Ua ʻike ʻia anei ʻoe me ka ankylosing spondylitis? A i ʻole ua noho pū ʻoe me ia no ka manawa lōʻihi? Eia nō naʻe, ua ʻike maopopo paha ʻoe i nā pilikia, ka ʻeha, a me ka ʻoluʻolu ʻole o ke ola ʻana me kēia maʻi. Manaʻo paha ʻoe ʻo wau wale nō ka mea ma ka honua i loaʻa iā ia. No ka mea, he maʻi maʻamau ʻole ia a ʻaʻole i ʻike ʻia, he kakaikahi ka poʻe e hiki ke hoʻomaopopo maoli i kāu mea e hele nei.
He aha maoli ka Ankylosing Spondylitis?
I ka ʻōlelo maʻalahi, he mumū lōʻihi kēia o nā hono e hoʻopilikia nui ana i ka iwi kuamoʻo. I ka pololei, he ʻano arthritis kēia. I kā mākou ʻōlelo, kapa mākou ia he "ʻeha hui." I kēia kūlana, pehu nā hono liʻiliʻi o ka iwi kuamoʻo, ʻeha, a i ka hala ʻana o ka manawa, hui pū lākou, e hōʻemi ana i ka palupalu o ka iwi kuamoʻo. ʻO ia ke kumu e hoʻomaka ai ʻoe i ka lā me ka ʻoʻoleʻa ma ke kua i ke kakahiaka. ʻAʻole kēia i kaupalena ʻia i ka iwi kuamoʻo, akā i kekahi manawa hiki ke hoʻopilikia i nā hono ʻē aʻe e like me nā pūhaka, nā poʻohiwi, a me nā kuli.
ʻO kekahi o nā pilikia nui e hele mai me kēia maʻi, ʻo ia ka ʻeha kino a me ka mehameha naʻau. ʻO ka manaʻo o "ʻO wau wale nō ka mea i ʻike i kēia" hiki ke hoʻoluhi nui ʻia.
Nā pilikia o ke ola ʻana me kēia maʻi
Inā ʻoe e haʻi aku i kahi hoaaloha a ʻohana paha, "He ʻeha koʻu kua," manaʻo paha lākou he mea maʻamau ia, he ʻeha maʻalahi e hele mai me ka hoʻoikaika iki ʻana. Akā, paʻakikī paha iā lākou ke hoʻomaopopo i ka ʻeha mau , ka ʻoʻoleʻa o ka lā a pau , a me ka luhi nui e hele mai me ka ankylosing spondylitis.
- Nā hana ma kahi hana a me nā hana o kēlā me kēia lā: I kekahi manawa, hiki ke paʻakikī ke ala aʻe mai kahi moe. ʻO ka hana maʻamau ma kahi noho keʻena, ka hoʻokele kaʻa, a i ʻole ka hana ʻana i nā hana o ka hale i kēlā me kēia lā, he mea paʻakikī ia.
- Nā pilina pilikanaka: Ke ʻeha mau ʻoe a luhi, nalowale kou hoihoi i ka hele ʻana me nā hoaaloha a i ʻole ka hele ʻana i nā hanana. Hiki i kēia ke alakaʻi iā ʻoe e haʻalele mālie i ke kaiāulu.
- Ka hopena noʻonoʻo: Hiki i kēia mau mea āpau ke alakaʻi i ke kaumaha, ka hopohopo, a i kekahi manawa ke kaumaha.
Akā ʻo ka mea nui loa hiki iaʻu ke haʻi aku iā ʻoe, ʻaʻole ʻoe hoʻokahi . He miliona mau kānaka a puni ka honua e ʻeha nei i kēia maʻi e like me ʻoe, hiki ke hoʻomaopopo i kou ʻike. A he nui nā kumuwaiwai e hiki ke kōkua iā ʻoe, hāʻawi iā ʻoe i ka ʻike, a kākoʻo iā ʻoe.
Ma hea ʻoe e loaʻa ai ke kākoʻo a me ka ʻike
ʻOiai he nui o kēia mau hui haole, hiki iā ʻoe ke komo i ka ʻike a me nā hui kākoʻo ma ka pūnaewele, hiki ke lilo i mea kōkua nui i ka mālama ʻana i kou kūlana.
| ʻAhahui / Kumuwaiwai | Ka mea hiki iā ʻoe ke loaʻa |
|---|---|
| Ka Papahana ʻAʻai o ka ʻAʻai | He hui waiwai ʻole kēia e kākoʻo ana i ka ʻike a me ka noiʻi ʻana i ka maʻi ʻaʻai. Loaʻa i kā lākou pūnaewele ka ʻike kikoʻī e pili ana i ka ankylosing spondylitis. |
| Ola ʻAe! Pūnaewele ʻArthritis | ʻO kēia ka ʻaha kūkā pūnaewele ponoʻī o ka Arthritis Foundation. He wahi maikaʻi loa ia e launa pū me nā poʻe ʻē aʻe e noho nei me nā kūlana e like me ʻoe, e kaʻana like i nā ʻike, a e hoʻololi i nā manaʻo e pili ana i nā lāʻau lapaʻau. |
| ʻAhahui Spondylitis o ʻAmelika (SAA) | Hāʻawi kēia hui i ka nui o ka ʻike, ʻoi aku hoʻi e pili ana i ka ankylosing spondylitis a me nā kūlana pili. Hiki iā ʻoe ke aʻo nui e pili ana i ke ʻano o ka mālama ʻana i ka maʻi, ka hoʻoikaika kino, a me ka ʻai. |
| ʻAhahui Lahui o ka Arthritis a me nā Musculoskeletal a me nā Maʻi ʻIli (NIAMS) | He ʻāpana o ka US National Institutes of Health, aia kēia pūnaewele i kahi ʻāpana ʻokoʻa i hoʻolaʻa ʻia no ka ʻike pololei a hilinaʻi hoʻi e pili ana i ka ankylosing spondylitis. |
| ʻAhahui Spondylitis Kanada: Kāu mau moʻolelo | He kaiāulu pūnaewele kēia. Maanei hiki iā ʻoe ke kaʻana like i kāu moʻolelo, a me ka heluhelu ʻana i nā ʻike o nā poʻe ʻē aʻe e noho nei me kēia maʻi. I kekahi manawa, ʻo ka heluhelu ʻana i ka ʻike o kekahi hiki ke lilo i kumu ikaika nui. |
Pehea e hoʻohana ai i kēia mau kumuwaiwai?
ʻOiai aia kēia mau pūnaewele ma ka ʻōlelo Pelekania, hiki iā ʻoe ke hoʻohana i kahi mea hana e like me Google Translate e unuhi i ka ʻike i ka ʻōlelo Sinhala a heluhelu iā ia. ʻO ka mea nui loa, ʻo ia ke komo ʻana i nā kaiāulu/nā ʻaha kūkā pūnaewele i loaʻa ma kēia mau pūnaewele.
- E heluhelu i nā moʻolelo a haʻi: ʻO ka heluhelu ʻana e pili ana i ke ʻano o ka poʻe e like me ʻoe e kū nei i kēia pilikia e kōkua iā ʻoe e emi iho ka noho mehameha.
- E nīnau i nā nīnau: He mau wahi maikaʻi kēia e nīnau ai i nā nīnau e pili ana i kou manaʻo a loaʻa ka ʻōlelo aʻo mai nā poʻe ʻē aʻe.
- E aʻo i ka ʻike hou: Kōkua kēia iā ʻoe e noho hoʻomaopopo e pili ana i nā lāʻau lapaʻau hou, nā noiʻi, a me nā ala hou e mālama ai i ka maʻi.
He mea nui loa: ʻOiai hiki i kēia mau kumuwaiwai ke lilo i kumu nui o ka ʻike a me ke kākoʻo, pono ʻoe e kūkākūkā mau me kāu kauka ma mua o ka ʻimi ʻana i ka ʻōlelo aʻoaʻo lapaʻau a i ʻole ka hana ʻana i kekahi hoʻololi i kāu lāʻau lapaʻau . ʻAʻole pani kēia mau pūnaewele i ka ʻōlelo aʻoaʻo lapaʻau.
ʻAʻole pono ʻoe e hele wale ma kēia huakaʻi. Me ka ʻike kūpono a me ke kākoʻo, hiki iā ʻoe ke hoʻokele i kou maʻi ankylosing spondylitis, hōʻemi i ka ʻeha, a ola i kahi ola hana.
Leka Lawe-Home
- He maʻi ʻāʻī lōʻihi ka Ankylosing spondylitis e hoʻopilikia ana i ka iwi kuamoʻo. Ma waho aʻe o ka ʻeha kino, he ʻāpana nui ia o ka mehameha naʻau.
- ʻAʻole ʻoe hoʻokahi i ke alo ʻana i kēia pilikia. Aia kahi kaiāulu nui a me nā kumuwaiwai a puni ka honua e hiki ke kākoʻo iā ʻoe.
- Hiki iā ʻoe ke loaʻa ka ʻike hilinaʻi a me nā hui kākoʻo pūnaewele ma o nā pūnaewele o nā hui e like me ka Arthritis Foundation a me ka Spondylitis Association of America.
- ʻO ka heluhelu ʻana i nā ʻike o haʻi a me ka kaʻana like ʻana i kāu iho hiki ke hāʻawi iā ʻoe i ka ikaika noʻonoʻo nui.
- No ka ʻike wale nō kēia mau kumuwaiwai. E ʻoluʻolu e hana i kāu mau lāʻau lapaʻau, nā lāʻau lapaʻau, a me nā hoʻoholo lapaʻau ma lalo o ke alakaʻi a kāu kauka wale nō.
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