli ʻana, a me ka walaʻau ʻana.
• Ua emi iho ka launa pū ʻana me nā poʻe ʻē aʻe, a ua emi iho ka ʻakaʻaka .
• Hopohopo mau, a i ʻole noho mālie mau.

Inā hiki, e hoʻopaʻa wikiō i kāu pēpē i ka wā e loaʻa ai kēia mau spasms. A laila hiki iā ʻoe ke hōʻike iā lākou i kāu pediatrician. He mea nui e ʻike mua i kēia mau "Infantile Spasms". Inā manaʻo ʻoe e loaʻa ana kēia mau spasms i kāu pēpē, e ʻike koke i ke kauka.

ʻEhia pinepine e hiki mai ai nā spasms pēpē?

Hiki i kahi pēpē ke loaʻa i 100 mau hopu ʻana i ka lā. Akā, ʻokoʻa ka hopena o kēlā me kēia pēpē. No laila, inā ʻike ʻoe i kāu pēpē e loaʻa ana i nā hopu ʻana, ʻoiai inā hoʻokahi a ʻelua paha i ka lā, ʻoi aku ka maikaʻi o ke kamaʻilio ʻana me ke kauka i ka hikiwawe loa .

He aha nā kumu o nā spasms i nā keiki liʻiliʻi?

Nui nā kumu hiki ke loaʻa i nā ʻūmiʻi pēpē. Ua ʻike nā kānaka ʻepekema ma mua o 200 mau kūlana olakino e hiki ke hoʻoulu iā lākou. Eia nō naʻe, ma kahi o ka hapakolu o nā hihia, ʻaʻole hiki i nā kauka ke loaʻa ke kumu pololei.

Hiki ke hana ʻia kēia hahau ʻana e kahi ʻano ʻē ma kahi ʻāpana liʻiliʻi o ka lolo o ka pēpē, a i ʻole hiki ke hana ʻia e kahi pilikia ma loko o ka lolo.

ʻO kekahi o nā kumu nui:

• ʻO ka hōʻino ʻana o ka lolo a i ʻole ka maʻi: Hiki ke hana ʻia kēia hahau e kekahi ʻano ʻeha o ka lolo. ʻO nā kumu nui ʻo ia ka `(Hypoxic-ischemic encephalopathy)` (ʻo ia hoʻi, ʻaʻole lawa ka oxygen a i ʻole ke koko i ka lolo no ka manawa lōʻihi), `(Meningitis)` (meningitis), a me `(Perinatal stroke)` (ʻo ia hoʻi ka hahau e hana ʻia i waenakonu o ka hāpai ʻana o ka pēpē a i loko o ka mahina mua ma hope o ka hānau ʻana).
• Nā Pilikia o ka Hoʻomohala ʻana o ka Lolo: Hiki ke hana ʻia kēia e kekahi mau ʻano ʻē i loko o ka ʻōnaehana nerve waena (lolo a me ke kaula spinal) e kū mai ana i ka wā e ulu ana ka pēpē i loko o ka ʻōpū. No ka laʻana, nā kūlana e like me `(Focal cortical dysplasia)`, `(Lissencephaly)`, `(Holoprosencephaly)` a me `(Aicardi syndrome)`. Hiki nō hoʻi ke hana ʻia e nā kīʻaha koko ʻē i loko o ka lolo o ka pēpē (`(Arteriovenous malformations)`).
• Nā hoʻololi ʻana o nā gene: Ke hoʻopili nei nā kānaka ʻepekema i nā hoʻololi ʻana o nā gene he nui i nā spasms pēpē. ʻO kekahi mau laʻana e pili ana iā Trisomy 21 (Down syndrome), Tuberous sclerosis, Miller-Dieker syndrome, a me ka maʻi hemahema CDKL5.
• Nā kūlana metabolic: Hiki i nā hewa hānau o ka metabolism (IEM) ke hana i kēia maʻi. ʻO kēia nā kūlana genetic e ālai ana i nā ala metabolic e wāwahi i ka meaʻai a mākou e ʻai ai a hana i ka ikehu. He mea kākaʻikahi loa, hiki i ka hemahema o ka vitamin B6 ke hana i kēia maʻi.

Pehea e ʻike ʻia ai nā spasms pēpē?

E nīnau ke kauka o kāu pēpē iā ʻoe e pili ana i nā hōʻailona o kāu pēpē a me ka mōʻaukala olakino, a e hana pū i kahi hoʻokolokolo kino.

A laila hiki ke kuhikuhi ʻia kāu pēpē i kahi neurologist pediatric a i ʻole epileptologist. E hana lākou i kahi electroencephalogram (EEG) e hōʻoia inā loaʻa i ka pēpē nā spasms pēpē. Hiki iā lākou ke hana i nā hoʻokolohua ʻē aʻe e ʻike ai i ke kumu.

Ma muli o ka nui o nā kumu no nā 'Infantile Spasms', hiki ke paʻakikī iki i nā kauka ke ʻike i ke kumu.

He aha nā hoʻokolohua diagnostics?

Hana nui ke kauka i kahi hoʻokolohua "Electroencephalogram - EEG" e hōʻoia inā loaʻa nā "Infantile Spasms".

Hoʻopaʻa a hoʻopaʻa ka EEG i nā hōʻailona uila i loko o ka lolo o kāu pēpē. Ke hana ʻia kahi EEG, kau kahi loea i nā papa metala liʻiliʻi (electrodes) ma ke poʻo o ka pēpē. Hoʻopili ʻia kēia mau electrodes i kahi mīkini. Hāʻawi ka mīkini i ke kauka i ka ʻike e pili ana i ka hana o ka lolo o ka pēpē. ʻOi aku ka maikaʻi inā loaʻa i ka pēpē kahi hopu i ka wā o ka EEG a hiki ke hoʻopaʻa ʻia ka manawa ma waena o nā hopu. Ke ʻimi nei nā kauka i kahi ʻano EEG kikoʻī i kapa ʻia ʻo hypsarrhythmia. He kikoʻī loa kēia ʻano. ʻO ia ke kumu e maʻalahi ai i nā kauka ke ʻike pololei i nā spasms pēpē.

Hiki i ke kauka ke kauoha i nā hoʻokolohua hou aʻe e ʻike i ke kumu o kēia haʻalulu:

• ʻO ke kiʻi ʻana o ka lolo me ka magnetic resonance imaging (MRI): He hoʻāʻo ʻeha ʻole ka MRI scan e hiki ke hana i nā kiʻi maopopo loa o nā ʻiʻo a me nā ʻano i loko o ka lolo o kāu pēpē. Hoʻohana ka MRI i kahi magnet nui, nā nalu lekiō, a me kahi kamepiula e hana i kēia mau kiʻi kikoʻī. ʻAʻole ia e hoʻohana i nā kukuna X. Hiki i ka MRI ke kōkua i kāu kauka e ʻike i ke kumu o nā hopu ʻana o kāu pēpē.
• Nā hoʻokolohua genetic a me metabolic: Inā maʻamau ka MRI o kāu pēpē, e hana pinepine kāu kauka i nā hoʻokolohua ʻē aʻe, e like me nā hoʻokolohua genetic a me metabolic, e hoʻāʻo e ʻimi i ke kumu o nā hopu ʻana. ʻO ka maʻamau, pono kēia mau hoʻokolohua i kahi hāpana o ke koko, ka mimi, a i ʻole ka wai o ka spinal.

Pehea e mālama ʻia ai nā spasms pēpē?

ʻElua mau pahuhopu nui o ka mālama ʻana. ʻO kekahi, ʻo ia ke hoʻōki a kāohi paha i ka hahau ʻana . ʻO kekahi, ʻo ia ke mālama i ke kumu o ka hahau ʻana , inā hiki.

ʻO nā lāʻau lapaʻau nui i hāʻawi ʻia e hoʻōki a mālama paha i nā hopu ʻana:

• ʻO ka hormone Adrenocorticotropic (ACTH):He hormone ka ACTH i hana ʻia e kou kelepa pituitary. He hopena nui kona i ke ʻano o ka pane ʻana o kou kino i ke kaumaha. Ke hoʻokuʻu ʻia ka ACTH, hoʻoulu ʻia nā kelepa adrenal e hana i ka "hormone stress" cortisol. ʻO ACTH, ka mea i hoʻohana ʻia e mālama i nā hopu ʻana, he hormone synthetic. Hāʻawi ʻia ia ma ke ʻano he injection. Hāʻawi ʻia nā mahele mua ma ka haukapila. A laila e nānā pono ke kauka i kāu pēpē no nā hopena ʻaoʻao. ʻOiai e hoʻomau ʻia nā injections ACTH no kahi o ʻeono pule, e aʻo kāu kauka iā ʻoe pehea e hāʻawi ai i ka injection i kāu pēpē ma ka home.
• ʻO ka prednisolone waha: ​​ʻO kēia lāʻau lapaʻau he ʻano synthetic o kahi hormone corticosteroid i hana ʻia e nā kelepa adrenal. Hana maikaʻi ia e mālama i nā spasms pēpē. Hiki ke hoʻohana ʻia i ka wā paʻakikī ke loaʻa ʻo ACTH.
• ʻO Vigabatrin (`Vigabatrin - Sabril®`): He lāʻau lapaʻau anticonvulsant kēia. Hāʻawi ʻia ia ma ka waha ma ke ʻano he pila a wai paha.

Inā ʻaʻole pane kāu pēpē i kēia mau lāʻau hormonal a i ʻole Vigabatrin, aia kekahi mau koho lapaʻau ʻē aʻe:

• ʻO ka ʻai ketogenic.
• Nā lāʻau lapaʻau anticonvulsant ʻē aʻe.
• Inā he pilikia ma kahi hoʻokahi o ka lolo ke kumu o 'Infantile Spasms' ('focalized lesion'), ua ʻōlelo ʻia ke ʻoki ʻana i ka maʻi epilepsy.

Hiki i nā ʻūpā pēpē ke paʻakikī ke mālama i kekahi manawa. Pono paha kekahi mau keiki e hana hou i kahi papa o ka lāʻau a i ʻole kahi papa ʻelua o ka lāʻau. Ma loko o ka lāʻau, pono paha e nānā ʻia ka hana o ka lolo o ka pēpē ma o nā hoʻokolohua EEG hou e ʻike ai inā e hana ana ka lāʻau.

Inā hiki i ke kauka ke loaʻa ke kumu o ka hoʻoluhi ʻana o ka pēpē, pono lākou e mālama i kēlā kumu inā hiki. Hiki i kēia ke komo pū me ke ʻoki kino a i ʻole ka lāʻau lapaʻau i kuhikuhi ʻia no kahi kūlana genetic a metabolic paha.

He mea maʻamau ka lohi o ka ulu ʻana a me ka regression me nā Infantile Spasms. E hāʻawi ka hui lapaʻau o ka pēpē i nā ʻano lapaʻau e kōkua i ka ulu ʻana e like me ka hiki.

He aha nā hopena ʻaoʻao o ka mālama ʻana i nā spasms pēpē?

Aia kekahi mau hopena ʻaoʻao e hiki ke hana ʻia mai ka mālama ʻana i ka hormone adrenocorticotropic (ACTH):

• Ke koko kiʻekiʻe (Hypertension).
• Ka hoʻonāwaliwali ʻana o ka ʻōnaehana pale kino (`(Immunosuppression)`).
• Ka pehu ʻana (pinepine i ka maka).
• Ka hoʻomaha ʻole a me ka huhū.
• ʻO nā ʻōpū a me/a i ʻole nā ​​​​maʻi ʻōpū.
• Ka hoʻokuʻu ʻana o ka glucose i loko o ka mimi.

Nā hopena ʻaoʻao hiki ke loaʻa mai ka lāʻau ʻo `Vigabatrin`:

• Ka hoʻohaiki hiki ʻole ke hoʻi hou ʻia o ke kahua o ka ʻike.
• Huhū.

Ma muli o kēia mau hopena ʻaoʻao, e kamaʻilio ke kauka o kāu pēpē me ʻoe e hoʻoholo i ke koho lapaʻau maikaʻi loa. E nānā pono lākou i kāu pēpē e ʻike inā loaʻa kēia mau hopena ʻaoʻao.

He aha ka wānana no nā spasms pēpē?

ʻO ka wā e hiki mai ana o kēia kūlana, a i ʻole ka 'prognosis', e hilinaʻi ʻia ana i kekahi mau kumu:

• Ke kumu o ka `(Infantile Spasms)`.
• Inā paha e hiki ke mālama ʻia ke kumu.
• Pehea ka wikiwiki o ka ʻike ʻia ʻana o ke pēpē a me ka hoʻomaka ʻana o ka lāʻau lapaʻau.
• Inā ua hiki ke pēpē i nā pae hoʻomohala ma mua o ka hoʻomaka ʻana o nā hāʻule.

Ma kahi o 50% o nā keiki me nā spasms pēpē e loaʻa paha nā pilikia ulu lōʻihi a me nā pilikia neurological. ʻOiai inā e pau nā spasms, hiki i nā keiki he nui ke loaʻa i nā ʻano ʻē aʻe o nā hopu a me ka maʻi epilepsy.

Eia nō naʻe, inā ʻike koke ʻia a mālama ʻia me ka holomua, hiki ke maikaʻi ka nānā ʻana . Hiki i nā keiki i hoʻokō i nā pae hoʻomohala ma mua o ka hoʻomaka ʻana o nā hopu ʻana ke ulu maʻamau.

Pehea e mālama ai i kaʻu keiki me nā spasms pēpē?

Inā loaʻa i kāu pēpē nā "Infantile Spasms", pono ʻoe e hahai i nā ʻōlelo a ke kauka e kōkua iā ia:

• E hāʻawi i nā lāʻau lapaʻau a pau e like me ke kauoha.
• E nānā i nā loiloi hoʻomohala a me nā lāʻau lapaʻau.
• E hele i nā kipa lapaʻau a pau.

Hiki i nā Spasms pēpē ke hana i nā pilikia noʻonoʻo, neurologic, a/a i ʻole sensory. He nui nā keiki me nā Spasms pēpē i loaʻa nā pilikia ulu a pono paha ke kōkua me nā hana o kēlā me kēia lā i ko lākou ola.

Hiki i ka hui lapaʻau o kāu pēpē ke pane i kāu mau nīnau a hāʻawi iā ʻoe i ke kākoʻo. Hiki paha iā lākou ke kuhikuhi iā ʻoe i nā hui kākoʻo ma kou wahi a i ʻole ma ka pūnaewele.

Āhea wau e ʻike ai i ke kauka o kaʻu keiki e pili ana i nā spasms pēpē?

Inā ua ʻike ʻia kāu keiki me ka Infantile Spasms, pono lākou e ʻike pinepine i kā lākou hui lapaʻau e hōʻoia i ka hana ʻana o ka lāʻau. Pono nō hoʻi lākou e loaʻa i nā hoʻokolohua electroencephalogram (EEG) e nānā i ka hana o ka lolo i ka wā o ka lāʻau.

Inā manaʻo ʻoe he Infantile Spasms kāu pēpē, akā ʻaʻole i ʻike ʻia, he mea nui loa e ʻike koke i ke kauka .

He mea maʻamau ke hopohopo i ka wā ʻaʻole hana maʻamau kāu pēpē a i ʻole ʻaʻole hoʻi e hoʻokō i nā pae hoʻomohala. ʻO ʻoe ka mea ʻike maikaʻi loa i kāu pēpē . Inā manaʻo ʻoe e loaʻa ana i kāu pēpē kahi spasm - kahi manaʻo koke, ʻoʻoleʻa, ʻūlū, pinepine i nā hui - e kamaʻilio me ke kauka i ka wā hikiwawe loa. Inā hiki, e kiʻi i kahi wikiō o ka spasm. Hiki iā ʻoe ke hōʻike iā ia i ke kauka. ʻO ka ʻike mua ʻana i nā "Infantile Spasms" hiki ke alakaʻi i nā hopena maikaʻi aʻe .

Nā mea e pono ai kākou e hoʻomanaʻo mai kēia moʻolelo (Leka Lawe-Home)

ʻAe, eia kekahi mau mea e hoʻomanaʻo ai mai nā mea a mākou i kamaʻilio ai:

• ʻO nā Infantile Spasms kahi ʻano maʻi epilepsy koʻikoʻi e kū mai ana i nā pēpē ma lalo o 12 mau mahina.
• Inā ʻūlū koke a ʻoʻoleʻa kāu pēpē, ʻoiai ma nā puʻupuʻu ma hope o ke ala ʻana , mai hoʻomāmā .
• He ʻokoʻa kēia mai ka reflex puʻupuʻu maʻamau o ka pēpē.
• Inā hiki, e hoʻopaʻa wikiō i nā ʻūmiʻi a hōʻike iā lākou i ke kauka .
• Hiki i ka ʻike mua ʻana a me ka mālama ʻana ke hoʻopilikia nui i ka ulu ʻana o ka pēpē i ka wā e hiki mai ana.
• Inā ʻike ʻoe i kekahi mau loli i ke ʻano o kāu pēpē, ka minoʻaka, a i ʻole ka ulu ʻana, e kamaʻilio pū me kāu kauka e pili ana i kēlā.
• Hiki i kēia ke lilo i mea hoʻoluhi nui no nā mākua ʻelua. No laila, ʻoiai e hahai pono ana i nā ʻōlelo a ke kauka, e kiʻi i ke kākoʻo nou iho. Mai hopohopo, e kōkua nā kauka iā ʻoe.

ʻO nā ʻūpā pēpē, ka maʻi ʻeha, ka ʻūlū ʻana o nā pēpē, nā ʻōhūhū, West Syndrome, ka maʻi ʻeha pēpē, EEG, MRI