Loaʻa iā ʻoe ke ʻeha pinepine o ka ʻōpū mimi? (Interstitial Cystitis/Bladder Pain Syndrome) - E kamaʻilio kākou e pili ana i kēia!

Ke manaʻo pinepine nei ʻoe i ka ʻeha a i ʻole ka ʻoluʻolu ʻole ma kou ʻōpū haʻahaʻa, kahi i loaʻa ai ka ʻōpū mimi? Loaʻa iā ʻoe kahi manawa pōkole, akā pinepine ka mimi ? Inā pēlā, he mea nui paha kēia iā ʻoe. Kāhea mākou i kēia maʻi ʻo "Interstitial Cystitis" a i ʻole "Bladder Pain Syndrome" (BPS) . I ka ʻōlelo maʻalahi, he ʻeha mau kēia a i ʻole ka ʻoluʻolu ʻole i loko o ka ʻōpū mimi.

He aha ka Interstitial Cystitis/Bladder Pain Syndrome (IC/BPS)?

I ka ʻōlelo maʻalahi, ʻo ka cystitis interstitial kahi kūlana kahi o ka "interstitial" i loko o ia mea ke ʻano o kahi mea e hoʻopilikia ai i nā hakahaka ma waena o kā mākou mau ʻiʻo a i ʻole nā ​​​​​​ʻōpū. ʻO "Cystitis" ke ʻano o ka mumū. No laila, ʻo ka mea e hana ʻia ana, aia ka ʻeha e hele mai me kekahi ʻano mumū i loko o nā paia o kou ʻōpū mimi.

Inā loaʻa iā ʻoe ka IC/BPS, pono paha ʻoe e mimi pinepine (pinepine) ma mua o ka maʻamau. Hiki paha iā ʻoe ke manaʻo i ka makemake koke e mimi (wikiwiki) . Ua kapa ʻia hoʻi kēia:

• ʻO ka maʻi ʻeha o ka ʻōpū mimi
• ʻO ka maʻi pinepine-wikiwiki-dysuria
• ʻEha pelvic mau loa

ʻElua ʻano nui o ka IC/BPS.

Ua hoʻokaʻawale nā ​​​​kauka i kēia i ʻelua mau ʻano nui:

1. Ulcerative IC/BPS: Ma kēia, ulu nā ʻeha ʻeha i kapa ʻia ʻo "Hunner's ulcers" ma ka paia o ka ʻōpū mimi. Eia nō naʻe, he mea kakaikahi iki kēia, e pili ana ma waena o 5% a me 10% o ka poʻe me IC/BPS.

2. IC/BPS ʻaʻole ulcerative: ʻO kēia ke ʻano maʻamau. Ma kahi o 90% o ka poʻe me IC/BPS i loaʻa i kēia ʻano. Ma kēia ʻano, ʻike ʻia nā kahe koko liʻiliʻi loa, e like me nā palapū liʻiliʻi (glomerulations) , ma ka paia o ka ʻōpū mimi.

E noʻonoʻo iā ia me he mea lā ua like kou ʻōpū mimi me kahi pōpō liʻiliʻi. E nui aʻe ana ia i ka wā e piha ai i ka mimi , a e liʻiliʻi hou ana ia i ka wā e mimi ai ʻoe. I kēia manawa, me ka IC/BPS, me he mea lā ua hōʻino ʻia ka uhi o loko o kēlā pōpō a lilo ia i mea naʻaupō.

He aha kēia IC/BPS "Stage 4"?

Ua lohe paha ʻoe i ka "Stage 4" IC/BPS. ʻO kēia no ka poʻe i loaʻa nā hōʻailona o IC/BPS no nā makahiki ʻelua a ʻoi. I kēia manawa, lilo ka ʻiʻo o ka ʻōpū mimi i mea paʻa loa, no laila ʻaʻole hiki iā ia ke paʻa i ka nui o ka mimi e like me ma mua. ʻIke pinepine ʻia kēia ʻano i ka poʻe me nā "Hunner's ulcers" i ʻōlelo ʻia ma luna.

Pehea ka maʻamau o kēia ʻano?

ʻOi aku ka maʻamau o ka IC/BPS ma mua o kou manaʻo. Eia kekahi laʻana, ma ʻAmelika Hui Pū ʻIa wale nō:

• Ma waena o 1 a me 4 miliona mau kāne
• Ua manaʻo ʻia e pili ana kēia maʻi ma waena o 3 a me 8 miliona mau wahine.

Hōʻike kēia he mea kēia i ʻike pinepine ʻia i waena o nā wahine, akā hiki nō hoʻi ke ulu i loko o nā kāne.

He aha nā hōʻailona o ka IC/BPS?

Hiki ke ʻokoʻa nā hōʻailona mai kēlā kanaka a kēia kanaka. Hiki i kekahi poʻe ke ʻike i ka ʻoluʻolu iki wale nō, aʻo kekahi poʻe e ʻike i ka ʻeha nui . Eia kekahi, hiki ke loaʻa mau kēia mau hōʻailona, ​​a i ʻole e hele mai a hele aku i kēlā manawa a i kēia manawa.

Eia nā hōʻailona i ʻike pinepine ʻia:

• ʻO ka mumū o ka ʻōpū mimi (cystitis)
• ʻEha ma kou ʻōpū lalo, ʻo ia hoʻi, ma kahi o kou ʻōpū mimi.
• Kaomi a ʻoluʻolu ʻole paha ke piha ka ʻōpū mimi me ka mimi .
• Ka mimi pinepine ʻana a me ka manaʻo koke o ka pono e mimi .
• He kakaikahi loa ka mimi i hoʻokuʻu ʻia i ka wā e mimi ai .

Hiki ke ʻoi aku ka ʻino o kēia mau hōʻailona i kou wā ʻōpiopio , ʻoiai inā he wahine ʻoe.

Pehea kēia manaʻo?

ʻOkoʻa maoli kēia no kēlā me kēia kanaka. Manaʻo paha kekahi poʻe i kahi kaumaha iki a i ʻole ka ʻoluʻolu ʻole ma ko lākou ʻōpū lalo. Manaʻo paha kekahi i kahi ʻeha ʻoi, me he mea lā e ʻomi ana kekahi iā lākou mai loko mai, a i ʻole e hou ana iā lākou me ka pahi. Me kēia, ʻo ka makemake mau e mimi , a me ka pono e mimi hou ma hope o ka puka ʻana o kahi liʻiliʻi, he mea hoʻonāukiuki loa ia.

He aha nā kumu o ka IC/BPS?

ʻO kaʻoiaʻiʻo, ʻaʻole i ʻike nā kauka a me nā mea noiʻi lapaʻau i ke kumu pololei o IC/BPS. Eia nō naʻe, ke manaʻo nei lākou he pili paha ia i kekahi o nā kūlana olakino ma lalo nei:

• Nā maʻi Autoimmune: ʻO ia hoʻi, nā maʻi kahi e hoʻouka ai ka ʻōnaehana pale ponoʻī o ko mākou kino i kā mākou mau cell ponoʻī.
• Nā Allergies: Loaʻa i kekahi poʻe nā allergies i nā mea like ʻole.
• Aia kekahi mau hemahema i loko o ka uhi o kou ʻōpū mimi.
• Maʻi aa koko / vasculopathy .
• Nā mea ʻē i loko o nā "mast cells", kahi ʻano cell e hoʻoulu ai i nā hōʻailona allergies.
• Loaʻa nā mea ʻē i loko o kou mimi . No ka laʻana, ke kiʻekiʻe mau nei o ka protein i loko o ka mimi (proteinuria) .
• Nā maʻi i ʻike ʻole ʻia.

ʻO kekahi a ʻoi aku paha o kēia mau kumu ke kumu o kēia kūlana.

ʻO wai ka mea i hoʻopilikia nui ʻia e kēia kūlana?

Hiki i kekahi ke loaʻa i ka IC/BPS. Eia nō naʻe, ʻoi aku ka nui o kou pilikia o ka loaʻa ʻana o kēia maʻi inā ʻoe:

• Inā he wahine .
• He 30 makahiki a ʻoi pahaInā kekahi.
• Inā ʻeha ʻoe i kahi maʻi ʻē aʻe e hoʻoulu ai i ka ʻeha lōʻihi (e like me ka Irritable Bowel Syndrome, Fibromyalgia).

Pehea e ʻike pololei ai i ka IC/BPS? (Diagnosis)

ʻAʻohe hoʻāʻo kikoʻī e hiki ke haʻi maopopo iā ʻoe inā loaʻa iā ʻoe ka IC/BPS. Eia nō naʻe, e kauoha ke kauka i kekahi mau hoʻāʻo e hōʻoia ʻaʻole ʻoe i loaʻa i nā maʻi ʻē aʻe a i ʻole nā ​​​​kūlana olakino. Hiki i kēia mau hoʻāʻo ke komo pū me:

• Mōʻaukala lapaʻau: E nīnau aku kāu kauka iā ʻoe e pili ana i kāu mau hōʻailona. Hiki ke noi ʻia ʻoe e mālama i kahi puke moʻolelo, me kāu mau hōʻailona, ​​​​nā mea āu e inu ai, ka nui o kāu inu ʻana, a me ka nui o kou mimi . E kōkua kēia i kāu kauka e loaʻa kahi manaʻo maikaʻi aʻe o kou kūlana.
• ʻO ka urinalysis / ka hoʻāʻo mimi: Ke hāʻawi ʻoe i kahi hāpana mimi , e nānā ʻia ma lalo o kahi microscope e nānā i ke koko i loko o ka mimi (hematuria) a me nā hōʻailona o ka maʻi (bacteria, pus, nā keʻokeʻo koko). Inā he maʻi, e kuhikuhi ke kauka i nā antibiotics . Inā ʻaʻohe maʻi i loko o kāu mimi ma hope o ka mālama ʻana, akā hoʻomau kāu mau hōʻailona, ​​​​manaʻo paha kāu kauka iā IC/BPS.
• Biopsy: Pili kēia i ke kau ʻana iā ʻoe ma lalo o ka anesthesia (ʻo ia hoʻi ke hiamoe nei ʻoe) a me ka hoʻohana ʻana i kahi nila lahilahi e lawe i kahi laʻana liʻiliʻi o ka ʻiʻo mai ka paia o ka ʻōpū mimi a me ka urethra. Hana ʻia kēia e hōʻoia ʻaʻohe mau maʻi koʻikoʻi ʻē aʻe, e like me ke kanesa o ka ʻōpū mimi.
• Cystoscopy: Ma kēia kaʻina hana, nānā ke kauka i loko o kou urethra a me ka ʻōpū mimi. Hana ʻia kēia me ka hoʻohana ʻana i kahi ʻōmole lahilahi a palupalu me kahi kāmela a me ke kukui ma kekahi ʻaoʻao (cystoscope) . Hoʻokomo ʻia kēia ma o kou urethra a i loko o kou ʻōpū mimi. ʻAʻole pono ʻoe i ka anesthesia no kēia kaʻina hana. Eia nō naʻe, inā hoʻoholo kāu kauka e pono kahi biopsy me ka cystoscopy, hiki ke hāʻawi ʻia iā ʻoe ka anesthesia.
• ʻO Cystoscopy ma lalo o ka anesthesia me ka hydrodistension: I kekahi manawa hana pū nā kauka i kēia hoʻāʻo. I ka wā o ka cystoscopy, hoʻopiha ʻia ka ʻōpū mimi me ka wai a hoʻonui ʻia i kona nui loa. Hiki i kēia kaʻina hana ke nānā i nā ʻeha a i ʻole nā ​​​​haehae i loko o ka ʻōpū mimi. He ʻeha ia, no laila hana ʻia ma lalo o ka anesthesia. Eia nō naʻe, nui ka poʻe e loaʻa ka hōʻoluʻolu manawa pōkole mai kā lākou mau hōʻailona IC / BPS ma hope o kēia.

Pehea e mālama ʻia ai ʻo IC/BPS?

ʻO ka mea nui, ʻaʻole hiki ke ho'ōla loa ʻia ka IC/BPS. Eia nō naʻe, he nui nā lāʻau lapaʻau i loaʻa. ʻO ka pahuhopu nui o ka lāʻau lapaʻau, ʻo ia ke kāohi i kāu mau hōʻailona a hāʻawi iā ʻoe i ka hōʻoluʻolu.E kamaʻilio ke kauka me ʻoe a hoʻoholo i ka lāʻau lapaʻau kūpono loa iā ʻoe. I kekahi manawa hiki ke hoʻohana ʻia ka hui pū ʻana o nā lāʻau lapaʻau.

ʻAʻole hiki i nā kauka ke wānana pehea ʻoe e pane ai i kekahi lāʻau lapaʻau. No laila, pono paha ʻoe e hoʻāʻo i nā lāʻau lapaʻau like ʻole a ʻike pehea e pane ai kou kino. Hiki ke nalo loa kāu mau hōʻailona, ​​a i ʻole e ʻoi aku ka ʻino. Inā nalo kāu mau hōʻailona, ​​hiki ke hoʻi hou mai ma hope.

Hiki i nā lāʻau lapaʻau IC/BPS ke komo pū me:

Nā loli i kāu ʻai

Wahi a kekahi poʻe me IC/BPS, hoʻoulu kekahi mau meaʻai a me nā mea inu i kā lākou mau hōʻailona. No laila, he mea nui e mālama i kahi puke moʻolelo meaʻai o nā mea āu e ʻai ai a inu ai i ka lā a pau, a me ka nui o kāu meaʻai a inu ai. Ma ka hoʻopaʻa ʻana i nā mea āu i ʻai ai a inu ai ma mua o ka hoʻomaka ʻana o kāu mau hōʻailona, ​​a i ʻole ma mua o ka hoʻomaka ʻana o ka maʻi, hiki iā ʻoe ke ʻike a pale i nā meaʻai e hoʻoulu ai i kāu mau hōʻailona.

Inā ʻike ʻoe he mea ʻino loa kāu mau hōʻailona i nā meaʻai a me nā mea inu ʻawaʻawa (e like me nā hua citrus e like me nā lemona a me nā ʻalani, nā pepa chili, nā mea inu kalapona, nā tōmato), hiki i kāu kauka ke ʻōlelo aku e lawe ʻoe i kahi antacid me kāu mau meaʻai. Hana nā antacids ma ka hoʻemi ʻana i ka nui o ka waikawa i loko o kou mimi .

He aha nā meaʻai a me nā mea inu e hiki ke hoʻopilikia inā loaʻa iā ʻoe ka IC/BPS?

Eia nā meaʻai a me nā mea inu e hiki ke hoʻonui i nā hōʻailona IC/BPS:

• ʻAila
• Nā mea ʻono hana
• Kafeina (loaʻa i loko o ke kī a me ke kofe)
• Nā mea inu kalapona (e like me ka soda)
• Kokoleka
• Nā tōmato
• nā wai huaʻai (ʻoi aku ka poʻe me ka acidity kiʻekiʻe)

Hiki paha i ke kauka ke kuhikuhi iā ʻoe i kahi meaʻai meaʻai e hiki ke kōkua iā ʻoe e hoʻomohala i ka meaʻai maikaʻi loa e hōʻemi i kāu mau hōʻailona IC / BPS.

Hana kino

Hiki i ka hoʻoikaika kino a me ka hana kino ke kōkua i ka hōʻoluʻolu ʻana i nā hōʻailona o IC/BPS. ʻO kēia mau mea:

• Ka hele wāwae
• Ka paikikala ʻana
• Hoʻolōʻihi mālie a i ʻole yoga

Hoʻemi i ke kaumaha

Hiki i ke kaumaha ke hoʻoulu i ka hoʻāla ʻana o nā hōʻailona IC/BPS. No laila, ʻo ke aʻo ʻana e ʻike a mālama i ke kaumaha hiki ke kōkua i ka hōʻemi ʻana i kāu mau hōʻailona. ʻO ke kamaʻilio ʻana me kahi kākāʻōlelo olakino noʻonoʻo (psychotherapy) hiki ke kōkua i ka hōʻemi ʻana i ke kaumaha.

Hoʻōla kino

ʻO kou mau ʻiʻo papahele pelvic ka mea e hoʻopaʻa ai i kou ʻōpū mimi a kōkua iā ʻoe e kāohi i kou mimi . Hoʻoikaika i kēia mau ʻiʻo (nā hoʻomaʻamaʻa Kegel), ke kīkoʻo ʻana, a me ka hoʻomaha ʻana e hiki ke kōkua i ka hōʻoluʻolu ʻana i nā hōʻailona o ka interstitial cystitis/bladder pain syndrome. Hiki i ke kauka ke kōkua i ka hōʻoia ʻana e hana pololei ana ʻoe i kēia mau hoʻomaʻamaʻa. Hana pū ka poʻe he nui me kahi mea hoʻoponopono kino papahele pelvic e aʻo pehea e hoʻomaha pono ai i kēia mau ʻiʻo.

Hoʻomaʻamaʻa hou ʻana o ka ʻōpū mimi

Ke loaʻa iā ʻoe ka ʻeha o ka ʻōpū mimi, he mea maʻalahi ke komo i ka maʻa o ka hele ʻana i ka lua i ka wā e ʻike ai ʻoe i ka ʻeha a i ʻole ka pono wikiwiki e mimi, ʻoiai inā ʻaʻole i piha loa kou ʻōpū mimi. E kōkua kēia i kou kino e maʻa i ka hele pinepine ʻana i ka lua. ʻO ke aʻo hou ʻana i ka ʻōpū mimi e pili ana i ka hoʻomaʻamaʻa ʻana iā ʻoe e paʻa i kāu mimi no ka manawa lōʻihi a me ka uhaki ʻana i kēia maʻa.

I mea e maʻa ai i kēia, e mālama i kahi puke moʻolelo no ka pinepine o kou mimi ʻana a me ka pinepine o kou manaʻo e pono ai e mimi . Me ka hoʻohana ʻana i kāu puke moʻolelo, e hoʻāʻo e hoʻonui mālie i ka manawa ma waena o nā hele ʻana i ka lumipaku.

Nā lāʻau lapaʻau waha

Hiki i nā lāʻau lapaʻau waha ma lalo nei ke kōkua i ka mālama ʻana i nā hōʻailona IC/BPS:

• Nā lāʻau lapaʻau puʻuwai: Hiki i nā antacids ma luna o ka counter (e.g., Tums®, Rolaids®) ke kōkua i ka hoʻemi ʻana i ka nui o ka waikawa i loko o kou kino a hoʻemi i nā hōʻailona.
• Nā Lāʻau Hoʻēmi i ka Manaʻo: Hiki i nā haʻahaʻa haʻahaʻa o kahi antidepressant tricyclic e like me ka amitriptyline (Elavil®) ke kōkua i ka hōʻemi ʻana i ka ʻeha a me ka mimi pinepine ʻana.
• Hydroxyzine: Hiki i kahi kemika i kapa ʻia ʻo histamine ke hana i nā hōʻailona o IC/BPS. He ʻano antihistamine ʻo Hydroxyzine. Kōkua ia i ka wehe ʻana i ka histamine mai kou ʻōpū mimi.

Nā hoʻokomo ʻana o ka ʻōpū mimi

Ma kēia kaʻina hana, hoʻokomo ke kauka i kahi paipu palaki lahilahi (catheter) i loko o kou urethra a hoʻokomo i loko o kou ʻōpū mimi. A laila, ma o ka paipu, ua hoʻopiha ʻia kou ʻōpū mimi me ka hui ʻana o kekahi mau lāʻau lapaʻau, me ka dimethyl sulfoxide (DMSO) , kahi steroid, a me kahi lāʻau hoʻomāʻū. He lāʻau wai ka DMSO e kōkua ana i ka hōʻoluʻolu i nā hōʻailona.

Hydrodistension - ma ke ʻano he lāʻau lapaʻau

E hoʻopiha ke kauka i kou ʻōpū mimi me ka wai maʻemaʻe a hoʻolōʻihi iā ia. E kōkua kēia i ka ʻōpū mimi e paʻa i ka mimi hou aku.Hoʻonui ka nui. Eia kekahi, hiki i ka hydrodistension ke hōʻoluʻolu a luku paha i nā hopena aʻalolo overactive e haʻi aku i kou lolo he ʻeha kou ʻōpū mimi. Hāʻawi ʻia ʻoe i ka anesthesia i ka wā hydrodistension, no laila ke hiamoe nei ʻoe, no laila ʻaʻole ʻoe e ʻeha i ka wā o ke kaʻina hana.

Hoʻoulu ʻana i ke aʻalolo

Hoʻoponopono ka lāʻau lapaʻau neuromodulation i ka hana o kāu ʻōpū mimi, e hōʻemi ana i ka makemake e mimi a me ka mimi pinepine. Hoʻohana ia i ka hoʻoulu uila e hoʻoulu i kou mau aʻalolo a hana i kahi pane. I kekahi manawa hiki iā ia ke kōkua i ka hōʻemi ʻana i ka ʻeha ma kou ʻōpū mimi a me ka ʻōpū.

Nā inikini toxin botulinum

Hoʻokomo ke kauka i ka Botulinum toxin (Botox®) i loko o kou ʻiʻo mimi ma o kahi cystoscope. Hoʻopaʻa kahi liʻiliʻi o Botox i ka ʻiʻo a hōʻoluʻolu i ka ʻeha. Eia nō naʻe, pono paha ʻoe e loaʻa nā inikini Botox i kēlā me kēia ʻehā a ʻeiwa mahina.

ʻoki kino

Inā loaʻa iā ʻoe nā hōʻailona IC/BPS koʻikoʻi loa a ʻaʻole ʻoe e pane i nā lāʻau ʻē aʻe, hiki i kāu kauka ke ʻōlelo aku i ke ʻoki kino. Pili kēia i ka wehe ʻana i kahi hapa a i ʻole kou ʻōpū mimi āpau (cystectomy) . Akā hana ʻia kēia ma ke ʻano he koho hope loa.

Nā manaʻo ʻē aʻe

Ma waho aʻe o ka mālama ʻana i kou ʻōpū mimi a me ka papahele pelvic, e noʻonoʻo pū kekahi kauka i nā kūlana ʻē aʻe e hiki ai ke hoʻoulu i kou ʻeha. Eia kekahi laʻana:

• Nā kaulike ʻole o ka hormonal
• ʻO ka Endometriosis (ka ulu ʻana o nā ʻiʻo uterine ma waho o ka uterus)
• Nā pilikia e hoʻopilikia ai i kou ʻōpū liʻiliʻi a nui paha

E ho'ōla loa ʻia anei ka interstitial cystitis/bladder pain syndrome?

He mea paʻakikī ke ʻōlelo aku. ʻO ka hapa nui o ka poʻe me ka interstitial cystitis/bladder pain syndrome e pono e mālama ʻia no ke koena o ko lākou ola. Inā ʻaʻole lākou e loaʻa i ka lāʻau lapaʻau, hiki ke hoʻi hou mai kā lākou mau hōʻailona. Hiki iā lākou ke loaʻa i nā hōʻailona e hoʻāla hou ana ʻoiai lākou e lawe nei i kā lākou lāʻau IC/BPS.

Eia nō naʻe, pane maikaʻi kekahi poʻe i ka lāʻau lapaʻau. E emi mālie ana ko lākou mau hōʻailona, ​​a i kekahi manawa nalo loa aku.

Aia kekahi ala e hoʻopau koke ai i ka IC/BPS?

ʻO ka mea maikaʻi loa e hana ai, ʻo ia ke ʻike koke i ke kauka . Hiki iā ia ke haʻi iā ʻoe i nā lāʻau lapaʻau e hāʻawi i ka hōʻoluʻolu wikiwiki loa mai kāu mau hōʻailona IC/BPS. He mea naʻauao ke ʻimi i ka ʻōlelo aʻoaʻo lapaʻau ma mua o ka hana wale ʻana i kāu mea e makemake ai e hana.

ʻEhia ka manawa e ʻoi aku ai koʻu maikaʻi ma hope o ka lāʻau lapaʻau?

Hiki ke hala kekahi mau pule a i ʻole mau mahina no ka hoʻomaka ʻana o kāu mau hōʻailona e hoʻomaikaʻi ma hope o ka mālama ʻana iā IC/BPS. He mea nui e hoʻomanawanui i kāu mālama ʻana.

Hiki ke pale ʻia ka ulu ʻana o IC/BPS?

ʻAʻole maopopo loa i nā kauka a me nā mea noiʻi lapaʻau pehea e hōʻemi ai i ka pilikia o ka hoʻomohala ʻana i ka interstitial cystitis/bladder pain syndrome a i ʻole pehea e pale ai i nā hōʻailona mai ka hoʻi hou ʻana mai. Eia nō naʻe, hiki iā ʻoe ke hana i kēia mau mea e kōkua ai i ka pale ʻana i nā flare-up:

• E mālama i kahi puke moʻolelo meaʻai, e ʻike i nā meaʻai e hoʻopilikia ai iā ʻoe, a e pale aku iā lākou.
• Ke hoʻomau nei i kāu lāʻau lapaʻau ʻoiai inā nalowale kāu mau hōʻailona.
• Ke hoʻāʻo nei e hōʻemi i ke kaumaha i kou ola.

He aha kaʻu e manaʻo ai inā loaʻa iaʻu ka IC/BPS?

No nā kānaka he nui, he maʻi lōʻihi ka interstitial cystitis/bladder pain syndrome. Hiki ke akahai a koʻikoʻi paha kāu mau hōʻailona. Hiki ke ʻike pinepine ʻia a mau paha.

He mea nui e kamaʻilio me ke kauka e hoʻoholo i kou kūlana a me nā koho lapaʻau maikaʻi loa.

He aha ke kūlana ola o kekahi me IC/BPS?

ʻAʻole ia he maʻi hoʻoweliweli i ke ola ka interstitial cystitis/bladder pain syndrome. ʻAʻole ia e hoʻoulu i ka maʻi ʻaʻai ʻōpū a i ʻole e hoʻopilikia i kou ola. Eia nō naʻe, hiki iā ia ke hoʻopilikia i kou ʻano ola.

Pehea wau e mālama ai iaʻu iho inā loaʻa iaʻu ka IC/BPS?

Hiki i kēia mau mea ke kōkua i ka hōʻemi ʻana i ka lōʻihi a me ke koʻikoʻi o kāu mau hōʻailona interstitial cystitis/bladder pain syndrome:

• I ka wā e ʻike koke ai ʻoe i ka piʻi ʻana o nā hōʻailona (flare-up), e lawe i ka lāʻau lapaʻau e kōkua i ka hōʻemi ʻana i kāu mau hōʻailona.
• E inu i ka wai nui e hoʻokahe i kou mimi .
• E hōʻalo i nā meaʻai a me nā mea inu e hoʻonui ai i nā hōʻailona.
• E kau i kahi ʻeke hau a i ʻole kahi ʻāpana hoʻomehana ma kou ʻōpū a i ʻole ka ʻāpana ma waena o kou mau ʻōpū a me ka anus (perineum) .
• E noho i loko o kahi pola wai mehana (ʻauʻau sitz) .
• E hoʻāʻo i kekahi mau kūlana yoga e kōkua i ka hoʻomaha ʻana i kou mau ʻiʻo papahele pelvic. No ka laʻana, hiki iā ʻoe ke kūlou i lalo me kou mau wāwae ākea ("goddess squat"), a moe paha ma kou kua me kou mau kuli i huki ʻia i kou umauma, ua hoʻohuli ʻia kou mau wāwae, a ua hoʻopaʻa ʻia ke kua o kou mau wāwae ("happy baby").
• E hoʻāʻo i nā hana hoʻomaha, e like me nā hana hanu hohonu, ka noʻonoʻo ʻana, a i ʻole ka loaʻa ʻana o ka lomilomi.
• E pale i ke komo ʻana i nā lole paʻa (e laʻa me nā lole paʻa, nā tights, nā kāʻei) e hoʻopaʻa ana i kou ʻōpū.
• Inā hoʻonui ka moekolohe i nā hōʻailona, ​​​​e lawe i nā analgesics ma mua o ka moekolohe a hoʻohana i nā lubricants e hōʻemi i ka ʻoluʻolu ʻole.

Āhea wau e ʻike ai i ke kauka?

Inā loaʻa iā ʻoe nā hōʻailona o ka interstitial cystitis/bladder pain syndrome, e hoʻonohonoho i kahi manawa e ʻike koke ai i ke kauka . E kauoha ke kauka i nā hoʻokolohua e hōʻoia ʻaʻole ʻoe i loaʻa i kahi maʻi a i ʻole nā ​​​​​​kūlana ʻē aʻe e hiki ke hoʻoulu i kāu mau hōʻailona IC/BPS. Hiki iā ia ke kuhikuhi i ka lāʻau lapaʻau a hāʻawi iā ʻoe i ka ʻōlelo aʻo.

Āhea wau e hele ai i ka Emergency Treatment Unit (ETU) ?

Inā koʻikoʻi loa kou mau hōʻailona, ​​a inā ʻaʻole lākou e hoʻomaikaʻi ma hope o ka mālama ʻana, e hele i ka lumi pilikia kokoke loa .

He aha nā nīnau e pono iaʻu e nīnau aku i ke kauka?

He mea kōkua paha ke nīnau aku i kāu kauka i kēia mau nīnau:

• Pehea ʻoe e ʻike ai inā loaʻa iaʻu ka interstitial cystitis/bladder pain syndrome?
• Inā ʻaʻohe oʻu interstitial cystitis/bladder pain syndrome, he aha ke ʻano ʻē aʻe e loaʻa iaʻu?
• He aha ke ʻano o nā hoʻokolohua āu e hana ai e hōʻoia i kāu hopena?
• He aha ka lāʻau lapaʻau āu e paipai nei?
• Aia kekahi mau hopena ʻaoʻao i ka lāʻau āu e ʻōlelo nei?
• Ke paipai nei ʻoe i hoʻokahi koho lapaʻau a i ʻole ka hui pū ʻana o kekahi mau lāʻau lapaʻau?
• He aha ka papa inoa piha o nā meaʻai a me nā mea inu e pono iaʻu ke hōʻalo?
• He aha nā loli o ke ʻano o ka nohona e hiki ke kōkua i ka mālama ʻana i kaʻu mau hōʻailona?
• Pono anei au e ʻike i kahi meaʻai meaʻai, kahi urologist, a i ʻole kekahi loea ʻē aʻe?

He aha ka ʻokoʻa ma waena o ka interstitial cystitis/bladder pain syndrome a me ka maʻi urinary tract (UTI)?

I kekahi manawa, huikau ka poʻe i ka interstitial cystitis/bladder pain syndrome me ka maʻi urinary tract (UTI) . Akā, ʻaʻole like ka IC/BPS a me ka UTI. Hoʻokumu ʻia nā UTI e nā germs (ʻo ka hapa nui o nā bacteria, ʻoi aku hoʻi ʻo E. coli ). ʻAʻole maopopo i nā kauka ke kumu o ka IC/BPS. Eia nō naʻe, ʻo nā kūlana olakino e pili ana paha i ka IC/BPS e komo pū me nā maʻi autoimmune, nā allergies, a me nā pilikia me kou mau kīʻaha koko.

ʻO ka mea hope loa, nā mea e hoʻomanaʻo ai (Leka Lawe-Home)

ʻO ka interstitial cystitis/bladder pain syndrome (IC/BPS) he maʻi maʻamau a lōʻihi hoʻi e hoʻoulu ai i ka mumū a me ka ʻoluʻolu ʻole i loko o kou ʻōpū mimi. Hiki iā ia ke hoʻopilikia i kāu mau ʻano mimi - pono paha ʻoe e mimi i nā manawa he nui i ka lā, a i ka wā e pono ai ʻoe e mimi , hiki ke lilo i mea wikiwiki.

Hiki i ka ʻeha, ka ʻoluʻolu ʻole, a me nā pilikia mimi ke hoʻohilahila a makaʻu iā ʻoe. Eia nō naʻe, inā loaʻa iā ʻoe nā hōʻailona o IC/BPS , mai hilahila e kamaʻilio me ke kauka. Hiki iā ia ke holo i nā hoʻokolohua e hōʻoia ʻaʻohe ou mau kūlana ʻē aʻe. Hiki iā ia ke hana pū me ʻoe e hoʻomohala i ka hoʻolālā lapaʻau kūpono loa e hiki ke hōʻemi i ka lōʻihi a me ke koʻikoʻi o kāu mau ʻōhū a hoʻomaikaʻi i kou ʻano ola.ʻAʻole ʻoe hoʻokahi, aia ke kōkua no kēia.

ʻEha ʻōpū mimi , Cystitis Interstitial, ʻEha ʻōpū mimi, Mimi pinepine, Maʻi ʻaʻai mimi, Nā ʻeha ʻōpū mimi, IC/BPS, Ola Sinhala